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教育王國 討論區 特殊教育 "Biomedical Treatment - Parents' Group "
樓主: kawai
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"Biomedical Treatment - Parents' Group " [複製鏈接]

Rank: 3Rank: 3


108
2141#
發表於 06-10-22 23:54 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

HayBMum,

I think what Dr. Td said is not contradictory to what Dr U told u though -- that Mercury will come out AFTER the Lead, that means EDTA will not be effective on Mercury until Lead come out?  But I remember Dr. Lam said ETDA is only for Lead, and DMSA is targeted for Mercury (about 6 mths ago).

Rank: 4


646
2142#
發表於 06-10-23 00:07 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Not sure.  From the urine test, my son's mercury level is not low, although it is below ref.  Anyway, I will try one more round of DMSA before I switch to others.
Have you successfully formed the music therapy group yet?  

MerMee 寫道:
HayBMum,

I think what Dr. Td said is not contradictory to what Dr U told u though -- that Mercury will come out AFTER the Lead, that means EDTA will not be effective on Mercury until Lead come out?  But I remember Dr. Lam said ETDA is only for Lead, and DMSA is targeted for Mercury (about 6 mths ago).

Rank: 4


725
2143#
發表於 06-10-23 00:09 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Jasper888,

My son has been taking EDTA supp as chelator suggested by Dr. Usman.  As far as I know EDTA is the safest and a less invasive form of chelation agent compared with DMPS and DMSA.  Actually we find no negative side effect so far which is the most important to our kids. We probably will continue to use it as chelator till the toxins drop to a standard level.   Accordingly to Dr. Garry Gordon who is the expert on chelation in US.  He admitted that EDTA can be used for lifelong for everyone since we're living in a toxic world.  

Accordiny to Dr. Usman's explanation, She suggested EDTA because it's a good chelator to pull lead. Since my son has obvious symtom of suffering ADHD.  We definately will take her advice on trying EDTA.  Dr. Usman also includes DMPS supp in my son's chelation plan which is used once a week.      

      

Rank: 4


725
2144#
發表於 06-10-23 00:15 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

HayBMum & Mermee,

Dr. Usman told me that EDTA is for pulling lead and DMPS is for pulling mercury.  Only DMSA is effective for pulling both of them.   

Rank: 3Rank: 3


150
2145#
發表於 06-10-23 01:01 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi all,

Dominic has been on oral drops of Disodium ETDA since early September.  That was recommended by Dr. Usman and I told Trodd very straight-frowardly that I would use it back in late August.  So far so good, no side effect.  I will have to bring Dominic in for some tests early next month.  His main challenge now is to get rid of the aluminium.  That accounts for his clumsiness.

Rank: 3Rank: 3


108
2146#
發表於 06-10-23 01:16 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

kawai,
thanks for always be there to give the correct info.

HayBMum,
I don't think the Sun morning group can be formed la.
Since my "family day" usually starts at noon and also I thought Yan Yan's music group is quite relax and playful, so I thought most moms will be interested.  But I didn't consider many of our kids are actually fully packed with training during the week, esp some involve the intensive ABA, so it makes sense to let them take a rest on Sun to enjoy a happy family day.  

Rank: 4


544
2147#
發表於 06-10-23 12:45 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

HayBMum,

你就真係好彩啦!

RBC同CBC都有做, 每次兩樣都係一齊做, 另外仔仔入左小一要打MMR 2ND DOSE, 我同學校講自己攪, 所以今次有做埋呢樣TEST, 如果已有抗體, 就可以唔駛打預防針.

跟據Dr. U 同我講, 如果tolerate唔到DMSA, 可以用EDTA, EDTA全要係排ALUMINIUM同LEAD, DR. U話當身體重金屬負擔減輕左, 身體就會自己有能力排出MERCURY.

Dr. U建議lab tests有: cbc, liver function/kidney, iron, tsh, zinc, plasma.

HayBMum 寫道:
chanchanboy,
抽了的30cc 會唔會做埋CBC?  究竟兩者是否可以一齊做?
Carson's birthday in January 2000.

Rank: 3Rank: 3


365
2148#
發表於 06-10-23 14:40 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi all,

Just got the report from Dr. Td this morning.  Results with abnormalities were as follows:

1) NK Cell Activity - nothing to be done/prescribed (Dr. Td said can address to this later)

2) IgG & IgM Fibrillarin - means mercury problem, again, no chelation is suggested

3) IgG Rubeola (measles) - use mega Vitamin A dosage

4) IgG Epstein-BarrVCA - another kind of viral infection

5) IgM HHV-6 (Herpes Type-6) - prescribed Valtrex

Surprisingly, nothing abnormal related to wheat/milk allergy.  He also commented that his report is fairly good.  He prefer to treat the herpes problem first but I hesitate.  I think I shall not give Valtrex to my son as Dr. Td said we shall expect to have 3-4 weeks of regression before turning to be effective.

Since my son is doing fine so far, I decided not to address to these probems in an aggressive approach.

Above are for sharing only.

Justin2002

Rank: 2


45
2149#
發表於 06-10-23 21:27 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

this is a bit of add-in to the discussion about EDTA and DMSA. We did a bit of search on the internet recently about DMSA and came across a research paper saying more lead and mercury pulled out if EDTA is used ahead of DMSA.

I was going to let my son go for DMSA supp challenge test but after learning from a mum that her son regressed to be worse than before chelation, i sort of back off again.  Her son's chelation was done by having DMSA everyday for a couple mths instead of the current protocol of 3day on and 11day off. The mother still considers chelation is the right approach if heavy metal is an issue but advises very close monitoring to minimize over-chelation.

Dr Lam said using chelating drugs like DMSA would speed up the chelation whereas natural treatments takes much longer.  

A parent mentioned citric pectin being a good natural chelator. I got it from Dr Lam.  is it available from health shops? I checked with health gate they dont have it.

Seems a couple parents here had consulation from Dr Usman. Is it done thru internet? I am very keen to seek her advice too.

Rank: 4


725
2150#
發表於 06-10-23 23:44 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

jj06mum,

Thanks for your information on chelation.  I've never heard that DMSA can be used everyday for a few months.  The doctor practising that must be Dr. Lam, correct me if I'm wrong.   

BTW, some of the parents including me have met Dr. Usman for a casual talk during the conference  last August.  Since the meeting wasn't a formal consultation and she is not supposed to take any patients here in HKG.  I don't think you can consult her via Internet or phone call unless you can visit her in US for the first time consulation but the waiting time is 6-12 months.      

Rank: 4


725
2151#
發表於 06-10-24 00:12 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi Justin2002,

I remember what Dr. Trodd commented about my son's autism panel report:  He said, "According to the report, the good news is that your son is very healthy and nothing has been detected except a bit allegry to milk.  The bad thing is we've nothing to do further".   

Dommom,

Bio-chelate seems to work on removing aluminium.  My son aluminium level used to be high in yellow zone.  After taking a few months of EDTA bath as well as bio-chelate, his aluminium level was dropped signficantly.  

chanchanboy,

Thanks for your information on lab tests.  We've to prepare for spending a huge amount of $$$ on our next visit to Dr. Trodd.     
  

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114
2152#
發表於 06-10-24 00:15 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

請各位比D意見:-
1. 我仔仔試過 ETDA & DMSA, 但係塞藥後 d side effect 幾勁, 所以dr.lam 改用 Glutathione . 有冇mami 試邊呢隻係咪冇咁勁?

2. Chlorella +multi easy 有冇mami試過點樣餵會成功呢? 因我巳試過冲水 / juice / 攪係D飯仔度, 都唔成功, 亞仔都係反胃.

3. b12 除左注射外, 重有冇第2種 form. 我好唔惦, 揸住枝針唔敢吉落去.  

    

Rank: 3Rank: 3


247
2153#
發表於 06-10-24 10:36 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

barneywong,
1. 請問你而家用的glutathione係口服, nasal spray 定係cream? 口服好可能會引起yeast overgrowth問題(我個仔就係咁), 所以轉用transdermal form(cream), 可以避免咗引起yeast 的問題.
3. 打b12針, 我都係知道對阿仔會有幫助, 所以幾怕都要打啦, 其實應該唔係好痛, 我幫阿仔打咁耐(一年了), 印象中佢都好似冇醒過, 至多郁一郁, 反而用火酒消毒時仲郁得勁, 可能因為涼一涼. 有家長建議過, 買嚿豬肉返嚟練, 試多幾次就有信心啦. 努力d啦... 我起初都好chicken, 而家連我老公都話我係"熟手女工"   
ultramom
barneywong 寫道:
請各位比D意見:-
1. 我仔仔試過 ETDA & DMSA, 但係塞藥後 d side effect 幾勁, 所以dr.lam 改用 Glutathione . 有冇mami 試邊呢隻係咪冇咁勁?

2. Chlorella +multi easy 有冇mami試過點樣餵會成功呢? 因我巳試過冲水 / juice / 攪係D飯仔度, 都唔成功, 亞仔都係反胃.

3. b12 除左注射外, 重有冇第2種 form. 我好唔惦, 揸住枝針唔敢吉落去.  

    

Rank: 3Rank: 3


114
2154#
發表於 06-10-24 11:03 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

[quote]
ultramom 寫道:
barneywong,
1. 請問你而家用的glutathione係口服, nasal spray 定係cream? 口服好可能會引起yeast overgrowth問題(我個仔就係咁), 所以轉用transdermal form(cream), 可以避免咗引起yeast 的問題.
3. 打b12針, 我都係知道對阿仔會有幫助, 所以幾怕都要打啦, 其實應該唔係好痛, 我幫阿仔打咁耐(一年了), 印象中佢都好似冇醒過, 至多郁一郁, 反而用火酒消毒時仲郁得勁, 可能因為涼一涼. 有家長建議過, 買嚿豬肉返嚟練, 試多幾次就有信心啦. 努力d啦... 我起初都好chicken, 而家連我老公都話我係"熟手女工"   
ultramom
[quote]

我個 D glutathione 係塞肛架.
" 買嚿豬肉返嚟練 " 又可以試下喎. 但係吉左支針後, 係可以快速注射定要慢慢注.

Rank: 3Rank: 3


247
2155#
發表於 06-10-24 11:17 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

barneywong,
1. 我未試過glutathione supp. form, 所以都俾唔到意見俾你.
2. 打b12針, 我就覺得快好過慢, 我嗰仔用的是25mg/ml, 是concentrated 的, 所以只打0.05ml (好少), 好快就打完. 仲要注意落針的"角度", 30度角入, 因為如果直入打咗入muscle, 就冇咁"耐用". 最好打淺d, 應該有個website有video示範, 可以參考吓.. 你有冇睇過?
ultramom

Rank: 3Rank: 3


114
2156#
發表於 06-10-24 13:32 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

ultramom 寫道:
barneywong,
1. 我未試過glutathione supp. form, 所以都俾唔到意見俾你.
2. 打b12針, 我就覺得快好過慢, 我嗰仔用的是25mg/ml, 是concentrated 的, 所以只打0.05ml (好少), 好快就打完. 仲要注意落針的"角度", 30度角入, 因為如果直入打咗入muscle, 就冇咁"耐用". 最好打淺d, 應該有個website有video示範, 可以參考吓.. 你有冇睇過?
ultramom


ultramom,
thank you.
video   我冇睇過, 你 g 唔 g 邊到可以搵到個 website?

barney

Rank: 4


725
2157#
發表於 06-10-24 14:32 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

barneywong,

Here's the official site of  Dr. Neubrender for your reference.  Click to see the example of giving a shot.

Click here

Hope this helps.

Rank: 3Rank: 3


114
2158#
發表於 06-10-24 15:21 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

kawai,

thank you very much!!!

barney

Rank: 3Rank: 3


388
2159#
發表於 06-10-24 17:02 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi Kawai,

have talked to my son's ex-teacher recently, she recommended my son to try biomedical treatment with Dr. Trodd. Just wonder how much does it cost for an initial assessment and lab test, also about how much you have to spend each month for the treatment? Thanks a lot!

Pamam

Rank: 2


45
2160#
發表於 06-10-24 18:12 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

hi Kawai

thanks for sharing ur exp again. u r always so helpful.

could u also share ur exp with the crano doc Dr Lee after ur visit?

its NOT Dr Lam. the everyday chelation was done one yr ago, probably before the proper protocol became adopted here.

just to correct my previous post: should be more lead being pulled out if EDTA is used ahead of DMSA. no mercury involved.

apparently there is a difference between EDTA chelatable lead(more relevent in blood) and DMSA-chelatable lead(in urine). but no further info.

the website of the research paper abstract is

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed&cmd

then type in the search code: 7697134
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