家有自閉傾向的小朋友......

YRaymond

Thanks 承承媽媽.

We understand it cannot be recovered as 傷風感冒.
Actually, we want to know whether his performance are the worst right now (2y3m) or more autism characterics will be shown later on when growth up.
If possible, can we share with your experience. Many thanks.

YRaymond

承承媽媽,

我的小朋友是排了早期訓練 & S 位 on Oct, 2005. Now, we enrol a Nursery Class in I 位 kindergarden but have no right to get service. We just want the teacher to understand his behaviour more and don't treat him as a bad guys in a normal kindergarden.

BTW, we tried to go to http://www.swd.gov.hk websit to find the queue but don't know where it is. Can you give me its address if you know it. Thanks,

hinhinmummy

YRAYMOND

除了你自己/醫生之外, 無人能夠答你的問題(仔仔是吾serious), 但好老實講, 醫生都答吾到你, 同埋當我做完評估之後, 才知道原來好少醫生係3歲前評估小朋友是自閉症時, 我個心都好吾開心, 因為軒軒評估時未足3歲.

而每個父母看自已仔女時, 多數都含有一種他吾是太差的感覺, even我依家都係, 但現實的是, 每當佢一拍埋同齡的小朋友時, 高低立見.

點都好, 你起碼在2歲3個月時已經排s位/早期訓練, 可以好快追到.

s位/早期普遍最少排半年至一年

HeiMarie

YRaymond,

我的仔佢e + 3 yr 10mth, 佢係大概2 yr 3mth 時做assessment 評為自閉症傾向, 當時佢同你仔仔情況相似, 原本只排早期但后來幼師建議我排I位, 3個月后原本讀緊普通位

YRaymond

Hi HeiMarie

Thanks for your valuable experience. we will do the best to make him better.

Thanks all Mom valuable comment as well.

Bear-bear

各位BK媽咪,

花了幾天時間,終於把這幾拾頁message看完,對於自閉症的認識加深了很多。我囝囝現今20個月大,在10月中, 見了智能測試中心的姑娘,初部評估話佢發展緩慢，主要是說話&溝通有問題,要排4-6個月做深入評估,
幸好月初執死雞有期見医生做評估,結果話佢認知能力比同齡慢3-6個月,說話只有1歲,(基本上佢仍停留講少許太空話)及懷疑自閉傾向,但医生話佢仲細,所以不肯定,建議囝囝返全日幼兒園,現在四圍搵学校。另外已開始一星期返一小時協康的青蒽,一日返playgroup,下星期打算報多兩日暫托,你地認為足夠嗎?我希望昣囝囝仲細幫他追回。日後還有很多問題,希望各位多多指教,我正期待囝囝叫我一聲“媽媽”,唔知要等幾耐?不過,我會努力、加油!



:cry:  :cry:  :cry:      

YRaymond

Hi Bear-bear,

I don't know how to handle the case at the best. However, it is the best way to give them training or shool life as early as possible.
For my 1 months experience, I visited the "I seat" nursery school and told the Principal the truth of my son.
It is because they understand more the needs of autismic kids and will not put them alone when naughty.
We are so lucky to get a normal seat at 'I' school starting from December. Hope it can help.

Bear-bear

YRaymond,

Thanks for your reply.

Bear-bear

各位BK媽咪,

我不明白為何社工只幫囝囝排早期和S位而不排I位,我觉得I位應該快過S位,我的想法是否正確? 最衰見社工當日個心好亂,一時想不起問這問題。 :cry:

承承媽媽

Bear-bear,

期實排 I 位,早期還是S位,都不是由醫務社工幫你決定,而是由評估中心幫你小朋友做評估的兒科醫生決定的.如果你有疑問,你可以打電話回去評估中心找幫你醫務社工,她可以代你詢問兒科醫生的.

另外排 I 位不一定可以快過入S位,因為 I 位都是一個個學年計,除非有使用 I 位的小朋友轉去上早期或轉S位,否則是否可以排得快D,都好睇你排邊間.

當年承少排佢入咗N1的學校(即現在的學校),是足足等了一年才有位的.

HeiMarie

      

收

承承媽媽

marie,

你今日牛一呀?恭喜晒喎~~~!有無用手機錄低佢,然後轉做手機鈴聲呀?包你聽親都SWEET SWEET喇~~!
[size=xx-small]我又睇吓承少聽日識唔識做先~~

cmaxx

想知道有無返緊工的媽咪,點樣安排小孩子做training?因我經濟上好大題,想出來做工,點安排. 教下路.謝謝.

Bear-bear

承媽媽,

你說得對,今早打了電話問醫務社工,她回覆是根據醫生評估上的建議而替囝囝排 S位。

另外,囝囝現在還未識講野(20m),我是否多等幾個月,才帶他看ST?他只講到波波及有少許依依呀呀。

承承媽媽

Bear-bear,

你可以依家幫佢排一些受資助機構的言語治療服務.因為依家很多人求st若渴,但私人的費用又不廉,受助機構又要排隊,所以你最好幫你的孩子先報名.

協康和痙攣都是很有經驗的受助機構,而協康現在好似收$600一小時,而痙攣就收$400四十五分鐘.但痙攣協會有st服務的中心就只有樂富和石圍角(最近聽聞鴨脷洲都有,不過唔肯定),所以要睇就唔就你方便.

如果你仍覺得唔想浪費時間等,你亦可以嘗試找一些私人的言語治療師,不過收費就較貴,一般300-400半小時.

承承媽媽

各位,

承少返咗 i 位都有3個月,發覺佢真係識多咗好多o野,唔覺唔覺,相同和不相同佢都已經攪掂,counting都好得,同埋都有d驚喜,呢兩日同佢玩st借俾佢份玩具,我叫佢抽一張出嚟,叫佢形容吓張咭有d乜o野,或者d人做緊乜o野,佢居然都講得到一兩個key point,倒轉我講內容,叫佢找出是哪張咭,佢都搵得到,又真係估唔到喎~~~    呢d可能係因為佢開始肯聽故事,又有興趣去聽故事有關喇~~
之不過,呢d都係要佢做,要佢講佢至肯講,如果唔係?!佢就一定唔會自動自覺去講.(但聽故事都都叫好主動,佢會即刻走去拎書o架~~!      )

kmwun

承少好叻仔噃    承媽都叻女   

YRaymond

Hi cmaxx,

You can enrol a full time nursery school for your kids and then get the Gov. Funds (money). The school will ask you when enrolling. Maybe you just need to pay few hundreds or free for school fees. Please note half-day cannot apply the Gov. Funds.

At the same time, you can ask your social worker's help to apply a 'Disable Funds' if your kids is classified to have autism symptom. The application takes around 2 months so that you can get more than a thousands every month until 6 years old.

One more, Heep Hong have provided some free service to take care of your kids from morning to 4pm (please contact them for more details). Of course, they will not teach your kids as in a school. They just offer him with a room for playing with the other kids.

Hope it can help.

cmaxx 寫道:
想知道有無返緊工的媽咪,點樣安排小孩子做training?因我經濟上好大題,想出來做工,點安排. 教下路.謝謝.

DENNICFUNG

大家好，我個細仔(剛剛10月中2歲)係21/11被certified in the govrnment  testing centre as "?? 自閉症傾向" in the report     我同媽咪都好唔開心，覺得好冇助，而家排近早期服務同S位，但係都耍7个月同出年9月至有機会，好心急想早d被trainning佢，今个星期六去恊康做"導師訓練"咁上下training，唔知大家有Ｄadvice 比我？係恊康想排言語治療，星期六要出年2,3月至有位，唔知私人耍几內同收費。

Bear-bear

DENNICFUNG,

我囝囝的Case和你差不多.也是11初被評估為"?? 自閉症傾向",依家返緊恊康做training,我都打算問下導師囝囝是否可以／需要見言語治療,原本報了恊康的暫托服務,下星期開始,怎知今早接到通知因人手不足要一月才有位給我,唯有再找其他。你不要太担心,我見這裡好多小朋友做過training後,都有進歩,一起努力吧!

你有無幫你細仔報幼兒園?