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教育王國 討論區 自閉寶寶 請教
樓主: snowqueen929
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請教 [複製鏈接]

Rank: 9Rank: 9Rank: 9


23053
21#
發表於 16-10-20 22:37 |只看該作者
我哥哥也是有自閉症,集中不到,沒有特別興趣(除了打機和搭車),身體不適和遇到不開心的事只懂得發脾氣。(我有日誌分享喔!)
是比很多人麻煩,也需要接受一個相對殘酷的現實:如果中度至嚴重自閉症的話,基本上很難追上什麼正常人的進度和擁有一個完全正常的生活。我不知道現在自閉症的定義與 20 年前的有沒有分別。我哥哥當年被確診中度,沒有語言能力,自理能力差。父母初時都很難過,花了 5 年才有勇氣走出去與其他有自閉孩子的家長一起聊天和去飲茶, 20 多年前哪有現今那麼多支援和治療?當年我父母連自閉症都沒聽過!
當下我們只能希望和他多做練習,不要差下去。
但目前要做的是堅持,趁著年紀少,旁人不會對他們有很大反應。儘量多帶他出門走走,讓他適應人多煩囂的街道。這類孩子很怕陌生環境,大了才去適應就太遲了。
你若坦然,這日子也過得坦然,一切無關其他,只在於自己的心境。再傷心也要接受這個現實,孩子還需要你和家人的支持。我雖然不是我父母,卻也明白心力交瘁,每日以淚洗臉的日子。但是,無論有多傷心,無論多麼想放棄,也要走下去,因為路還遠著,他還需要你扶著他走。

Rank: 5Rank: 5


1854
22#
發表於 16-10-21 00:27 |只看該作者
recently, I got a call from my boy's class teacher, he study N class now. His class teacher said my boyseems have this symptom (marginal). I felt very upset about this news. It is because a big difference about his behaviour in school or at home. I dunno if he really be classified as this symptom.  For example, the teacher said he cant speak , even a single word; but I found that he can speak some vocab. or some simple sentences at home. ANother example, he can share food and toys with his younger sister; however, teacher pointed out that he can't play with classmates, seems he only stay in his own "world" without playing with others.
I dunno if he is not familiar with this school environment. However, he is very happy when he arrive home after taking school bus and always say bye-bye to EE and driver in school bus.
I dont know why there is a big difference between the teachers' comment and mine.
At that moment, I felt lost about what I can help him.


549
23#
發表於 16-10-24 10:33 |只看該作者
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