"Biomedical Treatment - Parents' Group "

HayBMum

what's the purpose of autism premier panal blood test? Did dr trodd explain the need for it?

kawai 寫道:
Ultramom,

I believe that you're the first client to take the autism premier panal blood test since this's a new and expensive test from US.  I've turned down Trodd's suggestion to offer my son this test.  I prefer to take the comprehensive genetic test suggested by Dr. Amy Yasko rather than that one.  Dr. Yasko will help to tailor-made a supplement protocol according to the test result.  

ultramom

kawai,
唔該哂. 我會由low dosage開始俾enzyme. 請問使唔使放雪櫃?
不過我估我都係等多日先試, 因為呢幾日阿仔都亂哂大籠...d poo又唔正常(又變咗thick liquid form), 昨晚第一次俾melatonin(係manning買, 牌子係doctor's choice), 俾咗1/4 capsule (3mg), 以為佢會好瞓d啦, 結果4am醒咗, 仲狂喊和發脾氣    , 又撞個頭埋門嗰度.     
新加supplement有3樣:
1.melatonin (第1次俾)
2.zz nystatin (朝早俾佢食一粒, 本來dosage係1日兩次, 我已經減半, 晚上冇再俾佢食)
3.b12 spray (昨晚第一次噴)
請問有冇家長試過以上supplement? 會唔會有咁"激"反應? 不過阿仔呢排晚上都瞓得唔好, 差唔多每晚都醒, (所以先問dr trodd有冇supplement 可以幫到, 佢就叫我去買melatonin) 只不過無咁"激"發脾氣....
又會唔會係die-off reaction呢? 但佢食咗一粒之噃? 不過一粒成份高過以前佢食的liquid form好多, 一粒有500,000u, 而以前飲liquid form nystatin, 每次2ml 都係得200,000u...
對唔住, 咁多問題, 不過希望各位俾d意見, 指點吓...
唔該哂

ultramom

haybmum,
唔係dr trodd要我做的, 係我自己叫dr trodd幫我個仔抽血去驗. 我都係聽另一個家長話呢個blood test"有機會"可以pinpoint到個小朋友有邊方面問題, 不過我個仔的報告, 只有幾樣嘢係out of normal range, dr trodd就話佢immune system有問題, 我都要查吓報告上面d字係什麼東東....

kawai,
我估我唔係第一個做呢個test, 因為我果日去dr trodd度, 問佢有報告未, 佢話有啦, 之係就攞咗成大疊報告出嚟, 我個份只係其中一份, 我估果度有成10份8份, 所以想問吓有冇家長又有做呢個test

ultramom
[quote]
HayBMum 寫道:
what's the purpose of autism premier panal blood test? Did dr trodd explain the need for it?

[quote]

kawai

HayBMum,

I'll never take Dr. Trodd's advice on lab test anymore.  I've had an experience regarding the organic acid profile suggested by him a few months ago.  The result showed my son's overall health condition is normal and the lab specialist has suggested additional supplement such as coQ10 and additional zinc drink.  Dr. trodd didn't explain the test report clearly and he even needed to check a few items online in front of us   .

We went to see him again last Sat.  I told him my son has some OCD issue which he is pretending lift and auto doors with his hands and makes sound verbally after we came back from Japan for vacation.  He has been doing this silly thing frequently and even when he's asleep.  He again commented that it is yeast problem and some courses of dulfican is needed to be taken.   He also suspected my son has some kind of immunization problem that affects his development and behaviour.  I then asked him what about the result of organic acid profile and if it is accurate?  He answered the test is inaccurate sometimes.  So that he suggested the blood test which costs $6000

Ultramom,

What's Dr. Trodd's suggestion on treatment after the blood test?   I think the test fee is not worth if he couldn't give you any solution to help with the problem.  I think your son is highly reactive and sensitive of some of the supplements.  Only the genetic test may find out the real problem and then put him on appropriate supplement and chelation therapy as needed.  I highly suggest you to spend time on www.autismanswer.com.   Dr. Amy Yasko's protocol is very convincing and she has been helping a lot of autistic kids off the spectrum.

For the melatonin, I'm using the GNC 1mg myself occasionally which is a sublingual form.  It's also available from Mannings.  I found that 1 mg is good enough for me to have a better sleep through the night.  However, my son showed intolarance of melatonin after 3 trial tests.  He exhibited tantrum behaviour the next morning after taking it.

kawai

Dear all,

I use kung fu tea cup for supplement feeding which is cost efffective, easy to wash and environmentally friendly.  I got 4 cups and that's the cheapest type and costs only $5 each.  I also use a transparent plastic spoon which is for medicine feeding,  dosage measurement  and stiring the supplement into the sport drink or juice.  

chanchanboy 寫道:
Justin2002,

The hard small plastic cups, I bought them at Ikea sometime ago which are actually toy cups and I believe already out of stock now.

The disposal cups, I bought them in a small shop at 上環蘇杭街105號地下, 裕記過幾個舖位.  Here's how the small cup looks like (just borrow the picture in website)-

1 oz cup

[quote]
Justin2002 寫道:
May I know where I could buy the small plastic cups as you mentioned?  

[/quote]

Dommom

Hi all,

Dominic has taken the Autism Premium Panel test - no real breakthrough, except pinpointing he could not digest some proteins too well - the DPPP ?  So he needs to take enzyme 3 times a day now.  Also noted he was extremely sensitive to casein.  But from what I understand, this is a test of auto-immunity and viruses, esp. Herpes.  A lot of ASD children have the Herpes viruses.

I truely believe more tests are better than less.  Some tests may not be able to tell what problems your child have, but at least they can tell you what problems your child DO NOT have.

Therefore we can start a journey of finding the cause(s) by elimination.

Jasper 888 - my typical son is on Lithium drops - to calm him down    He was tested low on lithium on his hair test when I used him as a "control" sample.

I have been using the Naltrazon cream too.  No obvious benefits so far.

chanchanboy

kawai,

Kung fu tea cup is a good idea.  I'll go to get some.

About yeast:  I find the following in Yahoo forum-
have anyone tried No-Fenol before?  Any comment?

"If you want to control yeast:
1. No-Fenol by Houston ?www.houstonni.com - contains cellulase plus xylanase
2. Candidase by Enzymedica ?http://www.enzymedica.com/first.html - contains cellulase and proteases
3. Candex by Pure Essence ?contains cellulase plus probiotics
http://www.wobenzymn.com/pureessencelabs.html

Note: No-Fenol has been seen to be very effective on yeast, not much first-hand experience is available for the other products, but they are available. For yeast control, give these products in between meals, either one hour before eating or 2 hours after eating. Yeast control with the cellulase products is more effective is a protease product is given along with it. If you take these product with meals they will help with yeast a little and also break down much of the more fibrous foods eaten (complex carbs, fruits, and vegetables)."

ultramom

kawai,
真係唔該哂你.
dr trodd其實都好"老實", 佢攞份報告出嚟, 都同我講明佢都唔明得哂成份報份的內容. 因為呢次個blood test係我自己話要做, 所以我又唔怪得佢.
佢睇完份報告, 話我個仔immune system有問題, 俾咗隻naltrexone td, 話會幫到佢喎, 不過我都未試, 因為佢呢幾日已經"亂哂大籠"...   
不過多謝你話俾我聽, 有d人都唔可以tolerate "melatonin", 我個仔又係一朝早瞓醒就狂喊,發哂脾氣...    , 佢仲會半夜醒咗, 又狂喊....我呢兩日都唔明, 以為melatonin應該會令佢好瞓d, 冇理由會調番轉頭...

我一定會去睇睇你話嗰個網頁, 如果有唔明再問你..  

仲有, 你講得好啱, 如果個test report都睇唔明, 即係冇用, 不過有另一家長話可以揾美國d醫生去幫手睇呢份premier panel report, 我會去問清楚, 有新料再報

真係唔該哂..

ultramom

hi dommom,
請問你有冇其他途徑去interpreter 份premier panel test report?
我個仔"dipeptidylpeptidase IgG, IgM, IgA 都超出normal range, 係唔係你話的DPPP?  IgG, IgM, IgA 有什麼分別?
我個仔仲有其他嘢超標, 有隻唔知xxxxvirus, 超成4倍, 但dr trodd又對呢隻嘢冇嘢講.

HayBMum

According to the dictionary, IgA, IgG & IgM are:
IgA- immunoglobulin (免疫球蛋白) A is one of the most common immunoglobulins.  It is present in body secretions and is the chief antibody in the mucous membranes of the gastrointestinal and respiratory tract and in saliva and tears.

IgG- immunoglobulin G is the main antibody defense against most bacterial invasions and other antigens.

IgM – immunoglobulin M is found in blood and is involved in combating blood infections and in triggering IgG production.

[quote]
ultramom 寫道:
normal range, 係唔係你話的DPPP?  IgG, IgM, IgA 有什麼分別?
我個仔仲有其他

Justin2002

Wow, I think we almost become professionals after reading so many postings here with such technical terms....

I regret not studying biology and chemistry well enough in the old days ....

Thanks for everyone's input cos every piece of information does help.  

A BIG SALUTE TO EVERY MOM AND DAD HERE!!

Justin2002

ultramom

kawai,
真係要再次多謝你, 提醒我個仔可能唔受得melatonin.  昨晚我冇再俾melatonin俾阿仔食, 佢終於可以瞓到天光(6:30am), 而且瞓醒都冇狂喊了....
真係非常感激....
我真係勢估唔到, 本來可以令人安睡的supplement, 會令一d人有咁激的反應....我初時以為係nystatin, 我仲自己又食一粒試吓...(大家唔好見笑, 因為阿仔又未識講嘢, 見佢係咁狂喊, 又撞頭, 所以學吓神農氏, 自己試吓d葯性), 我食一粒又唔覺有唔同, 可能份量對成人嚟講太少...
我就唔敢試melatonin, 因為我平時已經好唔夠瞓, 我怕食咗太好瞓, 阿仔醒都唔知....

Justin2002

ultramom,

you really need to take good care of yourself, I can see your postings day and night .... no mention your wake-up during midnights or so ...

I understand that we all moms here want our kids to improve as quick as possible but I believe our body need some rest too!  Even we put all our time and efforts in our children, it takes time for recovery!

Sorry for being a bit mumbling...

Justin2002

ultramom

ultramom

ultramom

Justin2002,
多謝哂你咁關心. 我都知自己身體都好重要, 所以早幾星期已"啲"起心肝, 捉埋老公一齊去學太極...希望可以"強身健體"...因為要照顧呢位咁special小朋友, 真係少d精力都唔得 :   我學太極嗰度好近AP, 有一晚仲撞見過一位BK MOMMY, 不過恕我唔好記性, 唔記得係邊位, 只係點頭打照呼.. :
我睇過一集"desparate wife", 話有個阿媽要照顧4個仔女, 其中兩個孖仔仲係adhd, 佢日日唔夠精神, 有人敎佢食佢對孖仔抗hyper食的葯, 因為adhd食就會有calm down作用, 普通人食就會相反, 會好精神唔駛瞓, 我同我老公講, 我都想要一d...講笑啫....不過就好有共鳴.. :
sorry, 講咗題外話..

chanchanboy

今日我個仔開始食第4個round ge DMSA, 星期日要儲尿尿去做test, 希望今次順順利利啦! 食完今次, 我諗我都會叫dr. trodd改比TD form我.

ultramom,
你係AP附近撞見果個係我同我個仔呀!

kawai

ultramom,

I agree with Justin2002 that keeping yourself in good sharp is very important.  Treating autism is definitely a "Marathon" and really needs parents to be running with the kid together.  I do really share your worry and hope our kids will be soon aheading the journey of recovery.   

Regarding the melatonin, it's a natural stuff and is not as strong as sleeping pill.  You may take a trial to see the effect.  BTW, if your son's sleeping pattern is still a concern, try the following that I copy and paste from Dr. Amy Yasko's site.

Here's a comprehensive database of references supporting the use of these supplements and can be found on this site.

http://www.holistichealth.com/supplement

Chamomile- This is traditionally used as a calming herb and for help with sleep, especially in children. It is actually a natural source of calcium. However, chamomile also helps to control MAPkinase, which is an enzyme involved in triggering inflammation as a result of calcium influx. There is some indication that MAPkinase is involved in the involuntary movement (L.P.) seen in individuals with Parkinson’s disease that are taking medication. Chamomile may help to alleviate some of those symptoms. This is a good supplement for those who are concerned about their calcium intake, yet at the same time would like to prevent inflammation as a result of calcium.

GABA- This is a calming neurotransmitter in the body that helps to balance glutamate. It should be useful to help decrease stress, and increase speech, eye contact, and social interactions. GABA comes in several forms and it will be a bit of trial and error to determine which is best. GABA Calm seems to work well for many individuals during the day; it melts in the mouth like a lozenge. For those who do not like the taste or prefer to swallow a pill, GABA is also available as a supplement to be swallowed. ZEN (GABA and Theanine) is nice to take later in the evening as it helps with sleep and stress.

For your son's blood test report, you may try to post on antismanswer.com and see if Dr. Amy Yasko will help.  This is the parent group organized by her and she will answer most of the enquires herself.  Take a look of Dr. Yasko's CV and you'll know she is the right person to interpret the report with no doubt.  

kawai

chanchanboy,

Hope your son has a good start of detoxification.  Please be remembered that it may not be too bad if the result is worse than before.  It probably reflects that the detox work is on progress.

chanchanboy 寫道:
今日我個仔開始食第4個round ge DMSA, 星期日要儲尿尿去做test, 希望今次順順利利啦! 食完今次, 我諗我都會叫dr. trodd改比TD form我.

ultramom,
你係AP附近撞見果個係我同我個仔呀!

Dommom

Hi Ultramom, sorry for the late reply on The Premium Panel blood test.  I guess HayBMom already answered you in great details on the IgG and IgA.  I took out the blood test result and read it again - it only showed he is extremely allergic to casein and cannot digest DPPP.  The broad spectrum digestive enzymes from Kirkman targets DPPP.  Sorry, that's all I know.

From what you described, I think biomedical interventions will help your boy a lot, you just have to find the right mix by trial and error.  Also, more tests instead of less will help you to target what he needs the most.