家有自閉傾向的小朋友......

HelenMrs.Lau

     唔睇我POST出黎D料      

亞氏保加症特徵
•容易產生「緊張」的情緒
•不明白「開玩笑說話」與「真話」的分別
•不明白尊卑，長幼的概念
•說話語調平坦，分不開喜怒哀樂
•固執，不能接受改變
•動作較為笨拙
•缺乏創意
•不太明白�留意別人的面部表動作

hinhinmummy 寫道:
不好意思, 見你們成日提
asperger, 中文係乜東東

hinhinmummy

e, 做乜打人者, 甘話亞氏保亞症之麻, 又無講英文係乜, 我點知asperger=亞氏保亞症wor

Dr.T

1. 對我來說,一樣.我甚至會寧願用Autism Spectrum Disorder.在這方面我絕對是一個跟不上"潮流"的人...

2. 情緒控制困難不是自閉症的診斷基準之一.

sjmama 寫道:
1. May I ask what is the difference between a "High-functioning Autism" and an "Asperger"?

2. Besides, do you think "weak in emotional control" is a symptom of autism/ asperger?

kmwun

記得有次見臨床心理學家提起asperger，佢即刻同我講自閉症個框其實好大，而唔同小朋友嘅情況不盡相同．我稔佢可能擔心作為家長可能好抗拒小朋友係自閉，繼而想找一些別的病稱來讓自己好過點．但作為一般嘅市民大眾，我覺得叫什麼也只是一個名稱，好似心理學家所講自閉症個框其實好大，用asperger只係想找一個比較貼切仔仔情況的"形容詞"或者"名詞"．對我自閉同asperger沒有排他性，而且頗多嘅病徵相同．

班門弄斧，失禮！失禮！    

[quote]
Dr.T 寫道:
1. 對我來說,一樣.我甚至會寧願用Autism Spectrum Disorder.在這方面我絕對是一個跟不上"潮流"的人...

Chr336

稚言治語 and all,

請問我應該替仔仔報讀協康的青蔥計劃或是痙攣會的課程, 看完一些書籍更加擔心.

Chr336.

稚言治語

Chr336 寫道:
請問我應該替仔仔報讀協康的青蔥計劃或是痙攣會的課程, 看完一些書籍更加擔心.

你看完什麼書令你更加擔心呀？講出嚟聽吓﹗

我個人認為協康的比較好，但排期需時。你兩樣都報啦﹗因為痙攣有位你就做住先，點都好過齋等。亦可以考慮私人的服務，會貴少少，但係唔駛點排期。

Chr336

稚言治語,

我看的是協康的自閉症兒童訓練指南,因為這是一世的.
另我想問我的兒子會否給分類為"傷殘人士"呀?

稚言治語

Chr336 寫道:
我看的是協康的自閉症兒童訓練指南,因為這是一世的.
另我想問我的兒子會否給分類為"傷殘人士"呀?

醫生有沒有說仔仔是自閉症還是"有自閉症的傾向"？如果是後者，便不用太擔心。不少發展遲緩的小朋友在幼兒階段也會出現某些類似自閉症的行為，這些行為中，大部分會隨著時間過去而減淡(provided 有訓練)。

自閉症的確沒有藥物可以治癒，但經過訓練，很多小朋友還是可以融入社會的，不用太擔心。

對香港政府來說，自閉症是傷殘的一種，可以領取傷殘津貼。"自閉傾向"則未必是。要看你的兒子有多嚴重才知道啊﹗

話說回來，其他人界定他是否"傷殘"對你，對兒子有什麼影響呢？不要讓這些無關痛癢的事影響自己啊﹗

hinhinmummy

對香港政府來說，自閉症是傷殘的一種，可以領取傷殘津貼。"自閉傾向"則未必是。要看你的兒子有多嚴重才知道啊﹗--------------

稚言治語,

你不好嚇我wor, 軒軒都係比醫生話係自閉傾向, 但佢拿到傷殘津貼wor, 不過就兩年.....甘即係嚴不嚴重呀?

還有, 自從果日問完係同dr.t之後, 我們無再理佢dup低頭, 呢兩日佢好左小小, at least佢不會成條腰彎晒好似呀婆甘行路.

希望過多幾日佢會忘記呢個'玩意'

thanks.  還有dr.t

BBHim

各位,

經搜尋後找到以下資料, 你地有什麼意見, 唔知呢隻產品好唔好…

浮游海藻(Microalgaes)萃取高純度植物油DHA/AA

http://www.healthwomen.com.tw/dha.htm

稚言治語

hinhinmummy 寫道:
你不好嚇我wor, 軒軒都係比醫生話係自閉傾向, 但佢拿到傷殘津貼wor, 不過就兩年.....甘即係嚴不嚴重呀?

咁重要睇醫生嘅﹗好人嘅咪寫兩三年過你，等你帶亞仔去做訓練囉﹗

都係嗰句，人哋點睇亞仔嚴唔嚴重，算唔算傷殘真係冇乜關係，唔駛擔心啦。作為納稅人，用返政府少少都ok啫，係咪？

bbwailun

hi,
我的仔仔27個月,現在只是說媽媽,爸爸,姊姊,波波,車車,hello, apple. 溝通能力弱, no eye contact

上星期同仔仔見私人語言治療司, 佢話仔仔語言能力弱,有自閉傾向, 叫仔仔一個星期上二堂, 不過我報了heep hong的幼兒訓練, 所以而家一星期返一堂, 唔知甘安排好唔好呢?

今早去見智能評估中心的姑娘, 佢話要半年先排到見醫生, too long, 再排 s 位  i 位 eetc, 甘咪要成一年, 到時仔仔都3 years and more.

現在我好唔開心同擔心, 食唔到飯, 睡不到覺,好似接受唔到甘.   

st213

hi bbwailun,

不要氣餒呀! 雖然小朋友的發展出現了問題, 但你已經做得好好, 在這個時候已能找到幼兒訓練及言語治療給你的孩子! 越早能開始適當的訓練, 小朋友的進步會越好的!

一個星期做一次言語治療 + 幼兒訓練是很好的安排. 正如你所講, 如果只是等評估中心的安排, 半年先見到醫生, 到轉仲後再要輪到服務可能已經是一年之後的事. 如果真的是這樣, 才是值得擔心呢!

27 個月只能說一些單詞的確會令做媽媽的很擔心, 我不知道你小朋友的情況, 但至少他已經能說話, 加上做言語治療, 俾些心機啊~ 萬事起頭難, 但你的孩子一定會和你一起努力的. 還有這裡有很多家長也有和你一樣的困難, 你並不是孤單一個的呢!  

有咩問題隨時上來這裡和大家傾傾, 及可以 pm / email 給我!  

pamam

bbwailun,

worrying wouldn't help, just remember you are not alone, there are always help here or there.

As I told other moms before, my elder son is Asperger, I suspected my younger son also have some A-feature as he is speech delay and with little eye-contact, he is 29months and only been able to say single words. I have made an effort to talk to him more and sent him to a full-day nursery for the past few months but nothing happened.  Suddenly 2 weeks ago, he started singing and  talked in full  sentences, it is a huge improvement, although his pronounications are not so good, and his eye contact is still weak. But I am very very happy that he is making some progress.

What I am saying is there is always hope, we cannot control whether our children has A or not, but we can certainly help them as much as we could. Don't give up, be positive, let's all work hard!


Pamam   

Chr336

bbwailun,

Actually, I can't accept the truth also.  However, I know I have to let him learn more with training.  I applied the Heep Hong's 幼兒訓練服務 for my son and will start the first session on coming Tuesday.  I will see whether he need to have more training or not.  I tell myself not to give up although I feel very tired these days (I got the truth for ten days already).  Hope that we can support each other here and feel not lonely walking along this tough road.

Chr336

sjmama

Dear all,

My son's OT, who has been training my son since he was 3yr10mth just informed me today that my son didn't make any marked improvement these days, in spite of having more OT/SI treatment, as well as the auditory stimulation program. Even worse, according to her assessment, my daughter followed a very similar trend with my son's developmental profile, she is OK in cognitive development but is delayed in most other aspects, around 18months only. The OT suggested my girl needs professional intervention in her coming future.

This really hurts me! Don't know what to do....

      

ClaudeeMa

bbwailun 寫道:

上星期同仔仔見私人語言治療司, 佢話仔仔語言能力弱,有自閉傾向, 叫仔仔一個星期上二堂, 不過我報了heep hong的幼兒訓練, 所以而家一星期返一堂, 唔知甘安排好唔好呢?.........現在我好唔開心同擔心, 食唔到飯, 睡不到覺,好似接受唔到甘.   

實在在此討論區的媽咪又有邊一位會在知道評估結果後係會唔擔心，食到飯，睡到覺，一滴眼淚都無流過丫。
我自己的想法是幾難接受都要快d接受左先，然後儘力儘快爭取時間開始訓練。見到小朋友訓練後有進步個心會安樂d，也不用想得太灰。雖然我有時想下想下又會 ，但 完又會繼續努力帶個仔週圍去做訓練 。你反應能夠咁快 and　安排比小朋友上訓練，實在已做得好好架啦!比d信心小朋友同自己啦! 多d入來分享啦，你會發現重有我們這些媽媽陪你行這一條路，況且還有 Dr. T, 稚言治語等等專家教路，行少好多冤枉路架!

反而知道評估結果後唔接受唔面對又唔理以為大個d會無事ge 家長先係真正會誤左個小朋友啊!

gigi2

bbwailun,

Don't feel too sad as you find out the problem at early stage and you still have time to catch up the level.  My girl only spoke short words around 27 months.  Though she still fall behind the age level, she is able to express herself in full sentence and start to communicate with others when reached to 3 years old.  Keep on training.  It is a very hard and long way for you to go through but you will get reward later.

sjmama,

Don't scare yourself first but go to see professional for advice.  OT cannot assess the a-features or not.

mrsphcheung

Dear sjmama,
Don't let unhappy things occupy your mind.  I learnt a valuable lesson from the Mass today --- seek for God's help and He will answer you.  Our faith may help us overcome all the difficulties....  Ask your o.t. how to handle your daughter's problem.  I will pray for you.  Don't get too upset.   

pamam

sjmama,

don't be unhappy, seek another professional advice and I am sure they can work out something to help your girl.

Some professsionals can be very subjective and jump to conclusion too quickly, I don't know if I have told you, my son's PT thought my son should go to special school and there is no chance he can get into or stay in the mainstream school.......but other professionals and his school all thought he should be ok and would benefit most in a mainstream school.

I used to get very upset by the PT's comment, so I came to this forum and got lots of support from other moms especially from you. Don't despair! We are all here for you. We know our children best,  if you don't agree with that professional's opinion, seek another one, maybe Dr. T? Meanwhile, just continue training your girl.

Pamam