剛收到通知, 兼收有位, 唔知讀唔讀 (急急)

Hei媽

hinhinmummy

好開心妳仔仔的進步, 我也在等待中.

關於津貼, 個社工都話唔係個個醫生都記得寫, 有

HayBMum

hinhinmummy,
是私家還是評估中心的醫生refer 做身體檢查? 同埋點解要照肺、照腎? 我個醫生無refer 我仔去做任何身體檢查喎!

hinhinmummy

Hei媽

我個仔本來有學校收k1架啦, 點知check左佢有問題之後, 我就再幫佢搵pre nursery, 初頭都好upset, 因為循道衛理不收, 依家保良局收左佢啦.

尋日阿仔去第一堂的言語治療, 個st話佢比係上個星期去做評估時有進步, 好開心呀!

我今朝臨返工的時侯, 照你的方法, 一手拿麵包, 一手拿百力茲, 叫佢指拿邊樣, 心諗都食完早餐, 佢一定揀百力茲啦, 點知一手比佢搶左麵包.

你有無比個仔看電視? 如果有, 不好比佢看甘多, 我之前就係可能比佢看得太多電視, 佢真係由起身果一刻, 去開電視, 看到訓覺.

依家我cut晒電視, 連我們都不看, 佢真係尊注左去做一樣野, 同埋eye contact實左(連尋日個st都甘講).

同埋上次見劉醫生時, 她教我們整本溝通簿, 用本clear folder裝住佢平常的日用品/玩具的相, 如果佢想要野, 就拿個floder出黎, 叫佢指比你看.

但我發覺, 用4r再過膠比裝係clear folder度方便.



HayBmum

係政府醫生refer的, 我不知點解醫生叫佢做mug多野, 不過佢話過, 自閉症可能係遺傳, 同時亦可能其他身體有毛病, 所以幾乎可以check的野, 都check晒.

依家欠, 照肺, check眼, 同遺傳科(要11月), 跟住9月再返去看report見精神科.

justjust

Hi hinhinmummy,

I haven't arranged any OT for my girl.  I thought about it at the beginning but the social worker advised us to take it slowly, one training at a time.  She said our girl had improve a lot after we switched from 3 languages to only 1, and that meant language confusion may be the major reason hindering her speech development.  She said we could consider OT if we think the effect of only ST is not enough.  My girl can currently do some table tasks for max. half an hour, but of course with immense persuasion and guidance from us.  Otherwise she will be wandering around looking for different toys to play with.  Actually thanks to gigi2's ideas, I remember that my girl can concentrate for longer when she draws/paints (esp. with a brush) and sings and dances.  I am thinking of making use of this to lengthen her attention span.  If this doesn't work, we may consider OT.

In fact I also benefit a lot from the info. and experience of other parents here.  I remember an US movie some time ago about a little boy's classroom project.  His's goal was to do 3 good things to the others, and each one receiving his help are supposed to help 3 more people.  This way help and love can be passed on making the world a nicer place to live in.  Everybody including the teacher thought it was a silly idea and undoable.  The boy died at the end in a school violence but his good deeds have been spread around through out the whole country like a chain effect.  It is a sad but sweet story.  Sorry for sidetracking, what I mean is let's extend our hands to the others and we will live in a warmer world.  Let's keep up our efforts.

Hei媽,

I just noticed that your son is not yet 2.  It is quite difficult to make a judgement on autism at this stage.

I am not a pro and I don't know what will be the difference between training given to autistic kids and kids with autistic features.  But I remember that kids with autistic features e.g. weak social skills, speech delay, etc. can recover completely over time with proper training.  If a child has autistic features but not really autistic him/herself, probably he/she doesn't need some training typically given to autistic kids. He/she can spend more time on other aspects.  Parents with experience please correct me if I'm wrong here.

I agree with hinhinmummy.  Don't be upset by the label of Disability Allowance.  Whether your son is serious or not, some financial assistance is always good whether for therapy sessions or toys.

有無媽咪搵基督教服務處的早期訓練, 因我家附近有centre,價錢是400元 50/60分鐘(忘記了),又是單對單,可選擇晚上, 唔知係咪好係協康好??? Yes, we are having a private ST arranged by 基督教服務處,  $400/hr, at Kwun Tong.  She is patient and always asks the progress of our girl so as to prepare suitable materials for her.  She also prepares cards of many things (subject; verb, object, adjective) to help our girl speaking complete sentences. So when our girl "read" the different cards, she is actualy reading out a complete sentence.  Overtime she will get the sentence structure imprinted in her mind and won't need the cards anymore.

HayBMum,

評估中心的醫生 also refer our girl to do another hearing test.  This is because we have conducted one at a private audiologist and they suggested us to do a follow up test when our girl turns 3.  評估中心的醫生 read the report and referred us to their centre which should have more advanced equipment.

hinhinmummy

justjust

點解我會問你ot的野, 係因為劉醫生同我講過, 軒軒因為認知力差, 未識與人溝通, 如果依家夾硬要佢學講野, 佢只會'應無'式甘講野.

而step center就答我話, 佢地會主張用言語治療先, 因為如果識講野, 就會識得點樣去同人溝通.  還話可能不係甘公平, 因為佢地center無ot.

我就覺得劉醫生的講法比較通d, 我本想打電話問劉醫生的意見, 但佢放緊假, 要下個月中先返, 所以我依家比住佢做住言語治療先.

yes. 我們應該將我們的經驗去分享, 令到其他同樣有困難的媽咪得到正確的information.

by the way, 你可不可以pm你個st的電話比我? 我想考慮轉另一個? 不知係不係我老公帶軒軒去做treatment, 而老公又不識話返比我聽點樣係屋企訓練軒軒, 我覺得好似step center的st無mug野教到我們.  下個星期六, 我會自己帶軒軒去, 到時再研究好不好轉另一個st.

mamee

hinhinmummy

我仔仔本來係協康做st, 剛剛個治療師自己離開左協康, 自己開個centre做st, 我會跟個治療師走. 佢個centre係銅鑼灣, 如果你有興趣既話, 我再pm啲資料俾你.

mamee

hinhinmummy

mamee

你pm d資料比我.

justjust

hinhinmummy,

I feel that 劉醫生同我講過, 軒軒因為認知力差, 未識與人溝通, 如果依家夾硬要佢學講野, 佢只會'應無'式甘講野 is correct, 如果識講野, 就會識得點樣去同人溝通 is also correct.

Probably Dr. Lau, gov't doctor and nurses have explained to you that there are 2 parts of speech development, cognitive (認知) and expressive (表達).  Therefore for a kid that is 認知力差, definitely 硬要佢學講野, 佢只會'應無'式甘講野.  On the other hand, I've seen that since my girl picked up more words/phrases, she can really communicate with us what she want. A very positive side effect is that we both have smaller temper, as there are fewer frustrations with communication problems.

I only know that OT can help to train the concentration and attention focus.  I don't know the other objectives of OT. But I can share with you what my private ST does.

She doesn't 夾硬要my girl學講野 at the beginning.  She would like her to make expressive requests for things she wants. e.g. If she wants to play puzzle, we would request her to give us the picture card of puzzle before satisfying her request.  This is to train her making requests, instead of just grabbing the puzzles, or just making "eh eh" sounds.

The next step is to teach her names of various things. (we have been doing this ourselves even before seeing the ST)  At this stage, our girl has to pick up the picture card and say the name before she can get what she wants.  The picture cards are quite powerful because they isolate irrelevant background and we can teach our girl the concept more effectively.  At the same time I have also prepared many flashcards myself to teach her household items, actions (verbs), weather, food, toys, transportation means, etc.  Almost all daily activities, reading, playgroup, going out can be part of this cognitive learning process.

The third stage is phrase making using 2 elements: "want cookie", "drink milk", or "I want", "Mama sit", "apa drink", etc.

Now she is in the 4th stage of 3 or 4-element sentences: "I want red car", "Mama drink water", "apa sit down please".  Of course without we prompting, she would only say the key word "sleep", or "this one".  We prompt her to say the full sentence before satisfying her want.

I think the approach of different STs are more or less the same.  But I like this ST because she doesn't emphasize on speaking right at the beginning.  She insist our girl has to make request, whether physically by picking up a picture card, or verbally.  Also the use of picture cards help our girl to understand sentence structure more easily.  I don't know if this is common, but my other ST doesn't use picture cards at all.  It all depends on the child to memorize the phrases/sentence structure.

I'll send you PM later.

gigi2

Hello Justjust & everybody,

Based on my child current interests and strengths, most likely I will enroll her into some music playgroup i.e. choir when she starts K1.  She loves singing and dancing very much and also can perform very well for longer time.

But just a bit worry about the current long summer holiday - she will have plenty of time with my maid which she has to tune into English language more than Cantonese.  Unlike your situation, we still have to use bilingual languages at home (I find that my maid will speak with her friends in Philippines language in front of my little girl but which I cannot stop and prevent).  Just hope that it will not be a big problem to my girl while getting the threshold of building 3 elements sentence.

To be a working mom, sometimes it seems quite helpless at all.
:cry:  

justjust

Music playgroup and choir is a good idea.  I will search for info. for this kind of activities.

Thank you gigi2.  You always enlighten me.

gigi2

Not at all.  Support to each other is very important in this forum.

hinhinmummy

justjust

我聽我老公講, 尋日個st要軒軒講'要'先比一樣野佢, 我都不知係岩定不岩, 又或者係我老公講得不詳細.

因為初初劉醫生介紹比我果位st, 岩岩放緊產假, 所以step center搵左呢個st比我.

我都不想甘快去判斷/武斷呢個st的訓練方法, 不竟佢係專業人士, 我不係.  但我亦不想浪費軒軒/我的時間.  錢, 對我黎講, 雖然好重要, 但我覺得浪費軒軒的時間比浪費我的錢來得重要.

而且step center都不平bor, 300元半個鐘.

gigi2

我之前的印印又係甘啦, 係屋企成日講電話(當然印尼文), 而同佢個家姐(我奶奶個工人), 又成日見, 當然又係印尼文啦.

有一排, 我個女居然識講一兩句印尼文.

而家我呢個工人, 我同佢講過, 絕對不可以係我小朋友面前講印尼文, 如果要講, 返印尼慢慢講.

hinhinmummy

我早排見到有新聞話, music係可以剌激小朋友的腦部發展, 我亦錯經見過bk有個廣告話有d playgroup 可以for 有自閉症的小朋友, 但依家搵不返?

好似開始同呢個topic離左題.

gigi2

Hello, Hinhinmummy,

I think I only can advise or persuade my maid not to speak her own language in front of my girl as less as possible.  Since we do not have any relatives to monitor her while we are working , even she promised me to follow my instruction but in fact I could not know whether she really did it or not.  Only sometimes my big girl could tell me what has been happening during the daytime or after school, however, I do not want my big girl to be a spider at home which probably will make my maid dislike her gradually in the end.  It seems that I have handled quite loose to my maid, do you?  Actually, this is not true as sometimes I will warn and blame her for what she has performed unsatisfactorily.  However, to be a full time mommy you cannot blame her every single piece of substandard behaviour and if not having too serious effect at the end of such substandard performance that I would evaluate about, normally I will adopt the manner of discussion and order instruction rather than warning or threatening to her.

Luckily, up to the moment the progress of language improvement is still OK though we are using bilingual language to train my girl.  To get the music class not only for training but the main purpose is to enhance her strengths and explore her talents in this field whereby she will build up self confidence in future.  

Hope that she will have another big jump after 3.

hinhinmummy

gigi2

可能我比較好彩(不好彩?), 99住隔離, 好多時可以望我'看'住個工人, 但自從知道軒軒有語言問題之後, 我同老公已經打算裝個錄影機係屋企, 我不係想看住個工人做野, 而係想佢同個仔玩多d, 講多d野, 因為我呢個印印真係好靜, 不願講野, 我亦同agent講左我依家的要求, agent亦叫左佢返公司'照肺', 但佢地的野, 我諗每個僱主都知, 佢地係你面前做一套, 背後有無做真係不知.

我要make sure佢要照我的instruction去做.  我亦warn過佢, 如果軒軒無進步, 我會resign係屋企, 到時不需要佢.

依家放緊暑假, 9月軒軒讀pre nursery, 全日, 我希望到時軒軒會同多d小朋友一齊, 會刺激到佢的社交/語言能力.

gigi2

[quote]我要make sure佢要照我的instruction去做. 我亦warn過佢, 如果軒軒無進步, 我會resign係屋企, 到時不需要佢.

Yeee...I did the same wor...How coincidence!   :wink:  

mamee

hinhinmummy

我當然不是一個專業人士, 大家就當分享經驗.

我睇番仔仔第一堂上st(當時佢2y3m)既家居學習紀錄表上寫:
1. 學動作[俾]=攤開手掌, 呢個手勢.
係我既經歷裡面, 發覺原來教小朋友講說話, 動作係重要既一環. 以前真係無注意過.

2. 常規: 收玩具/拍椅
要拿到佢既注意先去教, 而唔係我有我講, 佢又佢玩.
所以做訓練=玩玩具既時間, 應該在安靜環境, 同小朋友齊齊坐好先去玩/教.

3. 玩具操作
拼合/入形狀(不同類)

* * * * *

仔仔未上過ot, 因為醫生同協康導師都不覺得需要, 佢小肌肉ok. 反而仔仔就有上協康既幼兒訓練. 上幼兒訓練最主要目的係教我點教仔仔. 以往可能因為仔仔專意力差, 我又唔識得用方法去拿到佢attention, 所以變得無從入手.

我都認同[認知]行先過[說話].
但係你仔仔應該上邊樣就我唔敢下判斷. 你仔仔專注力如何, 肯安靜坐靜玩玩具嗎? 肯坐就容易教好多.

st資料再pm你

mamee

hinhinmummy

mamee

家居學習記錄表係mug東東?

軒軒尋日先上第一堂言語治療.

我幫佢填左ot & st的form比協康, 佢地無同我講過叫我不好做某一樣wor, 還話會幫我安排兩樣同一日做, 不駛我行兩次.

可能因為劉醫生的report寫軒軒需要ot & st啦.

可能係過去的一年, 屋企發生好多野, 老爺入左醫院(好長時間), 跟住過身, 跟住二伯迫遷, 幫大女搵學校, 搬屋...好多好多, 根本忽略左個細的, 個工人又新黎, 好靜不講野, 只係比電視軒軒看.

甘岩我又買左d英文phonics 的vcd比個女看, 軒軒就日看夜看, 佢未識叫媽媽, 就叫'ca ca cake', 'ca ca candy'.  所以不肯玩玩具, 對其他事無反應.

兩-三個星期前, 收起晒所有vcd, 不看電視, 依家肯玩多d, 玩的時間又長左.

其實我都query, 係不係因為我/工人比佢看得多電視, 令到佢專注力差?

拼圖, 佢依家識啦, 我比四樣野佢, 兩個好似n形, 兩個半月形, 我教佢將兩兩個n形對方, 入邊再放兩個半月形, 甘變左一個四方形, 試左兩次, 佢就識啦, 以前佢根本不會看我做, 跟住去學.

你個st的center係cwb, 正是我住處.

gigi2

Hinhinmummy,

If your Dr. Lau is coming from Union Hospital, she is the one who assessed my girl with autistic features just because my girl could not play the game by using a doll and look at us rather than look at her (Dr. Lau).  Within a week, we took my girl to a Professor/Doctor of Child Psychology and the assessment result was only the speech delay but not autistic child.

Sorry to post this but just would like to share my experience which frustrated me a lot at the time and I would never forget about it.

hinhinmummy

gigi2

我果個劉醫生係劉健真(iris lau), 不知有無記錯佢的中文名, 佢係養和或者仁安掛單的.

我之前去大口環兒童發展評估中心, 果個馮醫生又係話我個仔有自閉症, 但係劉醫生話佢只會話軒軒係pdd (全名不記得), 即係整體性發展disorder.

我依家不理軒軒係不係真係自閉症, 因為我都認同佢真係比其他正常的小朋友發展有問題, 社交能力差.

我會積極比訓練佢(雖然有時諗起都會喊, 不開心), 學劉醫生話, 不好比自閉症呢個term嚇親/困繞自己.

甘係不係同一個劉醫生?