"Biomedical Treatment - Parents' Group "

ivanmommy

Hi All,

As I read from Dan's Protocol of Feb 2005,there is no definite period of detoxification,but usually it takes as least several months and the exact time depends on the urine result and it is stopped when the urine mercury excretion falls to normal reference level.
Usually,blood tests for liver,kidney functions and the complete blood counts should be done every two to three months.

Justin2002

Dear all,

I went to see Dr. Lam with my son last Saturday morning and waited for an hour before consultation.

I told him that I prefer not too aggressive approach as a start as he recommended my son to take DMSA also.  So, as a result, he prescribed the following and he made the B12 injection on the spot but I forgot to check with the dosage.

1. Vitabex ALA syr (7.5 ml) x 1/day
2. Zinc & Magnesium susp + B6 (7.5 ml) x 1/day
3. Jano Zymes (for digestion) x 1 capsule/day
4. DMAE x 1 capsule/day
5. Solmucol (200mg) x 1 bag/day (like orange powder)
6. Methylcobalamin B12 (1 mg) x 1/day (like a sweet)
7. Soy Green + Spirlina x 4 spoons x 2/day (however, my son rejected to drink this with milk when he saw the green colour)

Dr. Lam also asked me to stop Cod Liver Oil and DMG+Folinic Acid+B12. He said Eye Q and acidophilus can continue (which I am using currently). AFP Peptizyde and Zime Prime can be replaced by his another jano zyme.

I tried Dr. Lam's enzyme last night and it really does not smell so strong. I shall follow his advice first and see if there are any improvements.  I asked him what is the instant effect of B12 injection, and he answered saying that the child will become more concentrated and attentive.  He also claimed that he uses B12 also on other normal kids when they are sick!

Justin2002

kawai

Stella,

如果你仔仔發燒或其他身體不適是不宜服用DMSA.  Dr. Lam有冇同你講過呀?

Justin2002,

Dr.Lam比咁多supplement比你仔仔,佢肯唔肯食呀?一於幫仔仔長期打B12針,mickeyma仔仔打左針加埋supplement表現特飛猛進.越細開始越有效架. 另外,如果你仔仔驚的奶綠色唔肯飲,換過隻有顏色既奶瓶咪得啦!

ivanmommy,

你仔仔係唔係仲睇緊Dr.Trodd呀? 有冇食DMSA排毒?

ivanmommy

Kawai,
I'm now consulting both Dr. Trodd and Dr. Ko because Dr. Trodd said that Dr. Ko is the most experienced doctor for chelating therapy in HK. I saw Dr. Ko last week and she suggested my son to take both td-DMSA and td-glutathione and I plan to start the treatment next week,the schedule is 3 days on 11 days off.

Stellacl,
As I know, DMSA can also remove the lead poisioning from the body,so it seems strange to me to give also ETDA in the spare period. I am a bit worried that the child may have no resting period to replenish back the body essential trace metal excreted by the DMSA during these 11 days? Did you ask Dr. Lam? Is there any rationale for this protocol?

kawai

ivanmommy,

Dr. Ko & Trodd must be good friend.  I think the TD-DMSA has less side effects than the oral form.  Do share with us if there's any positive or negative effect.

Stella,

You know your son is a high high functioning autistic kid and he is nearly gifted.  That's why your son has dramatic improvement after he started the bio-treatment.  My son is high low functioning, that's why he has slightly improvement after all kinds of therapies.  In conclusion, it really depends on the potential of the kid no matter he's special or not.  

Anyway, chelation therapy is an important process for every autistic kid and all our kids deserve to recover one day if the key was found.  

Justin2002

kawai, thanks for your advice.  In fact, Dr. Lam gave Justin not too many supplements because two of them can be mixed with juice and I separate two to be mixed with morning milk and the other two into night milk.  So far so good, he can finish all the milk (which I deduct the quantity from 180 to 120 ml).

I may consider taking the B12 injection in my next visit.  Hope it works too.  How about if the kid takes the B12 only once every two weeks' time (when we go to see Dr. Lam) with higher dosage?  Do you think that helps?

Justin2002

*****************
Justin2002,

Dr.Lam比咁多supplement比你仔仔,佢肯唔肯食呀?一於幫仔仔長期打B12針,mickeyma仔仔打左針加埋supplement表現特飛猛進.越細開始越有效架. 另外,如果你仔仔驚的奶綠色唔肯飲,換過隻有顏色既奶瓶咪得啦!

kawai

Justin2002,

The normal practice of B12 injections should be twice a week.  You may observe your son if he has any effect after the first injection within 1 week.  I think mickeyma and stella can give your comment on this issue.  

[quote]
Justin2002 寫道:

I may consider taking the B12 injection in my next visit.  Hope it works too.  How about if the kid takes the B12 only once every two weeks' time (when we go to see Dr. Lam) with higher dosage?  Do you think that helps?

Justin2002

Siu_Ming

各位：

想問問大家用各種supplements時孩子的反應。

我們的兒子兩星期前開始全面食用supplement，主要包括：

ALA
DMAE
Zn/ Mg suspension
B6 tablets
另外聖誕假起將打B12.

我們的administration 是逐步的，由half dosage 慢慢發展至full dosage. 兒子在某些方面的表現有明顯進步，如變得assertive, 多了很多body contact, 在語言應用上也有比以前更好的description ，總體上做table task的專注力改善了等等, 但有時不太consistent, 有時仍會很distracted，由於用藥時間尚短，所以還未有較可靠的conclusion。有文獻記載，用DMAE大概十星期後，70%的孩子會有專注力上的明顯改善(parents' ratings)。

我想問下大家，特別是用supplements經驗豐富的媽媽爸爸，在用藥過程中孩子的反應，有哪些"positive" negative responses？大概很久消失等等。這些問題，醫生答不了，只有家長才有經驗。

用藥真是個trial and error 的過程，很想大家可以分享一下。多謝！

kawai

Siu Ming,

我仔仔對supplement都幾敏感,所為trial and error 的過程就如坐過山車般,特別在排毒中途,supplement或藥物會助長身體的yeast,至小朋友反常甚至退步.更有云重金屬在身體排走途中或移動也會產生negative responses.其實每隻supplement對每個小朋友的反應都不同.DMAE係最早Dr.Ko開的supplement,頭幾個月有效,後來可能新加的supplement後,仔仔唔受得.所以後期覺得冇效.所以你每隻supplement慢慢試係最正確既做法.另外,你下次叫Dr.Lam開L-carnosine,睇下你仔仔有冇speech improvement.

Siu_Ming

kawai and stella,

多謝你們的分享！
真係一用biochemical 深似海！其實我們是考慮了很久很久才轉攻biochemical, 因為仔仔本性是屬於平和一類，我們都擔心會disturb了他原來較好的行為表現。但他又有很多方面太delay...我都知bio這家很難manage, 又要再花大量時間上網做literature review, 連我幾十年前的A-level Bio都挖晒出黎，搞下搞下覺得自己撈過界，不務正業，medical又唔係，biochem又唔係...唉！為左啊仔...

我現在每天都做detailed record，還叫學校幫我記錄仔仔在學校的表現，做幾個星期再比較一下兩套record，應可得出一些patterns 和observations，到時再同Dr. Lam商量下一步策略。做多半年，可能可以寫張paper啦

這個網頁很comprehensive，跟各位分享一下：
http://www.autisme.net/DepartAutism-uk.html

Justin2002

Hi Stella,

Thanks for your advice.  I observed that my son didn't have any -ve response after injection on last Saturday. On the contrary, he behaves well also these few days (except some hyper when watching VCD).  He talks more but still sometimes without sense!

I agree with you that he needs to get used to B12 at the beginning and I think I shall let him have another injection next week.

Many thanks and look forward to see you all on 27th!!

Justin2002

kawai

Siu Ming,

我就係你所講既不務正業,每日辨工時間無間斷上網研究Bio-treatment及各種治療方法既人.自從知道仔仔有事後,真係發晒茅唔知點算,多得BK媽咪比料才知道有各種各樣幫仔仔既方法.你最好幫手搵多的料同大家分享.大家盡少少綿力去幫下其他對bio-treatment有興趣的家長.

Dommom

Dear all,  just want to share with you all that we also find the MB-12 injections and the casein-free diet most effective, and brought us the most dramatic, positive results in a few days.  Dominic could sleep better almost immediately after he started with the B-12 shots, and improved in other areas as well.

Also would like to share with you that I just started MB-12 nasal spray on him a few days ago.  We ordered that from the U.S.  Dr. Trodd also ordered his first batch of B-12 spray some time ago but as of the last time I visited in early December, they have not arrived yet.

I hope it works !  Then we can all go for this instead of the B-12 shots !

HayBMum

Hi Dommon,
I also heard about the MB-12 nasal spray but not yet know its effect.  Does your son show improvement/ maintain the improved behaviors after it?

Siu_Ming, Kawai & Justin2002,

In the previous posts, it mentioned that after several course of DMSA, ALA will be added to chelate the heavy metal as ALA can cross the brain stream.  However,  ALA is also added to some of the kids' supplement list.  Is it safe to take ALA without going through the first stage of chelation?  If so, what is the purpose of adding ALA in the supplement prior to chelation?  Will it need to be stopped when starting the first stage of chelation?

Sorry too many questions about ALA!

ultramom

我想同大家講吓我最近試的”新嘢”(新的意思係阿仔以前未試過):

1. 我轉咗打25ml (high concentration)的b12, 己經打咗3次, 唔覺有-ve反應, 但我就覺得容易打好多, 因為以前要打成0.2ml, 而家只係打0.05ml, 只要推少少就打完, 佢未郁我己經搞掂, 我就覺得方便好多.  
2. 我托另一家長從美國買來的td form glutathione, 已經搽咗幾日, 有好有唔好反應: 唔好反應就係 a)晚晚都醒, 頭一晚仲除哂自己d衫, 之後幾晚就只係醒咗, 自己同自己講一大堆嘢(佢未識講嘢, 只係亂講d佢識的字, eg”fish, shark, dolphin, bye bye, see you, hi….” 不過就10至15分鐘就瞓番.
b) 好的反應(我唔知係咁”橋”定係”有料到”):搽咗第2日係星期日, 本來想帶佢同阿女去公園玩, 平時哋會坐車去少人d去的公園, 因為阿仔直頭係”nut 繩馬騮”, 周不時自己走咗去, 我哋好驚走失佢. 但係果日佢又發”怪脾氣”, 係都要坐手推車, 唔肯坐車, 我哋唯有帶佢去九龍城公園, 果度成日都有成十萬個小朋友係度玩, 我哋次次去親都要跟得阿仔好貼, 唔係都幾難揾到佢.  去到佢好常地自己周圍走, 但佢果日就好”反常”地時不時回頭睇吓我, 好似要make sure我係附近, 有幾次仲因為俾幾個大d小朋友”隔”住我哋, 佢仲返轉頭拉我隻手…以前真係未試過..
c)再過一日, 返pre-school就大鑊, 3個鐘佢喊足2個鐘, 瞓咗半個鐘(可能太累), 只有頭半個鐘係比較正常d.  我唔係課室, 唔知點解佢會發咁大脾氣, 因為佢番pre-school已幾個月了, 好耐冇試過喊咁耐同咁激.
d)又過一日, 佢去見ot, 結果又出乎咁好, ot話覺得佢”唔同咗”, 因為平日阿仔好難engage, 每次阿仔完成一個task, 個ot會好誇張咁讚佢(拍哂手掌叫哂咁), 不過阿仔都未必有反應. 點知果日阿仔又好合作咁完成佢要做的task, 個ot話阿仔做完之後, 直情望住佢, 等佢讚咁, 個ot話佢都呆一呆, 點知阿仔仲望住佢, 跟住學ot平時誇張地拍手咁, 好似”提”ot要讚佢咁.

我有d估阿仔d”怪”行為係yeast overgrowth又番發, 因為佢剛剛完咗diflucan 10日左右, 而家俾緊nystatin佢食. 上兩次都係完咗diflucan冇幾耐, 又出”怪”行為. 有個家長建議我去問吓dr trodd, 可唔以一次俾6星期diflucan, 佢話加埋milk thistle就應該冇問題. 請問各位有冇試過咁情形?