大家要keep住聯絡呀!一齊努力一齊進步!

blmom

Hi samanthat38,
We haven't met in person before but I read this thread from time to time because I have met with most of the "sisters" here before.  I am not familiar with your father's disesase but I have a doctor to recommend.  His name is  劉永鑄 http://www.hkdoctors.org/english/index.asp
He is a surgeon and is a specialist in this area.
I think you will need to seriously consider the pros and cons of operation on a 80+ year-old man.  I think it is worthwhile to ask for a second opinion from a specialist.  I hope that your father will recover soon.
Cheers,
Phyllis

原文章由 samanthat38 於 07-12-11 12:36 發表
Hi every sister,

請容許我向大家,因為我自己孤漏寡聞,大家臥虎藏龍,見識廣博.
請讓我問一些不是關於此topic的事,我真大家是sister,所以希望大家於資料上幫幫手.

我爸爸患了輸尿管癌,加上其中一腎又廢,需要做手術. ...

blmom

Hi Irene,
Thanks for your info.  My son is seeing Dr. Paul Lam.  He has taken some of my son's hair for toxin test on our last visit.  He also did a urine toxin test.  Our next appointment is next week and I think the test results should be ready then.  I have already expected for the worst (probably high mercury and lead level) but I am still unsure about starting DMSA challenge.  I still tend to go for natural chelation at the moment.  Don't want to start everything (gfcf, changing to english etc.) all at the same time.  
Are you going to AP's free talk this coming Saturday?  I may attend if I have time.  

原文章由 bigheadgirl 於 07-12-13 00:49 發表
Hi, Phyllis,
I am not sure your son has done 'mercury test' or not.  I know a kid under biomedical treatment sent his hair to the U.S.A. to do the test.  Now I've heard that the test can be done in HK ...

llcathy2004

姊妹們，有無留意過呢隻vegepa,點睇？
http://forum.baby-kingdom.com/viewthread.php?tid=1230470&extra=page%3D1

阿仔剩番兩聲咳，如無意外１６號我會同佢黎～～
May                    椰(逹)仔
Irene                   節日旦糕
                           火雞
                           西班牙炒飯
Amon                  Fruit salad
Rebecca              雞翼
Brenda                多士+芝士+煉奶
Maria                  鹵水牛展&旦
Cathy                 Pizza  
Samantha           啫喱糖 +CORN
Ivy                     ??????????
Veron                 生炒糯米飯

原文章由 mcdull888 於 07-12-13 20:17 發表
May                    椰(逹)仔
Irene                   節日旦糕
                           火雞
Amon                  Fruit salad
Rebecca              雞翼
Brenda                Toast with cheese &/ ...

[ 本文章最後由 llcathy2004 於 07-12-14 02:46 編輯 ]

llcathy2004

amon,聽到華豐有進步，真係戥你開心呢！加油！！
另外，我想同有自閉傾向仔仔嘅媽咪講，我地今日見過心理醫生，佢話佢地嘅徵狀會隨年紀／語言能力增長而減少，令我無咁擔心（我成日驚佢大個唔知會點），希望你地都會放心啲．而家阿仔最需要係社交訓練，排緊佢地嘅小組．

原文章由 amon28 於 07-12-13 12:37 發表
嘩!華豐有你錫,當佢係自己仔係佢的福氣, ,講真從來冇咩人讚佢叻仔,只係彈佢差,發展慢,依家有多一個姨姨錫佢我又點會介意,簡直求知不得,極度開心啦

DMJ103

Hi Irene,

I have signed up for the Dec workshop in AP and would also like to ask about biomedical treatment too. I have also started reading books and materials about that. Having talked with Phyllis about it too and found that she knows much more than me. She shared a lot on that with me. (Thanks a lot Phyllis!)

Anyway, if there is any useful handout, I'll make a few copies and bring them to our Sunday gathering. See you then.

原文章由 bigheadgirl 於 07-12-10 16:22 發表
Hi, Maria,
之前我都有去過Autism Partnership兩次上workshop,都OK架,11月同今個月都就唔到時間,上果兩次workshop有中文,英文兩班,我上左中文,由Albert主講,今次你去可唔可以幫我問吓關於biomedical treatment(生物 ...

brenda0505

HI各姊妹,

今日中午後同迪去了大口環做9個月見一次既跟進評估, 搭埋車返黎成6點幾, 但我覺得今日既得著不大.  去既時候做咗聽力同視力測驗都正常. 今次迪都好合作, 入去喊咗一陣, 醫生俾粒糖佢食就唔喊. 但見醫生時就好隨意.  入去係一名印籍既女醫生但操流利廣東話, 佢雖然好友善但只係隨意問咗我幾條問題.  我一路答佢就打字翻譯, 冇咩結論同意見俾我,之後就叫我9個月後再黎覆診. 到我問返佢轉頭我應該選擇I或S位時, 佢就覺得迪雖有進步, 但佢話正常同齡小朋友應該講好多野唔應該仲係短句,另最重要係佢冇反問語例如: 咩黎咖? 點解? 等等.  所以仲係慢, 最好都係入S位.  察實我老公今日都有去, 因為我以為佢地會俾到D意見我地, 事後佢就話:總知唔黎啦, 今日仲好鬼忙都過黎, 但好似咩都無做過!  之後我要求見醫務社工, 佢都係好中立答案, 同埋重覆提我有位時棄權S位就要重新排過. 而轉唔轉位就都係落係我度.

我想問下各姊妹, (問題一)係咪以後每9個月-1年既覆診都係咁形式, 咁去黎有咩幫助, 攪到我今日仲同迪請假去. (問題二)之前我有請教STEP既姑娘意見, 佢地都覺得迪可以轉I, 但今日醫生同社工又想我維持原狀(唔係基於小朋友情況,純粹覺得唔好浪費依家等既時間) 察實我應唔應該再俾迪去做多1次評估, 等醫生結論佢既去向呢? 但爸爸既意思就覺得依家情況好好, 唔想冒風險, 想KEEP E位+N1+STEP.  唉...我都唔知點好?  各位星期日見到再傾.

[ 本文章最後由 brenda0505 於 07-12-14 23:34 編輯 ]

CCnam

May                    椰(逹)仔
Irene                   節日旦糕
                           火雞
                           西班牙炒飯
Amon                  Fruit salad
Rebecca              雞翼
Brenda                多士+芝士+煉奶
Maria                  鹵水牛展&旦
Cathy                 Pizza  
Samantha           啫喱糖 +CORN
Ivy                     忌廉磨菇雞肉意粉
Veron                 生炒糯米飯

bigheadgirl

各姊妹:
Just a reminder:
1.  著襪
2.  自備飲品
3.  帶禮物
4.  12:45pm調景嶺MTR Exit B(都會駅出口),出左閘右手邊OK便利店門口等

另,有冇姊妹需要提早上黎叮食物?請通知我/Brenda

Ivy,
好耐無見你上黎LA,終於見到你"蒲頭"LA,係咪好忙呀?

Amon,
其實我覺得華豐真係有好大進步架(唔係擦鞋,係真心話),我每日送亞朗返學都會係出面裝吓佢,見到華豐由初初喊到好勁,到而家喊一陣,老師叫佢就即刻去老師度,真係進步左好多,有好多野可能佢而家未做到,但比D時間佢,我相信佢一定做到,可能未必係最好果個,但一定唔係最差果個.
另,pls check PM

Phyllis,
I'm afraid I cannot go to AP tomorrow.  Anyway, I think it's worth going and I know some of the kids there are undergoing the biomedical treatment.  

I think you're on the right track not changing all the things at one time.  It will be difficult to adapt to the new things, especially for the A-kids.  Anyway, keep in touch with all of us and we'll be happy to see you on our next gathering.:)

Maria,
Thanks beforehand for enquiring about the biomedical treatment for me.  Is it possible to make a copy of the handout (if any) for me?  Thanks again.

Brenda,
廸廸今日是否做評估呢?点解需要每9個月做一次?我聽協康D姑娘講,3歲做完後,應到小學前再做一次,期間有需要會轉介去兒童精神科;如果今日廸廸做嘅係評估,我就覺得兒戲左D,就咁問幾條問題就決定一個小朋友嚟緊兩,三年嘅學前教育?其實我唔係專業人仕,唔知道係咩準則下一個小朋友要讀S位,咩情況下讀I位,但係我覺得政府嘅人,最怕就係要做extra嘅野,要轉位要做多D paper work,對佢地黎講緊係唔好LA,我上I位家長小組嗰個心理學家都私底下同我地講,其實医生見小朋友得一陣時間,有好多野未必睇到,所以最好係問多一,兩個專業人仕(STEP,學校老師)的意見,加上家長嘅觀察,先至做決定;我諗如果我係你,我今日都會好"火滚"
Anyway,星期日詳談

另,你是否早D上黎我屋企呢?

[ 本文章最後由 bigheadgirl 於 07-12-15 02:09 編輯 ]

llcathy2004

IRENE,我出門前叫PIZZA,應用送去你家定會所?
BRENDA,我唔清楚迪迪而家情況,但認為STEP/學校老師會了解佢多過見得一陣嘅評估醫生,而且自閉傾向小朋友最弱係社交,讀S位會少好多正常嘅社交刺激機會.如果社工幫唔到手,你不如要求見下心理醫生(兒童精神科),佢地應該會比到專業同人性啲嘅意見你.

原文章由 brenda0505 於 07-12-14 23:24 發表
HI各姊妹,

今日中午後同迪去了大口環做9個月見一次既跟進評估, 搭埋車返黎成6點幾, 但我覺得今日既得著不大.  去既時候做咗聽力同視力測驗都正常. 今次迪都好合作, 入去喊咗一陣, 醫生俾粒糖佢食就唔喊. 但見醫生時 ...

bigheadgirl

Pls call me before u order the pizza.  We'll start lunch probably around 1:30pm.  Pls check PM.

原文章由 llcathy2004 於 07-12-15 21:56 發表
IRENE,我出門前叫PIZZA,應用送去你家定會所?
BRENDA,我唔清楚迪迪而家情況,但認為STEP/學校老師會了解佢多過見得一陣嘅評估醫生,而且自閉傾向小朋友最弱係社交,讀S位會少好多正常嘅社交刺激機會.如果社工幫唔到手,你 ...

yymm2007

IRENE & BRENDA :

謝謝你們的安排 ! 今天雖然很累（因昨晚AMY成晚咳 , 我同佢都無嘜瞓過）, 今朝先同佢睇完醫生 , 黎到又玩又食 , 好似又充番D電咁 , 頭先上車後，AMY唔駛5分鐘...已呼呼大睡 ! 佢無後備電...隨時話停就停 , 好彩今次唔駛我抱 !


IRENE :
今日辛苦晒你 ! 多謝晒 !

AMON :
你送給AMY個粉紅色袋 , 佢好鐘意呀 !   佢唔單止今日成日攞住 , 依家仲放係自己個枕頭邊 & 佢話聽日要帶埋番學 ! (因聽日佢可著便服回校 , 佢學校聽日搞 PARTY !) ! 多謝晒你 ! 送左一件佢咁鐘意既禮物比佢 !

BRENDA :
你送給AMY的聖誕帽 , 佢都話要帶埋番學開PARTY ! :loveliness: 多謝晒 !


另, AMY今日真係大豐收  , 多謝各位 E E 送比佢既禮物 , 玩具 , 筆...等等 ! 佢好開心 ... 多謝晒 !
今天各姊妹的食物都很好味！ 多謝大家！ 　

[ 本文章最後由 yymm2007 於 07-12-16 22:28 編輯 ]

llcathy2004

係呀~~多謝晒irene&brenda嘅安排，同各姊妹嘅美食，仲有啲爸爸都好落力！thanks a lot!!(若果大家影嘅相有傑傑，可以send埋比我嘛？ )
may,今晚到我無覺好訓，傑傑又咳番．．． 希望病病嘅小朋友都快啲好番．
maria,希望supplimentary對justin有用，記得同我地分享成果呀．

原文章由 yymm2007 於 07-12-16 22:20 發表
IRENE & BRENDA :

謝謝你們的安排 ! 今天雖然很累（因昨晚AMY成晚咳 , 我同佢都無嘜瞓過）, 今朝先同佢睇完醫生 , 黎到又玩又食 , 好似又充番D電咁 , 頭先上車後，AMY唔駛5分鐘...已呼呼大睡 ! 佢無後備電...隨時話停就 ...

[ 本文章最後由 llcathy2004 於 07-12-17 04:24 編輯 ]

samanthat38

原文章由 llcathy2004 於 07-12-17 04:17 發表
係呀~~多謝晒irene&brenda嘅安排，同各姊妹嘅美食，仲有啲爸爸都好落力！thanks a lot!!(若果大家影嘅相有傑傑，可以send埋比我嘛？ )
may,今晚到我無覺好訓，傑傑又咳番．．． 希望病病嘅小朋友都快啲好番．
maria ...

Hi

Thanks Irene and Brenda for your arrangement and Irene's note.  

Thanks every sister's food and everybody對my father 關心和資料.

Gathering 的禮物和 playing time also make 宥宥 and me very happy and have some support. We feel warm even if only 問侯 or any information sharing,etc. It's a reaction not cause from only one person. It's cause from me and you everybody including our children.  Thank you very much.
Thanks God to let us have a chance to 認織和相聚.

Hope everybody including all the 小朋友身體健康,天天進步.
Merry Christmas.

mcdull888

多謝brenda & irene 既安排, 同埋大家o甘好味既野食, 重有大家既禮物同埋聖誕卡,朗朗同我都玩得好開心, 我老公第一次黎都讚各位媽咪d野食好味同埋個個都好nice...

podi

真係好羨慕你地有個咁開心既weekend, 我下次一定唔可以錯過!  距離我上次join既gathering已經有2個月無見了 我仔日朗佢又病左, 上星期打去學校請假, 順便問老師個仔返學情況.  老師話我個仔自理能力比較差, 用杯飲水仲未得, 仲未識得介片, 叫我地平時教佢多d, 因為全班同學已經只剩得佢一個未介片....聽到呢度我已經唔多開心....我自問真係要返工無時間湊仔, 朝早起身已經同佢介, 介得果1, 2個鐘又要著片片訓覺, 下午返學要著片(老師suggest唔著片幫佢介), 放學訓一陣又要著番片.......無著片只得果一陣, 點介?  講開就好煩.....出年仲諗住上k1...........................

不過昨日我同個仔成日, 又發玩佢其實都ok:  佢入kitchen玩, 倒潟左少少粥, 我媽咪正睇緊TV, 佢走去廳拉住婆婆講:  婆婆, 倒瀉左!  拉住婆婆去kitchen.  另外同佢著衫佢郁來郁去, 我媽咪大聲叫佢唔好, 佢話:  婆婆鬧呀!  有時我鬧佢, 佢會講:  好大聲呀!  都唔知好嬲定好笑!

samanthat38

原文章由 podi 於 07-12-17 14:55 發表
真係好羨慕你地有個咁開心既weekend, 我下次一定唔可以錯過!  距離我上次join既gathering已經有2個月無見了 我仔日朗佢又病左, 上星期打去學校請假, 順便問老師個仔返學情況.  老師話我個仔自理能力比較差, 用杯 ...

Hi Podi,

Dont care the teacher what talking about of the naphin.  It maybe your son still hvnt ready.  It maybe school will help him.  It cant compare due to every child ability is different.
If Long Long now is half day or full day school,  if full day, school maybe help you.  if half day, you really to do for yourself.  But the mainly you must observe if his body is ready or not.

Yau Yau N1 before Christmas, school help him to take out the anphin but school find his body isnt ready for his ability.  In additional, the weather is cold, so Yau yau stop it until around March continues again.  That time he is sucessful.

Dont let Long long play at the kitchen which is really so dangerous.  But drinking, you can take more partices, he must overcome.

Dont worry about it.  Everychild have their weak point.  But give time for them, they must overcome.

brenda0505

各姊妹, 尋日走既時候去咗打bowling, 唔記得同幾個媽咪say byebye.  尋日真係好有氣氛, 小朋友個個滿載而歸, 下次見面應該會係2008年啦.  響度祝各位聖誕快樂, 我地既心願當然係希望小朋友日日健康快樂同進步, 同時希望姊妹們都暫時放開煩惱既心情, 響普天同慶既假期同小朋友盡情玩樂放鬆一下. 迎接新一年訂下目標同挑戰, 繼續一齊向前行.

llcathy2004

podi,你囝囝係咪2歲2個月?未戒片一啲都唔出奇呀,我仔舊年讀n1都好多小朋友未戒片架，唔駛因為呢樣野唔開心喎，而且佢講野都唔差呀．

原文章由 podi 於 07-12-17 14:55 發表
真係好羨慕你地有個咁開心既weekend, 我下次一定唔可以錯過!  距離我上次join既gathering已經有2個月無見了 我仔日朗佢又病左, 上星期打去學校請假, 順便問老師個仔返學情況.  老師話我個仔自理能力比較差, 用杯 ...

yymm2007

原文章由 llcathy2004 於 07-12-17 04:17 發表
may,今晚到我無覺好訓，傑傑又咳番．．． 希望病病嘅小朋友都快啲好番．
maria ...

Cathy :

謝謝你的祝福 ! 今晚又有我份la ! 皆因"48孝既→AMY爸"今晚比左舊"梨"AMY食, 一食又出事 !

AMY聽日學校旅行 , 今晚佢自己將個"背包仔"掛左係床頭 ! 裡面全部都係零食, 佢話聽日帶去旅行喎 ! ← 所以我諗, 佢聽日食晒呢包野→聽晚我都要OT, 無覺好瞓 !
其實我依家好眼瞓(放晒蚊 ! ) , 但係AMY因明天去旅行 , 佢過度興奮, 依家重未瞓 , 所以我地都無得瞓 ! 明早我地一家三口"熊貓3人組"實搶晒鏡 !

[ 本文章最後由 yymm2007 於 07-12-18 02:18 編輯 ]

amon28

Irene
真係辛苦晒,見你們一家三口走來走去為我們安排,真係唔好意思
好多謝你為我同華豐帶來一個開心的下午,華豐真係玩得好開心,尤其去兒童王國時真係好緊張同心急,拖住我係咁向前衝,見到咁大咁多嘢玩時開心到大叫立即衝去玩

Brenda
多謝你的安排,辛苦晒
你講個本唔外借I位資料可以係邊度睇,我都想睇吓我揀個幾間學校
08年1月27日係Irene仔仔朗朗生日我吔係咪搞生日會慶祝?今次唔好Irene咁辛苦,不如分散工作做,有嘢要幫手即本吩咐啦
2月5日係迪迪生日又可以搞生日會暨新春團拜,嘩!節目豐富諗起都開心

May
你講個嚿牙刷頭依家仲有冇得買,我可以係邊度買呀

各姊妹多謝你們送給華豐的禮物和聖誕咭