"Biomedical Treatment - Parents' Group "

chanchanboy

stellacl,

我都會好似jasper888咁講, 但就自己用電腦整份A4 size一連3個月的月曆, 用黎記低Duflican同DMSA等的日子, 貼係廳度, 我同老公都可以睇到幾時食mug. 我連睇dr. trodd都帶埋去, 個次佢話食完四次DMSA的course, 就收集urine做test, 我仲可以即時數到話1月頭你office休息, 我交唔到喎, 佢仲係張月曆度mark埋幾時停食duflican, 幾時做blood test比我, 都幾有用呀!

chanchanboy

餵仔仔食supplement, 我平時會用一d硬膠杯仔, 一杯杯比仔仔飲, 但裝魚油個隻, 新工人洗極都油淋淋, 今日我係上環買左d 1oz 即棄軟膠杯仔, 決定用黎裝魚油, 雖然好似唔係咁環保, 但我見到工人用大量水同洗潔精洗個隻杯仔, 我覺得仲唔環保, 100隻$13.

唔知你地用mug野方法比小朋友食supplement呢?

ultramom

stellacl,
我仲差記性過你, 有時要俾幾種supplement, 有d又一次, 有d又兩次, 有d又4次, 有時唔夠瞓, 下午已經唔記得每種supplement俾咗幾多次
我而家有本簿仔, 自己就印定一d貼紙, 將每日要食的supplement印在貼紙上, 一次貼好在薄仔上, 一日一頁一張貼紙, 每日俾supplement時, 就立刻"剔"低係嗰隻supplement旁邊, 以便自己隨時可以番查俾阿仔食咗d "mud".....笨人笨方法, 不過就可以防止自己俾多或俾漏supplement.
另外我有用pda, 所以將b12 針要打的日子先入好, 我連打左邊同右邊都預先set 定, 否則根本唔記得上次打邊便
不過chanchanboy講嗰個方法都好好, 一次過可以睇清楚幾個月的記錄, 我都要試吓先...

[quote]
stellacl 寫道:
ultramom & Dommom

我自己記性非常差, 我覺得要記仔仔d食藥打針時間好困難...隔11日又要食3日dmsa, 食dmsa前一日要開始食一日海澡粉, 直至食完dmsa之後一日, 一個星期要打2次 b12針..你地會唔會唔記得食藥打針架 ?

[quote]

ultramom

kawai,
我今日去過dr trodd度, 佢俾咗隻enzyme complete dpp-iv (kirkman)我, 我聽你之前講過有關"解葯", 係唔係即係指enzyme呢? 請問你有冇試過呢隻enzyme呢? 個護士就話要before meal食, 但我個仔未識吞丸仔, 請問可唔可以"溝"果汁飲呢? 定係應該"low"落食物內? (熱食得唔得?)

jasper888

I was prescribed with enzymes from Dr Trodd too.  My Paed was a bit skeptical about the enzyme and I do not have time to read about it.  Kawai, can you tell me if there is any harms about taking the enzymes? Thanks.

Justin2002

Dear chanchanboy,

May I know where I could buy the small plastic cups as you mentioned?  I would like to use cups also to feed supplements to Justin.  I am now adding either in his milk or juice as he is reluctant to drink separately by spoon.

Thanks,
Justin2002

jasper888

Anyone taking lithium supplement from Dr Trodd?

kawai

japer888,

Why did you need the Lithium supplement?  What did Dr. Trodd comment about this supplement?  

Attached herewith a copy & paste about Enzyme Safety for our reference.

Enzyme Safety

Ultramom,

Simply mix the enzyme into the food or mix it with some juice like cransberry or orange juices.  However, the smell of the kirkman' complete dpp-iv is quite strong and my son doesn't like it.  

Please note that Dr. Trodd disagree enzyme could replaced restrictive diet.  Don't tell him you've intention to do it unless you want to see his black face.  

ultramom

jasper888,
dr trodd有俾lithium我個仔食, 食咗成個月左右
kawai,
hair test report 話我個仔 lithium偏低, 同埋dr trodd 話lithium可以calm down阿仔, 冇咁hyper喎.

jasper888 寫道:
Anyone taking lithium supplement from Dr Trodd?

ultramom

kawai,
唔該哂. 我唔係想唔用gfcf diet, 只係我個仔d yeast problem超勁煩, 已經食咗4次diflucan. 所以我問吓enzyme會唔會幫到, 佢就開咗呢隻俾我.  佢開的dosage係一日3次, 每次1粒, 請問會唔會有勁反應? 駛唔駛先試一日1粒先, 再慢慢加上去?

ultramom

請問有冇人試過做autism premier panal blood test? 我昨天去dr trodd度攞呢份blood test report, 嘩成十幾頁, 連dr trodd自己都話有d佢都睇唔明. 佢話根據個report的summary(1頁), 佢話我個仔immune system有問題, 所以俾隻 naltrexone td form俾我, 請問有有家長試過?

ultramom

我昨天又問dr trodd攞b12 nasal spray.  今晚第一次試用. 我都係冇鬼用, 要等阿仔瞓咗先spray... 佢今日已經"dean"咗幾次, 我都冇力再同佢搏鬥.. :cry:  :cry:
嘩, 不過果支噴樽個咀都幾粗(我個仔以前都有噴開鼻敏感葯), 都唔係幾塞得哂個噴咀入去, 同埋噴完個鼻都有少少紅色水流出嚟, 都幾難睇...

ultramom

對唔住各位, 咁多問題...
dr trodd仲俾咗 zz nystatin(capsule)俾我, 請問有冇人用過? 係唔係應該先由low dosage開始, 慢慢加上去, 以防die-off reaction?

ultramom

chanchanboy,
我所有supplement都係加係奶(rice milk)或者果汁度俾阿仔食, 因為根本冇可能叫到佢直接食supplement.  魚油我就有時加落佢食的米粉內, 佢都唔係好覺

kawai

Ultramom,

I don't think the Kirkman's one may help with yeast problem.  Check it out from the enzymestuff site which I posted it previously.  There's a yeast column and you may find some suggested enzymes for yeast control.  

Dr. Trodd prescribed naltrexone td form to my son last Saturday.  We haven't seen any effect yet.  I believe that you're the first client to take the autism premier panal blood test since this's a new and expensive test from US.  I've turned down Trodd's suggestion to offer my son this test.  I prefer to take the comprehensive genetic test suggested by Dr. Amy Yasko rather than that one.  Dr. Yasko will help to tailor-made a supplement protocol according to the test result.  

kawai

Ultramom,

I forgot to remind you that the enzyme should be started with low dose at the beginning.  Check the suggestion for starting by Kirkman:

EnZym-Complete/DPP-IV

jasper888

Ultramom,
There is a liquid form for nystatin. Would it be easier for your son to take?  Ask Dr Trodd.

Kawai,
Thanks for the enzyme information.
My son was low in lithium in his hair test + my son recently loved to 'scare' himself quite necessary e.g. to old people and the guards and that was why lithium was prescribed.  Dr Trodd said it would help to decrease his anxious state.
I have consulted a psychiatrist about lithium.  Lithium is the drug used to treat a psychiatric disease and he could not comment how it could be used as a supplement.  I am still withholding the use of lithium meanwhile.

chanchanboy

Justin2002,

The hard small plastic cups, I bought them at Ikea sometime ago which are actually toy cups and I believe already out of stock now.

The disposal cups, I bought them in a small shop at 上環蘇杭街105號地下, 裕記過幾個舖位.  Here's how the small cup looks like (just borrow the picture in website)-

1 oz cup

Justin2002 寫道:
May I know where I could buy the small plastic cups as you mentioned?  

chanchanboy

My son also takes lithium over 1 month.  According to Dr. Trodd, it helps to calmdown my son hyper caused by the yeast problem.  But sorry I can't tell whether it works since the effect is not obvious, in my son case.