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教育王國 討論區 自閉寶寶 低功能自閉症=腦葉酸缺乏症
樓主: Kyle
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低功能自閉症=腦葉酸缺乏症   [複製鏈接]

Rank: 4


921
5561#
發表於 17-3-8 16:26 |只看該作者
Hulk2011 發表於 17-3-8 13:30
Hi, thank you so much Kyle for sharing all the great information - this is the only thread at BBking ...

Hello hulk

Can u pm me which dr u see for biomedical treatment and where can have the test?

Your son has any attention issues? Thx

Rank: 4


921
5562#
發表於 17-3-8 17:40 |只看該作者
Hulk2011 發表於 17-3-8 13:30
Hi, thank you so much Kyle for sharing all the great information - this is the only thread at BBking ...

Looking forward to ur sharing
Can u share more about gaps diet too!!!

Rank: 3Rank: 3


102
5563#
發表於 17-3-8 19:15 |只看該作者
We see Dr T in Wanchai.  I think we don't have any choice in Hong Kong.  For our case Dr T has helped a lot already with the tests we did with him.  I know some people seek famous DAN! doctors in the US.  We didn't go for that route because first we can't really afford it, second, the extent to which children can recover do not dependent much on "doctors" but the reasons causing the children having autism in the first place, if parents have identified the right treatments and how responsive the children are to these treatments.  I know friends of mine flying to the US to see Dr. S Baker several times a year, their son's has improved but still remain on the severe side on the spectrum.  

My son has attention issue, he can "space out" sometime in classes, but can remain attentive most of the time.  My son doesn't exhibit AD/HD symptoms.  A lot of attention issues are related to sensory issues - so addressing the sensory issues will help.

For GAPS diet - see Dr. Campbell's book below and search on web.  But this is not a diet for the long term (too much protein may cause ammonia issue).  My son has been on for 9 months, I need to start gradually introducing rice to him as I feel his gut has mostly been healed and he is on a growth spur so having no carb in his diet at all makes him getting hungry very quickly.

For those who want to know more about biomedical treatments, here is a good, simple summary: https://www.autism.com/pdf/providers/adams_biomed_summary.pdf

I have read some books that have been recommended for biomedical treatments for Autism, and found the followings very helpful:
Epidemics: Autism, ADHD, Asthma, and Allergies : Dr Kenneth Bock
Children with starving brains: J. McCandless
The autism revolution: Martha Herbert
Autism : Have We Done Everything We Can for This Child?: Effective Biomedical Treatments: S Baker


Books on Diet:
Gut and Psychology Syndrome by N. Campbell-McBride
Nourishing Hope for Autism
The Kid-friendly ADHD&Autism cookbook


I also read stuff from Amy Yasko (they are free e-books available online) - it is useful to do a 23andme genetic test and go to one of her websites that can convert the results and her website can generate a long list of supplements based on your child genetics.  For my son's case, we don't follow 100% her recommendations.  Many of her suggested supplements overlapped in terms of ingredients, and I believe if I gave my son everything she recommended on her list then some maybe overdose (which happened to my son on lithium and molybdenum).  


For supplements, the brand, dosage, timing giving the child, the mix of supplements, all impact the effectiveness of the treatments.   


Autistic children usually have one or more issues with the following so biomedical treatments really aim to address them one by one:
Leaky Gut
Brain inflammation
Impaired Methylation cycle
Immune system dysfunction
Mitochondrial dysfunction
Oxidative stress
Inability to produce glutathione and detox properly


For my son, he has issues with the top three in the list, but things have improved with biomedical treatments.


There are the websites that I visit frequently to see other people's experience:
http://www.biomedheals.com/
https://healingautismandadhd.wordpress.com/
http://recoveringnicholas.com/










Rank: 3Rank: 3


102
5564#
發表於 17-3-8 19:48 |只看該作者
Just to add, I did what Kyle had recommended in terms of changing all household tools to "non-toxic" and household products to "natural" brands (Thanks Kyle - you really inspire me in terms of how much we can do and how far we can go for the sake of our children!).  

Before my son tries any new supplements, I also search the discussion forums on autismweb and phoenixrising.me to see potential side effects and how people generally respond to the supplements.    Often, I see mixed responses - someone who say their children doing marvelous on one thing, while there are other parents saying how bad their children reacted to the same supplements.  So there isn't really "magic bullets" for autism in general, but what is right for your children.  

It also takes time to learn to observe your children's reaction.  For some supplements, it may not give your children immediate effect, some supplements require high enough dosage for a sustained period of time to show its effectiveness on your children.  


Rank: 4


921
5565#
發表於 17-3-8 20:10 |只看該作者
Hulk2011 發表於 17-3-8 19:15
We see Dr T in Wanchai.  I think we don't have any choice in Hong Kong.  For our case Dr T has helpe ...

Thanks a lot for ur sharing

Rank: 5Rank: 5


1678
5566#
發表於 17-3-18 11:54 |只看該作者
回覆 yl88 的帖子

其實我見大家好多都係食cod liver oil, 唔係fish oil, 所以我都有啲疑惑
我睇好多報導都係話唔好食咁多cod liver oil, 要食fish oil

Rank: 3Rank: 3


287
5567#
發表於 17-3-30 14:58 |只看該作者
apple~y 發表於 13-2-22 13:23
回復 Kyle 的帖子

大家都係同路人,都為自己小朋友附出很多
請問張醫師係邊黎架?

Rank: 4


740
5568#
發表於 17-4-3 22:31 |只看該作者
maomaochoi 發表於 17-3-18 11:54
回覆 yl88 的帖子

其實我見大家好多都係食cod liver oil, 唔係fish oil, 所以我都有啲疑惑

所以我都想知(emoji)

Rank: 4


740
5569#
發表於 17-4-7 21:00 |只看該作者
粒粒芝士 發表於 17-3-30 14:58
請問張醫師係邊黎架?

張雅x

Rank: 4


950
5570#
發表於 17-4-11 15:08 |只看該作者
Kyle 發表於 16-12-6 23:48
Oh, Sorry.

香港得一兩間公司有此服務, 網上打"電磁波"一摷就摷到.  連料包安裝是料價的三四倍. 即玻璃紙 ...
Kyle,
請問玻璃紙還是找不到, 請可以加多少少資料嗎? 另外, METER 是否可以用來阻隔電磁波??

Rank: 4


619
5571#
發表於 17-6-3 13:28 |只看該作者
Fannis 發表於 17-4-11 15:08
Kyle,
請問玻璃紙還是找不到, 請可以加多少少資料嗎? 另外, METER 是否可以用來阻隔電磁波??

Kyle, 今日聽聞有個device 叫vivobase可以幫到,你可以睇睇。

Rank: 3Rank: 3


200
5572#
發表於 17-7-1 08:59 |只看該作者

回覆樓主

樓主,我剛睇你呢個topic, 真心賜教
我仔3歲,舊年你確診中度至嚴重嘅自閉譜系。一check 到有食魚油,亦有試過顧小培d野,但效果麻麻停左。
我見你話a仔大部分係腦同腸出問題,亦需要葉酸,可否介紹邊一隻教好?我係初哥....
另外,點知道魚油成份真係好唔好?
而我仔係食緊呢隻:
希望學到野...我係單親媽媽,好希望用得岩俾小朋友
myimage.jpg

Rank: 6Rank: 6


5616
5573#
發表於 17-7-2 11:40 |只看該作者
twinstar_baby 發表於 17-7-1 08:59
樓主,我剛睇你呢個topic, 真心賜教
我仔3歲,舊年你確診中度至嚴重嘅自閉譜系。一check 到有食魚油,亦有 ...

咁細個嚴重case, 不如你先看下家居環境,有無沿水,多霉菌否,食具是否易潔兼刮花那些,同check 下食物敏感,煲多些芫茜水或用芫茜液、zeolite 給他排毒。可以的話去睇下一隻叫bravo probiotics 嚟治療下腸道。針就唔洗提都不要打了。戒奶戒糖。魚油可以食,但環境問題唔處理,作用不大。

Rank: 4


921
5574#
發表於 17-7-9 22:19 |只看該作者
Kyle 發表於 17-7-2 11:40
咁細個嚴重case, 不如你先看下家居環境,有無沿水,多霉菌否,食具是否易潔兼刮花那些,同check 下食物敏 ...

Kyle, 有沒有芫茜液同zeolite 可以介紹?我仔水銀好高

Rank: 3Rank: 3


200
5575#
發表於 17-7-10 14:57 |只看該作者
Kyle 發表於 17-7-2 11:40
咁細個嚴重case, 不如你先看下家居環境,有無沿水,多霉菌否,食具是否易潔兼刮花那些,同check 下食物敏 ...

奶蛋都戒左,糖我仔一向冇點食。
餅更加唔食,佢口部比較敏感。遲點帶佢做食物測試。
想請教你之前提5mthf, 我仔3歲食唔食得呢?
魚油入面提嘅Sha, omega3, 點為之高?

Rank: 3Rank: 3


116
5576#
發表於 17-7-11 16:00 |只看該作者

回覆樓主

有冇人知旺角中心果位dr lam電話呀

Rank: 3Rank: 3


116
5577#
發表於 17-7-11 16:02 |只看該作者

回覆樓主

我想問一下旺角中心dr lam 全名叫咩名同電話號碼?謝謝

Rank: 4


619
5578#
發表於 17-7-17 17:53 |只看該作者
jeffmasa 發表於 17-7-11 16:02
我想問一下旺角中心dr lam 全名叫咩名同電話號碼?謝謝

林觀禮

Rank: 1


26
5579#
發表於 17-7-27 12:59 |只看該作者
我兒子現在28個月,昨天剛確診中度自閉。現在心情複雜,雖然已有一段時間的心理準備,但仍然很難受。尤其每次回看他打歲半針前跟我互動和講話的video. 我就忍不住自責自己究竟做錯了甚麼。昨晚花了三小時看了四十多頁的post, 感激樓主詳盡與無私的經驗分享。獲益良多! 我兒子很靜,近乎不發聲,返了playgroup以後單音多了一點,但眼神差,不望人,叫他沒有反應,好像聽不到一樣,想教他新東西會走開。醫生説幸好情緒算是比較穩定,但整體發展是1歲多不起1歲半。我現在打算主力給他增強免疫力,介早上鮮奶和奶製品,(gluten已介了一個月,效果不錯) 我每天會新鮮弄一杯蔬菜汁給他。但擔心纖維攝取不夠。想請教你如何用nuts 打汁取代鮮奶豆奶。BB現在在吃Nordic natural 魚油,益生菌不是每天吃,自加入蔬菜汁後每天2次大便,便便是靚仔的,有少許濕因還在吃人奶。請問還有甚麼supplements 可以加進去來幫助他呢?謝謝你,祝福你們一家,也祝福這裡所有父母!

Rank: 4


921
5580#
發表於 17-7-29 22:09 |只看該作者
Starrystarrybo 發表於 17-7-27 12:59
我兒子現在28個月,昨天剛確診中度自閉。現在心情複雜,雖然已有一段時間的心理準備,但仍然很難受。尤其每 ...

你打什麼蔬菜汁?
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