家有自閉傾向的小朋友......

kmwun

yu03

唔係你同你嘅小朋友錯，所以唔應該唔開心。亦唔應該為失去一個咁嘅"朋友"而唔開心，反而我地應該同情你嘅"朋友"，為咗一個唔成理由嘅原因而無咗一個朋友。

yu03 寫道:
我都有一個自閉傾向的小朋友,好想在這個topic傾訴下
我在今年3月頭到評估中心,被兒科醫生評估為自閉傾向,
好好彩,於3月尾己獲派往全日制幼兒中心讀i位,因為我
不選擇地區,所以咁快,我亦試過於報名幼兒園時,初時話
有位,仲好熱情地叫我去参觀,但當我說出小朋友有自閉
傾向時,態度即時唔同晒,左推糖右推糖,就是不想收這類
小朋友,更令我痛心的是,我本來有一個朋友,平時有來往
因她有一個小朋友,所以經常出來一齊玩,但當我說出,我
的小朋友有這個問題時,她竟不再聯絡我,令我情緒一直到
現在都不能平伏,因為自從評估結果後,接二連三都受到
打擊,是我有生以來最無辦法接受的事,
                                       
                                        一個陷入過度偒心的人

yu03

好多謝你咁安慰我,我心情已好好多,我的小朋友是
女孩子,聽個特殊導師講,患有自閉傾向的女孩子很少,
而這個topic 都好似無女孩子的家長在,我想我以後
條路都好孤單地走下去. :cry:

sjmama

yu03,
我有兩個孩子, 大兒7歲是輕到中度自閉症;小女4歲,是自閉症傾向/亞氏保加症, 我的路要比你困難得多了.

sjmama

yu03

sjmama,
相比起來,原來我比你幸運得多,我真是慚愧,
我現在只有一個女兒,我有想過生多個,並不是
嫌棄現在的女兒,只是想她有個年齡相若的伴,
但自從知道小女有自閉傾向時,又不敢冒險,怕
會遺傳,可能情況會更嚴重,下一個會變成完全自閉  

                                                       yu03

nausica

yu03,
曾聽說過自閉傾向的女孩子絕大多數都是亞氏保加症, 在智力方面無問題, 甚至係有些天才的, 請為小朋友努力吧!

hinhinmummy

nausica 寫道:
yu03,
曾聽說過自閉傾向的女孩子絕大多數都是亞氏保加症, 在智力方面無問題, 甚至係有些天才的, 請為小朋友努力吧!

NO...............

承承媽媽

yu03,

自閉症/自閉傾向在男孩子中,是一百個裡面有4個,而女孩子中,是一百個裡面有1.7個,即一萬個裡面,有四十個男仔有自閉症/自閉傾向,只有17個女孩子有自閉症/自閉傾向.比例上是比較少的(亦明白點解好多男人都唔多唔少有d自閉傾向o既特質      ).

nausica,

你講曾聽說過自閉傾向的女孩子絕大多數都是亞氏保加症, 在智力方面無問題, 甚至係有些天才的,我可以告訴你,這個講法真係聽吓好啦!千祈唔好當真!因為我有朋友個女,依家都有十一歲左右,屬於嚴重的自閉症,無語言表達能力,智能屬於中度智障........ :-|  :-| 咁......所以都只能有一個講法,就係自閉傾向/自閉症的小朋友,個個都係有所不同o既......

mrsphcheung

Dear all,
My son is 6 now.  He is attending a normal kindergartern and there is no complaint from the school.  I find that my son's major problem is --- HE MAY TALK HIS OWN THINGS WHEN WE CARRY A CONVERSATION WITH HIM.  In fact, he can communicate with us if he likes, but he may stop the conversation and go back to his imaginative world.  

I have tried numerous therapies for him before and I feel that nobody can really help him EXCEPT ME AND MY FAMILY MEMBERS.  Do you have similar experience?  

承承媽媽

張太,

呢個情況......我個仔就好少少,因為佢返 i 位,佢好多老師都好好,又好幫手,所以有好多情況我都同佢o既老師傾,佢o既老師都會俾到好好o既suggestion俾我.
當然,你講o既情況都有,不過我個仔就未至於停止對話,最多係對話上比較被動,甚至講講吓就去番佢想講o既o野囉.......!   

gigi2

承承媽媽,

Can you tell us what are the suggestions by your I-seat teachers?  Please share with us.



[quote]最多係對話上比較被動,甚至講講?就去番佢想講o既o野囉.......!

承承媽媽

gigi,

其實承少對某d o野都好執著,例如吊車同氣球,睇圖書就成日拎d有氣球o既圖書嚟睇氣球,講去ocean park就只係講吊車,仲要連續幾日畫吊車......   
我同 i 位老師&校長傾過,話與其stop佢,唔俾佢接觸,不如同佢探索,發掘佢有興趣o個件o野o既特性,例如氣球,係唔係只得一種型狀?有無其他顏色,用料?為什麼有些氣球會飛走?為什麼有些又不會?就好像我們和小朋友做一個專輯探討.
另外好像吊車,校長suggest我可以和他去坐之間,又去觀察吊車的往返是雙向的,又和他一起觀察吊車原來有不同顏色和不同形狀的.......,又可以和他一起建一個吊車模型,讓他明白吊車除了車廂,還有鋼纜和鷹架,我現階段都只是去到影相給他觀察,和帶他去坐了幾次吊車的階段,希望遲d我再可以想到多些如何和他一起成長,一起探討的方法(我自己就當然知道如何做,我覺得最難是如何引發他自己去發現.....唉    )

joey媽媽

同意呢個講法.... 自閉傾向/自閉症的小朋友,個個都係有所不同o既......
我仔同其他 自閉小朋友都不同,其他人有嘅小動作我仔無,人地說話表達都ok,我仔又未得.其他小朋友會企唔定好耐,我仔又可企定定,人地小朋友眼睛都可望人幾眼,我仔就不敢望人.所以有時我都懷疑人地小朋友話就係有自閉傾向/自閉症,但點解同我仔仔有咁大分別既.

承承媽媽 寫道:

nausica,

你講曾聽說過自閉傾向的女孩子絕大多數都是亞氏保加症, 在智力方面無問題, 甚至係有些天才的,我可以告訴你,這個講法真係聽吓好啦!千祈唔好當真!因為我有朋友個女,依家都有十一歲左右,屬於嚴重的自閉症,無語言表達能力,智能屬於中度智障........ :-|  :-| 咁......所以都只能有一個講法,就係自閉傾向/自閉症的小朋友,個個都係有所不同o既......

gigi2

承承媽媽,

Thank you very much for your sharing.

The suggestion from your I-seat teachers are very useful which we will also practise on our girl sometimes.  Like 承承, the recent most interesting topic from my girl is the Sun and the Moon e.g. Where the Sun is rising, Where it goes and the Moon will be rising after the Sun is gone; the Moon is now in the cresent shape then will turn to full Moon shape…….etc  

She talks these topic nearly a week.  Last week we took trip, everyday we went outdoor she would mention to me about the weather and the Sun was in the sky and that’s why the Moon not to appear…..etc.


------我覺得最難是如何引發他自己去發現-------

Recently I read a book called迷宮裡的孩子, from which the writer emphasized very very much about the benefits of reading books to our children especially the special needs.  Though it seems a very old rule for us to know the advantages of reading books, it is really a golden rule to remember.   Because they can learn the useful skills i.e. social skills from those characters of the books, no matter it is a pictured book or words book.  Those characters will encounter a lot of troubles or difficulties which gives hints or examples to our children how to overcome all of these.  


However, the point is how to attract our children to enjoy reading?  Like my girl, she is only reading those class workbooks from her kindergarten.  She is not interested with other books although we have piles of books in our bookshelves at home!  


I feel that we just need to wait and wait but which does not mean we are going to give up attracting her interests on books reading.  We still need to provide them the environment for reading books.  Library or bookshops are very good choice if the children are big enough or can control themselves not to run around in there.  

When my girl was around 2 to 3 years old, she would not find any books from library, instead, she would only see outside through the window.  Then we do not much take her to there especially we are working parents.  Later, with the assistance from kindergarten she will bring books back to home for every week but she still will not read it or even we read for her.

Be patience then until recent days I notice that she is interested with a book borrowed from Heep Hong teachers.  She asks us to read for her so many times which I feel that she starts to feel interesting about other books.  Recently, she will enjoy finding books from bookshops or library then sit down together with other kids on the floor to read her books.  I am sure she may not understand those books selected by her but at least she enjoys looking at the pictures from books and find it is very interesting to ‘read’ them.

迷宮裡的孩子 emphasized that it is very important for the children especially the special needs to read more books as they could.  Store up more information into their brains which will much help in their later stage of education.  

Finally,

------我同 i 位老師&校長傾過,話與其stop佢,唔俾佢接觸,不如同佢探索,發掘佢有興趣o個件o野o既特性----------

I fully agree with it.

joey媽媽

yu03
  請大家不要對計劃生下一個兒女而無信心,其實我也是一個例子,我仔仔是一個快7 歲的自閉症小朋友,佢仲有一個怏6歲的妹妹,我囡囡沒有其他問題之外,我仲覺得係我一個小幫手tim.佢地兩個感情好好(學校老師都公認),呀仔係佢自閉世界裡面都有呢個妹妹存在,有時我同老公都覺得個仔就最錫呢個妹妹連呀爸呀媽都唔夠個女黎.屋企有時單憑父母訓練比個仔我覺得都未足夠,如果有個朋輩都幫到佢就更加好,而家我囡囡雖然只得6 歲人仔,但佢好明白哥哥有咩野障礙,我們沒有迫個女幫手之下,佢都可學懂點幫手照顧哥哥,(因平時呢個女唔聲唔聲觀察我地好多做法呢)有時我自私d咁諗，我兩老死左之後都有個妹妹幫手睇住下，當然我不是主要為了呢點，因為我真係好鐘意小朋友，所以我先計劃至少生兩個，我都唔排除出年生多個ｇａ 無論點都好請大家不要怕生第二個又係咁既諗法而嚇驚，要睇大家有否心理準備去應付,我好呀Q的,如果我真是生第三個都是有自閉的,我不會後悔,反而是覺得上天比個考驗我,佢知呢個小朋友來到我家一定比到幸福佢的,我會盡力幫佢,呢個就係我今世的職責 一個兒女有障礙,另一個兒女無障礙,,我是其中一個例子.希望不要一早嚇怕大家呢

(我好耐都無打咁多字喇    )

yu03 寫道:
sjmama,
相比起來,原來我比你幸運得多,我真是慚愧,
我現在只有一個女兒,我有想過生多個,並不是
嫌棄現在的女兒,只是想她有個年齡相若的伴,
但自從知道小女有自閉傾向時,又不敢冒險,怕
會遺傳,可能情況會更嚴重,下一個會變成完全自閉  

                                                       yu03

sjmama

唉!我倒不是想嚇怕大家。只是照顧兩個特殊兒的辛勞,實在是"非旁觀者的感覺"。如果多一個小孩能多一個幫手,那當然是好事;否則就會像我們,常常顧得了一個,顧不了另一個。小女雖然目前智力發展比大兒稍佳, 但卻比她哥哥更難搞,最近的情況就幾乎使我發瘋.....

或許我不如JOEY媽媽那麼樂觀積極, 大家就把我當反面教材吧.

Justin2002

sjmama,

don't give up, you and Siu Ming are really great parents!  Though we cannot fully understand your situation, let's hope for the best!

What's the problem with your little girl?

Justin2002

承承媽媽

sjmama,

我都完全明白你o既感受,因為我屋企個大仔,有時對住佢仲勞氣過個細仔......
好似剛剛過去個禮拜一我扁桃腺發炎,所以發高燒,一早我睇完私家醫生之後,我已經叫佢同承少去公園踩單車,唔好俾個仔煩住我,同埋我叫佢夜晚湊埋個仔入大埔去奶奶樹一齊食飯,佢仲話唔係嚮屋企休息吓咩?我話大佬呀~~我病呀~~你都唔好嚮屋企食要我煮啦~~你湊埋個仔出去啦唔該~~!
至於踩單車,最後都有去,不過係我早上十一點叫佢同仔去,最後佢三點至湊仔去踩呢.......!   

所以我呢個都好極品o架!

joey媽媽

sjmama
  
    NO NO NO 你不要誤會我呀!我只是作個人分享咋!當然我明白做媽媽的辛勞(不論家中有多少障礙兒童),但我只是希望大家可從多方面睇,唔想大家一開始就有咁悲觀而已,因凡是都有例外的.sjmama 唔好意思呀,如果我係文章上令你有誤會,我真是無心的,希望你原諒我未訓醒就打回應啦,sorry!!!!大家繼續努力吧!我同樣都是學習緊呢
:wink:

yu03

joey媽媽,
     其實即使是一個普通的小孩,都總有令母親擔憂
      的事情,何況是一個有障礙的小朋友,即使程度
      有分深淺,只要被專家評估為有問題的兒童,都
      統一被外界的人標籤,即使自己認為不算太嚴重
      但外人看來都是一樣的,所以我們這一班媽媽,都
      遇著不同程度的幸酸,希望大家都抱住相同的感受
      在這裡互相鼓勵

                                                                         yu03

HeiMarie

[quote]
承承媽媽 寫道:
sjmama,

我都完全明白你o既感受,因為我屋企個大仔,有時對住佢仲勞氣過個細仔......
好似剛剛過去個禮拜一我扁桃腺發炎,所以發高燒,一早我睇完私家醫生之後,我已經叫佢同承少去公園踩單車,唔好俾個仔煩住我,同埋我叫佢夜晚湊埋個仔入大埔去奶奶樹一齊食飯,佢仲話唔係嚮屋企休息