治療自閉症

jellomama

我個女而家三歲八個月大, 有語言遲緩, 也有哮喘/氣管敏感, 所以每天吃兩次以下的份量 -----

乙醯肉鹼 - 兩匙
蘋果提醇 - 兩匙
黑加侖子提醇 - 一匙 (for 預防流感)
洋葱綠茶素 - 一匙 (for 氣管敏感)

全部加入朱古力粉飲品冲飲, 佢好鍾意飲亦好合作飲得好快.

洋葱綠茶素對氣管敏感有多大改善和幫助, 還需要多D時間先知. 但我初步觀察覺得是有幫助的, 效果似乎比飲鱷魚肉瘦肉湯更好; 最重要嘅係夠方便.

由於我曾在雜誌一些健康飲食文章也看過有營養師提及洋葱的功效, 所以我而家全家都食洋葱綠茶素, 我還打算長期食用.

至於乙醯肉鹼, 個女已食了兩個月了, 我和老公都覺得她一路在進步. 最困擾嘅仲係佢可以好大脾氣, 喊起嚟可以好歇斯底里的.

不過, 在過去的十三個月裡, 從第一次評估說她需要排”S” 位(說她有自閉症傾向, 語言遲緩, 小肌肉差) 之後試過多樣治療和課堂包括: 舌針, MT, ST, 幾堂OT, 全身針灸(依然繼續在做).....

起碼現在的感覺係在一個山洞中, 但已可以見到出口的光線!

真的要多謝 hystericland 在這裡介紹乙醯肉鹼!

[ 本帖最後由 jellomama 於 09-5-20 12:42 編輯 ]

jellomama

我諗係呢個 -----
http://www.ncbi.nlm.nih.gov/pubmed/

原帖由 annaanna 於 09-5-20 14:09 發表
請問有冇人記得博士用果個www係咩呢？
我上次去問完，太多野記，番到屋企唔記得左個website呀﹗
pls help

jellomama

好開心....今日個女嘅畫班導師姐姐打電嚟, 話佢係過去呢個零月進步了很多.

1. 開朗了很多
2. 很願意跟姐姐解釋她嘅artwork是甚麽
3. 有對答 (中、英都有)

我相信"乙"對她是有幫助的, 總之, 她不斷有進步!

jellomama

唔怪得你擔心嘅, 我覺得最好揾博士親自在電話解答你的疑慮啲. 我有的蘋果提醇(淡淡嘅米黃色)買了一個多月了, 沒有你所提及既顏色異樣.

原帖由 H00207 於 09-6-12 19:46 發表
我今個星期買了蘋果提醇，但發現顏色比以
前的深了許多,吃了新的蘋果提醇及乙醯肉鹼
後,他說個頭好暈,要睡覺.及近幾天發脾氣時比以前跳多了。但我打電話問小培,一位女士接聽說"蘋"顏色深了沒有問題。請問其他小朋友有 ...

jellomama

SLCS,

請問你朋友的兒子現在還繼續吃乙醯肉鹼、還是連乙醯肉鹼也停吃了?

原帖由 SLCS 於 09-6-15 19:39 發表
各位好,

我想跟大家說一下關於吃過蘋果提純和肉鹼的行為表現。

我朋友A的兒子吃了肉鹼太約已經兩個多月, 進步是較緩慢的, 孩子的反應只是在初吃數天有"較暴燥"的表現, 及後一直如平常一樣。後來朋友A聽了Dr介紹蘋 ...

jellomama

我個女由三月中一直食到現在, 本身也有去針灸, 期間效果理想, 佢脾氣本身都麻麻地, 但就沒有差過之前.

原帖由 kimbear 於 09-9-8 16:10 發表
想問吓你o地小朋友食了麻痺(乙XXX) AND 蘋果提醇(果膠)的反應, 想知係咪多數脾氣差咗, OR 只係少數有這情況出現。

jellomama

My daughter (4 years old) has been taking it since March this year, coupled with full-body acupuncture treatment since 12 months ago. My husband and I are VERY VERY happy with the progress and there is no side effect on her.

Some examples of her progress-----
1. She is much more understanding & cooperative than before.
2. She can draw more meaningful pictures.
3. More Voluntary speech e.g. "Hello, daddy & mommy!" & more dialogues.
4. More smiles & meaningful speech.

jellomama

Dr. Ku 教加入朱古力粉開嘅powder drink. 我除咗乙醯肉鹼之外還加入洋葱綠茶素在內一起給個女飲, 佢冇抗拒.

原帖由 Kate719 於 09-11-20 11:09 發表
請問你們開什麼份量果汁,因我囡除第一日之後唔肯飲,平時好鐘意飲汁汁,我自己試過真係好酸,請教教如何是好.......

jellomama

同樣份量, 我的經驗係一樽可以食三個星期.

原帖由 wksin 於 09-12-3 22:01 發表
多謝回覆，咁平均一個月要食幾多樽?我想隕預計下BUDGET, 我依家每日比4 SPOONS 仔仔食, 一樽可以食幾耐呢??

jellomama

有, 一直都有進步(其實主要係語言遲緩), 已食了約十個月; 但也配合全身針灸, 進步理想.

原帖由 babybaby888888 於 10-1-14 17:25 發表
我個小朋友理解方面一向也可以, 例如叫佢取東西 / 叫佢飲水 / 一般指令都做到, 但是說話就不可以...

請問其他家長的小朋友吃了乙醯肉鹼有沒有進步嗎? ...

jellomama

Hi starfish,

If you do a Google search, there are info which indicate that Acetyl-L-carnitine (乙醯肉鹼) can help to treat autism.

I've posted the info below on p.9 (#178) of this topic but it was a long time ago so perhaps not many parents have read it. So I'm going to post here again what I've found:

IMPORTANT INFO
****************
To all parents here, including myself, who have a concern whether there is any medical/clinical research (another source other than Dr. Ku) saying that acetyl L-carnitine (乙醯肉鹼) may be used to treat autism. I have found a research paper from the internet which mentioned about it.
The paper was published in the American Journal of Biochemistry and Biotechnology in 2008.
The link is:

http://www.autismresourceconnection.com/documents/Mitoandautism2008.pdf

It has always been believed that autism has to do with some malfunction in the brain.
In this paper titled “Evidence of Mitochondrial Dysfunction in Autism and Implications for treatment”, on p.211, it says:

Potential treatments of MtD in Autism
Nutritional supplements and antioxidants: ……. In animal studies, acetyl-L-carnitine restored partial mitochondrial function and muscle activity…….
-----------------------------------------------------

Note:
MtD = mitochondrial dysfunction

原帖由 starfish 於 10-9-6 13:36 發表
﹔hi, myson727
我都想要呢位醫生資料, 麻煩你PM我
Thank you so much

食咗半年蘋果提純+乙酸(麻痺)半年, 個個月去去尖沙咀入貨, 半年已使咗成萬蚊, 都現在亦沒有甚麼進展.
暑假攞咗樽蘋果提純+乙酸(麻痺) 俾2個兒科 ...

jellomama

Starfish,

How much 乙醯肉鹼 & 蘋果提醇 is your child taking per day? My experience is that if you take two spoonful each twice a day, it'll cost about $5,000 for 6 months. True, it is not cheap but Dr. Ku (he is not a 醫生, he is a 免疫學博士) gives free advice to people and of course he needs to charge a premium in making profit to compensate for the time he spent. This, I can understand.

Apart from cost, if you DO NOT notice any improvement in your child or you don't have confidence, my suggestion is that you try something else. There are a lot of different theories/treatment out there. So many that we cannot afford (time & money) to try all.

I didn't try many other treatments but I chose 乙醯肉鹼 because I noticed improvement in my daughter. It was definitely much effective than 舌x which I spent $45,000 in 6 months and it was very time consuming but less effective!

My daughter has mild development (big muscle) and speech delay. We once were very concerned that she was autistic. Now, I know that she is definitely not.

She has been taking 乙醯肉鹼 & 蘋果提醇 since March 2008 and continues to do so, but lesser portion due to lack of time. There is no side effect on her at all.

Hope this help.

原帖由 starfish 於 10-9-7 14:39 發表
myson727

Thanks a lot!  Thanks for understand my feeling.  不過明知正常健康食品不需食成萬蚊半年,有時真係有種感覺明知唔有唔妥,但重個個月去尖沙咀入貨,好似好唔理智! ...

jellomama

Take a look at p.43 (reply #853) of this topic.

原帖由 AprilLove 於 10-9-8 11:56 發表
Hi! May I have the contact of the docor also...
Please PM me if you have!
Many many thanks!