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教育王國 討論區 特殊教育 "Biomedical Treatment - Parents' Group "
樓主: kawai
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"Biomedical Treatment - Parents' Group " [複製鏈接]

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460
1401#
發表於 06-2-21 14:59 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear all moms,
Dr. Lam recommended buying a book of “Chemical Free Kids”.  Did any mom buy it?  Is it useful and informative?  Please share.  

Rank: 4


949
1402#
發表於 06-2-21 15:06 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear all,
Do you get 'highly concentrated' B-12 from Dr. Trodd?  I will visit him next week and want to ask him for it.  Thanks.

Dear Sjmama,
There is a period of regression at the very beginning may be due to chemical reaction in the body.  The child will perform well after getting used to B-12 (it may last for several weeks).

sjmama 寫道:
各位有用B12的家長:

想請問你們的孩子用了B12後多久,才看到進展呢?我們的兒子打B12有一個月了, 但他的專注力似乎反而差了,而且非常VOCAL.請問你們的孩子若有REGRESSION 或NEGATIVE SIDE EFFECT, 大概要多久才會恢復正常?
我們怕孩子的人生路途滿佈荊棘,與其為孩子在路上舖一層地毯,不如在孩子的腳上穿上一雙鞋。

Rank: 3Rank: 3


231
1403#
發表於 06-2-21 22:15 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear all,
Thanks for the information about glutathione gel.

Dear mrsphcheung,
I have asked Sharon, staff of Tim Trodd to give me 2 syringes with the conc B12 for a try.  I have not tried that out on my son yet.  I want to try it on myself first.  According to Sharon, comment from parents who have used it is it is difficult in inject all the stuff towards the end as the conc B12 is quite thick.  And according to one child user who is 10 y.o., he said that he prepared the diluted one as the conc one is more painful on injection.

Rank: 4


544
1404#
發表於 06-2-21 22:28 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Yes.  My son just finished the 2nd round of TD-DMSA.   I think the yeast problem is less severe than the Oral DMSA.  However, my son inner arms/legs got redish where TD-DMSA applied.  So we stop the Authia Cream during the days off also.   The TD-DMSA, according to Dr. Trodd will be much slower in detox heavy metal.  But instead of getting too much stimming, I prefer TD-DMSA.  Beware, you have to put on gloves when apply TD-DMSA if you have 補牙 with mercury.

ultramom 寫道:
hi 各位,
請問有冇人試過td-dmsa? 上周我去見dr trodd, 佢俾咗兩支td-dmsa俾我, 叫我試兩個round (3日on, 11日off)再去見佢.
Carson's birthday in January 2000.

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247
1405#
發表於 06-2-21 23:28 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Jasper888 & mrsphcheung,
我估我就係嗰個話conc b12 (25mg)好難打哂全部入去的家長.  我嗰仔用緊conc b12(25mg), 第一次時, 佢哋俾"短針", 好易打. 但我第二次再去攞時, 佢哋就用咗另一隻長d的針筒, 佢哋話因為有小朋友話支針痛d, 所以佢哋俾呢種可以"換"針的針筒, 等我返去打的時候, 先換"針"才打, 會冇咁痛喎, 不過因為呢隻可換針的針筒比較粗, 所以打咁少份量的b12時, 支針筒推到盡都仲有大部份留番係筒內, 所以我又返轉頭再攞過一批用"短針窄身不可換針"的b12針.  因為我個仔未識講"痛", 同埋我係等佢瞓咗至打, 佢通常都郁都唔郁, 所以我又唔覺佢會痛.
mrsphcheung,
我嗰仔最初打(10mg)b12, 後來有家長話high conc.(25mg)好d, 所以轉咗(25mg), 第一次攞咗成包(有17-18支), 已打完, 早排再去攞第二次.  打過(25mg), 真係好過10mg好多, 因為容易打得多, 之前打10mg時, 又手震又騰雞, 好幾次都打唔哂, 又或者整醒阿仔....當然狂喊啦...
  

Rank: 3Rank: 3


247
1406#
發表於 06-2-21 23:41 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

各位家長,
請問有冇人係dr trodd度攞過td-glutathione cream? 請問係什麼牌子(葯廠)出品?

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247
1407#
發表於 06-2-21 23:45 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

各位,
對唔住, 問d唔關biomedical問題, 但我又唔識其他家長係ap做aba....
我想知ap係唔係間中有course俾家長學aba? 如果有, 又會唔會接受其他家長(即冇幫襯佢哋)報讀呢?
請pm我, 謝謝.   

Rank: 4


725
1408#
發表於 06-2-22 00:15 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

My son has been using the high concentration B12 syringes twice as a trial last week suggested by Sharon.  This is definitely more user friendly as it  only takes 1.5 second to finish the injection.  My son didn't complain which type caused more painful.  I heard from Trodd's nurse that some kids complained the high concentration one caused more pain like jasper 888 said.  

sjmama,

You got to be patient for a few more weeks.  Report to Dr. Trodd if your son's problem persists.  You may think to shift back the low concentration syringe as a trial to see any difference between these two syringes since your son has some positive effect before when he took the injection from Dr. Lam.     

ultramom,

AP parents training is for clients only.  For the TD-glutathione cream, we're using the Lee Silsby prescribed by Dr. Trodd.  Don't you remember you recommended this one here in this column.  
         

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108
1409#
發表於 06-2-22 00:33 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

各位,

好似冇mug見有人提過用塞肛的dmsa and edta?  

我本來只用 edta 的, 隔日塞 (1個星期3次), 巳塞了12次, 因為同時間隔日用epsom salt 沖涼, 所以基本上日日都有boo boo. 最近 dr. lam 俾埋 塞肛的 dmsa 我, 要一星期連續塞兩日, 佢話塞肛最effective, 唔使經過腸道... 所以而家的schedule 係星期1,3,5塞edta, 6,日塞dmsa.  係唔係太過 aggressive呢?

阿仔近期的表現是大起大落的. 肯做的時候係乖都你唔信, 但係亦很多時好似波子機咁彈來彈去, 叫極都唔應.  我都唔知佢算唔算有 yeast problem, 所以 dr lam 俾我的 anti-fungal 遲遲都未食.

其實我更concern 的是會否給他帶來暗影, 一星期5日都要同佢struggle 一輪先塞到, 而家耐唔時都問我"今晚使唔介使打針" (佢叫這做打針).  以前佢會自問自答的說 pat pat 要來 boo boo, 而佢會話 pat pat 用來打針. 聽得好心up.

Rank: 3Rank: 3


108
1410#
發表於 06-2-22 00:40 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

目前為止我仍是一星期帶阿仔去dr.lam 道打一次 b12針. 他每次都會連同glutathione 一起打的.

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127
1411#
發表於 06-2-22 01:16 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dr. Trodd prescribed 10mg/2ML B12 in tiny, thin prefilled syringes.  I find it rather handy and am now rather confident to do the shot.  Our son hasn't conplained as we do it while he is deep asleep.  At first we were not aware of the importance of having deep sleep and did the shot just after less than 30 mins.  That of course didn't do and the pain woke him up.  We wasted 3 to 4 shots at the beginning.  Now we usually wait until he is getting into his cycle of deep sleep, i.e. for at least 45 mins.  This works well.  .Dr. Neubrander's instructions are really helpful.

We will wait and see.  We had hoped to follow Dr. Neubrander's protocol more closely and use his Parent's Report Form for monitoring our son's progress.  But the form is really too long and detailed.  So I just leave it aside for the time being.  Will go to see Dr. Trodd this Sat to get more stocks and see more advice.
耶穌在路上看見一個生下來就瞎眼的人。他的門徒問他說:「老師,這個人生來就瞎眼,是誰的罪造成的?是他自己的罪,還是他父母的罪呢?」 耶穌回答說:「他瞎眼和他自己或他父母的罪都沒有關係,而是要在他身上彰顯天主的能力。」(若/ 約9:1-3) 你應該在上主面前安心依靠,不要因萬事順當的人而煩惱 (詠/詩 37:7) "If you really love one another, you will not be able to avoid making sacrifices." ~ Mother Teresa

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646
1412#
發表於 06-2-22 09:18 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

I also feel that it becomes difficult to get my son to take the B12 injection.  He struggles a lot and even though bargains with me that "不如唔食糖,唔好打針針"

Rank: 4


544
1413#
發表於 06-2-22 13:35 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Mermee,

How's old your kid?  I never tried 塞肛的dmsa but personnally, I don't prefer 塞肛, though it may be more effective.  1,3,5塞edta, 6,日塞dmsa.  The child may be uncomfortable.
Carson's birthday in January 2000.

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108
1414#
發表於 06-2-22 14:04 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

chanchanboy

我仔三歲. 其實係要塞落去個下佢好 tense 同哭得很厲害, 只要塞得夠入(用一支thin stick 推入d) 其實就沒什麼大感覺的. 每次塞完我都即刻用wet tissue wipe 乾淨周圍, make sure 沒留痕跡, 否則他會覺得"拿"的. 最初我沒有這樣做, 他會很不comfortable, 又唔識講, 只叫我要錫佢pat pat, 我真的鍚完一邊後, 他說"錫中間呀"~~~~

Rank: 4


949
1415#
發表於 06-2-22 17:34 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear Jasper888 and ultramom,
Thanks a lot for your information.  I will ask the staff for highly concentrated B12 next week.  As he is extremely 牛皮肉韌,I don't know whether it is easy to inject or not.  
我們怕孩子的人生路途滿佈荊棘,與其為孩子在路上舖一層地毯,不如在孩子的腳上穿上一雙鞋。

Rank: 4


725
1416#
發表於 06-2-22 23:18 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Mermee,

你仔仔用緊既療程似乎幾aggressive.一週塞肛5次聽落都"鄧"你仔仔辛苦.不過要相信醫生判斷.你大可要求做小便化驗,update下的重金屬走勢,再決定是否繼續用之前的療程.

Gracebb,

妳講那本Dr.Lam介紹既書,知唔知香港有冇得買?

Stella,

我短期內都不會訂kirkman's supplement.  如果你想快些比女女試probiotic,我介紹妳Biokult Probotics Advanced formula,$145 (60 capsules) little giant有售. 我有存貨,如你想要可以叫你工人來我家取.有興趣pm我啦.

Biokult Probotics Advanced formula

Rank: 4


646
1417#
發表於 06-2-23 03:57 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

你講的"短針窄身不可換針"的b12針, 是否比 lower concentration (10mg)的短? 但我問過sharon現時10mg用的針已經是最短

ultramom 寫道:
所以我又返轉頭再攞過一批用"短針窄身不可換針"的b12針"

Rank: 3Rank: 3


247
1418#
發表於 06-2-23 09:36 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

haybmum,
果隻"短針窄身不可換針"的針筒, 就係我之前用10mg(b12)時果隻.

Rank: 3Rank: 3


247
1419#
發表於 06-2-23 09:50 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

kawai,
唔該哂.
我知我提過我都係用lee silsby的td-gluthathione. 不過我嗰批係叫dr trodd寫紙, 然後由另一家長幫我直接係外國自己訂返嚟, 唔係dr trodd度攞的.
你知dr trodd好有"風格", 我唔知佢會唔會係第二間葯廠度訂...我用緊lee silsby覺得幾好, 所以唔想轉. 我驚問咗dr trodd, 如果佢話係第二間葯廠訂, 我又唔好意思話唔好嘛....你知我上次見到佢俾我激到跳跳吓, 實在好得人驚....
所以想先問吓你哋先囉...
唔該哂...


想問多一樣...請問係dr trodd度攞td-glutathione, 駛唔駛預訂? 如果要, 請問要等幾耐度? 上次另一位家長幫我訂時, 大約要等2-3星期. 我而家存貨大約可以用多幾星期, 所以想睇吓係咪要訂定先.

Rank: 3Rank: 3


460
1420#
發表於 06-2-23 10:11 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear kawai,

Dr. Lam highly recommended me to purchase it when I’d visited he for two times.  He said that after we read the book, we would know why our kid likes that and how to protect our kid in future.  I’d like to seek your kind assistance to look for where I can buy it in HK.  I’ve already checked the stock in the large bookstores in HK but in vain.  As I know, I can buy it through the internet of website: www.chemcialfreekids.com.  Do any mum want to buy it, please let me know.

[quote]
kawai 寫道:

Gracebb,

妳講那本Dr.Lam介紹既書,知唔知香港有冇得買?

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