"自閉傾向"

HayBMum

mamee,
我有買假刀切生果,囝囝學呢

bandband

HayBMum,

係呀...但我覺得如果你本身都覺得佢未必係,咁樣應該佢都唔係嚴重嗰隻噃...我覺得我地唔好低估呢類小朋友既能力(power)囉,好似我個仔咁,三歲未入依家間兼收位幼兒園之前,我都認為個囝囝好嚴重(俾人連環踼過兩次出校,因為成日重毆大人同人地小朋友,又唔肯講任何嘢,成日都好似隻狂牛咁,一味尖叫亂咁打人同傷害自己...等),都諗住呢間都係第三間唔要我個仔既學校,就算符碌俾個仔讀到畢業,我都以為佢實入硬特殊小學,正規小學無佢份...但佢既突如其來既進步(自從讀兼收位呢兩年,佢係明顯地進步咗),尤其係呢個零月,真係估唔到佢會咁,好似變咗第二個小朋友咁,而且學嘢又無咩大問題,老師都讚佢呢期勁叻!連學校亞嬸都笑住話:"唔出聲就真係一粒聲都唔出,一開聲就好似開龍雀咁咩嘢都講~!" 俾啲信心自己同個仔啦!我個人認為你應該放膽俾個仔試吓入讀兼收位,我覺得咁樣一來俾佢接觸多啲小朋友,二來容易適應正規學校生活,三來又唔駛佢第日升小學嗰陣麻煩,你不如考慮吓啦.

gigi2

Hi, HayBmom & Bandband!

Nowadays the Dept or some paediatricians like using the terms of autistic like, features or prone etc. to describe kids with some features of autistic.  But my Doctor of Child Psychology claimed that my girl got speech delay only and with her self centered characters.  He further pointed out that there are a lot of kids with self centered characters but confirmed by some paediatricians that they are autistic childs.  

You know?   My girl diagnosised as autistic by a paedictrician at Hospital but she even has no symptoms or features like BandBand’s Boy.  She has a strong abilities in imitating skills and words recognition.  Her speaking ability is normal but with less eyes contact to persons and she could not feed the doll while playing the game at Hospital and she then was classified by the paediatrician as autistic which frustrated me a lot this recent month already!   

bobomum

I agreed with what my son's therapist said, she said that autism is actually quite difficult to define and labelling a child with "autism' sometimes will limit his/her learning opportunities.  What is important is to treat the behaviours, whether the name is "autism" or not does not matter.  I think no matter the child is autism or not, training is defintely beneficial and worth paying (rather than buy new clothes and toys for the child)!!!!!

bandband

其實我細佬以前都有少少自閉傾向,但我媽咪唔接受,所以都堅持用番正統教育再加我媽咪悉心教養,依家我細佬除咗講嘢有少少漏口之外,佢任何方面都叻,講英文國語掂過碌蔗 ,讀書又得,依家佢响加拿大讀書,講英文都可以講到連正統外國人都話我細佬講英文講得好,考編班試,英文都係差一分就滿分,依家仲讀埋精英班,佢係怕羞啲,但係真係同一般小朋友無分別,生活得好開心而且有主見,番加拿大讀書都係佢自己爭取番嚟,我覺得佢好識諗, 所以其實自閉症一詞唔代表班小朋友唔掂,而係話俾我地知,我地係需要加倍愛心去教養去愛護佢地,好似依家我個仔咁,每個人(包括老師)都話佢講嘢講叻咗好多,呢啲係大家(老師,我兩公婆)努力得番嚟既成果,所以點都好,大家都唔好灰心! 我地一齊努力啦!

leungchai

Gigi2,

I am so impressed by your message, and I really inspired by your words.  Would you mind giving me your mobile phone number so that I could talk with you directly?  And may I also know the doctorate person whom you arranged for the assessment for your girl?  I want to double-confirmed with my son's case as the doctor from the government central assessment centre said he's suffering from autism tendency.  I want to have private training at home, but since it's rather difficult to make him sit down and concentrate, I don't know what to do.  I feel rather depressed at some moments.  If you really won't mind, could you share your experience with me?

Many thanks in advance,

Ivy

gigi2

Please check your PM.

hinhei

我大仔..........
初我們驚佢有自閉症,
跟住就過度活躍症,
到而加又擔心佢有亞氏保家症

半歲之前係絕對唔會同你有任何眼神接觸,你望佢佢便扭轉臉,你走去另一邊望佢,都無用,佢一樣係會被你的!要佢好似普通BB咁同你玩到哈哈笑,難過登天!

後都好啲,肯望人,但就唔識講嘢,直到兩歲幾..........變了開籠雀,想佢唔出聲都幾難!

但佢就是常常不受控制,動手打同學等,總之無停.幼兒園在佢三歲多時要我們帶他去做評估,老師園長覺得他有過度活躍症.
幸好當時他的表姐(和我差不多大)的工作正是有關兒童心理,是幫一啲自閉症、過度活躍症等的小朋友的.
結果政府和私人的都做了評估,兩方面都話佢無問題.而私人方面更說他的IQ比較高呢!

到現在.......
他仍是有些不受控制的行為,固執、專注力差等,最常見明顯的就是會無端端企起身跳,無論佢食食吓飯、睇電視、做功課等....都會特然走起身跳幾吓!
同朋友玩,包括佢細佬就最常見,玩得好地地,一玩得High過頭,就會做出啲傷害人的事,如用腳踢人等~~~~~
同情心..........真係唔係咁覺得佢有,有時係會有,但都係覺得佢做比我哋睇!因平日佢都成日故意搞喊個細佬!
而加學校又懷疑佢有"亞氏保家症",這是含自閉症的特性,但又不是自閉症.是最近才給人留意的!
現在就等六月政府個邊排期做,私人的就唔做啦!因實在太貴,動不動就四五千蚊!!!

kittylock

gigi,

Thank you for your experience sharing. I found it really useful and precious.

You mentioned that you trained you daughter at home (from methods suggested in books) before any formal training and it really works in improving her attention ability and communication skills.

Would you pls tell me which method and how can we do that?

Thanks!!

gigi2 寫道:
Including the private OT, my girl has been assessed by 3 different parties (OT, paediatrician from Union hospital & the Doctorate in Child Psychology).  Only the paediatrician named my girls as autistic like or tendency but the others said ‘NO’.  Also, when the paediatrician described to me about the term, she took a serious manner as she thought I would be mad after heard such description.  She further told me that THE CHILD WITH AUTISTIC FEATURES IS NOT AUTISM.  But parents need to pay more attention in order to train the child up to the average level for his/her deficit skills.  

My Doctorate and OT they said that they would not named this kind of child as autistic like as he/she is not autism at all but maybe poor in attention or social skills which can be improved by special & structured trainings.  Both my Doctorate and OT advised me not to focus the name of autistic features but on necessary trainings for my girl.  Especially the Doctorate was quite annoyed by some paediatricians today to abuse using the name of autistic features on children which are not fair to parents and the little boys/girls.

We do not start any private training or therapies yet as it will be begun in mid of April for OT training first and I'm still waiting for the replies from Heep Hong after Easter holidays.  Regarding the Gov't service?  Long long queue I was being told by the Social Welfare Dept!!!!

Therefore, my hubby and I together with my maid all give own training to my little girl for the skills which I learnt from books and advice from 3 assessment parties.  To my great surprise, only 2 weeks of our hard working to my little girl who suddenly said goodnight to my maid yesterday but added my maid's name ‘Goodnight, XXX!’. In the past, she would only wave her hands to speak ‘Goodnight’ and that's all.  But after our home training, she was willing to add person name as well to say goodnight which encouraged us a lot!!!!  Also, her eyes contact is increasing gradually.

See!?  Before starting any professional training, our home training can work on my little girl and I hope that she will have great improvement after she received the formal training from OT and Heep Hong Society.

I am now reading the book regarding the author how to train up their severe autism plus IQ deficit boy at home and their son now is grown up who does not only take care himself and but also can help some other people in the community.  The author would not give up even she got the typical & serious autism boy and her boy could also be brought up in good shape!  Autistic features can have much more improvement which depended on parents’ efforts to train the children.


So, if anyone who got their kids labeled as autistic features/like/tendency etc.  PARENTS DON’T BE FED UP AND FRIGHTENED!!!!  Your children is not autism but maybe at this moment she/he is weak in attention or communication skills which can be improved by early & appropriate trainings.  From the bar scale of testing a autism child, stating from point 30 will be termed as slightly autism which I was told by the Doctorate.  Below point 30 is nothing at all.

Don't be assessed by a single source but try to assess at least once more.  After that, you may conclude the common areas for improvement to your children by different assessments.  Very important, try to understand what is autism by reading books etc and you also may talk to some parents who are with similar cases.  

I'm just a starter to train my little girl and hope that she can catch up with level of the communications skills in future!

Good luck to every parent and your children!!!  We are the tools to express loves on our children as God loves us very much!

gigi2

Dear Kittylock,

First of all, I am only a starter for training and know too little about it but will be glad to share experience and ideas with other parents here.

I learnt some skills from the book ‘Louis Programme’ which I recommended it in another topic at the same forum.  Besides this, I also have gathered some advice from 3 assessment results (paediatrician, Doctor of Child Psychology and Occupational therapist) about how to play and train my girl.

I only will pick up some techniques or training which are most suitable to my girl current needs from the Book.  As this author also tells us that the training should be specifically designed for each child as everyone got the different level of performance and requirement for training.

Normally, I instructed my maid to do the table task everyday for my girl (training for attention; fine motors; imitation game & drawing etc) – my maid was being praised by my OT last Sunday training as she observed that my maid was the one who did love my girl.  

Anyway, I return to my topic – On every night after work and no matter how tired I will be, role play game & reading must be one of our priorities.  I want to stress that though these also have been my past activities to play with my girl before, I still will pay more efforts, skills and time to strengthen these activities.  I guess that I have spent more time on my elder daughter in the past but now I should balance the time with my 2 daughters and pay more attention on my little one.

In case of my little girl wants me to help her, I will request her verbal expression at first but will not insist her too much to do so as she got bad temper finally in the past and that will ruin her interests to speak.  Then I will name the action that she wants i.e. You wants Mommy to read you the book, okay, now I'm reading for you la!’  In the process, I always repeat to her now Mommy is reading for XXX (her name).  Always to use clear, short, precise sentence to communicate or to instruct her to follow the guidelines.  The whole family should use the same term or name to train her i.e.  We call her full Chinese name even my maid will do so.  That's to say, don't call her Mary or 'mui mui' first but after a minute call her Chinese full time suddenly.

My girl always points to the objects in the book and read them out in front of me.  To get my response, I tell her everytimes to look at my eyes first then I will follow her words from the book otherwise I keep silence until she looks at me.

Encourage more self caring techniques (I need my maid cooperation as all of you must understand that most of maids are always over caring with our children).  Today, my girl with 32 months except cannot drink water properly by cup and still wearing pulls up (Huggies), she has been trained to eat meals independently and sit very properly in the high chair to finish meals within 1/2 hour.  She can take off own shoes & socks excellently and try to pull up her own trousers, button & unbutton the clothes (for the big button only). All these self caring skills need our patience to wait for their completion!  Then they will gradually perform it better and better.

My home training is nothing special but I will select something that I think are suitable for my girl needs.  Hope you can also design your own home training plus the formal therapy training which I strongly believe that your children will be benefited from all these.

auntie1234

Very good for you to have a structure training schedule at home.  Work hard and you'll see the effect.  There is some points you need to remember:
-consistent training and handling approach among adults
- structure environment
- proper facilitation technique according to your child's ability
- clear reward system
.
.
.
.
Just give you some advices. HeHe!!!

gigi2

Thank you for your encouragement.

I quote a description to Neo from the movie of MATRIX REVOLUTIONS (series III):

"As long as a single breath in his body, he will never give up!"

HayBMum

Hi gigi2,
I am going to attend the next Louisprogram in order to acquire some skill for training my boy at home.  I know it's not an easy task but I will try my best. Will share the experience / ask for your helps after I take the program.

gigi2

Thank you very much as some of the techniques suggested by Madam Yim (the author) are very useful and practical no matter you want to train the children with autistic or speech delay.

diaryman

What is Louisprogram?
Where can I attend?
How $$$ ?

HayBMum

Louisprogram is provided by the organization of "努力試" which Mdm Yim was the founder.  You can visit the website to get the details.

http://www.louisprogram.org

lky

我個人認為應先為小孩選擇兼收位，待該校老師認為小孩不適合時才再轉往特殊中心。小孩那麼年幼便定他讀特殊中心，那實在沒有彎轉，況且他只是有自閉症傾向，何妨一試呢！請妳細心考慮，正所謂「近朱者亦，近墨者黑。」讓小孩跟多些正常的小孩一起學習、交流等，我想一定有進步的。若小孩的情況真的要特殊中心才能幫到，那就沒有選擇了。我想每對父母都會為小孩選擇最好的，對嗎？

diaryman

我諗真係要睇吓小朋友能力先決定，唔係一定揀混合位先掛，咁可能有負面影響

bandband

diaryman 寫道:
我諗真係要睇吓小朋友能力先決定，唔係一定揀混合位先掛，咁可能有負面影響

其實唔一定架!我地又點知個小朋友既能力去到邊呢??好似我個仔咁,佢都係自閉傾向,三歲一個字都唔肯講,剩係識得發老脾又無eye contact,但我都俾佢照讀混合位,初頭讀低班真係跟唔上,但係間學校會就住佢,唔會迫佢照升讀高班既課程,雖則依家我個仔係照升高班,但係老師都係重頭教番低班既課程俾佢,俾佢升高班既原因都係因為佢同自己班同學仔熟絡咗,老師唔想佢唔開心,想佢有多啲人際關係,所以都俾佢同番自己熟既同學相處,只係上課時要去低班班房上課,其餘時間(食飯食茶點,午睡,遊戲時間)就同番自己同學一齊,依家我個仔不單追得上低班課程,而且仲開始主動學英文學中文字,有番eye contact,講嘢又主動咗好多又叻咗,連職業治療師都話佢比上年進步咗好多!同埋佢份人又開朗咗好多!我就唔覺佢有啲咩大壓力嘞, 我覺得我地要俾佢地多啲信心,唔好因為佢係自閉傾向而睇低咗佢既能力,我以前都有好似你咁諗,有考慮過俾佢入讀特殊小學,但係經老師勸止,再加上我再進一步觀察,俾機會同信心個仔,依家我真係慶幸上年無話草率掟個仔入特殊小學!今年我會俾個仔讀多一年高班(我個仔今年十月先至到六歲,所以可以讀多一年),我會俾佢升正規小學,希望你真係諗真啲囉,自閉並非弱能,只係俾一般小朋友文靜同bb咗啲,可能你小朋友又會好似我個仔咁,突然响呢一兩個月內大進步,呢啲嘢,係我同你都唔會預計到!依家我個仔五歲半,但係已經追得上四歲既程度,希望你對你既小朋友有信心!佢係叻仔嚟既!

joey媽媽

bandband

睇完你的經驗,令我更加決定比個仔重讀多一年k3,打好個底,比機會佢進步,入讀小學融合位都易d    我有時都諗 我個仔會否似你個仔５歲先講野＊好似開水喉＊呢？我真好祈待∼∼∼∼∼∼∼ 佢佛誕個日就５歲了，希望有驚喜啦