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教育王國 討論區 自閉寶寶 家有自閉傾向的小朋友......
樓主: 承承媽媽
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家有自閉傾向的小朋友...... [複製鏈接]

Rank: 5Rank: 5


3768
861#
發表於 05-12-12 10:24 |只看該作者

Re: 家有自閉傾向的小朋友......

DENNICFUNG

唉......................

我估最難受的是看住個小朋友本來識的, 點知看住佢退步

反而, 看住佢進步會開心好多.............

協康/痙攣..........我估要排至小半年, 呢段時間, keep住同小朋友講多d野, 多d outing................對佢地刺激多d




Rank: 2


35
862#
發表於 05-12-12 13:56 |只看該作者

Re: 家有自閉傾向的小朋友......

DENNICFUNG & YRaymond
多謝你哋!不過英文明唔哂sorry.記得嗰陣個仔兩歲都唔識講嘢,叫佢又冇反應,出門口又一定要行死同一條路,講佢又唔明,話佢又唔聽,成日要同佢博鬥.佢到5-6歲時仲會跟我學講嘢,點知跟吓跟吓就唔跟我講嘢,後來啲發音就越來越唔正,真係唔知點算好!宜家佢都唔識講嘢又唔識表達,一唔啱心意就會發脾氣(佢細佬成日糟殃加架!好慘.好慘呀),又叫又跳,尤其是係街嗰陣要一眼關七,睇少眼都唔掂呀...真係好煩架.仲有好多麻煩嘢好難係度講哂嘅.呢排心情唔係幾好,因為最近知道有啲自閉仔因為行為問題而被關進精神科病房內,而他們的智商低又唔識講嘢在裏面經常被人叚被人打都無人理無人知,雖然嗰啲唔係自己仔女但都好心痛,所以宜家經常提醒自己絕對唔可以縱容佢嗰啲過激行為,好擔心好擔心...

Rank: 5Rank: 5


1791
863#
發表於 05-12-12 14:31 |只看該作者

Re: 家有自閉傾向的小朋友......

DENNICFUNG,

俾多2間你選擇:-

1)宣美, 費用$2XX/堂
2)仁濟早期訓練 : 費用$3xxx/10堂

Rank: 2


95
864#
發表於 05-12-13 01:05 |只看該作者

Re: 家有自閉傾向的小朋友......

羊咩囝 寫道:
DENNICFUNG,

俾多2間你選擇:-

1)宣美, 費用$2XX/堂
2)仁濟早期訓練 : 費用$3xxx/10堂

羊咩囝 ,

多謝你的提供,我打过去問,宣美就話他們主要

Rank: 2


95
865#
發表於 05-12-13 01:08 |只看該作者

Re: 家有自閉傾向的小朋友......

有冇人上过Louis Programne ,大家有mud 嘢 comment?

Rank: 3Rank: 3


150
866#
發表於 05-12-13 23:45 |只看該作者

Re: 家有自閉傾向的小朋友......

Hi hcma,

Don't give up.
Suggested to attend Louis Program. She started to teach her son from 10yrs old and got succeed.
Maybe you can buy her book in bookstore at $80 to get some idea.


hcma 寫道:
DENNICFUNG & YRaymond
多謝你哋!不過英文明唔哂sorry.記得嗰陣個仔兩歲都唔識講嘢,叫佢又冇反應,出門口又一定要行死同一條路,講佢又唔明,話佢又唔聽,成日要同佢博鬥.佢到5-6歲時仲會跟我學講嘢,點知跟吓跟吓就唔跟我講嘢,後來啲發音就越來越唔正,真係唔知點算好!宜家佢都唔識講嘢又唔識表達,一唔啱心意就會發脾氣(佢細佬成日糟殃加架!好慘.好慘呀),又叫又跳,尤其是係街嗰陣要一眼關七,睇少眼都唔掂呀...真係好煩架.仲有好多麻煩嘢好難係度講哂嘅.呢排心情唔係幾好,因為最近知道有啲自閉仔因為行為問題而被關進精神科病房內,而他們的智商低又唔識講嘢在裏面經常被人叚被人打都無人理無人知,雖然嗰啲唔係自己仔女但都好心痛,所以宜家經常提醒自己絕對唔可以縱容佢嗰啲過激行為,好擔心好擔心...

Rank: 1


18
867#
發表於 05-12-13 23:55 |只看該作者

Re: 家有自閉傾向的小朋友......

Why don't you try the Hi-EPA fish oil (Eye-q)? it has the Oxford-Durham study support. Also, the study was boardcasted by the BBC (Child of our time - Zero to Hero). My girl is using this and get the satisfry result.

Rank: 3Rank: 3


150
868#
發表於 05-12-14 14:43 |只看該作者

Re: 家有自閉傾向的小朋友......

Hi hcma,

one more, try to give your son "SOFT" sugar. The soft sugar will stick on his tooth. It will make him have more mouth and tongue movement.

maybe you find your son didn't bite the food. He likes liquid food because he doesn't need to bite the food. Am I correct !!??? Please try and see if it works or not.



[quote]
YRaymond 寫道:
Hi hcma,

Don't give up.
Suggested to attend Louis Program. She started to teach her son from 10yrs old and got succeed.
Maybe you can buy her book in bookstore at $80 to get some idea.

Rank: 3Rank: 3


150
869#
發表於 05-12-14 18:39 |只看該作者

Re: 家有自閉傾向的小朋友......

Here are the info copying from another topics ....

很多自閉症的小朋友也有這個情況,即口腔非常敏感。所以他們很多時會有嚴重偏食、不肯咀嚼、不肯刷牙、甚至說話時為減少動作而"lue晒啲音"。

可以試試戴上手套(去燒烤時用的那種透明的便行),用食指按摩牙肉及臉頰內側。先由門牙開始,沿著牙肉以打圈動作慢慢伸入,直至最後一隻牙的位置。臉頰也是由咀角開始。如果擔心被咬,可以用bb"牙刷"(冇毛的,像迷你流星鎚那種)。

平時把蘋果/青瓜等切長條,放到臼齒位置(蘋果條與牙齒排列的方向一樣),讓孩子咬。

[quote]
YRaymond 寫道:
Hi hcma,

one more, try to give your son "SOFT" sugar. The soft sugar will stick on his tooth. It will make him have more mouth and tongue movement.

maybe you find your son didn't bite the food. He likes liquid food because he doesn't need to bite the food. Am I correct !!??? Please try and see if it works or not.


[quote]

Rank: 3Rank: 3


108
870#
發表於 05-12-15 02:12 |只看該作者

Re: 家有自閉傾向的小朋友......

Couldn't wait till finish reading through the forum.  too many questions want to seek for your advise. Have already spent 2 long nites but still couldn't finish reading them all.

some background info:
my son - dennis is now 2-10mths studies in normal N1 and was diagonised "early" AF by 大口環 4 mths ago.  They asked to assess again when he's 3-2mths. (don't know why, probably his performance on that day was not too bad).

家中 (brother & sisters) 大大小小的 kids 有 9人, 但都未有人知, 可能巳有人懷疑... 但 husband 也未完全接受. 他堅持阿仔只是難教d...

Anyway through friend's referral 巳 start 上門 training for 2 mths.  She's from HeepHong and is very professional.  So far quite good progress on language and some behaviours.  But "new behavior" still 層出不窮. 遲d再同大家分享.

總知對大家的經歷, 既是身同感受, 也給了我一個動力. 終於可以暢所欲言了.  Now I have a few questions to ask:

1. Why is 牛奶 no good?  What is the problem? Dennis has been drinking 十字牌 milk for almost half year, because he doesn't like milk powder anymore.  Should I stop??

2.  DHA is proved to be good?  I can let him take without asking doctor is OK?

3.  What is the diff between A & AF?  Both can't be cured right?

4.  Some people say the A kids got high toxic like mercury in the body.  I keep thinking back of my diet during pregnancy.  I had once ate goose liver!!!! (好毒的是嗎) I never controlled too much of my diet just ate whatever I want...Both my husband and me work for loooooooong hours.  I couldn't stop thinking that I had missed my son's critical development age from 0 to 2...

too much to ask and say and share.  but i still have to work in china tomorrow....

Rank: 5Rank: 5


1463
871#
發表於 05-12-15 02:29 |只看該作者

Re: 家有自閉傾向的小朋友......

MerMee,

見到你的問題,想休息都想答咗d先.

1. 牛奶睇吓你個小朋友有無敏感,例如:咳到近乎哮喘或濕疹,是但有一樣都要戒.

2. 唔記得美國定英國都有做呢類research,都肯定到dha有佢一定o既作用,但我唔係太清楚係唔係對個個都有用,以我所知早前政府都有幫d嚴重自閉o既細路嚮醫生處方下加大vitamin A的服用量,都有些少成果.

3. af其實係無呢個稱呼的,只不過有時我地貪方便,話係af啫.因為如果唔係太嚴重o既自閉症小朋友,醫生多數係話佢地係有自閉傾向,有某d自閉症o既重要特徵,但又唔係中晒,所以才有自閉傾向這個講法.所以我地將自閉傾向的英文再簡稱,將austisic feature簡稱af.

唔得啦~~真係太眼瞓,遲d再傾,又或者有人自動補底啦~~
My Lovest Group-- Il Divo
         Urs--Sebastien--Carlos--David

Rank: 5Rank: 5


3768
872#
發表於 05-12-15 09:38 |只看該作者

Re: 家有自閉傾向的小朋友......

MerMee

承媽講左d啦

首先, 軒軒都係大口環做評估, 但一次定生c, 未再要求再做assessment.

另外, 既然醫生話, 有d問題, 甘就要相信佢地的專業, 吾理佢係a or af, 總之係有d'問題', 比起其他小朋友黎講.

dha呢, 軒軒係3歲時try 過, 好老實, 佢食左一個月到, 真係有無聲變有聲(雖然都係late, 但總好過似啞吧).

但係你問我係吾係真係dha的功勞呢, 我就真係吾敢講, 因為佢係2+8的時侯, 已經開始做st, 夠竟係呢5個月st的功勞呀, 定係dha的功勞呢, 我真係吾敢講, 可能係兩者都有功勞再加上適當的training啦

dha問題我答左...........................其他看下有無其他媽咪補充

Rank: 3Rank: 3


150
873#
發表於 05-12-15 15:07 |只看該作者

Re: 家有自閉傾向的小朋友......

Hi MerMee,

Just give you some idea of your question 1.

As known, fresh milk will be used for making milk powder, then milk like 十字牌 and then condense milk ..... So, the kids cannot get what he needs from 十字牌 milk.

The adult is good (better than milk-tea or coffee) to take milk at breakfresh but it is not recommended to replace milk powder by milk for 'baby-kids'.





MerMee 寫道:

Now I have a few questions to ask:

1. Why is 牛奶 no good?  What is the problem? Dennis has been drinking 十字牌 milk for almost half year, because he doesn't like milk powder anymore.  Should I stop??

Rank: 1


18
874#
發表於 05-12-15 20:18 |只看該作者

Re: 家有自閉傾向的小朋友......

好似係英國牛津大學Durham study,高EPA對這方面有效.千禧BB檔案播過

Rank: 3Rank: 3


264
875#
發表於 05-12-15 22:56 |只看該作者

Re: 家有自閉傾向的小朋友......

MerMee,

專業意見就無乜

Rank: 3Rank: 3


108
876#
發表於 05-12-16 01:39 |只看該作者

Re: 家有自閉傾向的小朋友......

太感動了, 你們巳成為了我的精神支柱了.
承承媽媽,
唔好意思攪到你gum夜. dennis 係有氣管敏感woh, 醫生話現在唔攪 (嗅氣)第日會係哮喘仔. oh, 即是話我要幫佢轉回奶粉了. 知唔知有那隻brand 無gum sweet 又有dha 呢 ?

yramond,
係醫生話 paper box milk 都一樣我先轉咋, 仲諗住會無gum 熱氣tim, 唉...

ccyc,
eye-q 是含 高epa 的嗎, 在屈人寺有售 ?

hinhinmummy,
其實去大口環之前兩個月我分別去過見健康院醫生同明愛找心理醫生做過assessment. 健康院話佢認知ok, language 係慢了, 但通常男仔都慢架啦, 2.5-3 應會pick up 得很快. 佢知道我會帶阿仔去大口環仲話當去玩下law.  
而明愛只用camera 從另一間room observe 了我們同阿仔玩了30 mins, 跟住拿了份 childhood autism rating scale 來問問題, (但這doctor 由頭到尾都無望住我地講野gum 滯, 反而我suspect 她有a... ) 很快地她的結論是阿仔的 social responsiveness, expressive language, emotional management could be areas for improvement.

In fact 同樣大口環當時是沒有正式結論的. 並說要遲8個月再follow up. 但就建議排了早期教育and st. 其實那份report 是我family doctor 的nurse 傻下傻下fax 給我的. 我不suppose睇的. 我又傻下傻下的打去大口環問東問西, 攪到我的醫生俾醫院鬧     anyway report 的conclusion 是寫了 he has some early austistic features and special attention need to be paid in fugure folow-up. 我的心就寒了一截. 須未經完全證實, 但終於這個term 還是出現了.

有時我會諗 (我老公講埋出口)點解我好似係都要認為個仔有野.但honestly 我只是不想掉以輕心. 有事還是及早攪, 況且我覺得無什麼 harm (除了$$ and 心靈上)

其實我開始aware 呢樣野是當阿仔 2+2mths 去st. james day care 時老師提我的. 我當時嬲到死了, 因他上課不夠一個week 她就這樣說. 她可能是有experience, 但我覺得她太快太主觀的落了這label 給阿仔.  後來還轉了學. 我所知外國的assessment 也不是一次性的, 因他們的表現時好時懷, 並通常在兩歲多出招, 而這也正是一般小朋友的trouble two.  但回心想那老師確是令我提高了警覺.  

Mainly Dennis got the following issues:
1. Like so much to look at the spinning things, like wheels, fans.  But he will scream like crazy when approaching big fan.
2. Like to line up things. But less now after the 上門 nurse teach him to play various things.
3. scare of playing swing.
4. scare of light beam in the dark (don't know if this is one of the relevant features)
5. Scream and lie on the floor when seeing hairy doll.  This happened when he interviewed at 真光 kindergarten.  C 味.
6. Weak social, weak eye-contact, weak concentration.
7. Never sing the songs along with teacher and classmates at school, but he sings almost every song at home by himself.
8. Used to have a lot of delay echo, but better now after the training.
9. 自從只用單一language 同他說話後, 語言進步了很多. and pronounce quite clear.  However not always appropriate to the situation. 即係說得有點公式化. 例如問他飲完奶奶做什麼呀, 會答 "刷牙, 講故仔, fun 覺", 但行動卻是不符的. 多數直接上了床.
8. 好多無尼頭固執野, 但我學曉硬正過佢,所以巳改掉了很多.  但仍然 一定唔去街的washroom vivi, 可忍4-5個hours 不去washroom. 令願lai. 哭時一定要找毛巾, 紙巾都唔得, 否則哭得更勵害.
9. 偏食, used to like vegetables before 2.  Then no more afterwards.  Even I cut the vegetable very small and hide under the rice, he will spit out.

暫時是這些先.

Rank: 5Rank: 5


1463
877#
發表於 05-12-16 09:24 |只看該作者

Re: 家有自閉傾向的小朋友......

MerMee,

承少舊年就係因為氣管敏感,咳到作哮,所以至戒牛奶同奶粉.唔好以前飲羊奶得,一樣唔掂,所以承少已經轉飲大麥奶一年lu.

你o既心態有一樣係好啱o既,就係如果真係有問題,寧願早d攪掂佢,尤其我地呢d仔.而且阿媽阿爸o既態度要好肯定,又係必須o架,如果唔係遲d佢就更加唔理你地.但與此同時,你地都要俾到一個好肯定o既訊息俾佢,就係你地好愛佢,咁你地就算對dennis強硬,佢慢慢會明白你地係對事,唔係唔愛佢.

你講dennis有d o野都係幾a仔o既特徵,不過偏食就唔一定係,好似我o個個就都幾like食菜(但係當然至like食肉),所以偏食都唔一定係a引起o既......可能係因為佢大咗,覺得o個樣無咁好食,所以至吐番出嚟啫......如果佢肯食水果o既,你咪用水果替代纖維囉~!

講真,我地呢個版裡面,無一個媽咪被通知仔仔/女女有delay/自閉傾向/唐氏/adhd時係開心o架!不過我地喊完之後就會諗:我地點樣可以幫到個小朋友最多?所以我地就自然咁聚埋一齊互相鼓勵啫.
My Lovest Group-- Il Divo
         Urs--Sebastien--Carlos--David

Rank: 2


95
878#
發表於 05-12-16 14:56 |只看該作者

Re: 家有自閉傾向的小朋友......

唔知各位有冇這方面的經驗,琴曰同小兒上專注小組,小小野就發皮4,訓地、如果有人係附近就用腳(young)人 。有一位家長留意他每一次發皮4訓地時,總会用眼望一望我,看我有沒有反應。其實他己有改善,相比他以前一發皮4就撞頭落地。
我又跟小組的導師倾过,她說2歲語言表達不到,但當他能用語言表達,問題很易解決,請問大家有沒有這方面經驗可以分享一下。

Rank: 5Rank: 5


1308
879#
發表於 05-12-16 16:33 |只看該作者

Re: 家有自閉傾向的小朋友......

MerMee

搭吓咀,一般DHA丸EPA:DHA係3:2,eye Q係4:1。屈人寺無售,我喺一般藥房見過,不過賣正價,直接同代理買會有discount。pm咗d資料,你睇吓啦。

MerMee 寫道:
eye-q 是含 高epa 的嗎, 在屈人寺有售 ?
每個小孩都是上帝用來提醒我們,這世間還有希望。——泰戈爾

Rank: 1


18
880#
發表於 05-12-16 17:47 |只看該作者

Re: 家有自閉傾向的小朋友......

hi,
屈人寺無賣,我都係HongKong sales買.我send d 資料俾您參考下
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