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教育王國 討論區 特殊教育 "Biomedical Treatment - Parents' Group "
樓主: kawai
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"Biomedical Treatment - Parents' Group " [複製鏈接]

Rank: 4


949
681#
發表於 05-10-27 20:54 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

kawai,
Happy birthday to your little baby boy.  Wish him NORMAL DEVELOPMENT!!!

Sorry for this late message.
我們怕孩子的人生路途滿佈荊棘,與其為孩子在路上舖一層地毯,不如在孩子的腳上穿上一雙鞋。

Rank: 4


725
682#
發表於 05-10-27 22:36 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Mrs. Cheung,

Thanks for your blessing.  My baby boy seems more alert and his social skills are much better than his brother.  He has started to speak single words such as baba, dada, mama, 街街,奶奶 etc....  However, he has developed a terrible sleeping pattern lately which is a common autistic feature.  I hope it only lasts for a while due to teething or something else.  

By the way, have you still got the enzymes?  Please send me pm if they are available.

mrsphcheung 寫道:
kawai,
Happy birthday to your little baby boy.  Wish him NORMAL DEVELOPMENT!!!

Sorry for this late message.

Rank: 4


725
683#
發表於 05-10-27 22:57 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

ultramom,

Dufican is a non invasive antibiotics for treating yeast infection.  I've heard that some kids need a few courses to clear up the yeast overgrowth in the gut.  I think probiotic may help to firm up the stool.  You've to observe the side effect of nystatin as my son couldn't tolerate it.  

  
ultramom 寫道:
hi kawai,
阿仔自從完咗dsma provocation test之後, 我就由最basic開始比supplement佢.  先俾cod liver oil, 食咗幾日, 再加 dmg, 食咗幾日, 而家再加probiotic.
不過佢之前d 大便好唔正常, 又多臭屁, 幾日先有一次大便, 但係都唔係固體, 而係似好杰milkshake咁, 我問dr trodd, 佢話多數又係yeast overgrowth喎, 佢話又要食diflucan.  我話阿仔5個星期內已經食咗兩個courses 的diflucan, 驚頂唔順, 問佢用nystatin會唔會好d, 佢又冇答, 不過就開咗nystatin比阿仔食, 今日去攞.
請問有冇人連用幾個course的diflucan呀?

Rank: 3Rank: 3


127
684#
發表於 05-10-27 23:11 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Kawai,
A belated Happy Birthday to your younger son from both of us!  快高長大、健健康康、平平安安!

sjmama & Siu_Ming
耶穌在路上看見一個生下來就瞎眼的人。他的門徒問他說:「老師,這個人生來就瞎眼,是誰的罪造成的?是他自己的罪,還是他父母的罪呢?」 耶穌回答說:「他瞎眼和他自己或他父母的罪都沒有關係,而是要在他身上彰顯天主的能力。」(若/ 約9:1-3) 你應該在上主面前安心依靠,不要因萬事順當的人而煩惱 (詠/詩 37:7) "If you really love one another, you will not be able to avoid making sacrifices." ~ Mother Teresa

Rank: 4


725
685#
發表於 05-10-27 23:54 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Siu Ming,

承你貴言! 但願我們大家的孩子都能從特殊框框跳出康莊大道.

各位,

今日放工沒有去永安卻走去旺角荷花親子,因為Dr.Lam要我們換晒全屋的清潔用品,不可以再用那些有化學成份例如漂白水,火酒,detox等等.  因那些化學物質會破壞和減低我們身體
的天然排毒glutathione.這對我們的小孩很不利,因他們已先天不足,排毒功能較正常弱.食supplement都補唔番啊.

荷花親子特買:  美國入口菌必殺高效能環保清潔劑,採用立米技術.可洗地抹家俬,廚房及廁所.可為百搭清潔劑.現買一送一售$36 1公升.

另外有美國入口Green Mark環保除臭辟味劑,可洗廁所及一般清潔用. 現買一送二 售$28 1支. 真係平過漂白水.


Rank: 3Rank: 3


365
686#
發表於 05-10-28 09:45 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Kawai,

I shall go to 荷花親子 today during lunchtime to check.  Thanks for your information.  

Do you have any suggestion (brand) on dish detergent?

Another topic, I have given Justin APF enzymes and Zime Prime for almost a week.  He has no particular side effect but surely has better appetite with wider range of foods available.  I feel more comfortable in giving him gluten foods now!

Justin2002

Rank: 4


725
687#
發表於 05-10-28 10:12 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Justin2002,

I bought SWASHES "詩樂氏 "Multi-Purpose washing detergent in 荷花親子 yesterday.  The cleaning agents in SWASHES are biodegradable and 100% chemical free formulation.  Use for kitchen and baby utensilis, fruits and vegetables cleaning.  Original price is $59 for 1 litre.  Now is special price @$16 for purchasing over $200  

Besides, did you introduce the enzymes to your son gradually?  Remember to start each one low and slow at the beginning.  

Rank: 3Rank: 3


365
688#
發表於 05-10-28 10:23 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Kawai,

Thanks for the info and I'll see today.

Yes, I started both enzymes in one capsule quantity but my son suddenly had nose-bleeding during middle of one night.  I don't know if this is because of enzyme but anyway, I halved the dosage and he just takes 1/2 capsule each time with 3 times a day.
So far so good, no worse-off but sees improvement (not necessarily because of enzyme effect) in speech and development.

Justin2002

Rank: 4


725
689#
發表於 05-10-28 14:13 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Cancer News from Johns Hopkins: ++ Johns Hopkins has recently sent this out in its newsletters.

* No plastic containers in micro.
* No water bottles in freezer.
* No plastic wrap in micro.

This information is being circulated at Walter Reed Army Medical Center.

* Dioxin chemicals causes cancer, especially breast cancer.
* Dioxins are highly poisonous to the cells of our bodies.
* Don't freeze your plastic bottles with water in them as this releases dioxins from the plastic.

Recently, Dr. Edward Fujimoto, Wellness Program manager at Castle Hospital, was on a TV program to explain this health hazard.

*He talked about dioxins and how bad they are for us. He said that we should not be heating our food in the microwave using plastic containers. This applies to foods that contain fat. He said that the combination of fat, high heat, and plastics releases dioxin into the food and ultimately into the cells of the body.

* He recommends using glass, Corning Ware, or ceramic containers for heating food. You get the same results, only without the dioxin.

* So such things as TV dinners, instant ramen and soups, etc., should be removed from the container and heated in something else. Paper isn't bad but you don't know what is in the paper. It's just safer to use tempered glass, Corning Ware, etc. He reminded us that a while ago some of the fast food restaurants moved away from the foam containers to paper. The dioxin problem is one of the reasons.

* Also, he pointed out that Saran wrap is just as dangerous when placed over foods to be cooked in the microwave. As the food is nuked, the high heat causes poisonous toxins to actually melt out of the plastic wrap and drip into the food.. Cover food with a paper towel instead.

Rank: 3Rank: 3


446
690#
發表於 05-10-30 20:37 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear Mums,
Finally I can come back again after fair.
I visited Dr. Lam today again. After talking to him, he gave me B12 for injection at home. My husband did that in front of him at the clinic today.
We will start the inject twice per week at home for Yu from now on as well.

Would you please share what I need to pay attention
while making injection? And how to make  30 degree injection? I have complained to him reg. Yu's hyper during last weeks. He said it was normal as the heavy metals were stirred up after taking DMSA and
he had adjusted the supplement a little bit, but DMSA is given twice per week still. He commented there would not be side effects to liver in the way he instructed us to take... On the contrary, if we take three days and rest for 2 weeks, it will hurt more to the liver..?

Kawai,
the medicine which Dr. Lam gave to us for driving away lead is : EDTA SUPP.. to put inside my son's pat pat twice per week.

Rank: 4


725
691#
發表於 05-10-31 23:43 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

mickeyma,

Please review our previous posting by other parents about the B12 injections.  My husband did the 30 degree injection tonight successfully even though my son's pat pat is not fat enough.  

I think EDTA suppositories are the latest chelation therapy and safer than the oral or injection form.  The formula uses Ca-Disodium EDTA, a synthetic/artificial amino acid.  Anyway, it is suggested to have a lab test after 2-3 month therapy.  Click to see the following link for more info:

EDTA Suppositories

mickeyma 寫道:
Dear Mums,
Finally I can come back again after fair.
I visited Dr. Lam today again. After talking to him, he gave me B12 for injection at home. My husband did that in front of him at the clinic today.
We will start the inject twice per week at home for Yu from now on as well.

Would you please share what I need to pay attention
while making injection? And how to make  30 degree injection? I have complained to him reg. Yu's hyper during last weeks. He said it was normal as the heavy metals were stirred up after taking DMSA and
he had adjusted the supplement a little bit, but DMSA is given twice per week still. He commented there would not be side effects to liver in the way he instructed us to take... On the contrary, if we take three days and rest for 2 weeks, it will hurt more to the liver..?

Kawai,
the medicine which Dr. Lam gave to us for driving away lead is : EDTA SUPP.. to put inside my son's pat pat twice per week.

Rank: 3Rank: 3


127
692#
發表於 05-11-1 01:21 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi All,

I have a technical question about applying Glutathione Gel.  Dr. Lam told me to apply it to my son's feet (soles) in bed time, wrap them up with plastic wraps for a night long until morning...but my son would normally "half-sleep-half-awake" in the mid-night to go to toilet.  I am afraid that it would give him a big slip over.  Does anyone have any good suggestion?

This was our first time visit to Dr. Lam.  The prescription also includes Coromega, DMAE capsules, Alpha Lipoic Acid, zinc and Magnesium suspension.  Will also do DMSA...I have headaches in how to feed my son all these...have to think of some strategies.

My son also had a B12 injection today.  No noticeable differences in terms of behaviour and speech etc.

Siu_Ming
耶穌在路上看見一個生下來就瞎眼的人。他的門徒問他說:「老師,這個人生來就瞎眼,是誰的罪造成的?是他自己的罪,還是他父母的罪呢?」 耶穌回答說:「他瞎眼和他自己或他父母的罪都沒有關係,而是要在他身上彰顯天主的能力。」(若/ 約9:1-3) 你應該在上主面前安心依靠,不要因萬事順當的人而煩惱 (詠/詩 37:7) "If you really love one another, you will not be able to avoid making sacrifices." ~ Mother Teresa

Rank: 3Rank: 3


446
693#
發表於 05-11-1 12:17 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear Siu_Ming,
At  my first visit, Dr. Lam asked us to apply the Glutathione Gel on both of my son's armpits. That worked out very well, but just too smelling. When
we complained to him next visit, he suggested us to do the same as your message so that the smelling is not so strong and it is good to absorb the gel as well. As My son will sleep whole night, so I do not have the problem as you. I think you can gradually stop the habit of your son to go to toilet at midnight by giving him less water before sleeping and Dr. Lam's supplement will help kids sleep well..

So did you do the test on heavy metal before Dr. Lam gave you DMSA for treatment? How often will your son take that?  

Kawai,
The lab. test you mentioned 2-3 months later is blood testing for lung and liver... or the heavy metal testing again?

Mickeyma

Rank: 4


725
694#
發表於 05-11-1 22:46 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Siu Ming,

Dr. Trodd suggested that the Glutathione Gel can be rubbed on the back before bed time.  Is your son taking the B12 injections twice a week?  Please be reminded that the normal practice is every 3 days or 2 times a week for maximium benefits of this treatment.

Besides, it is good to mix supplements with fresh orange juice.  You may find more detailed suggestion as follows:

IDEAS ON HOW TO EASILY TAKE NUTRITIONAL SUPPLEMENTS

Rank: 4


725
695#
發表於 05-11-1 22:59 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

mickeyma,

Actually blood test is important before and during the chelation therapy.  It will give you a clear picture of your son's health condition whether the DMSA will burden the liver and kidney.  Urine or hair tests will show you the progess of detoxification.  

You may ask Dr. Lam when will the next lab test for your son.   

Rank: 3Rank: 3


127
696#
發表於 05-11-1 23:54 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Thanks mickeyma and kawai for your very useful advice!

My son has good sleep but sometimes would need to go to pass water if he drinks too much water/ juice before bed.  Will try to change this habit...

Orange juice is always a good effective medium for feeding him supplements and medicine.  I am also thinking of prune juice as in our experience its taste is strong and pleasant enough to cover that of some medicine.

My son had his first B12 injection yesterday.  We haven't yet worked out a plan with Dr.Lam.  When I bring the urine sample to him next week after the DMSA challenge, I will consult him again.

We are hoping that the detox thing won't disturb our son's school life, which he has been fitting in so well (per his teachers).  Yesterday's visit to Dr. Lam has rekindled our hope.  I found him an experienced and knowledgeable doctor.

耶穌在路上看見一個生下來就瞎眼的人。他的門徒問他說:「老師,這個人生來就瞎眼,是誰的罪造成的?是他自己的罪,還是他父母的罪呢?」 耶穌回答說:「他瞎眼和他自己或他父母的罪都沒有關係,而是要在他身上彰顯天主的能力。」(若/ 約9:1-3) 你應該在上主面前安心依靠,不要因萬事順當的人而煩惱 (詠/詩 37:7) "If you really love one another, you will not be able to avoid making sacrifices." ~ Mother Teresa
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697#
發表於 05-11-3 01:15 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

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1022
698#
發表於 05-11-3 23:07 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

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Rank: 3Rank: 3


247
699#
發表於 05-11-4 00:40 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi stellacl,
請問你是否有本港的"防塵蟎"的床單/被袋訂購資料?  可不pm給我?  謝謝
yy

Rank: 3Rank: 3


247
700#
發表於 05-11-4 01:06 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

各位,
我嗰仔on gfcf diet. 好多嘢都唔食得.  奶就轉飲rice milk. 今日睇到篇文章話calcium對a仔好重要, 我想吓想吓, 阿仔食緊d嘢, 包括d supplements, 都冇calcium.  請問有冇好介紹?
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