雙耳有嚴重弱聽!Pls help!

fatmei

雙耳有嚴重弱聽!Pls help!

今日帶阿囝(1.5mths old)到兒童發展中心做聽覺test(成個頭貼上電線嗰隻), 好可惜医生話他90分貝的聲音都完全沒有反應, 雙耳有嚴重弱聽, 轉介到威記見專科, 不過要排到8月份, 好擔心, 我現在好似三魂唔見七魄甘. 都唔知点, 究竟佢係唔係真聽唔到? 定係會有轉机? 人工耳蝸或助聽器能夠work on him ma? 請各位媽媽幫吓手, 比些有關資訊或share 你地嘅experience. 我現階段有乜可以做到?

MRS.MAK

I would suggest you to go to PHONAK to do hearing test. They are expert in helping bb. For private doctor, go to see Dr Hui Yau. He works in Queen Mary Hospital many years. Expert in bb hearing problem.

Don't waste time in worrying, go to seek expert advice asap. You bb is 1.5 years old, need help asap. Otherwise, will delay bb development.

大鴨媽

Phonak's Mr Kam is okay. you need audiologist plus ENT doctor also.

go to private first, but still need to keep waiting for govt if your son need operation.  

my son go to a private ENT doctor called Johnny Mok. he is okay. location at mongkok.  

plus check also whether your son got late development of language, treat as early as possible. if yes, get child assessment centre's doctor to help your son to wait for I place of nursery.

如果真是要做人工耳蝸,好似只有中文大學是expert.所以要找聽力學家子耳鼻喉科醫生確診.

叫兒童評估中心同你做埋言語測驗,看下有沒有問題啦

原文章由 MRS.MAK 於 08-3-20 00:00 發表
I would suggest you to go to PHONAK to do hearing test. They are expert in helping bb. For private doctor, go to see Dr Hui Yau. He works in Queen Mary Hospital many years. Expert in bb hearing proble ...

[ 本文章最後由 大鴨媽 於 08-3-20 13:07 編輯 ]

TK1204

威記 also has 人工耳蝸.  As said, u later 到威記見專科, the doctor will suggest 人工耳蝸 if the children is of severe or above hearing loss (90+分貝 is the severe level).  However, it needs further body check up & language assessment before confirm the operation.

my0305

我完全明白你的心情,但記住放鬆自己,囝囝好需要你的.
我個囝囝一出世就fail on hearing test,3個月大時響威記中大的私家診所做你果隻test,結果如你一樣.當時簡直晴天霹靂!
依家囝囝響峰力配左一個助聽器,教育局借左一個.囝囝戴左助聽器的反應好好.峰力的甘生真的好幫得手架,佢教左好多野俾我地.
依家見到囝囝戴左助聽器後對聲音的反應好快,所以心情都好轉了很多.小朋友學習語言的黃金期係依家,你要支持住呀!我都哭過好幾個星期,每次同人提起都哭,但你一定要努力呀!囝囝好需要你架!我會為你祈禱的.

fatmei

Thank u all the ma ma!

原文章由 my0305 於 08-3-20 22:11 發表
我完全明白你的心情,但記住放鬆自己,囝囝好需要你的.
我個囝囝一出世就fail on hearing test,3個月大時響威記中大的私家診所做你果隻test,結果如你一樣.當時簡直晴天霹靂!
依家囝囝響峰力配左一個助聽器,教育局借左 ...

MRS.MAK

My bb is profound hearing loss. I take advice from Mr Kam of Phonak and give my bb the most expensive hearing aids, about $30000 per ear. Now she is response to sound quite well. Dr Hui said good hearing aids are very powerful, can help bb like cochela implant.

We will monitor my bb progress of speech. If she can speak good, we will keep hearing aids and don't do the cochela implant. I definitely think good hearing aids can help. The one from govt is very basic one. Cannot help severe hearing loss bb very much and therefore they cannot speak and need cochela implant. Go to get a best pair of hearing aids to help your bb plus speech therapy. Give confident to yourself and your bb, hearing loss is not most serious  problem, with help of technology, hearing impaired bb can live normal life. no need to learn sign language!!!!!!!!!

SHRILEY

我仔仔都係有hearing loss, 由其高音部份好差, 成80+分貝以上先聽到, 低音好d, 接近standard.  
以前都完全估計吾到佢有弱聽, 只係覺得佢發音吾正, 但係同我地都對答到, 不過好多時叫佢個名都冇反應.  初初我只係帶佢上言語治療, 個言語治療師都冇話過我仔仔係似弱聽. 直到3歲幾我request去政府做checking先知.  當我一知可能耳仔有時就即刻去左私家做checking, 我係搵"奧廸otic" 之後耳機同言語治療都係otic做.  follow左一年,都有好明顯既進步, 不過講說話都係偏高音.  e家都仲上既speech training.  

我miss左仔仔頭幾年最保貴既黃金時間, 所以要更加努力幫仔仔追回miss左既野, 只要大家努力, 條路都吾係太難行.  吾好太過擔心,傷心.  最緊要快d搵到適合既解決方法, 小朋友最需要我地無限量既支持.  比心機呀.

[ 本文章最後由 SHRILEY 於 08-3-29 02:28 編輯 ]

lc_florence

我個女是嚴重弱聽約115分貝, 大約2歲時在瑪麗做了人工耳蝸, 現在在一間正常學校讀小二, 由發現個小朋友耳仔有問題後一定會經過好多問題, 個程一定是非常辛苦的, 一般人根本是不會明白和理解到的, 所以做家長的一家要堅強, 給多點信心自己,多點支持給小朋友, 小朋友將來才有信心去面對問題.

大鴨媽

好同意你的說法, 大家可用這個平台去互相分享及支持

原文章由 lc_florence 於 08-4-16 16:11 發表
我個女是嚴重弱聽約115分貝, 大約2歲時在瑪麗做了人工耳蝸, 現在在一間正常學校讀小二, 由發現個小朋友耳仔有問題後一定會經過好多問題, 個程一定是非常辛苦的, 一般人根本是不會明白和理解到的, 所以做家長的一家要 ...

[ 本文章最後由 大鴨媽 於 08-4-16 16:26 編輯 ]

TK1204

Hi lc_florence,  於 08-4-16 16:11 發表

想問您囡囡學校有無特別安排比小朋友(eg. FM機, 言語治療, 功課輔導...)  小朋友上學適應嗎 ?

lc_florence

原文章由 TK1204 於 08-4-16 17:05 發表
Hi lc_florence,  於 08-4-16 16:11 發表

想問您囡囡學校有無特別安排比小朋友(eg. FM機, 言語治療, 功
課輔導...)  小朋友上學適應嗎 ? ...

TK1204, 我女學校有提供功課輔導, 學生都是有學習障外, 讀寫困難或者是弱聽的,
FM機是由你的朋友開如上學(幼稚園)開始, 由教育署的特殊教育組分配的, 言語治療就要自己去找一些私人機構上課, 價錢都幾貴, 你可以先格價川比較,仲有就是地區是否方便, 伙可以試下在中環的"悅韻" (在九龍都有分公司)和奧廸,
我個女比較活躍, 上學好快就適應了, 加上學校在她入學兩個月後, 特殊教育派了特殊教育主任來學校向全級學生講解了一次障聽兒童的學習和他們所遇到的問題, 目的是讓其他正常的學生了解他們, 所以學校的學生對我女都好好, 不會覺我她有問題

TK1204

聽你講學校都幾好, 想知係邊間 ?

purplemelody

各位,此刻我的心情非常沉重,上星期去威記,醫生己証實我個bb有嚴重失聰,佢問題應該比你地的bb嚴重,佢以家8個月大,由出世到以家已做了無數次聽力test,次次都fail,醫生話佢好大機會係聽覺神經出現問題,but要做磁力共震才可証實,如真係聽覺神經出現問題,so無論用耳機or電子耳都無幫助,果刻我聽了真的好難接受,我地為人父母,最希望就係自己的子女平安健康成長,而我仔仔佢就........
而家威記refer我地去教統局,賞試比耳機佢帶,睇下點樣,唉,我真係好擔心我仔仔的將來,我亦為此不知流了多少淚,而家我只願佢係耳結構問題,帶耳機可幫到佢,即使只係聽到7成都好呀.

大鴨媽

很明白你，沒有一個父母是不希望子女健康的成長．

好似ｅｄｂ只是ｓｅｒｖｅ適齡學童，你問清楚啦！

努力，記著，要是你們也放棄，孩子那就更糟了．

原文章由 purplemelody 於 08-5-4 23:38 發表
各位,此刻我的心情非常沉重,上星期去威記,醫生己証實我個bb有嚴重失聰,佢問題應該比你地的bb嚴重,佢以家8個月大,由出世到以家已做了無數次聽力test,次次都fail,醫生話佢好大機會係聽覺神經出現問題,but要做磁力共震 ...

MRS.MAK

I would suggest you to go to PHONAK to do hearing test. They are expert in helping bb.

For private doctor, go to see Dr Hui Yau. He works in Queen Mary Hospital many years. Expert in bb hearing problem.

大鴨媽

if you go to PHONAK make appointment with Mr. Kam, he is good

原文章由 MRS.MAK 於 08-5-12 01:17 發表
I would suggest you to go to PHONAK to do hearing test. They are expert in helping bb.

For private doctor, go to see Dr Hui Yau. He works in Queen Mary Hospital many years. Expert in bb hearing prob ...