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教育王國 討論區 特殊教育 "Biomedical Treatment - Parents' Group "
樓主: kawai
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"Biomedical Treatment - Parents' Group " [複製鏈接]

Rank: 3Rank: 3


127
1841#
發表於 06-7-4 00:46 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi Friends,

Thank you so much for your quick responses!

HayBmum, My daughter has never taken any chinese medicine before.  She took several courses of anti-biotics during the last two to three years at times when she was ill.  And she still had milk in her diet until recently.  So at the outset we just thought it was more an yeast problem.  She is now on Diflucan to address the yeast issue.  For the heavy metal contamination, we suspect that it might be caused by her bad habit of biting things (finger nails, her pillows and even hard objects such as table when she feels anxious or throws tantrums).  I myself even suspect if the paints, markers and pens she uses to draw with and she favourite playdoh would play a part...

Lab tests (whether screening or more precise ones) always puzzle me.  It seems no use to just look at the absolute values.  It is the interpretation that matters, but unfortunately that could be quite arbitrary.  Afterall, it's more a trial and error thing....

kawai, you are right, I am a bit reluctant to apply DMSA.  I still think it is a strong drug.  Although I haven't got the time to go through the article about DMSA recently posted here, I am still not very unwilling.  Those non-instrusive methods you suggested sound good.  I will pay a visit to Little Giant soon.  Don't know if Dr Trodd has got the clay for removing lead?

Friends, you remind me of the PAP blood test...my son is going to undergo this test in two weeks time.  But I nearly forgot the issue of getting him pinned to the chair for blood taking... Domom's method is a good one.  Will try...but just don't know how he would react when seeing the needle and his own blood...and it takes several minutes...

ultramom, it takes time.  your son is making progress bit by bit and that is still progress.  You are doing a wonderful job so keep carrying on and stand by him!

Siu_Ming
耶穌在路上看見一個生下來就瞎眼的人。他的門徒問他說:「老師,這個人生來就瞎眼,是誰的罪造成的?是他自己的罪,還是他父母的罪呢?」 耶穌回答說:「他瞎眼和他自己或他父母的罪都沒有關係,而是要在他身上彰顯天主的能力。」(若/ 約9:1-3) 你應該在上主面前安心依靠,不要因萬事順當的人而煩惱 (詠/詩 37:7) "If you really love one another, you will not be able to avoid making sacrifices." ~ Mother Teresa

Rank: 4


600
1842#
發表於 06-7-4 14:29 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear all,
That's what I'm worrying about. I'm afraid that the high level of heavy metals of our daughter is not the cause of autistic features, but one more problem.


[quote]
ultramom 寫道:
我個仔做過一次dmsa provacation test, 3個round td dmsa, 屋企又換哂阿仔d煮食用具, 又換
但願媽媽的眼淚能灌溉寶寶, 讓寶寶茁壯地成長

Rank: 4


725
1843#
發表於 06-7-4 23:29 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Siu Ming and sjmama,

As far as I know clay bath is only available at Little Giant.  I ordered online my 10lbs package 1 year ago from US.  The shipping cost was even much more expensive than the actual product.  

Even though the use of clay bath is quite complicated. I think it's worth a try as it can be given once in a week.  It also helps with calm and reduce stress.  I suggest you to buy a big plastic box which is available in different sizes at Japan City.  I bought a big one for my son's bathing.  It's perfectly fit for this purpose and much more cost effective than using bath tub.  You may use the box as toys container too.

Besides, epsom salt can be used for bathing daily.  It also helps with detox, reduce stress and calm.

Acupuncture points massage is one of the methods to help with relaxing.  I'll give you the notes after finishing the course on coming weekend.  


Rank: 3Rank: 3


365
1844#
發表於 06-7-5 11:38 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

ultramom,

Many thanks for your valuable advice.  Hope we could manage it.

Justin2002

Rank: 3Rank: 3


365
1845#
發表於 06-7-5 11:42 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

ABBmom,

My son's dosage is 1 capsule x 2 per day.  However, he does not have any stuttering.

Also, Dr. Td did not give any reasons of his unlikeness on TF.

Justin2002

Rank: 3Rank: 3


365
1846#
發表於 06-7-5 11:59 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

kawai, Siu ming & sjmama,

Just to add little bit more on clay bath/epsom salt/ ETDA - my son has been taking all these for several months.

Clay bath - once a week but lately not used for a month due to hot weather.  It serves better result (I believe) when the water is hotter (at least 40-42 C)but my son is unwilling to soak into hot water in these days.  I once saw him sweating on his head during soaking and I trust that it helps extracting toxic elements through his skin.

Epsom Salt - available in both Health Gate & Little Giant (but in bulk quantity).  My son has been taking 3 spoons (5ml) a day in his basin bath everyday.  Since there is no -ve effect, I shall let him continue.

ETDA bath powder - has used for half a year (taken from Dr. Lam) but recently stopped.  Just want to check if there will be any difference or side effect, but observed none also.  Before I mix this with epsom salt together in the bath basin.

Justin2002

Rank: 2


46
1847#
發表於 06-7-5 16:37 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

ABBmom,

我個仔之前都食過Learner's Edge and PureKids, both are 1capsule*2times daily, 但他食完之後個人好high,又亂叫亂笑,所以停了沒有再食.可能因為喺Learner's Edge 入面有兩種成份的L-Carnosine和 L-Carnitine啦!因之前他食完都好high的.

ChanChanBoy,
之前你提過的發光轉轉玩具,請問可以在那裹買到呢?

Siu Ming,
你是否會在今個Thursday 去見Dr. Trodd?上午Or下午呢?
我下午會去.

Rank: 4


544
1848#
發表於 06-7-5 23:16 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

ivanmommy,

發光玩具, 我在HKDisneyland買, $80.


另外去Blood Test, 我用發光的風扇分散注意力, HK Disneyland $35, 一般書局同精品店都有, 約$10-15.

Carson's birthday in January 2000.

Rank: 4


600
1849#
發表於 06-7-5 23:20 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Thanks, kawai and Justin2002!  The information is very helpful.

sjmama and Siu_Ming
但願媽媽的眼淚能灌溉寶寶, 讓寶寶茁壯地成長

Rank: 4


600
1850#
發表於 06-7-5 23:22 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi ivanmommy,

We will go in the morning.  See if we will meet next time.

sjmama and Siu_Ming
但願媽媽的眼淚能灌溉寶寶, 讓寶寶茁壯地成長

Rank: 2


46
1851#
發表於 06-7-6 10:44 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

ChanChanBoy,
Thank you! I will go to bookshop and look for it.

Siu Ming & Sjmama,
yes, maybe see you next time.

Rank: 4


646
1852#
發表於 06-7-7 12:46 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

My son has taken the Learner's Edge for about 1 month only.  So far no +ve or -ve effect can be seen.

Why you have to visit Trodd?  Are you stilling visiting Lillian Ko?

[quote]
ivanmommy 寫道:
我個仔之前都食過Learner's Edge and PureKids, both are 1capsule*2times daily, 但他食完之後個人好high,又亂叫亂笑,所以停了沒有再食.可能因為

Rank: 2


46
1853#
發表於 06-7-7 22:50 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

HayBMum,

Because I want my son to do the Premier Autism Panel Test.

Rank: 4


646
1854#
發表於 06-7-7 22:52 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Oh I see. Good luck.  Hope your son will not struggle a lot.  By the way, please check email as I've sent my son's summary report to you.

ivanmommy 寫道:
HayBMum,

Because I want my son to do the Premier Autism Panel Test.

Rank: 3Rank: 3


247
1855#
發表於 06-7-8 11:21 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi Justin2002,
我都有俾espom salt bath俾阿仔, 用咗成大半年了, 不過我每次用2個(濃縮)洗衣粉scope落bathtub, (佢用大人浴缸沖涼). 我以為我已經用得好少, 因為dr trodd話一個"handful", 我再想問"詳細"d, 佢又好似話份量冇所謂??.
我開始時用一個洗衣粉scope, 後來先加到2個scope, 我發覺加到2個scope之後, 佢"jum"5分鐘左右就手指/腳指有皺皮, 心理上好似吸咗d嘢出嚟
請問你用15ml的epsom salt, 係問邊嗰呢? 我想知自己係咪放得太多??
唔該先.
ultramom
Justin2002 寫道:
kawai, Siu ming & sjmama,
Epsom Salt - available in both Health Gate & Little Giant (but in bulk quantity).  My son has been taking 3 spoons (5ml) a day in his basin bath everyday.  Since there is no -ve effect, I shall let him continue.

Justin2002

Rank: 3Rank: 3


247
1856#
發表於 06-7-8 11:29 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

sjmama,
唔好灰心啦, I think there is no one single key to unlock this autism puzzle.  我哋作為家長, 只好儘力一樣一樣解決問題啦. 大家努力啦
我個仔最近揾咗個小兒腸胃科睇, 先發覺原來佢真係有gut problem, 佢條小腸真係有發炎, 而家要食葯. 個腸胃科醫生唔係dan doctor, 所以佢唔相信腸病會同austim有關, 不過而家見到腸真係有發炎, 一定要先醫好佢啦.
ultramom
[quote]
sjmama 寫道:
Dear all,
That's what I'm worrying about. I'm afraid that the high level of heavy metals of our daughter is not the cause of autistic features, but one more problem.


[quote]
ultramom 寫道:
我個仔做過一次dmsa provacation test, 3個round td dmsa, 屋企又換哂阿仔d煮食用具, 又換

Rank: 4


646
1857#
發表於 06-7-8 12:03 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

ultramom,

回復腸功能後,相信你會見到仔仔的改變,但怎樣才可control條小腸唔再發炎呢?Dr 會否有advise?

Rank: 3Rank: 3


247
1858#
發表於 06-7-9 23:20 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

HayBMum,
我都有問過醫生, 點解條腸會發炎, 佢話好多原因可以引致腸發炎, 而小朋友有腸發炎亦唔係少見...(可能因為佢係腸胃科), 而且講真, 普通小朋友就算腸胃唔好, 都好少走去睇專科, 多數只係睇兒科就算.
我問醫生食物敏感會唔會引起腸發炎, 佢都話有可能.
可能都要做食物敏感測試, 唉... 又要見血.... :cry:  :cry:
請問有冇家長做過food allergy test? 可否講吓經驗?
唔該先.
ultramom

Rank: 4


725
1859#
發表於 06-7-9 23:42 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

ultramom,

food allergy test 簡易好多.祗需手指頭或腳"爭"多肉位置用小針拮,抽幾滴就夠啦!

ultramom 寫道:
請問有冇家長做過food allergy test? 可否講吓經驗?
唔該先.
ultramom

Rank: 4


600
1860#
發表於 06-7-10 00:39 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Thanks ultramom! We'll try our best.
Hope your kid will get well soon!

[quote]
ultramom 寫道:
sjmama,
唔好灰心啦, I think there is no one single key to unlock this autism puzzle.  我哋作為家長, 只好儘力一樣一樣解決問題啦. 大家努力啦
我個仔最近揾咗個小兒腸胃科睇, 先發覺原來佢真係有gut problem, 佢條小腸真係有發炎, 而家要食葯. 個腸胃科醫生唔係dan doctor, 所以佢唔相信腸病會同austim有關, 不過而家見到腸真係有發炎, 一定要先醫好佢啦.
ultramom
[quote]
sjmama 寫道:
Dear all,
That's what I'm worrying about. I'm afraid that the high level of heavy metals of our daughter is not the cause of autistic features, but one more problem.


[quote]
ultramom 寫道:
我個仔做過一次dmsa provacation test, 3個round td dmsa, 屋企又換哂阿仔d煮食用具, 又換
但願媽媽的眼淚能灌溉寶寶, 讓寶寶茁壯地成長
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