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教育王國 討論區 特殊教育 "Biomedical Treatment - Parents' Group "
樓主: kawai
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"Biomedical Treatment - Parents' Group " [複製鏈接]

Rank: 4


646
1541#
發表於 06-3-18 01:09 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Kawai,
yes, this is 長期作戰.  

The information on NO-Fenol that you post earlier is useful to me as my son has dark cycles under eyes.   But there is a warning message that it "may not be appropriate for those with known allergies to Aspergillus enzyme proteins".  Need to check with Dr first.


Rank: 3Rank: 3


247
1542#
發表於 06-3-18 10:24 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

kawai,
多謝關心, 阿仔燒咗兩日(燒到去40c!, 通常都係晚上開始燒), trodd凈係俾咗nuforen佢退燒, 昨晚開始冇燒, 今朝都冇, 希望佢自己打贏咗啦.
關於milk thistle,我電郵去問little giant, 佢哋有貨, 兩隻牌子:kirkman同nature farm. 我就叫佢幫我留一樽kirkman (因為未聽過nature farm : , 不過我都唔識好多品牌)
我因為上次阿仔食過我係watson買的melatonin, 反應好大鑊, 所以唔係好敢再係watson/manning買. 我上次揾咗幾間先揾到一間有melatonin, 仲封哂塵, expiry date又得幾個月剩, 所以感覺上好似佢哋d貨唔係好"新鮮". 不過呢d純粹個人愚見 :
果份oat urine report, 佢"suggested"的supplement, 水蛇春咁長, dr trodd今次開咗隻learner edge俾阿仔, 我就想等佢退哂燒先開始食.
dr trodd今次見我個仔, 佢話覺得阿仔進步咗好多, "有d似正常的小朋友", 不知佢係"tum"我開心, 定係想話biomedical有用. 不過今次阿仔冇"反抗", 又冇大喊, 又肯俾trodd睇耳仔,聽心口同"按"佢個肚仔. 大家可想而知, 之前我阿仔係幾咁"唔正常"....而且依家都non-verbal, 唉, 正常極都有限...
不過阿仔見trodd攞聽筒出嚟, 就自己用手指整兩個圓圈放係自己對眼度, 一味話"glasses glasses glasses", 我同trodd解釋, 因為屋企套醫生玩具, 有一副眼鏡, 所以可能阿仔以為醫生用聽筒就要有眼鏡, dr trodd都幾好人, 真係走去揾副眼鏡帶(不過佢話帶咗眼鏡其實就睇唔到嘢), 應酬一下阿仔
[quote]
kawai 寫道:
ultramom,

Is your son feeling better?  Hope he'll get well soon.

I just got my online order of milk thistle liquid from Houston site.  I'll let my son start it tomorrow.  Click to see the following link for more details:

Rank: 3Rank: 3


150
1543#
發表於 06-3-18 11:14 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear Kawai,
When you said your kid's mercury dropped to 1.4 and yellow zone on Unrine test, I digged out Nic's file to check.  His Mercury level is 4, but on the green zone.  Are we talking about the same thing? Nic's  test is post-DMSA challenge urine test.  Do you think a mercury level of 4 on post-challenge urine test is a concern? (Theoretically it should be 0, but I guess no way if we live in Hong Kong).  This kid had a bad reaction on DMSA so we cannot use it to chelate. [quote]
kawai 寫道:
HayBMum,

Even though the mercury level has been dropped to yellow zone.  However, my son seems not to be improving as much as we expect.   :cry:

Anyway, our fighting of autism is still in progress.

Rank: 4


646
1544#
發表於 06-3-18 18:13 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

ultramom,
我今日都係little giant 見到kickman's milk thistle. 仲諗住話比你知,原來你仲快知過我。
講開發燒,阿仔上星期尾發左2日輕燒,around 100-101℉,燒完又咳同有鼻水,但除左食收鼻水藥外,就靠自己打仗,點知個頭好返,轉頭又眼睛發炎,結果都要滴有抗生素的眼藥水,其實今次已經係佢第3次眼睛發炎, 我覺得阿仔係好容易敏感的人,眼、鼻、皮膚、腸胃全部都係。

其實要我地阿仔坐定定比醫生做檢查真係唔易架,我記得我阿仔要到3歲左右先至完全放心讓醫生掂佢做各種檢查,以前會喊住不斷講好驚呀,唔睇呀。
你提及的oat urine test係咩test呢架? 我好耐無去dr trodd度,唔知有咩新發展,等chanchanboy 同kawai confirm下一次聚會時,希望你們可以update 下我呢!

Rank: 3Rank: 3


247
1545#
發表於 06-3-19 21:49 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

HayBmum,
唔該哂你先... 因為我上次去little giant時, 發覺佢哋多咗幾隻kirkman的產品, 所以第一時間電郵去問.
你阿仔用有抗生素的眼藥水, 駛唔駛食番d probiotics?
OAT urine test, 係我個仔睇嗰個craniosacral therapist提起的, 佢都係dan! doctor, 不過佢唔係medical doctor. 我同佢講我估阿仔成日都有yeast over-growth問題, 又食咗4 個courses的diflucan, 都係時好時壞, 佢就話應該做oat先, 睇吓係唔係yeast problem, 又可以睇吓隻yeast有冇抗藥性(例如, 如果對diflucan有抗藥性, 咁就食咗都冇用), 我聽落又覺得好合理, 而且只係留小便(唔駛抽血), 所以去dr trodd度, 提吓呢個test, 佢話都可以做, 咁咪做咗囉, 不過個report都幾"蝦"人睇, 同個craniosacral therapist俾我睇佢其中一個client的oat report都唔同, 我估係唔同lab有唔同做法和report方式. 而我個仔的oat report, dr trodd就話"very good", 冇大問題...唉...咁仲唔知應該點...

Rank: 3Rank: 3


446
1546#
發表於 06-3-19 22:23 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Chanchanboy,
Thanks for your advise. My son got sick last Saturday, so we went to see Dr. Lam not longer than last visit. We also discussed the probelm with Dr. Lam again and he asked us to stop DMSA and ETDA at the moment as Yu was sick and we could take other supplements and he gave another new medicine which could help Yu : IP-6. Anyone heard about that?
Yu had fever last night still. Just like Ultramom's son, at the night time, fever is coming back...  :-|

Dinner is a good idea! Long time not meeting all of you!

Rank: 4


646
1547#
發表於 06-3-19 22:36 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

ultramom,
阿仔有食probiotic, 其他supplement都有繼續。但隻抗生素眼藥水似乎藥性好強,只是滴了3次第二日已經好番。但阿仔明顯脾氣差左。
多謝你對oat urine test詳細的解釋,至於yeast problem, 我都覺得很難搞,尤其有時阿仔情緒幾飄忽,原本好開心可以因少少不如意就大喊,都唔知係唔係yeast over grown。

Rank: 4


725
1548#
發表於 06-3-19 23:42 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi Dommom,

唔好意思,嚇親您! 我係講hair test. 如你仔仔urine test的mercury level係4就好正啦.  順便問下您或有冇小朋友由super nu thera 轉了用ASD Plex.  我星期四晚第一次比仔仔食,覺得真係快靚正.食少好多隻,睇佢呢兩日唔覺有反常行為,應該可以繼續,致於效果就要遲的才可報告.

mickeyma,

IP6可增強免疫力亦對 OCD - Obsessive Complusive Disorder有幫助. 我仔仔食左近兩個月,佢那些用手扮門開關行為明顯減少.

Ultramom,

我仔仔好喜歡Houston's milk thistle,因有honey成份,甜甜地.妳可以叫little giant下次訂開野幫妳訂埋.

HayBMum,

Please check pm.  

Rank: 3Rank: 3


150
1549#
發表於 06-3-20 00:09 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi Kawai,

I find the hair test results very confusing.  On one hand, if the kid has a lot of toxic metal on the test result, that means he/she has a lot of heavy metal in the body for sure.  On the other hand, if the hair test shows a high level of toxic metals, that means he/she can excrete the metals well, perhaps even without any chelation, which is a good news.  My kid's hair test toxic metal level was higher in the recent test than before.  So that frustrated me.

My kid also switched from Super NuThera to ASD Plex.  How much is your kid taking ?  The first couple of days I used the spoon in the contained which ended up to be too much and he threw it all up.  I then lowered it to 2.5 m l a time, twice a day.  So far so good.

Rank: 3Rank: 3


365
1550#
發表於 06-3-20 09:47 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

mickeyma,

My son also got fever last Friday early morning.  I believe it's because of No-fenol.  I gave him 2 times a day and observed that he has red cheeks and little fever.  According to the article which was given by chanchanboy, this is normal reaction.  However, my boy also got cough and running nose.  I did not bring him to doctor or give him any medicine but continue with all supplements.  He is still feeling tired yesterday and today.   Hope he can fight the yeast and bacteria by himself.

By the way, I have bought the OLE and please let me know when do you want that together with AFP Pep.

So, when are we going out for gathering?  I am not available on 31 March only, all other Fridays are fine.

Justin2002

Rank: 3Rank: 3


247
1551#
發表於 06-3-20 11:32 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi Dommom,
FYI, my kid (3-1/2 yrs old, 31 lbs) 's dosage for ASD Plex is 1/4 tsp (i.e. 2.5ml) once a day.
How often do you take your kid for a hair test?

Hi Kawai,
my son also switched from Super Nu-therma to ASD Plex few weeks ago.  I find ASD Plex smell much better and easily mix in rice milk to give it to my kid.  Before, he always refused to drink juice with SNT in it because of its strong taste/smell.

Dommom 寫道:
Hi Kawai,

My kid also switched from Super NuThera to ASD Plex.  How much is your kid taking ?  The first couple of days I used the spoon in the contained which ended up to be too much and he threw it all up.  I then lowered it to 2.5 m l a time, twice a day.  So far so good.

Rank: 3Rank: 3


247
1552#
發表於 06-3-20 11:37 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

hi kawai,
請問houston's milk thistle 係粉狀定係liquid form? 請問你可唔可以溝juice或rice milk飲? 我個仔唔肯"凈"飲supplement. :
kawai 寫道:

Ultramom,

我仔仔好喜歡Houston's milk thistle,因有honey成份,甜甜地.妳可以叫little giant下次訂開野幫妳訂埋.
  

Rank: 4


544
1553#
發表於 06-3-20 13:26 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Biomedical Group Dinner Gathering

日期: 21 April 2006 (星期五)
時間: 6:15PM to 9:30PM
地點: Harbour View International House
     4 Harbour Road 1/F., Wanchai, H.K.
地圖: http://www.harbour.ymca.org.hk/c_location.php
費用: $136 (已計10% charge)

有興趣請報名-

Carson's birthday in January 2000.

Rank: 5Rank: 5


2152
1554#
發表於 06-3-20 23:10 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

all mama & mickeyma:
我想問下小朋友現在3.5y,讀緊(i 位n1), 上星期學校ot 黎學校第二次見小朋友, (另在早上baba 帶去上政府ot, 在ot姐姐說佢的小肌不是太差, "打千秋"約相差了9個月 (小朋友最差是打千秋 & ot 小組訓練 ),在今日學校i位老師說學校ot 建議如小朋友在4y的專注力--指昤听, 指示 (約相差 6個月--9個月),還沒有改善的話, 轉s位會好些, (特別是為將來讀"主流小學"), 我應否听學校ot的話轉s位??    
(因排得黎已5y)

Rank: 3Rank: 3


150
1555#
發表於 06-3-20 23:28 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi Ultramom, I think next time I will take the urine test only - I just find the hair test result difficult to interpret.  I think if we do it every half a year that's good enough, or right after you finish a course of chelation therapy.

Can I bring a couple of friends, also moms of autistic kids, to the dinner gathering ?

Rank: 2


46
1556#
發表於 06-3-20 23:34 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear All,

My son has been on TD- Naltrexone for 4 weeks which stopped 2 weeks ago because of his aggressive behaviour and poor sleeping pattern which improve afterwards. He is now on Ozone treatment which suppose to help his yeast problem.
BTW,what is ASD plex, what components does it contain?

Kawai,

I would like to know the hair test of your son is at the beginning or at the end of the PCA-rx ? My son can't take it because he is not co-operative. How many cycles of the treatment does it need as it is  not mentioned over the bottle.

Rank: 2


46
1557#
發表於 06-3-20 23:35 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Biomedical Group Dinner Gathering

日期: 21 April 2006 (星期五)
時間: 6:15PM to 9:30PM
地點: Harbour View International House
4 Harbour Road 1/F., Wanchai, H.K.
地圖: http://www.harbour.ymca.org.hk/c_location.php
費用: $136 (已計10% charge)

有興趣請報名-

1. ivanmommy

Rank: 4


725
1558#
發表於 06-3-20 23:49 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear all,

I've read an article about the salient points of having fever recently.  It mentioned that mild fever sometimes is not too bad for the immune system as it helps to kill virus and bacteria from the body.  That's why we found our kids behave better or with less stimming when they're having fever.  

Dommom,

Detoxfication is our life time project since we're living in such a polluted enviornment.  We are also eating bad quality of foods and drinking contaminated water.  So that I prefer to use natural chelation therapy for detoxification slowly and safely.  Dr. Trodd did mention NDF which is a natural chelation likes PCA-Rx.  ALA also helps to remove toxins with no side effects.  

My son is taking ASD plex 1/2 tsp x 2 times per day.  I've checked the dosage from millnut.com.  The dosage is for kids who are over 35 lbs.   Full dosage of 1 tsp x 2 times per day should be given when the kid reaches 40 lbs.  

Ultramom,

My son is using the liquid form of milk thristle.  It tastes like honey and is very easy to mix with any beverage or water.

   
         

Rank: 4


725
1559#
發表於 06-3-20 23:50 |只看該作者

Re: "Biomedical Treatment - Parents' Group "


Biomedical Group Dinner Gathering

日期: 21 April 2006 (星期五)
時間: 6:15PM to 9:30PM
地點: Harbour View International House
4 Harbour Road 1/F., Wanchai, H.K.
地圖: http://www.harbour.ymca.org.hk/c_location.php
費用: $136 (已計10% charge)

有興趣請報名-

1. ivanmommy
2. kawai

Rank: 4


725
1560#
發表於 06-3-21 00:32 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear Dommom,

My son also did the urine test at the same time of hair test.  His mercury level is 5 and it's within green zone.  However, Dr. Trodd said the result is not accurate as my son didn't take DMSA before the urine collection.  I thought he has been using PCA-Rx for a few months and it acted like DMSA that stirred up the heavy metals from the body.  Anyway, I'll let him do the urine test again after 3 months.  

BTW, any mom with special kid is welcome to join our dinner gathering.  Please sign up on behalf of your friends.  

ivanmommy,

Have you found any benefit of ozone treatment so far?  Please share with us for more details about this treatment.  

My son has just started a new treatment of TD- Naltrexone.  He woke up at 6:00am early in this morning and it didn't happen for long long time since he started bio-treatment.  I'll observe if he has any change of his sleeping pattern in the coming few days.  He started the PCA-Rx 4 month ago before the hair test and the follow up test was done 3 weeks ago.   

ASD-Plex is a brand of multi-vitamins with minerals, amino acids, and antioxidants.  This is considered as an all-in-one formular tailored made for autustic kids.  Click the following link for more details:

ASD-Plex

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