"Biomedical Treatment - Parents' Group "

ultramom

dommom,
我已經電郵咗我的手提電話給你, 有空請來電
yy

Justin2002

Dear Dommom,

I would like to have more details about your order of B12 nasal spray.  I remember kawai mentioned before that she wants to try on her son too!  Would you please post it out so that we could have have more information?  How much does it cost per bottle?

Many thanks,
Justin2002

Siu_Ming

kawai,

你既正業就係biochemical treatment啦！你對各大小supplements認識非常專業，話你係兼職都無人信。你成功轉型啦！     

我宜家都係學下做副業，有排學，真係學海無涯   唉！人到中年，危機處處...(唔好意思，近排太多野做又唔夠瞓，思想混亂)


另外，以下是一些ALA 及 DMAE的information:

ALA-->
http://smart-drugs.net/info-lipoic-acid.htm

DMAE-->
http://smart-drugs.net/info-DMAE.htm

我仔仔兩隻都有食，但暫時無用DMSA做chelation。DMAE講明係改善attention, ALA就沒有講明可顯著改善乜野, 不過應該同總體metabolism (身陳代謝)有關，此藥有用係糖尿病者。屋企部pc好似存放左篇有關ALA的文章，遲D post 上黎。

kawai

HayBMum,

Let's find the professional advice on the use of ALA and other chelators as follows:

ALA and other chelators

Dear Dommom,

How's the dosage of B12 nasal spray?  I wanna to try after we finish the stock of injections.

Ultramom,

I'm so happy to hear that your son has such a good
improvement lately.  However, I can't give you any comment on the use of Diflucan or other medications for yeast overgrowth.  I only use probiotics regularly and some other natural yeast killers such as GSE/OLE when needed.  

Siu ming,

Thanks for your sharing.  Please don't tease me as I'm just a typical "C9" but a strong believer of bio-treatments.  

Siu_Ming

Wow!  Kawai, the link you provided about ALA is specific and very useful!  The article I've got is just something like this:
http://www.yourhealthbase.com/lipoic_acid.htm
which does not talk specifically about autism.

I checked the Great Plains Lab organic acid profile report of my son.  He is low in pyroglutamic which may indicate glutathione deficiency due to oxidative stress.  We all know that glutathione is essential in removing mercury and other toxins.  ALA and Glutathione gel are indeed addressing this problem.

Dommom

Dear all,
The MB-12 + Folininc Acid nasal spray costed US$45 excluding postage.  However, I just went to see Dr. Trodd this morning, and chatted lengthly with him without letting him ask me to go!!!  Found out that he now has the MB-12 spray in stock.  The tiny bottle I have can last for quite a while I guess, since I only need one spray on each nostril every morning.  The problem is it is bright red, and it looks like my kid has a bleeding nose.

I also started Glutathione nasal spray at the same time.  I ordered that from the U.S. as well.  My kid has very bad oxidative stress and the oral glutathione seems to be ineffective on him.

By the way, Dr. Trodd showed me the hyperbaric chamber today.  The receptionists told me the first child will try it this afternoon.

I wanted to give it a try too. I never had the patience to start one thing at a time, and sometimes I do not know which one works and which does not.

Dommom

By the way, Dr. T said Lipoic Acid helps to recycle glutathione, and is helpful with kids with oxidative stress.

Sui-Ming, Dr. T also said the Hyperbaric chamber should help with kids with oxidative stress - he said it does not mean if the kid gets more oxygen, he will get more oxidative stress. It should be the other way round ?!  Gee, I really regretted I did not study my high school bio-chem well !

HayBMum

kawai & siu_ming,
your advices to me are already very professional.  Thanks for the links.

Dommon,
Regarding the MB12 nasal spray.   Could you please share how can you apply to your son and control him not to "breath deeply" so that the B12 will not be swallowed immediately after spray.  I read from yahoo's posting that the effect of MB12 will be better as long as the spray can be released to the body gradually.

Siu_Ming

HayBMum,

I am just learning by doing (slowly) but Internet does help a lot!

Dommom,
I have heard of that little chamber too but don't know much how it works.

All,

Just a updates about the recent research on antioxidant (ALA, etc) and autism:


Antioxidant Levels May be Linked to Autism
By Serena Gordon

SUNDAY, April 3 (HealthDay News) -- Could oxidative stress, a suspected contributor to many disease processes like heart disease and cancer, also play a role in autism?

University of Arkansas researchers think it may.

In a recent study, autistic children were found to have significantly lower levels of an antioxidant called glutathione and its metabolic precursors.

"Glutathione is the major antioxidant in cells important for detoxification and elimination of environmental toxins, and its active form is reduced in about 80 percent of the kids with autism," said the study's lead author, S. Jill James. She is director of the biochemical genetics laboratory at Arkansas Children's Hospital Research Institute and a professor of pediatrics at the College of Medicine at the University of Arkansas for Medical Sciences in Little Rock.

Reduced levels of antioxidants, such as glutathione, would increase the level of oxidative stress. Oxidative stress occurs when antioxidants aren't able to clear the body of free radicals, which can damage cells in the brain, gastrointestinal tract and immune system.

"[Our findings] suggest that these kids would be more sensitive to an environmental exposure and would be less likely to detox from heavy metals," said James.

Exposure to heavy metals, such as the mercury preservative that was commonly used in children's vaccines until recently, has long been suspected as a trigger for autism in genetically susceptible children. Most research, however, has failed to confirm this link, and in 2004, the Institute of Medicine issued a report stating that it did not believe that vaccines contributed to the development of autism.

Not everyone agreed with that conclusion, however. Laura Bono, chairwoman of the National Autism Association, and the parent of an autistic child, believes vaccines play some sort of role in the development of autism and said the new study's findings would seem to support a link.

"These are children that are more vulnerable, that don't quite detox the way the rest of us do," said Bono.

James didn't look at the vaccine question for the current study. She said that autism is believed to have a genetic basis, but that it "takes an environmental trigger to bring out the genetics."

For this study, James and her colleagues compared blood samples of 90 autistic children to those of 45 children without the disorder, and found that the active form of glutathione was reduced by about 80 percent in children with autism. James also said the metabolic precursors of glutathione were reduced.

"If they have lower glutathione, they would reach a toxicity earlier than someone with higher levels," said James. "But, it's not clear whether this is a cause or a consequence of autism," she added.

James and her team also looked at changes that occur in several genes that could affect glutathione metabolism in blood samples from 233 autistic children, vs. 183 children without autism. They found changes in three genes more often in the children with autism. James said these are common genes that don't cause autism, but they could contribute to the development of these metabolic abnormalities.

James presented the study findings Saturday at the American Society for Nutritional Sciences' scientific sessions at the Experimental Biology conference in San Diego.

While this study is just a first step, she said, it wouldn't be unreasonable for parents of autistic children to talk with their child's doctor about giving them antioxidant supplements since these supplements are non-toxic.

Others aren't so sure, however.

"This is an interesting study and worth some more follow-up, but for parents or clinicians, it's an item of note, not a call to action," said Craig Newschaffer, director of the Center for Autism and Developmental Disabilities Epidemiology at Johns Hopkins Bloomberg School of Public Health in Baltimore. "There are no leaps to be made about using antioxidants as a therapeutic agent."

In other autism research released this week, scientists from the University of California, San Diego report that the "mirror" neurons don't function properly in people with autism. Mirror neurons are those that activate when you perform an action and then see someone else perform the same action, or vice versa. These neurons have also been dubbed the "monkey-see, monkey-do" cells.

"The findings provide evidence that individuals with autism have a dysfunctional mirror neuron system, which may contribute to their impairments -- especially those that involve comprehending and responding appropriately to others' behavior," one of the study's author, Lindsay Oberman, a doctoral student at UCSD, said in a statement. The research will be published in the journal Cognitive Brain Research.

Source:
http://www.forbes.com/lifestyle/health/feeds/hscout/2005/04/03/hscout524907.html

mickeyma

dear all,
really great to come back from endless trips and see all of your messages. It took me one hour to chase back all I missed!
Dr. Lam also gave me the same supplement and Yu also does not like it. I tasted it myself a little bit and found it was a little bit bitter with sweet. I have to feed him while he is playing computer games.
如果你仔仔驚的奶綠色唔肯飲,換過隻有顏色既奶瓶咪得啦!

Stella,
I must check with Dr. Lam reg. DMSA. As I still use the old way of taking as twice per week. And Yu was not performing good after taking DMSA. He appeared to be tired and quiet in the school.

Dommom

Ultamom,

By the way, if your kid keeps on weaking up at night, try Melatonin 1 mg.  Dr. T told me to just buy that from Watsons or other health supplement shops.

kawai

Hi Dommom,

What's hyperbaric chamber size at Trodd Clinic?  I don't think my son would like to stay inside for an hour if it's the smallest size like a coffin.  I saw there's a rainbow tunnel which is the largest chamber size from its official site.  The kid can sit and play with his parent in there and seems to be eaiser to kill time.  I've also checked the frequency of the hyperbaric therapy online.  The initial treatment should be started in a 5 consecutive days basis from Mon-Fri and lasted for 60 mins per treatment.  Dr. Trodd mentioned the minimium treatment is 20 times to see any effect.   

I'll wait and see if there's any positive feedback from other parents.

mickeyma,

Obviously your son is working on a detox process.  You should observe his health condition closely and call Dr. Lam if any query arises.  

chanchanboy

Dear all,

I have a very urgent question.  My son begins his 2nd round of DMSA.  Today is the 2nd day.  He gets a cough and a fever tonight.  I have no choice but to give him Paracetamol.  Should I stop the DMSA tomorrow at once?  I believe I should.

Thanks.

kawai

chanchanboy,

Yes, you should stop the DMSA until he has totally recovered.  

chanchanboy 寫道:
Dear all,

I have a very urgent question.  My son begins his 2nd round of DMSA.  Today is the 2nd day.  He gets a cough and a fever tonight.  I have no choice but to give him Paracetamol.  Should I stop the DMSA tomorrow at once?  I believe I should.

Thanks.

chanchanboy

kawai,

Thanks for your reply !!
Since it so late, I am worrying I cannot get a reply.

kawai

chanchanboy,

Don't worry as I'm a night ghost.  I remember when my son first tried DMSA which is prescribed by Dr. Ko,  he was sick after 3 dosage.  Dr. Ko asked me to stop it and waited until he recovered.  Since then, I didn't even try it again.  

chanchanboy 寫道:
kawai,

Thanks for your reply !!
Since it so late, I am worrying I cannot get a reply.

mrsphcheung

Dear chanchanboy,
DMSA is an extremely strong medicine.  The child must have good physical condition while taking it.  You must stop it until your son has fully recovered.

BTW, my child has tried it for about 3 months.  He is quite moody and does not listen to instruction when he is on medication.  

chanchanboy 寫道:
Dear all,

I have a very urgent question.  My son begins his 2nd round of DMSA.  Today is the 2nd day.  He gets a cough and a fever tonight.  I have no choice but to give him Paracetamol.  Should I stop the DMSA tomorrow at once?  I believe I should.

Thanks.

Dommom

Hi Kawai,

I saw the hyperbaric chamber at Dr. Trodd's clinic.  It is like a big coffin at the most.  According to him, it is the biggest one on the line.  It will allow an adult and the cild to go in together.

ultramom

hi kawai,
請問你用邊隻probiotics? 我最初用"acidophilus powder (kirkman). 後來聽其他家長話要時不時轉吓probiotics, 所以就問dr trodd, 佢就俾隻"probio gold(kirkman)". 請問你洗唔洗成日轉probiotics? 應該幾耐轉一次? 有家長就話一個星期轉一次, 但dr trodd就話一個月至轉一次.
請問gse係唔係grapefruit seed extract? 係唔係自己係葯房(watson's/mannings)都可以買到? 有冇副作用?
唔好意思, 咁多嘢問.

kawai 寫道:
I only use probiotics regularly and some other natural yeast killers such as GSE/OLE when needed.  

chanchanboy

Thank you kawai and mrsphcheung!

BTW mrs cheung, did your son have any blood test or urine test regularly for the DMSA ?  

mrsphcheung 寫道:
my child has tried it for about 3 months.