"Biomedical Treatment - Parents' Group "

chanchanboy

今個星期五我仔仔又係另一個round TD form DMSA. 但手腳紅到好勁, 昨夜己經擦少左份量, 今日淨擦腳, 睇見都心痛, 唯有頂硬上捱埋星期日做埋呢個round, 再問dr. trodd, 因為長遠咁樣唔係辦法.

仲有每次擦緊呢幾日仔仔都特別呆滯, 感覺都好hurt吓.

請問有無人用TD-DMSA呢? 有無資料可以share??

kawai

chanchanboy,

妳講得啱,如果小朋友夲身唔受得隻藥而令佢狀態失常,我都贊成另找方法.一於下次問Dr. Trodd再算.

好似ivanmommy 同ultramom仔仔用緊TD-DMSA,希望佢地可以比到意見妳.

chanchanboy 寫道:
今個星期五我仔仔又係另一個round TD form DMSA. 但手腳紅到好勁, 昨夜己經擦少左份量, 今日淨擦腳, 睇見都心痛, 唯有頂硬上捱埋星期日做埋呢個round, 再問dr. trodd, 因為長遠咁樣唔係辦法.

仲有每次擦緊呢幾日仔仔都特別呆滯, 感覺都好hurt吓.

請問有無人用TD-DMSA呢? 有無資料可以share??

ultramom

Hi chanchanboy,
我個仔都開始咗一個round td-dmsa. 但佢就冇皮膚紅呢個問題, 不過嗰3日都一係"吽吽哋", 一係又無端端發脾氣..
但係佢因為之前又發燒, 病咗幾日, 之後又有yeast overgrowth問題, dr trodd又開一劑diflucan俾佢, 所以第二個round要延期至食完diflucan先可以做. 其實我都心大心細, 因為我自己覺得阿仔條腸都未搞掂, 就做chelation, 好似同dan!protocol有抵觸...   
你而家做緊第幾個round 的td-dmsa呀? 我覺得如果你個仔d皮膚有咁大反應, 應該第一時間問吓dr trodd, 應該點做. 如果冇時間去, 可以電郵俾佢. 我都好多時電郵問佢, 至多下次見佢時俾佢話吓啫.

chanchanboy

我係yahoo forum個度post左TD-DMSA手腳好紅ge問題, 有人答我"Apply it to the top of his feet.", 各位媽咪可否話比我知即係邊度?

我仔仔剛剛完成第9個round DMSA, 第5個round開始TD form, 開頭無敏感現象, 由第8次開始先至係咁, 可能同支cream唔同左有關? 我仔仔應該14/4做第10個round, 我約左13/4去睇dr. trodd, 我今日要番屋企幫我仔影定d紅手紅腳相比dr. trodd睇.

關於yeast, 我仔現在keep住食nystatin, 對佢都ok有用, 無咁勁傻笑, 勁多stimming, 同勁hyper. 但每次dmsa都有無端端發脾氣.  

我係yahoo睇到有對dmsa ge意見, quote出黎大家分享下-

"… make sure you have a good probiotic in place (like Culturelle) and use a yeast fighter.  Usually more stims mean more yeast.

… these kids WILL SHOW THE EFFECTS OF MOVING METALS during a round.  Make sure you supplement minerals well during and after.  Lots of water is essential too.  Don’t be surprised if some rounds show more side effects than others.  Just make sure your dose is low enough …

Sometimes people stop a round in a not-great place.  Adults have told us … they have had to wait for the next round to feel better.  

Our son (who is 25) has told me that during some rounds his eyes have gone in and out of focus for 3 days, or sounds have suddenly become unbearably loud (我仔仔剛剛呢個round就成日感住雙耳), or every time he turned his head he gotten dizzy.

Just remember – our son thanks me over and over for chelating him because he is in so much less physical pain now …

kawai

chanchanboy,

"腳面"

[quote]
chanchanboy 寫道:
我係yahoo forum個度post左TD-DMSA手腳好紅ge問題, 有人答我"Apply it to the top of his feet.", 各位媽咪可否話比我知即係邊度?

ultramom

chanchanboy,
td-dmsa: 除咗手同腳, 我仲有"查"係背脊(因為我個仔好細粒, 手同腳唔係好多位)

ultramom

各位,
我個仔今日放學返屋企之後, 又為咗d好少事(佢poo poo完, 自己想攞厠紙, 點知剩番好少, 佢一拉就無哂), 大發脾氣, 狂喊咗20分鐘, 之後又儍笑, 又走嚟走去, 跳嚟跳去, 最後臨瞓係張床上面都自言自語(又係講番自己識果d單字)咗大半個鐘先瞓(都已經12點 :cry:  :cry: ).  
我估一係學校度食咗d唔應該食d嘢, 一係又係yeast...佢而家已經食緊diflucan (第12日, 都就嚟食完....), 有mud解救? 真係想    yeast!
p.s. 佢d便便又係soft, 都唔成型, 真係好耐都有見到佢有"成型"便便, 係唔係yeast overgrowth 癥狀?

ivanmommy

chanchanboy,

My son has been done 4 rounds of TD-DMSA, two to three months ago,initially over the back of the knees but the skin was very red after only a few times. So we change the site to the top of the feet which is better and I think the absorption is o.k..

ultramom,
We are going to begin the fifth round of TD-DMSA few days later, we saw Dr. Ko yesterday and she said that my son may have some yeast problem,so we are now giving him diflucan 5ml a day.Our dose of DMSA is 0.5ml each time(his body weight is 18.5kg) so far he does not have much great reaction after DMSA,I'm not sure this is good or not.(He is all along quite hyper)

chanchanboy

ivanmommy & ultramom,

Thanks for the advice.  I'll try top of the feet next time and discuss with Dr. Trodd.  The back of his knees and elbows were so red and summer is coming.  I don't want people connecting this with child abuse.

My son just finished the 9th round of DMSA.  During the 3 days on, he was quite spacy and regress.  Then day 4 (yesterday) and day 5 (today), his therapist said he is good in response and attention.  I don't know whether it's the DMSA working or something else (come back from Space?).  

However, at the same time my son's silly laugh is also more frequent after DMSA.  Very likely, the DMSA feeds the yeast as well.

Although I read the book FEAST WITHOUT YEAST, I found the diet is difficult GFCF + remove barley malt, vinegar, chocolate, soy sauce , nuts, peanuts, apples, grapes, corn, vanilla extract, bananas, dried fruits, raisins, maple syrup, colored spices, mushrooms, table sugar ...

I'll prepare a summary to the parents during our 21/4 gathering.  

ultramom

ivanmommy & chanchanboy,
1.想問吓係唔係醫生叫"查"係"back of knees"?係唔係"膝頭哥後面"個"摺位"? 果度係出汗位, 好易有濕疹. dr trodd同td-glutathione份說明書都冇話"查"果度喎... 我除咗背脊, 腳面外, 亦有"查"小腿"面"(即膝頭對落, 腳面對上一段), 因為果度皮膚比較薄.
2.我個仔"琴"日已經食完第5個course diflucan, 都冇mud改善, 反而d怪行為又返嚟...又發現red anus... 今日都係去見吓dr trodd, 睇吓有mud解救.  
3. chanchanboy所提到的yeast free diet, 其實我個仔已經差唔多戒哂唔食果d嘢, 所以都唔知點搞?!
4. 我都想去見吓dr ko, 聽吓d second opinion都好, 而且亦想試吓另一家長介紹的ozone treatment, 不過想等我老公返hk先約見佢.
5. chanchanboy, 我個仔對腳成日都"傷痕累累", 瘀到一撻撻(因為成日"琴"嚟"琴"去, 又唔怕跌), 我都俾人"試探"過我係咪abuse個仔, "阿x太, 成日湊住個"呢d"小朋友, 一定係好大壓力啦, 會唔會有時都打吓個仔呀?....."... 唉, 我都要提昇一吓自已d EQ先可以回應呢D問題...

kawai

請問有冇人試過NAET?我明早帶仔仔去做這測試.周醫師一星期有2日註診Dr.Trodd診所,她除了用Nambudripad's Allergy Elimination Techniques外,還用針刺頭部穴位治療自閉症,以下係周醫師資料:

Click here

chanchanboy

ultramom,

"back of knees" = 膝頭哥後面摺位, 無錯, 聽日我帶仔仔去OT, 我已經諗住用濕疹呢個理由去解釋.  Dr. Trodd無比說明書我喎, 係佢同我講擦手內側同腳內側.

睇到你小朋友的問題, 我都讚成你睇吓Dr Ko, 雖然我無睇過佢, 但既然Dr. Trodd個度攪黎攪去都無mug改善, 攞吓
second opinion都係好事.

我仔仔讀左同一間特殊幼兒中心幾年, 第一年我仔仔有親mug野傷痕, 學校都會第一時間打比我問清楚, 咁多年佢地都好了解我同我先生的為人, 都無再咁緊張問我, 而仔仔近年多數都係撞瘀腳多(因為本體覺同空間感都唔好), 以前我仔仔可以自己喊到面仔爆微絲血管, 好似出疹咁.

kawai,

NAET有聽過, 但實際係點樣就唔清楚, 你睇完再報料, 謝謝.

Dommom

Hi Kawai,

Dominic had been through about 15 treatments by Charity Chau - he has finished the "Basic 15" programme. I honestly did not see much changes on him, except theoretically, he should be able to eat eggs now.

Before I let him do it, I tried it for about 3 times myself.

Since he was always moving, my helper who brough him there has to act as the "surrogate" to do the test, I found it quite weird.

He did about 3 times of head acupuncture towards the end of the programme when he was more comfortable with Charity.

Good luck with it.  I heard it works wonder on some other ASD kids.

kawai 寫道:
請問有冇人試過NAET?我明早帶仔仔去做這測試.周醫師一星期有2日註診Dr.Trodd診所,她除了用Nambudripad's Allergy Elimination Techniques外,還用針刺頭部穴位治療自閉症,以下係周醫師資料:

Click here

momtc

Dear Dommom and Kawai,

Would you please tell me whether I can attend your "parents' group meeting"?

Grateful if you can tell me the place / time.

Or email to me the information:

[email protected]

Thank you.

MOMTC

momtc

Dear Kawai,

I am a parent of an autistic child.

Two days ago, I wrote a letter to three parties namely HK Government's HWFB, Hospital Authority and HK Medical Association with the following content:

" As you may know, there are many parents of autistic children in HK using bio-medical treatment for autistic children. In HK, there are 3 medical doctors (registered by HK Medical Association) providing services of bio-medical treatment for autistic children. But, as I know, both HK Medical Association and HK Government do not consider that bio-medical treatment is a sound method... lack of scientific evidence.

As many parents of autistic children will use or are using huge amount of money on bio-medical treatment for their children, there is lack of clear pictures on what bio-medical treatment is?

HA, HKMA and HWFB as leading organizations in HK taking care of treatment of autistic patients, may I request HA, HKMA and/or HK government:

- do a serious review on "effectiveness of bio-medical treatment", and then publish your findings for reference by our parents.

- do a guidance for medical doctors for use of bio-medical treatment method for autistic children

One important thing is that if HWFB considers that bio-medical is not a sound method, why do not ban the doctors using it for treating autistic children and prevent the parents from unnecessary expenses. More importantly, the parents are consumers paying huge amount of money on bio-medical method, at least the consumers should be told by the HK government on the views & effectiveness of the bio-medical method"

Kawai,
Do you think whether we should organize the parents to press the government to do something on "bio-medical treatment in the public hospitals? If you agree with my above movement, please email to me to discuss further action to be taken.

My email address:

[email protected]

Regards,

MOMTC

ultramom

kawai,
我早兩個星期先開始帶阿仔去見charity. 我就覺得阿仔呢兩個星期都active咗(有d hyperactive, 成日走嚟走去, 又再跳嚟跳去.) 不過可能同yeast 問題有關. 因為我個仔冇做過food allergy test, 所以我都唔知佢對mud嘢allergic. 而家佢做緊d basic嘢. 我一早已提到佢可能對yeast有問題, 但佢話要先做咗d basic嘢先, 昨日去做sugar, 佢話可以同時做埋yeast啦. 睇吓點啦. 我昨日下午4時半先去到, 見唔到你添.
ultramom

ultramom

chanchanboy,
dr trodd冇說明書俾我, 係我自己第一次同lee silsby訂td-glutathione時, 收到d cream內有份說明書講點"查"d cream. 我試吓揾唔揾得番先, 揾到email一份俾你參考一下.
[quote]
chanchanboy 寫道:
ultramom,

"back of knees" = 膝頭哥後面摺位, 無錯, 聽日我帶仔仔去OT, 我已經諗住用濕疹呢個理由去解釋.  Dr. Trodd無比說明書我喎, 係佢同我講擦手內側同腳內側.

ultramom

kawai及各位,
我阿仔啱啱食完diflucan, 而家又食番nystatin. 我自己啱啱買咗grapefruit seed extract (kirkman), 但唔知可唔可以跟nystatin同時食, 有冇試過? 請給些意見.
唔該哂

ultramom

chanchanboy,
我揾到lee silsby份嘢啦, 抽錄以下一段俾你參考吓:
squirt the instructed amount of gel onto thin-skinned areas of the patient's body such as the tops of feet, thighs (from knees directly up, not the inner thigh), ankles, shins, inner forearm or lower back.

kawai

Hi Dommom and Ultramom,

今早帶仔仔去見Charity,不過是中環另外一個醫生診所.因她祗週一及週五註診Dr.Trodd處,而我仔仔星期六才有空檔.正如Dommom形容,由於仔仔週身旭,treatment時要經我摸著仔仔再借助我身體做橋樑才可做測試及治療.我都覺得有的怪,直覺上如果可幫仔仔直接做就覺會有效,但是這樣"隔山打牛"法就有疑問.據我所知這最新測過敏技術在歐美是新興及破好口碑. 我們剛幫仔仔找美國同類療法"Homeopathic Doctor, Judyth Reichenberg-Ullman做完個遙距診症,等緊他們寄藥過來.Dr.Judyth Ullman有夲註作"A Drug-Free Approach to Asperger Syndrome and Autism"內容有推介"NAET"我才有興趣試試.我會比仔仔試多幾次睇吓有冇效再跟大家報料.