"Biomedical Treatment - Parents' Group "

kawai

Hi momtc,

Please sign up if you're interested to join our gathering.  

Biomedical Group Dinner Gathering
日期: 21 April 2006 (星期五)
時間: 6:15PM to 9:30PM
地點: Harbour View International House
4 Harbour Road 1/F., Wanchai, H.K.
地圖: http://www.harbour.ymca.org.hk/c_location.php
費用: $136 (已計10% charge)

有興趣請報名-

1. ivanmommy( a friend of mine also wants to join)
2. kawai
3. shunshunma
4. GRACEbb
5. Justin2002
6. haybmum
7. chanchanboy
8. MerMee
9.Wewangwang
10. ultramom
11. Dommom (will bring along one to two moms with ASD kids)
12. Mrs Cheung
13. stellacl
14.yuenyuen

kawai

ultramom,

我記得Grapefruit seed extract同nystatin兩者是不宜同時服用,GSE會減低nystatin的藥效.正如中西藥是不可同時服用.我建議妳暫時不用nystatin,如果diflucan都冇效,nystatin可能幫助不大.先試GSE10天為一療程,由low dose開始,睇吓妳仔仔有冇特別反應,一般如果妳仔仔受得GSE,3日內應見效.

ultramom 寫道:
kawai及各位,
我阿仔啱啱食完diflucan, 而家又食番nystatin. 我自己啱啱買咗grapefruit seed extract (kirkman), 但唔知可唔可以跟nystatin同時食, 有冇試過? 請給些意見.
唔該哂

kawai

Hi momtc,

妳的建議確是我們各家長的願望,但可行性可以話係零.原因是跟香港醫療制度有莫大関係.在歐美一般是强制買醫療保,正因為是用者自付関係,所以bio-treatment衹是普遍用於自閉症及其他發展有問題兒童.不過香港這細少地方,醫療服務也算不錯.如果要求不高一般醫療包括生老病死幾乎係全包.每年政府用在醫療開資已經是天聞數字,如果要再加資源來研究及用那些成夲高的進口bio-treatment,卻祗服務你們佔全港比率數千份之一的特殊兒童,妳話係唔係天方夜談.

另外,香港的醫生佔九成是接受香港英式制全统醫学,他們不會像歐美等地醫生及学者喜歡做研究及接受新醫学理論. 另外有一個陰謀論是全统醫生為何反對及抗拒vitamins或supplement是因為有利益衝突存在,原因是維他命補充劑是不須prescription.

其實Dr.Ko, Dr.Lam同Dr.Trodd夲身是註冊兒科醫生,但他們所承受壓力亦不少,一般同行甚至醫務衞生處都視他們為傍門左道.正因如此,無謂浪費時間做一些無結果的訴求.

chanchanboy

ultramom,

Thank you very much.  

我揾到lee silsby份嘢啦, 抽錄以下一段俾你參考吓:

wewangwang

請問那位有Children with straving brains 一書,可否在gathering 時帶去給我看   

momtc,

I think you did a great job. I support you gar.

momtc

Good morning Kawai,

You may miss important points I raised.

The first thing is that autistic persons are also a serious patient with neuro-disorder affecting daily life. For almost all kind of sickness/diseases, the Government Health Department and/or Hospital Authority (HA) have many publications for educating the public about different treatments and the effectiveness. But, in case of Bio-medical Treatment, some medical doctors like Dr Ko /Dr Lam are adopting, but other doctors and even HA just causally said "no use". My point is: in view of such different views or no view amongst the medical doctors on this treatment method, the Government or HA should play a leading role to do a serious research on the effectiveness of this treatment. The present situation is : the Government authorities do not say anything seriously of their views on the effectiveness of bio-medical treatment.

The second thing is that many parents (as a consumer of bio-medical treatment services) are spending huge amount of money on this treatment for treating such serious neuro-disorder problem (or say a serious illness). At least, the Government or Consumer Council should tell us their views on the effectiveness of this treatment...

Lastly, I do not say the Government should entirely pay for bio-medical treatment for our childrens. I don't mind to pay the money. But, the most important point is that the government should respond to my above-first two points.

What do all parents think? Should you join me?

MOMTC

kawai

Hi momtc ,

According to what you're saying, I feel that you still have hesitation and ton of queries about the popularity and effectivesness of bio-treatment.  Yes you are right that very few parents use bio-treatment on their special kids because they believe in their doctors' view on the unfavourable comments of bio-treatment.  

Maybe my points of view were not strong enough to tell you the reality of the medical system in HKG.  I suggest you to visit either Dr. Lam or Dr. Ko to learn more about the conflicts between bio-treatment and traditional medication.  I also believe that they're the right persons to answer your questions why bio-treatment is not being used in both private and public medical practices.  

The Consumer Council usually examines those areas that can draw public concern.  Autisim is still a minority and I don't think any test will be done through this channel.  Also, the test is very subjective, long duration is needed, and hundreds of supplement are concerned in the test, the effort and time involved are extensive.  It is more like a research study rather than a direct ingredient test.

momtc 寫道:
Good morning Kawai,

You may miss important points I raised.

The first thing is that autistic persons are also a serious patient with neuro-disorder affecting daily life. For almost all kind of sickness/diseases, the Government Health Department and/or Hospital Authority (HA) have many publications for educating the public about different treatments and the effectiveness. But, in case of Bio-medical Treatment, some medical doctors like Dr Ko /Dr Lam are adopting, but other doctors and even HA just causally said "no use". My point is: in view of such different views or no view amongst the medical doctors on this treatment method, the Government or HA should play a leading role to do a serious research on the effectiveness of this treatment. The present situation is : the Government authorities do not say anything seriously of their views on the effectiveness of bio-medical treatment.

The second thing is that many parents (as a consumer of bio-medical treatment services) are spending huge amount of money on this treatment for treating such serious neuro-disorder problem (or say a serious illness). At least, the Government or Consumer Council should tell us their views on the effectiveness of this treatment...

Lastly, I do not say the Government should entirely pay for bio-medical treatment for our childrens. I don't mind to pay the money. But, the most important point is that the government should respond to my above-first two points.

What do all parents think? Should you join me?

MOMTC

momtc

Dear Kawai,

I would like to tell you that my child is receiving bio-medical treatment by one of three doctors. So, in my heart, I believe the way of bio-medical treatment.

But, I disagree with your saying that because of reality of medical system in HK Government, we don't need to fight for Government to do a serious study on the theory and effectiveness of bio-medical treatment.

If we, as the parents of autistic children, don't fight for anything better for our children, none of other people will do it! The important thing is that we should talk to the Government authorities in a reasonable manner. I think HK is still a place that we can argue with Government using reasonable words.

Now, because of different views and lack of views amongst medical doctors for bio-medical treatment for such serious patients (autistic children), the Government has a responsibility of consolidating a fairer views /study on this issue - the advantages of HKG doing study are:
- to save the social cost & time of many parents spending on studying and enquiry;
- to avoid spreading of the misleading sayings that correspondingly save the unnecessary expenses of the parents;
- to avoid the wastes of valuable time for treating the autistic children.

I'm not saying what Dr Ko and Dr Lam's doing is wrong. But, if Dr Ko / Dr Lam consider that everything of bio-medical treatment adopted by them are right in the light of scientific research, why we, parents, urge the Government to do more research on this treatment method.

Many illness/disease is just a minority, but the Government /University will still have funding for research. Why not for bio-medical treatment for autism. In fact, the realilty is that none of our parents tried to fight for HKG doing something in this aspect, so HKG ignore it up-to-date.



Regards,

MOMTC

momtc

Dear Kawai,

Thank you for your invitation to 21/4/06 gathering dinner. But, because I have to go attend "lay Therapy Workshop" at 7:00pm on 21/4, I am afraid I can't join your gathering dinner.

Please invite me for your next meeting.

Thanks,
MOMTC

chanchanboy

momtc,

我想問你有什麼計劃去push government? 會寫信去大學? 其實同小朋友爭取權益, 我諗大家都想, 但係莫講話biomedical treatment, 其實政府對特殊仔所有服務都好缺乏, 例如我仔仔遲一年先入小一, 今年八月要離開SCCC, 自己讀多一年普通幼稚園, 要言語治療服務, 便要去醫管局排, 上年12月去問吓, 條龍排到2008年8月!!!   

kawai

Yes, chanchanboy, according to the quality and quantity of the existing services for special children provided by Government,  I believe that the urge on use of bio-treatment in general medical practices would be deferred for many more years.  However, I don't mind to fight it for my grandson or granddaughter if my son has such a good luck to recover as a normal person.

chanchanboy 寫道:
momtc,

我想問你有什麼計劃去push government? 會寫信去大學? 其實同小朋友爭取權益, 我諗大家都想, 但係莫講話biomedical treatment, 其實政府對特殊仔所有服務都好缺乏, 例如我仔仔遲一年先入小一, 今年八月要離開SCCC, 自己讀多一年普通幼稚園, 要言語治療服務, 便要去醫管局排, 上年12月去問吓, 條龍排到2008年8月!!!   

kawai

chanchanboy,

I remember you've the book of "Children with straving brains".  Would you mind bring it to our gathering for sharing and discussion?  I'll also bring some related books as well.

[quote]
wewangwang 寫道:
請問那位有Children with straving brains 一書,可否在gathering 時帶去給我看   

ultramom

wewangwang & kawai
我都有一本"children with starving brains", 我會帶埋去. **希望我記得. : , 不妨到時再提提我.. :

Dommom

In my humble opinion, it is probably more likely to have our government sponsoring ABA training than bio-medical treatments for Austism.  ABA trainings are actually provided by the governement ar very low cost in the U.S., but there is no country that I know of that has a government funding for biomedical treatments of Autism.

HayBMum

totally agree with Dommon's views.  

Dommom 寫道:
In my humble opinion, it is probably more likely to have our government sponsoring ABA training than bio-medical treatments for Austism.  ABA trainings are actually provided by the governement ar very low cost in the U.S., but there is no country that I know of that has a government funding for biomedical treatments of Autism.

kawai

Pretty good point to urge the Government on sponsoring ABA training rather than bio-treatment.  I believe that the conflicts between supplements and traditional medication exist all over the world.  Government funding for bio-treatment would be a huge amont that may burden the whole country financially as bio-treatment would also benefit to many other illness and disease rather than only to Autism once the funding has been approved.   

Dommom 寫道:
In my humble opinion, it is probably more likely to have our government sponsoring ABA training than bio-medical treatments for Austism.  ABA trainings are actually provided by the governement ar very low cost in the U.S., but there is no country that I know of that has a government funding for biomedical treatments of Autism.

wewangwang

Thanks kawai, ultramom, chanchanboy

chanchanboy

Sure.

kawai 寫道:
chanchanboy,

I remember you've the book of "Children with straving brains".  Would you mind bring it to our gathering for sharing and discussion?  I'll also bring some related books as well.

jasper888

If we could apply tax free for the $ used for the core treatment (be it ABA, Floor Time etc), it would already be very good news already.

chanchanboy

  This is really a good good good idea.  

jasper888 寫道:
If we could apply tax free for the $ used for the core treatment (be it ABA, Floor Time etc), it would already be very good news already.