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教育王國 討論區 特殊教育 "Biomedical Treatment - Parents' Group "
樓主: kawai
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"Biomedical Treatment - Parents' Group " [複製鏈接]

Rank: 4


725
1061#
發表於 05-12-19 00:29 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi Dommom,

Dr. Trodd told me that the one he bought is costed HK$200,000 which is the smallest size.  I attach here the hyperlink of the biggest size with photo  for your reference:

The Oxygen Room

Ultramom,

I've ordered another brand called Culturelle from Kirkmans' site but my son hasn't started it yet.  This one is aimed for yeast contol according to the yahoo parents' comments.  For the natural yeast killer, You can check with Dr. Trodd if they've the GSE manufactured by Kirkmans.  I remember 綠創意健康店 has the GSE liquid.  Tel:  25773798

Rank: 3Rank: 3


231
1062#
發表於 05-12-19 08:14 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear all,
Please share with me the type / form / brand of Glutathione you are using and the experience you have.  I am thinking of restarting my son on glutathione.  I worried about the yeast problem for the one from Wellness.  The one from Lipoflow smells bad  :(

  
THANKS.
Hilda

Rank: 3Rank: 3


247
1063#
發表於 05-12-19 08:40 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

hi jasper888,
我嗰仔剛剛開始用一隻:
Stabilized Reduced Glutathione Transdermal GelT
(by a company called Lee Silsby in UK)
有少少香味, 不過唔係好覺.  我通常等阿仔瞓咗先幫佢搽, 後來就算改為午睡時搽, 搽咗都唔覺得有味.

Rank: 4


725
1064#
發表於 05-12-19 09:47 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi ultramom,

你講呢隻Stabilized Reduced Glutathione Transdermal GelT (by a company called Lee Silsby in UK) 是否Dr.Trodd比架?我都想換另外一隻比仔仔,之前用個隻kirkmans太難聞啦!

ultramom 寫道:
hi jasper888,
我嗰仔剛剛開始用一隻:
Stabilized Reduced Glutathione Transdermal GelT
(by a company called Lee Silsby in UK)
有少少香味, 不過唔係好覺.  我通常等阿仔瞓咗先幫佢搽, 後來就算改為午睡時搽, 搽咗都唔覺得有味.

Rank: 3Rank: 3


247
1065#
發表於 05-12-19 10:10 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi Kawai,
我用嗰隻td-glutathione, 唔係dr trodd俾, 係我托另一家長從usa郵購來的, 但要醫生紙, 所以我係叫dr trodd寫醫生信, 然後俾嗰個家長幫我訂.  詳細訂購方法, 我都唔係好清楚, 不過如果你興趣, 我可以pm資料俾你.
我嗰仔之前用oral glutathione(dr trodd俾), 我就覺得十分難聞, 而且阿仔食咗幾日就亂哂大籠(亂發脾氣    ), 所以我都停咗好耐冇用, 係最近收到呢隻td form先用番, 但就一d都唔覺難聞.
不過雖然dr trodd幫我寫紙買, 但我問到佢有關dosage方面問題, 佢就話佢冇用呢隻cream的經驗, 所以答唔到我喎..   但係支cream上面已有dosage, 我就由少d 份量開始用.

Rank: 4


725
1066#
發表於 05-12-19 10:22 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

ultramom,

如果係好用,麻煩你pm資料俾我.或者我試下叫Dr.Trodd訂睇下得唔得,我相信佢有很多客仔用緊個隻咁難頂都想換另外一隻試下.

ultramom 寫道:
Hi Kawai,
我用嗰隻td-glutathione, 唔係dr trodd俾, 係我托另一家長從usa郵購來的, 但要醫生紙, 所以我係叫dr trodd寫醫生信, 然後俾嗰個家長幫我訂.  詳細訂購方法, 我都唔係好清楚, 不過如果你興趣, 我可以pm資料俾你.
我嗰仔之前用oral glutathione(dr trodd俾), 我就覺得十分難聞, 而且阿仔食咗幾日就亂哂大籠(亂發脾氣    ), 所以我都停咗好耐冇用, 係最近收到呢隻td form先用番, 但就一d都唔覺難聞.
不過雖然dr trodd幫我寫紙買, 但我問到佢有關dosage方面問題, 佢就話佢冇用呢隻cream的經驗, 所以答唔到我喎..   但係支cream上面已有dosage, 我就由少d 份量開始用.

Rank: 3Rank: 3


247
1067#
發表於 05-12-19 11:11 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

hi kawai,
以下係有關我而家用緊嗰隻cream的link, 你有空可以看看:
http://www.leesilsby.com/autism.html
另外嗰個家長聯絡方法, 我已pm咗俾你, 請收. 如有問題, 請再聯絡我.
我呢隻cream係要用之時, 先將兩隻cream "lo"埋一齊用, 初頭未用過, 就覺得煩, 不過用咗幾次之後, 就覺得ok, 一d都唔難. 兩隻cream都係白色, 搽暈之後就直情冇色, 所以幾ok

Rank: 3Rank: 3


108
1068#
發表於 05-12-19 18:01 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear All 偉大 mama,

After spending like 4-5 long nites going thru this column, I'm still only up to about Dec 1's msg. Will keep working hard tonite.

I hv started biotreatment with my son (2 & 10mths now, dagnosed AF 4mths ago) last Sunday with Dr. Paul Lam.  To my disappointment, he only spent like 15 mins with us.   But sure he's a nice man.  That's true that there were so many patients last Sun.  I was there at 12:30 and waited until 1:45pm to see him, and at that time still 4-5 patients waiting outside.

After weighing my son, he gave him a B12 injection and some supplements to take home - no explanation~~~ Maybe I told him I was referred by BK's mummies, and I mentioned Bobo (hehe~~~) so he already assumed I'm expert!! But my husband was very 抓頭, all he could remember is Dr. Lam said our son can be recovered 80-90% in a year's time??!!  (But my son was sitting at the back, Dr Lam had no interaction with him at all except for the shot)   

He listed some foods that my son should stop eating, like milk, all kinds of biscuits (but I just bought an organic biscuits for for son last week...) , grapes, seafoods, 中藥, etc.   I shall post here later tonite to get your opinion together with the supplement list.  Anyway he suggested me to go back one of the weekday's afternoon to further talk -- for sure I'll as I didn't get a chance to ask about lab test for my son.

But now I have some other questions first:
I know the topic about "water filter" is over here.  I just wonder if anybody knows whether Diamond (鑽石健康水) is good.  I saw some mama here did mention that it can't filter lead?  Is that true?

The omega 3 oil from Dr. Lam really tastes good as some of you had mentioned.  I wanna know if I can let my son take omega 3 together wtih Eye-Q, and TF all together?  These I assume are supplements to enhance the brain development and immune system right?  Shouldn't have any contradiction right...

Lastly can anyone tell me how to put the cutie funny faces into the text?

wow just notice it's such a looong msg. sorry...and thank you for your time.

kawai 寫道:

各位已購正價$2,180.00 - Everpure's water filter的媽咪, Jody Mok會打電話比你地安排refund $500.

有時做人真係要夠惡!
    :-x  :-x  :

Rank: 4


949
1069#
發表於 05-12-19 19:28 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

My child takes blood test after the 2nd dose of DMSA.  He will have another one together with hair test in Jan.

chanchanboy 寫道:
Thank you kawai and mrsphcheung!

BTW mrs cheung, did your son have any blood test or urine test regularly for the DMSA ?  

[quote]
mrsphcheung 寫道:
my child has tried it for about 3 months.
[/quote]
我們怕孩子的人生路途滿佈荊棘,與其為孩子在路上舖一層地毯,不如在孩子的腳上穿上一雙鞋。

Rank: 4


725
1070#
發表於 05-12-19 21:04 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear all,

Attached herewith a story of recovery for sharing.  

Mark's Story

ultramom,

Thanks for your information.  I'll check with Dr. Trodd if he can order it for my son.  


Mermee,

Welcome to our chatroom.  Actually Dr. Lam doesn't know who I am as I visited him once 2 months ago.  I think you better drop the Eye q for a while and ask Dr. Lam during your next visit if these 2 fish oils can be taken together.  Transfer Factor is absolutely safe to be taken with any supplement as well as medicine.

For the water filter, I've no comment on Diamond brand but have heard the filter refill is quite expensive.  Isn't it?  


Rank: 3Rank: 3


108
1071#
發表於 05-12-19 21:55 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi Kawai,

Really?? but Dr. Lam said "Ah Bobo... then you know she's taking 2 B-12 shots each week for her son, so you see it should be OK...."  

Hmmm...probably he really remembers u, or this is just the standard practice for those taking B12.  

I haven't started Eye q, I'm just thinking to take it as well.  Yes, I should better check with Dr. Lam next time.

Rank: 4


646
1072#
發表於 05-12-19 22:34 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

kawai,
please let me know if Dr Trodd can order the TD form glutathione for you.  I also want to try it as the yeast problem seems not present in TD form.

btw, I find the olive leave extract seems can control the yeast also, although not as fast as the Diflucan.  My son consumed it for about 3 weeks and I find that his tantrumming and self stim behaviour had been reduced.   I will try to consume the OLE for a longer period to see if the good behaviour can sustain or not.

Furthermore, the enzyme is very good also.  My son's poo poo resumed normal since middle of last week.  Thank you for recommending it to me

Rank: 4


725
1073#
發表於 05-12-19 22:38 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Mermee,

No matter Dr. Lam did remember me or not.  I think both Dr. Trodd and Dr. Lam should give discount to BK's parents as we've been promoting their practices in this column.  

Rank: 4


725
1074#
發表於 05-12-19 22:53 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

HayBMum,

I'll send email to Dr. Trodd tonight regarding the TD form glutathione.  I'll also emphasize to him that some of his clients would like to try it since most of them are intolerant of the oral form that he prescribed.  

HayBMum 寫道:
kawai,
please let me know if Dr Trodd can order the TD form glutathione for you.  I also want to try it as the yeast problem seems not present in TD form.

btw, I find the olive leave extract seems can control the yeast also, although not as fast as the Diflucan.  My son consumed it for about 3 weeks and I find that his tantrumming and self stim behaviour had been reduced.   I will try to consume the OLE for a longer period to see if the good behaviour can sustain or not.

Furthermore, the enzyme is very good also.  My son's poo poo resumed normal since middle of last week.  Thank you for recommending it to me

Rank: 3Rank: 3


127
1075#
發表於 05-12-19 22:53 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi HayBMum,

I am very interested in OLE...the Great Plains Lab report of my son shows that there is yeast/ fungal outgrowth in the intestine.  Something called arabinose is very very high.  (He also has many self-stimmings too.)  I am just thinking if OLE can help.  It's being natural is really appealing.  Can you provide more info from a user's perspective?  Is it in powder or liquid form?  Taste? etc.

Thanks very much!

Siu_Ming
耶穌在路上看見一個生下來就瞎眼的人。他的門徒問他說:「老師,這個人生來就瞎眼,是誰的罪造成的?是他自己的罪,還是他父母的罪呢?」 耶穌回答說:「他瞎眼和他自己或他父母的罪都沒有關係,而是要在他身上彰顯天主的能力。」(若/ 約9:1-3) 你應該在上主面前安心依靠,不要因萬事順當的人而煩惱 (詠/詩 37:7) "If you really love one another, you will not be able to avoid making sacrifices." ~ Mother Teresa

Rank: 3Rank: 3


247
1076#
發表於 05-12-19 22:54 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

hi mermee,
我剛安裝了diamond water filter, 6仟幾蚊, 同埋每2星期要自行清洗其中一個蕊(一共有6個), 都幾煩. 不過聽另一個家長有用開, 話幾好, 所以就選用.
我只用了幾星期, 所以唔敢俾評語.

Rank: 3Rank: 3


247
1077#
發表於 05-12-19 22:56 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

hi haybmum,
我都想知多d有關ole的資料, 因為我估我個仔的yeast problem成日番發
請問可唔可以同nystatin一齊食呢? 係唔係醫生開定係自己都可以買到呢?
唔該先.

Rank: 3Rank: 3


231
1078#
發表於 05-12-19 23:22 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Thanks all for the information about glutathione.

Rank: 4


646
1079#
發表於 05-12-19 23:28 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi siu_ming,

In fact, I did not intend to use OLE for controlling yeast when I first introduced it to my son.  In last two months, my son was sick and he coughed frequently.  I gave him a lot of medicine and his coughing was still on and off.  As he had taken so much syrup,  he started to get easy in throwing tantrums and resumed some self-stim behaviours which had been absent for long. I guessed it was due to the yeast / fungal overgrown.   I heard OLE was good for coughing so I started to use it 3 weeks ago.  Just in recent days, I found that my son's self stimmings went away and only showed occasionally when he was very happy.    I suspected that it was the effect of OLE as only OLE and Enzyme were introduced in the past two months.   Then I searched on the web and found that OLE can control the growth of fungal.  But when you compare it with Diflucan, from my own experience, the effect of Diflucan is much faster and apparent.  So it seems OLE alone is not enough for killing yeast effectively.  But I think it can control the growth of it in longer term.  I am ordering Kickman's Yeast Aid Powder for "看門口".  But when you look at the ingredient of it, it also contains OLE & Vitamin C.  So definitely these two supplements will work for yeast control in certain extent.

The OLE I brought from Green Concept is in liquid form.  Taste a bit bitter but still can tolerate it.  

Rank: 4


646
1080#
發表於 05-12-19 23:40 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

hi ultramom,

I don't know whether OLE can be consumed together with nystatin or not.  I dropped the nystatin as it did not work with my son when he was taking the oral glutathione.   As OLE is a natural supplement, I think it will be ok to start with a small quantity to see the effect first.   

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