家有自閉傾向的小朋友......

kiukiu

各位:
終於睇完你哋嘅發表。我個仔而家4歲，尋日見完兒童體能智力測驗中心，個醫生話我個仔有輕微自閉症。其實上年巳經見過一次，因為當時發現佢唔同小朋友玩，成日跟住大人，而當時醫生話佢唔似有自閉症，可以觀察多一年，係呢一年間，佢都有轉變，肯同小朋友玩，但係情緒好波動，好易發脾氣，同埋成日打人，又成日跟人講嘢。而尋日個醫生話佢應該係屬於亞氏保加症，因為佢講嘢好叻，佢喺１歲左右開始學講嘢，之後就識講好多嘢，但係佢喺社交同專注力好差，佢唔識同人溝通，好多時都唔望人，除非佢自己有問題想問你，或者你同佢講到啲佢有興趣嘅話題，如果唔係，佢唔多啋你。但係醫生話都要等埋安排見語言冶療師和物理冶療師，先至可以俾個報告我。跟住佢即刻安排我見醫務社工，咁社工建議我排期報EETC，但係要等成年，另外又安排我申請小朋友出年讀I位（只不過係未雨籌謀，因為驚小朋友喺呢一年又有咩變化，適應唔到而家讀緊嘅糼稚園），仲有佢refer我去聯合醫院兒童精神科嘅兒童及青少年日間服務，裏面有個Training係改善小朋友社交障礙，為期８個月。
我想問有冇人有類似經驗，同埋喺呢段期間，我可以做ｄ咩，定還是等見埋冶療師，攞埋Final Report先再決定。希望你哋俾ｄ意見我。

HeiMarie

Hi kiukiu ,
我曾經聽過聯合醫院兒童精神科的小組training, 話好有用!

未見冶療師前可以打去明愛/菁

Cecily

我家有一個3yr，今個星期一做完評估醫生告訴我,丞丞有自閉症傾向,我好難過,因我一直以為是專注力不足及過度活躍,但就不同意是智力不符。可能佢冇集中做測驗經常離位。現在要排EETC及S位。但佢現在讀主流幼稚園，數字已可數至1-110,顏色可分辨12個以上,A-Z及幼稚園認字全部OK,好懷疑是否要讀S位,有沒有類似經驗分享.

p.s.昨天往見語言治療師做評估,智齡有3yr,表達只有1.5~2yr.今日去join家長資源中心,剛好有自閉症社工在,他見丞丞會叫人,可以考慮申請i位又比意見及介紹可以參加什麼活動,我見有音樂治療剛full了.... :

hinhinmummy

醫生叫得你排s位, 就一定有原因

但如果你真係認為你仔仔能力可以係主流幼稚園讀的話, 不妨要eetc, 而放棄s位, 一個s位, 起碼要排1年, 耐的要排1年半才有位, 而且輪侯的人多的事...........................

Wittywing

hello!  all mummies,

My son also has 自閉傾向, he is studies at n1 now but he bite his classmate two times.  I'm worry about him.  His teacher complain that he bite his classmate, do you think I should tell his teacher that he has 自閉傾向, but I afraid that the teacher and other parent will not accept my son.  I also remind him bite classmate is wrong but it is not useful. Do you have any ideal to help me?

His language abilities is 1 yr old standard but his IQ is normal. He cannot speak at school but he really enjoy go to school.  Now I waiting s位, on the other hand I also join some course for him at this waiting period.

hinhinmummy

Wittywing

你仔仔幾大?

甘除左咬人之外, 老師還有無其他complaint? 同埋依家都應該返左4個月學度, 老師有無suggest你帶佢去做評估?

我果時就係學照返, 到老師叫我帶佢去做評估的時侯, 我先同佢講, 已經做左, 依家等緊s位...............

但我個仔係定定型, 會坐定定果隻, 至於你仔仔咬人, 我就建議你同老師講聲, 起碼比個信息你仔仔的老師, 小心d看住佢(相信都吾會), 同埋希望其他小朋友的家長可以原諒你仔仔(我相信都吾會, 呵呵).

如果因為你仔仔有自閉傾向, 而踢你仔仔出校, 呢d學校讀吾讀都巴..........搵過第二間, 依家出生辦甘低, 一定有學校收...................

最好搵d有i位的幼兒園.......起碼佢地d老師見慣我們d小朋友, 知道乜野料...........

Wittywing

hinhinmummy,

My son is 2 yrs 3 mths old.  我帶佢去做評估 not suggested by teacher,依家等緊s位.  He go to school only for one month (start from Oct) and his former teacher understand that he cannot speak, so he bite his classmate when he is angry.  The new teacher complain him today, I find that she is not pay more attention to understand him need.   

12312

wittywing:\
你試下去尚德村果間協康有沒有暫托位呀, 好過你隨便找一間學校, 我知道這間學校全校只有約80個位, 時間可能比較耐些, 暫托都吾錯架, 雖然沒有了每日半小時訓練, 但對小朋友學行為, 指示, 昤听都好架,如果再想要幼兒訓練, 你可以暫時比住私人先啦. 呢間協康都有架, 但如要st 就要去 寶林靈實or 順利協康啦  

Wittywing

12312,  

謝謝您提議!  我搵到尚德尚信樓神召會幼兒中心, 下星期一見校長, 周老師話佢地肯收這種情況的小朋友, 而家唔使咁擔心, 我想小朋友接觸學校同學可以學下社交技巧,你提議尚德協康, 我都入左會啦, 梁姑娘好好人肯聽我訴苦! 謝謝您!

12312

wittwing:
你仔仔跟梁姑娘--幼兒訓練架

loklokc

請問有無人聽過由救世軍港澳軍區提供的上門訓練?

Thx & Rgs
LV

承承媽媽

loklokc,

我就未聽過有啦~~

loklokc 寫道:
請問有無人聽過由救世軍港澳軍區提供的上門訓練?

Thx & Rgs
LV

loklokc

承承媽媽

Sorry, 依家先覆妳.  
我打電話問過, 我唸係較新的服務.  佢地的團隊主要由臨床心理學家, 社工, OT 組成.  主要係社工同OT 上門同小朋友做訓練, 每次1.5 小時.  共17節.  價錢睇你家庭收入而定, 由$940 - $4400.  計落好似好抵.  不過唔知夠唔夠經驗.  佢地話會寄資料俾我睇.

Thx!

loklokc

承承媽媽

loklokc,

eeee,我有興趣喎~~你可唔可以send埋d資料俾我呀?
同埋你點知佢地有呢d service o架?點知可以申請呀?

joey媽媽

loklokc
  我都有興趣喎 不過我都想知ot上門訓練,可從那裡有工具協助小朋友訓練,如要做感統,咁呢個計劃是否不適合呢 你都 可唔可以send埋d資料俾我呀?thanks

loklokc 寫道:
承承媽媽

Sorry, 依家先覆妳.  
我打電話問過, 我唸係較新的服務.  佢地的團隊主要由臨床心理學家, 社工, OT 組成.  主要係社工同OT 上門同小朋友做訓練, 每次1.5 小時.  共17節.  價錢睇你家庭收入而定, 由$940 - $4400.  計落好似好抵.  不過唔知夠唔夠經驗.  佢地話會寄資料俾我睇.

Thx!

loklokc

loklokc

joey媽媽  承承媽媽

我還沒有收了到資料呀!  不如我俾個電話no.妳地問下.

救世軍港澳軍區 : 2560 8123.  個服務係體智中心的社工介紹.

Hope the above info can be of help.

loklokc

承承媽媽

loklokc,

thanks~~
不過我問咗阿仔校長,知道呢個plan o既詳情,不過唔多適合承少啦~~

承承媽媽

各位,

近來大家都忙嗎?各家少爺小姐有無進步呢?

承少返咗學一個月後才完全適應新學年,不過表現都算唔錯,無乜大錯誤,不過依家有時同佢做家居訓練,佢都會有時唔專心,同埋攪攪震.

依家升咗n2,開始唔單止要同佢家居訓練,仲要同佢跟吓學校課室o既主題,幫佢補吓底,攪到周身都唔得閒,好在佢個兼收老師好幫得手,佢都好多o野跟得番,就唯獨語言仍差咗一年,希望今年有老師幫手之後,佢會跟得番多d.

YRaymond

你好各位媽媽,

我兒2歲3個月. He has classified to have Autism.
He has the same characterisitic as autism's kids. For example, he likes to see the icon, He will yell (not yet speak even mom or dad) the logo such as Manning, HSBC ... he likes to match the wood block or tape tidy.

At the another point of view, he has the same response as normal kids. He will cry (but not real, no tear) when his father goes to work every morning. He will run to his father feet and laugh when his father is back to home at night. They will play the hidden game. When his father stands behind the door or is hidden by something at the bed, he will run and look for him when he hears his father's call.

At his parent points of view, we think he is not so serious. However, we are not sure to be biased by ourselves.

Hope you can give us your valuable comment. we are not sure whether his autism characteristic will be more or less when growth up. Will he have more chance to overcome his autism characteristic after getting the treatment.

FYI, we enrol 3 course for him, language, Activities (polite and social skill) and Muscle training (for training walking more correctly, how to use the hand to do writing. he can walk the stair up and down by himself. But, the professional said he walked not so correctly so he will tire if keep walking). Hope it can help him to overcome "autism" faster.

sorry for any typing mistakes. our office computer cannot type chinese.

Thanks for your advice in advance.

承承媽媽

YRaymond,

我不是想打擊你,或是令你消極,而是希望你要明白,自閉症/自閉傾向/亞氐保加症小朋友,他們儘管可以在智能上,語言理解和表達上可以追至同齡小朋友,但他們一生都會受到這一種先天的短處影響,不很容易理解社交關係,或俗語說的眉頭眼額,就算長大成人,或多或少都有點影響(影響有幾大,就要視乎個人情況).如果你話希望佢快d overcome,你要明白自閉傾向唔係傷風感冒,做訓練是讓他們明白生活不單是他們一個人,而且他們是要配合這個社會而生存.而語言訓練,是希望他們用一個平常人理解的方式去表達他們的需要和想法,亦可以與人溝通.

你仔仔的情況與承承未做評估之前都十分相似,當他面對我時,我都不太認為他有自閉傾向的,但當我帶他去做完評估之後,我有兩位朋友(一個曾於特殊教育機構工作,一位現職幼兒園)和阿仔學校的校長先後告訴我,他們其實是覺得他有問題,只不過不敢明示罷了.

很多時我都不將自己的孩子與人比較,但當我將朋友孩子在承少相同年齡時,表現就在很有差別,特別在同齡的小朋友社交上,一大群小朋友坐在一起玩玩具,承少就寧願坐在他的bb車上啜手指,直至他望夠了(起碼半個鐘),他才會落地,但他不是和小朋友一齊玩,而是自己在跑圈.這些現象我到現在還遺憾的:為何不早點帶他去做評估呢~~?

不知你的小朋友是否已排了早期訓練/ I 位/ S 位,但你現在可以自費找幼訓/語言訓練外,你亦可以找一間好的幼兒園讓他入學,因為他需要的,不單止是你所講的訓練,更重要的,是他要接觸人,接觸同齡的小朋友,讓他所做的訓練能用出來.