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教育王國 討論區 特殊教育 "Biomedical Treatment - Parents' Group "
樓主: kawai
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"Biomedical Treatment - Parents' Group " [複製鏈接]

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150
1441#
發表於 06-2-26 23:38 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Stella, hope your boy will recover soon.  Best of luck !

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150
1442#
發表於 06-2-26 23:42 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Is there any parents here who have put your autistic kid into hyperbaric oxygen chamber therapies ?

I heard that in mainland China, they use that a lot to treat autistic children, probably something to do with the lack of access to all these supplements that we have, perhaps ?

BTW, went to Little Giant today - they had a new series of GFCF cookies from Britain that taste great !

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365
1443#
發表於 06-2-27 09:33 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

kawai,

Thanks for the info.  In fact, I bought also one can of Lecithin as recommended by mickeyma at Green Concepts last week.  It is of powder form and not gel.

Bilberry - I also found in Tak Hung Hong which is on sale (20% off i.e. from $185 to $148) from last Friday until today.  Is it good to our children?

Justin2002

Rank: 4


949
1444#
發表於 06-2-27 17:14 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

I visited Dr. Trodd this morning but he didn't mention anything about the seminar.  Can anyone here tell me the date, venue and charge of the seminar?  Thanks a lot.

BTW, I have got 10 dosages of highly concentrated B-12 and will try tomorrow.  Just hope that it will be an easy task.

[quote]
Siu_Ming 寫道:
... there will be a conference held in the coming August in Hong Kong.  Dr. Neubrander, ... and Dr. McCandless ...  Dr. Trodd is encouraging as many parents as he can to attend the conference.
我們怕孩子的人生路途滿佈荊棘,與其為孩子在路上舖一層地毯,不如在孩子的腳上穿上一雙鞋。

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150
1445#
發表於 06-2-27 23:25 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Mrs. Cheung - the seminar is being put together by Dino - his company provides ABA therapies which a lot of parents here know.  We will post the details once we know it.  He is currently seeking sponsorships, and the last thing I heard he already got Cathay Pacific sponsoring the air tickets.

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46
1446#
發表於 06-2-27 23:43 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Siu_Ming,

My son has been receiving TD-Neltrexone gel for three weeks,the initial dosage is 0.25ml(concentration being 6mg/ml) for two wks then increasing to 0.5ml from the third week onward,he is also receiving TD-glutathione 0.3ml per day(concentration 200mg/ml),so far nothing special effect has been observed. Fortunately,no skin reaction happend.

Rank: 4


725
1447#
發表於 06-2-28 00:09 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear All,

The HLC MindLinx will be arriving by UPS on WED.  The cost per bottle is Net$331 including shipping cost.  Please pm me your contact, I'll call you for methods of collection or delivery.      

Hi Dommom,

Have you found any benefit from the HBOT?  I heard that the HBO treatment in China is quite different. They use the face mask type which is the same in hospital.  

Justin2002,

The Bilberry is for vision support.  

   

Rank: 4


725
1448#
發表於 06-2-28 00:19 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Ivanmommy,

Long time no chat!  Is your son still visiting Dr. Ko & Dr. Trodd regularly.  My son has been using the TD-Neltrexone gel for a few weeks but I didn't get the refill after it finished since it showed no effect to my son at all.   

Rank: 2


65
1449#
發表於 06-2-28 08:02 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear Kawai & all moms,

I think I am on the right track now. My husband "drop his jaw" when he saw the food test report. My son is highly reactive to:
casein, cow's milk, whey, yougurt,
gluten, wheat, rice, egg, soy, honey, peanut, sesame, cashew nut, mung bean,
banana, watermelon,
codfish, salmon, sea bass, sea perch, tuna

I don't know how to cook w/o rice & soy sauce!

Rank: 3Rank: 3


365
1450#
發表於 06-2-28 09:49 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear ABBmom,

I think mrsphcheung may give you some advice as her son also carries GF/CF and starch free diet.  Please correct me if I were wrong.

Diet without rice and soy is really a big challenge!

Justin2002

Rank: 3Rank: 3


150
1451#
發表於 06-2-28 13:28 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi Kawai,  I think you already have my phone number, right ?  Pls phone me to collect the Probiotics.  Thanks for ordering that for us.

The type of Hyperbaric Oxygen Chamber they use in China is the hospital grade hard chamber, with higher pressure possible.  I would rent a "Mild HBot" from Dr. Trodd this weekend, which is like a tent, with a maximum pressure of around 1.3 ATA.  I will keep you posted on any changes that I will see in my kid the next 3-4 weeks period.

Rank: 4


949
1452#
發表於 06-2-28 14:29 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

我們怕孩子的人生路途滿佈荊棘,與其為孩子在路上舖一層地毯,不如在孩子的腳上穿上一雙鞋。

Rank: 4


949
1453#
發表於 06-2-28 14:30 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear Dommom,
Thanks.
我們怕孩子的人生路途滿佈荊棘,與其為孩子在路上舖一層地毯,不如在孩子的腳上穿上一雙鞋。


1022
1454#
發表於 06-2-28 15:21 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

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460
1455#
發表於 06-2-28 16:31 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

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725
1456#
發表於 06-3-1 00:18 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

ABBmom,

Don't be upset about the allergen result since it is only one of the missing puzzles.  There're many many possibilities that may cause developmental problems.  

Using soy sauce substitute is more straight forward.  You may get the liquid Aminos 健康鼓油 or Organic Tamari 鼓油as well as non-dairy milk from either Health Gate, Little Giant or other retails.   

My suggestion is not to quit rice at one go as it's one of the major foods in Chinese family.  You may simply start with supplement to observe any changes.  You may also try to use some enzymes which can enhance hydrolysis of complex carbohydrates.

The following are  the combination of enzymes for the replacement of special diet.

"AFP Peptizyde" helps with breaking down proteins from gulten and casein
"HN-Zyme Prime" helps with digesting complex carbohydrates and fats
"No Fenol" helps with digesting fruits and vegetables associated with some phenolic compounds

Click here to know more about enzymes

Give me a call if you have further queries.

ABBmom 寫道:
Dear Kawai & all moms,

I think I am on the right track now. My husband "drop his jaw" when he saw the food test report. My son is highly reactive to:
casein, cow's milk, whey, yougurt,
gluten, wheat, rice, egg, soy, honey, peanut, sesame, cashew nut, mung bean,
banana, watermelon,
codfish, salmon, sea bass, sea perch, tuna

I don't know how to cook w/o rice & soy sauce!

Rank: 3Rank: 3


365
1457#
發表於 06-3-1 09:17 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Yes, what kawai said are really true!

Also, the chewable HN-Zime Prime taste like sweets and my son likes very much!

Justin2002

Rank: 4


523
1458#
發表於 06-3-1 12:27 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Kawai,

Do you still have the salesman's name and contact phone no. of Eye Q?  Do you know if the buy ? get 1 free offer is still valid?  Is your son still taking Eye Q?

Anyone whose kid is taking Eye Q now, would you please share your comments?  My son has just finished Nordic Natural junior EFA and I want to switch to Eye Q for him.

Many thanks!  

Rank: 2


65
1459#
發表於 06-3-1 14:06 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear Justine2002 & Kawai,

Thanks very much for yr care & suggestion. Yesterday my son had head injury and had several stithces. We've just came back home from hospital. I feel very down and can't settle my mind yet. My desk is a mess and I can't find both of yr phone nos. Pls call me for the collection of the supplement.
Raising a HD kid is really very tired. This is already the fifth time of my son's staying in hospital and the second time of major head injury. A HD kid is impulsive, likes stimulation and w/ poor SI!

Rank: 3Rank: 3


365
1460#
發表於 06-3-1 16:04 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

shunshunma,

My son also takes Eye Q daily once a day.  So far so good, cannot see any +ve or -ve effect.  Have checked with Dr. Lam on this and he said OK, only queried about the proportion of  EPA vs DHA.  

Justin2002
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