"Biomedical Treatment - Parents' Group "

chanchanboy

2.5ml one times per day.

jasper888 寫道:
chanchanboy,

What is the dosage of Diflucan that you son is having?

jj06mum

anyone interested in arranging playdate? we are in Tung Chung.

my boy is 3 and a half now and going to k1 in a local kindergarten. he has the diagnosis of Atypical ASD from a govt paediatrician.

he has apparently age-appropriate speech and good eye contact and is quite interactive with people despite the interaction may not always be appropriate. he has some imaginative play but its quite limited in terms of variation and depth.

he likes to play with typical boy's toys such as cars, robots, guns, swords.

we have just started doing ABA with him. he is also on biomedical supplements.

anyone interested pls pm us.  thankyou.


Kawai
an overdue thankyou for ur helpful advice.
our blood and hair and stool tests done in DDI all back. hair loaded with lead and mercury and cadium and tin. some abnormal findings from stool too.  will see what Dr trodd says.
how's ur test with Dr Yasko?

kawai

jj06mum,

I've received the genetic report and the analysis report will be arriving by Fedex tommorow.  I've been spending much time on this issue currently for updating the supplements for my son.  I certainly will share with you guys after my work on matching supplements with the genetic code is done.  

BTW, your boy is not bad on languages since he speaks both Cantonese and English with no confusion.  Hope he can find some playmates soon.

jj06mum 寫道:
anyone interested in arranging playdate? we are in Tung Chung.

my boy is 3 and a half now and going to k1 in a local kindergarten. he has the diagnosis of Atypical ASD from a govt paediatrician.

he has apparently age-appropriate speech and good eye contact and is quite interactive with people despite the interaction may not always be appropriate. he has some imaginative play but its quite limited in terms of variation and depth.

he likes to play with typical boy's toys such as cars, robots, guns, swords.

we have just started doing ABA with him. he is also on biomedical supplements.

anyone interested pls pm us.  thankyou.


Kawai
an overdue thankyou for ur helpful advice.
our blood and hair and stool tests done in DDI all back. hair loaded with lead and mercury and cadium and tin. some abnormal findings from stool too.  will see what Dr trodd says.
how's ur test with Dr Yasko?

jj06mum

kawai
our reports seem quite confusing for us, esp the stool one. not much direction given in terms of diet and supplement. hope urs will be more illustrative.

my boy's comprehension is actually about 1yr behind. he appears ok when speaking maybe because he seems to be able to apply certain lines he memorized from one situation to another similar situation.  he probablely doesnt really understand the lines. u will sense some rigidity there once u spend a bit more time with him. he cant answer wh questions esp why, how, when.

looking forward to ur update.

kawai

jj06mum,

ABA 最强drill理解,相信可幫倒你仔仔.

各位,

我今天找到一隻味道很好的chlorella extract in liquid.味似蜜糖,是日夲牌子叫Yaeyama,有品質保證.因Dr.Trodd話綠藻是非常安全及絕無副作用的天然排毒食品,雖然工效慢的,但有效地排走體內重金屬及毒素.大人,細路都啱食.之前仔仔試過另外牌子capsule溝水,但不肯食.但這牌子就話好味.各位有興趣可到"正食字号"購買, 電話:26490389

jj06mum

the following is a copy&paste from Dr Neudenberg(sorry if spelt wrong) chatroom. some of u might have come across it.  i think it shares an interesting perspective....


Posted: Sat May 20, 2006 3:36 pm    Post subject: How the GFCF infraction "feels"... by Dana....   
--------------------------------------------------------------------------------

Dana,
This is SUCH a good post I came across while doing some old searches that I wanted to repeat it for those "newer" to the biomed board and new to the diet (I hope you don't mind!). Have you been maintaining GFCF for yourself? How is that going? Thanks again for this great post...it really sheds light on the diet situation for us.

Dana wrote:
Quote:
How do I explain this one.....

My son has been GFCF for over 4 years now, and in the last months I have been getting the whole house GFCF SCD.

This weekend I went grocery shopping and I did something I have not done in maybe 3 months, I bought a loaf of English Muffin Bread (my fav.), a bag of oyster crackers for my tomato soup and a box of Frosted Mini Wheats. It was hard to cross that line, I am so used to GFCF and organic, or at least all natural.

Now I am paying the price and I have a whole new understanding of what my little boy had been going through, and still does when there is an infraction. Here is what I am feeling, remember, I have been GFCF (about 90 % for 3+ months, and prior to that about 70 % I would guesstimate)

My skin hurts on the inside. It feels like it is burning inside.

My nerves are shaking.

I am lightheaded and dizzy, so dizzy that I had to lay down and then the room started to spin.

Nausea.

My muscles ache and my bones hurt.

My skin is hypersensitive, I cant stand the feel of my sweater, my socks, or even the feel of the desk under my arm right now.

I am sweating even though I feel cold.

I have trouble talking, I have trouble with word recall and jumble my words, i.e., "The delicious was the bread."

And worst of all, my stomach feels like it has rocks in it and I have cramps that remind me of childbirth!

OK, I am going to the store tomorrow and buying myself a box of GFCF cereal, GFCF crackers, and a loaf of Kinnickinick bread!!!!

I can't get over how much pain I am in, no wonder my sweet little angel never slept before, was aggressive and moody, and cried "for no reason"!

I just had to let you all know about this, it has enlightened me beyond belief. The worst part is, is that this is only a small fraction of what he was going through.

Hope this might help, I am curious to hear your responses

Blessings,
_________________
Dana
Proud Biomed. Mom

jj06mum

anyone here tried floortime? knows such service providers here in hk?

i came across the terms a few times before but only got to read a bit more about it in a cover story about autism(the current may issue of TIME).  apparently its another most popular approach other than ABA. its focus sounds like what i wnat for my kid: thinking on his feet, problem solving and socially engaging.

one mum i just talked to mentioned the new STEP school includes floortime but it appears more like free play time only.

thanks

Justin2002

kawai,

In fact, I have been buying organic vegetables from 正食字号recently.  I shall ask for this chlorella extract next time when I go to pick up my vegetables.  Also worth mentioning is this shop sells DF fruit icebars which are tasteful too.

Justin2002

Dommom

The Speech Therapist my kid went to see before attended some floor time instructor courses in the U.S. before but I did not know the details.  Her name is Ann Chan, very pleasant and kind young lady.  I am sure you can find her phone number easily, no advertisement here  

kawai

Justin2002,

我都係响正食字号買菜,每週中一次,週日會去新城市廣場西田超市買.有時去Jusco.

我食過DF fruit icebars,真係幾正.不過我喜歡自已整雪條,我用blender攪爛水果,西瓜,芒果,鮮橙汁,椰青,紅豆,綠豆等...

jj06mum

the following is a reply to another thread on the time cover story. since a lot is about bio-medical and this is a very informative and well-sustained thread, i copyand paste the same message over.   

==============
i am fairly new here and trying to get in contact with more parents in a similar situation. i have talked to a few mums already. thank u for ur generosity of time and experience sharing.

my 3.5 yr old boy is recently diagnosed with atypical ASD. he is verbal and with good eye contact but poor in comprehension and visual-spatial perception and fine-motor. he has constipation and sleep problem.

i actually read the Time cover story already. once parents get over the shock of diagnosis, the immediate steps will be to find help. i am a bit disappointed that only ABA and floortime r mentioned in the Time article but not anything biomedical even though its controversial. i think the biomedical approach must have made a big impact on the ASD research and treatment.  because i remember when i searched on the internet back in 2003 (i started worrying about my boys development already. he was only 1yr old) i hardly came across anything about recovery but now there r a lot of vedio clips as recovery evidence. they all involve biomedical approach. i am not sure if these r fads. but in real life i have met a recovered boy who was severe when 2.5 yr and now appears a typical 4y boy to me.  the family have always been my neighbour and our kids had played together in the playgroud before but i only got to know them after my son was also diagnosed with ASD recently. the father told me its the miracal result of  biomedical and ABA.  Prof Virginia Wong in Queen Mary's paediatric dept is the best local expert in ASD (thats what i learned from a neurologist here in hk). she was involved in the assesment of this boy, together with a group of professionals.

based on my limited search so far, it also appears to me a lot of the researchers/ doctors for  the biomedical approach r themselves parents of ASD kids.   

i guess i am biased already because of such experience but i feel compelled to share the story and hope other parents can take it as a reference while making decision for their precious ones. pls do more research first even though we r all racing agaist time.

actually i am not in a position to backup such an approach with own personal +ve experience yet because i have only begun the approach for my kids for less than a month. i am still cautious and taking it slowly.  despite the supplements r not considered drugs, such an approach is still invasive as compared to behavior therapies.  we have also been cautioned by other doctors that megadoses of multi-vitamins/ minerals might have unknown long-term effects.  

both my ASD boy and normal elder daughter r following biomedical supplements.  my husband "joked" our children r walking test tubes.

the govnt paediatrician in CAC told me not to put biomedical as the priority because of lack of solid evidence and usually any big +ve improvement can only considered incidential.  so anyone reading this pls also bear such advice in mind. do more research first.

also would appreciate any experience sharing on floortime. i came across the term before but always thought its just free play time. by what i understand from the Time cover story, its focus is on social interaction, problem solving and thinking on the spot.  not sure if i understand it right, ABA seems to me more effective for kids on the lower functioning side(so that they can learn the skills to communicate first) and then move to floortime which helps better functioning kids to improve more. i have not done any research on floortime yet.  
its said in the article the trend now is to combine both ABA and floortime in the individualized programme.

also anyone has done the autisum premium blood test and stool test with Dr Trodd care to share ur experience with me? pls pm me, i quite like a chat over the phone. i know a lot of u have shared ur experences on the biomedical thread and i read thru all the pages earlier but i think i forgot most of them.
just too much info in too short a time. my brain not big enough.  i have just done the tests and the reports should be back within this week or so.

thanks

jj06mum

jj06mum

jj06mum

JustC

I just bought some Epsom Salt (Magnesium Sulphate) for my son bathing.  But when I read the instruction and said it can drink with warm water every morning,  May I ask anyone try for drink this, is it good?  Thank you.

kawai

JustC,

我仔仔未試過飲Epsom Salt水,跟據網上資料話可以清肝毒,不過我夲人就不敢試,除非有便秘啦!

JustC 寫道:
I just bought some Epsom Salt (Magnesium Sulphate) for my son bathing.  But when I read the instruction and said it can drink with warm water every morning,  May I ask anyone try for drink this, is it good?  Thank you.

chanchanboy

kawai & justin2002,

Are you referring to this shop?  
http://www.macrofoods.net/buyguide_shop.html

Justin2002 寫道:
kawai,

In fact, I have been buying organic vegetables from 正食字号recently.  I shall ask for this chlorella extract next time when I go to pick up my vegetables.  Also worth mentioning is this shop sells DF fruit icebars which are tasteful too.

Justin2002

kawai

chanchanboy,

正是,不過佢地旺角分店已搬去hunghom都會廣塲.位置百佳隔離.唔知是否心理作用,我仔仔食左3日,第一日食完幾小時後話肚痛,後來大解後冇事.第二天早上食完,下午老師打电話比我話仔仔發燒,回家後還有微燒,我們沒有比藥佢食,想觀察吓先.不過樣子有點疲倦及沒有胃口,飯後比半茶匙olive leaf extract,二小時後見他開始出汗及再度活躍,跟着退埋燒.今天放学回家後,口不停,又打電話話我知工人同佢搭巴士返來.因住得近,平時放学是搭的士.莫非他身體排緊重金屬??我覺得
日夲牌子比較安全,各位不防一試.

另外,chanchanboy,得閒打電話比我,有野同您傾.

chanchanboy

Dear all,

I have mentioned that there was not much effect of MB12 to my son (see message quoted).

My son switched from normal MB12 to concentrated one on 21.5.2006 (Sun) at 9:30PM.  He could not fall asleep until 11:30PM (he usually went to bed at 10:00 and fall asleep at 10:30 the latest).  I suspected its the side effect of the concentrated MB12.  Cos' I wanted to check whether it's the problem of listening therapy (something new to my son a few weeks ago) or the concentrated MB12, I stopped the injection which should be made on Thur.  Yesterday (28.5.2006) 9:00AM, I injected the concentrated MB12.  My son was a bit off and silly laugh seriously during dinner and at night.  The silly laugh continued today.  As my son is having a course of Duflican now, it is unlikely a yeast problem.  I believe it is the concentrated MB12.   The silly laugh (stimming) might be good sign but I think it was too terrible.  Should I continue the injection?

chanchanboy 寫道:
My son has the MB12 injection since August 2005.  However, at that time, he began the Biomedical treatment and had many new supplements together.  I can't tell exactly which one is working on him.  But I think my son would not have so much difference with MB12, not hyperactive or shaper after the intake.  Sometimes when we missed an injection, I don't see any obvious problem.

Siu_Ming

Hi chanchanboy,

My son's sleep pattern has been disturbed recently.  This is only the 5th month of his MB12 injection.  This happened a few weeks ago.  We are still using the "normal" concentration of MB12 but his hyperactivity only becomes prominent recently.  He used to go to bed at 9.30 but now he stays up until 10.30 or even 11.00.  At school he is a lot more vocal (self-stimming) and defiant and hyper (accompanied by lethargy as well), though conversation has improved.  According to Dr. Neubrander, the MD in US who is well-known for using MB12, sleep disturbances and being hyper are not uncommon side effects.

Which listening therapy is your son undergoing now?  My son did AIT during the Easter break last year.  There might be sound oversensitivity for a short while but it will fade out when the therapy is done.  We also tried Therapeutic Listening and ABT's The Listening Program.  No side effects were noted.