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教育王國 討論區 特殊教育 "Biomedical Treatment - Parents' Group "
樓主: kawai
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"Biomedical Treatment - Parents' Group " [複製鏈接]

Rank: 4


725
1261#
發表於 06-1-22 19:26 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Siu Ming,

I tried to give my son the B12 shot myself when my husband was out of town last week.  It was my first time but no problem at all.  Anyway, hope you can make it yourself.  

For the OCD issue,  I got some information from Dr. Amy Yasko's site that the behaviour of OCD associate with streptococcus 鏈(鎖狀)球菌.  I'll search if there's any supplement or herb can help with this problem.  IP6 is one of the options.

Rank: 3Rank: 3


125
1262#
發表於 06-1-23 17:47 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi all,
我之前好似係度見到大家討論係city super賣的一隻叫xxrice xx milk幾好, 但忘記左叫咩名, can anyone help? thanks!

Rank: 4


725
1263#
發表於 06-1-24 00:06 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

nausica,

Click to see the following links for some of the brands of non-dairy milks.

Little Giant

Health Gate

Rank: 4


544
1264#
發表於 06-1-24 00:17 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

我仔仔鐘意飲Aussie Dream.
Carson's birthday in January 2000.

Rank: 3Rank: 3


108
1265#
發表於 06-1-24 01:44 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

有冇人給點意見, 都是這樣的嗎? 我仔食左三日的dmsa, 今天是停之後的第二日, 呢兩日好high, 少少野就笑到傻左咁, 故意放東西入有水的杯內, 故意倒瀉水落地, 跟住狂笑咁周圍走. 罰佢又無用, 好失控. 係唔係屬正常會發生的行為? 會last 幾耐?

dmsa 是專針對mercury的嗎 (the puzzle of autism 係咁講) 咁針對 lead 的知唔知會用什麼?

我訂了 Amy Yasko 的 The Puzzle of Autism, 內有說DMSA 的某些 side effect, 成本書對我來說都好深奧, 我想俾dr lam 好過.

Rank: 3Rank: 3


365
1266#
發表於 06-1-24 10:03 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

My son drinks both Provamel Rice Milk (from UK) (original taste) and Lundenberg Rice Milk (from USA) which are sold in Little Giant.

I was told that a mom bought all 3 boxes of their remaining Provamel Rice Milk last week and that's why I tried Lunderberg.

Justin2002

Rank: 4


725
1267#
發表於 06-1-24 19:26 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Mermee,

口服ETDA針對鉛較有效及少副作用. 你仔仔情況如果用DAN Protocol解說是因DMSA排毒過程中攪動身體內重金屬及yeast infection亦會有句能所引致小朋友有異常反應.下次同Dr.Lam講,睇下佢有冇方法.

Amy Yasko的The Puzzle of Autism真係好深,因為佢想教育家長有關知識及如可適當地用supplement.


Rank: 3Rank: 3


108
1268#
發表於 06-1-24 23:10 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

kawai,

Thanks for the info about ETDA, dr.Lam 暫時未同我提過用, 我會問下佢.

你係唔係都有睇緊本書? 佢提到的
DMSA 會 trigger the inflammatory mediator TNF alpha... RNA-based oral liquid can accomplish the anti-inflammatory effect... 這RNA-based oral liquid 我們現時看的醫生如dr trodd or dr lam 會唔會有, 我Thur 會去見 dr lam 問下先.

我一直由頭睇起本書 (bio-chemistry), 原來後面有咁多關於supplement 的info.

Rank: 3Rank: 3


125
1269#
發表於 06-1-25 16:43 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

thanks kawai, chanchanboy & Justin2002,
i just recalled the one I had read here before is "dream rice dream milk"

Rank: 4


725
1270#
發表於 06-1-25 22:30 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Mermee,

RNA好昂貴,相信香港冇醫生會建議家長使用,因為唔止用一種RNA,而是同時用好幾種.我而家仲睇緊佢地的書及時常上www.autismanswer.com收料.遲的我仔仔做完Dr.Amy Yasko個genetic test,有result再同妳地報料.不過要等頗長時間,因現時倫候人數很多.



MerMee 寫道:
kawai,

Thanks for the info about ETDA, dr.Lam 暫時未同我提過用, 我會問下佢.

你係唔係都有睇緊本書? 佢提到的
DMSA 會 trigger the inflammatory mediator TNF alpha... RNA-based oral liquid can accomplish the anti-inflammatory effect... 這RNA-based oral liquid 我們現時看的醫生如dr trodd or dr lam 會唔會有, 我Thur 會去見 dr lam 問下先.

我一直由頭睇起本書 (bio-chemistry), 原來後面有咁多關於supplement 的info.

Rank: 3Rank: 3


127
1271#
發表於 06-1-26 00:22 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

各位:

太高興了!我終於克服了技術同心理困難,剛剛用飛鏢手將一支MB12打了入仔仔pat pat,全程大概兩秒時間,似乎都係30度入,...他睡著,沒有發覺,動了幾下,只係不肯讓媽媽貼bandage,繼續睡...如今小弟又多了一技旁身。終於學成啦! 多謝各位師姐師兄教路!       

Siu_Ming
耶穌在路上看見一個生下來就瞎眼的人。他的門徒問他說:「老師,這個人生來就瞎眼,是誰的罪造成的?是他自己的罪,還是他父母的罪呢?」 耶穌回答說:「他瞎眼和他自己或他父母的罪都沒有關係,而是要在他身上彰顯天主的能力。」(若/ 約9:1-3) 你應該在上主面前安心依靠,不要因萬事順當的人而煩惱 (詠/詩 37:7) "If you really love one another, you will not be able to avoid making sacrifices." ~ Mother Teresa

Rank: 4


725
1272#
發表於 06-1-26 21:07 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Siu Ming,

果然係小明飛鏢,例不虛發.  

Siu_Ming 寫道:
各位:

太高興了!我終於克服了技術同心理困難,剛剛用飛鏢手將一支MB12打了入仔仔pat pat,全程大概兩秒時間,似乎都係30度入,...他睡著,沒有發覺,動了幾下,只係不肯讓媽媽貼bandage,繼續睡...如今小弟又多了一技旁身。終於學成啦! 多謝各位師姐師兄教路!       

Siu_Ming

Rank: 4


544
1273#
發表於 06-1-27 22:48 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

我仔仔食DMSA, 一樣係high到暈, 一樣係少少野就笑到傻左咁, instead of 放東西入有水的杯內同倒瀉水落地, 都好類似就係掟野落地/落街(請大家唔好告發我!!), 可以係淨係把口話要掟mug掟物然後自己笑餐飽, dr. trodd話係攪起佢體內toxic metal同yeast problem, 到第二個pulse前, 就食左12日duflican, 情況有好轉, 到第三第四個pulse, 無duflican, 就又係high哂, 今次我同dr. trodd攞左擦ge dmsa(td form), dr. trodd話會慢d, 但我都寧願慢d, 另外仲開左nystatin同ALA.  ALA好似都係同DMSA一樣3 days on / 11 days off (唔記得問清楚).

另外, 一如kawai所料, 4個pulse後的urine test, mercury, arsenic同lead都比第一次test高, 這是dmsa有把體內toxic metal扯出來的原因, 係好現象, 其實我都覺得dmsa work, 只是仔仔每次都太high !!

MerMee 寫道:
有冇人給點意見, 都是這樣的嗎? 我仔食左三日的dmsa, 今天是停之後的第二日, 罰佢又無用, 好失控. 係唔係屬正常會發生的行為? 會last 幾耐?
Carson's birthday in January 2000.

Rank: 3Rank: 3


231
1274#
發表於 06-1-27 23:36 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Vit B12 injection.

The conc I am using now is 10mg in 2 ml.  Anyone using a higher conc prep from Tim Trodd's place?

Rank: 3Rank: 3


150
1275#
發表於 06-1-28 00:38 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Chanchanboy - My boy had 2 pulses of DMSA and he developed a mild case of hives the first time, and a pretty bad one the second time.  We had to stop it, Trodd said it can be dangerous allegic reaction

Jasper 888 - Trodd now has 25 mg concentration MB-12 shots, the reduced volume and tiny insulin needle makes it much easier to administer.  Ask him for it.

Rank: 3Rank: 3


108
1276#
發表於 06-1-28 01:18 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

今日係停了dmsa的第六日, 阿仔好似平靜反少少. 我想問其實一開始dmsa 有冇話要連續take 幾多個pulse 架? 因昨天我話俾dr lam 聽我仔食完dmsa 的情況, 跟住我提edta是否用來排lead, 咁佢就話不如take edta 先. 遲d再take 反dmsa, 但照你咁講, 本身攪起左的 mercury 會唔會又沉反呢?

我好似睇見你地有人take 的edta 是口服的. 我的是要隔日塞肛的. 昨天在clinic 度dr lam 即場做了, 要兩個人禁住我發左din 的仔先做到, 我擔心我天日攪唔攪得店, 有冇人有什麼好方法分享?

請問什麼是ala? alpha lipoic acid? 但看來不似, 因我仔daily 食這supplement 的.

可唔可以順便解釋下什麼是td form 呀, 唔該...
[quote]
chanchanboy 寫道:
我仔仔食DMSA, 一樣係high到暈, 一樣係少少野就笑到傻左咁, instead of 放東西入有水的杯內同倒瀉水落地, 都好類似就係掟野落地/落街(請大家唔好告發我!!), 可以係淨係把口話要掟mug掟物然後自己笑餐飽, dr. trodd話係攪起佢體內toxic metal同yeast problem, 到第二個pulse前, 就食左12日duflican, 情況有好轉, 到第三第四個pulse, 無duflican, 就又係high哂, 今次我同dr. trodd攞左擦ge dmsa(td form), dr. trodd話會慢d, 但我都寧願慢d, 另外仲開左nystatin同ALA.  ALA好似都係同DMSA一樣3 days on / 11 days off (唔記得問清楚).

另外, 一如kawai所料, 4個pulse後的urine test, mercury, arsenic同lead都比第一次test高, 這是dmsa有把體內toxic metal扯出來的原因, 係好現象, 其實我都覺得dmsa work, 只是仔仔每次都太high !!

Rank: 4


949
1277#
發表於 06-1-28 09:58 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear all,
My son has tried 5 dosages of DMSA.  He neither shows great emotional nor behavioural disorder.  His learning situation seems to be better than before.  However, his stool is somtimes watery and has 賴屎 (just a very small amount) several times .  He reports to me that he 賴屎.  He never 賴屎 before taking DMSA.  I have stopped the DMSA and will visit Dr. Trodd after the Lunar New Year holiday.

我們怕孩子的人生路途滿佈荊棘,與其為孩子在路上舖一層地毯,不如在孩子的腳上穿上一雙鞋。

Rank: 3Rank: 3


108
1278#
發表於 06-1-28 14:04 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

hi mrsphcheung,

thank you for sharing.  may i know whether your 5 dosages / pulses were taking continuously.  that means right after the 11th day, you start taking the 2nd pulse?  In fact does it really matters?

Rank: 4


949
1279#
發表於 06-1-28 15:47 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

My son takes a pulse of DMSA every 11 days continuously.  The pulse lasts for 3 days.  I just follow Dr. Trodd's instruction.

MerMee 寫道:
hi mrsphcheung,

thank you for sharing.  may i know whether your 5 dosages / pulses were taking continuously.  that means right after the 11th day, you start taking the 2nd pulse?  In fact does it really matters?
我們怕孩子的人生路途滿佈荊棘,與其為孩子在路上舖一層地毯,不如在孩子的腳上穿上一雙鞋。

Rank: 4


646
1280#
發表於 06-1-28 17:40 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

this is what I am afraid of and therefore reluctant to try the DMSA even though my son has been taken the supplements for long.  He is a highly sensitive boy and always develop allergic reaction when trying  new things, such as glutathione gel, Naltrexone gel etc.

Recently, I brought him to Dr Yuen to try the homeopathy for curing his nose allergy problem.  Although the diluted remedy is quite mild, my son  developed mild allergy to the herb.  But Dr Yuen said it was a good sign.

Dommom 寫道:
Chanchanboy - My boy had 2 pulses of DMSA and he developed a mild case of hives the first time, and a pretty bad one the second time.  We had to stop it, Trodd said it can be dangerous allegic reaction
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