"Biomedical Treatment - Parents' Group "

Justin2002

Iwas referred by one of my friends to see a demo of this also last year.

But I want to remind those who try the demo, please let them do on your curtain or sofa first, they may ask you for pillows, mattress, etc.  According to my understanding, this type of vaccum-cleaning needs to carry out at least 20-30 minutes in order to "pull out the 塵蟎".  Therefore, if the sales is doing a demo only, he probably will not do it long enough.  The result will be, yes, you may see a lot of dust coming out, but at the same time, if you do not continue to vaccum, the "very inner" dust will appear and stick to the top layer of coating and becomes a problem.  To make it short, you take the dust worm out but do not destroy them!

Just for reference.

Justin2002

ultramom

hi kawai,
多謝你的意見. 我都知唔應該心急...
不過而家見得asd小朋友多, 有d真係個樣正常過正常(好多仲好靚仔/靚女), 但係好大個仲係mute, 個人好似冇咗靈魂咁...真係睇見都心痛...
同佢哋d父母傾開, 好多都話後悔冇早d俾intervention/treatment...你話點會唔心急?

話時話, 我同dr trodd話我估阿仔唔受得super nu-therma, 佢建議另一隻supplement, 叫asd-plex, 我嗱嗱聲攞咗返嚟試, 今日第一日俾阿仔食. 表面睇嚟, 應該比snt容易入口, 因為有d似奶粉(我覺得幾香添), 放入rice milk入面, 一d都唔覺. 希望阿仔受呢隻嘢啦...

kawai 寫道:
ultramom,

一般接受DMSA treatment前要最少食3-6月supplement打好個底先.還要小朋友對supplement有正面反應.我之前睇Dr.Ko佢都話唔可以心急,我見Dr.Lam都冇即比DMSA的patients食啦.我仔仔之前睇Dr.Ko近半年,3月才轉Dr.Trodd,佢都係最近才叫我比仔仔試DMSA排毒. 有時Dr.Trodd嗚下嗚下架.佢可能唔記得你幾時第一次睇佢.
你真係唔好心急呀,否則攪到小朋友身體差左就重麻煩.

kawai

ultramom,

asd-plex係新出,tailor-made比A既小朋友作為全面維他命補充劑.不過成份好似冇A&D.你要比仔仔食cod liver oil補充番先得喎.

SNT隻橙粉真係好難食,我轉左SNT-Hypoallergenic liquid,Dr.Trodd祗有橙粉,冇其他選擇.我自己上kirkman網訂,味道易入口好多.

[quote]
ultramom 寫道:
hi kawai,
多謝你的意見. 我都知唔應該心急...
不過而家見得asd小朋友多, 有d真係個樣正常過正常(好多仲好靚仔/靚女), 但係好大個仲係mute, 個人好似冇咗靈魂咁...真係睇見都心痛...
同佢哋d父母傾開, 好多都話後悔冇早d俾intervention/treatment...你話點會唔心急?

話時話, 我同dr trodd話我估阿仔唔受得super nu-therma, 佢建議另一隻supplement, 叫asd-plex, 我嗱嗱聲攞咗返嚟試, 今日第一日俾阿仔食. 表面睇嚟, 應該比snt容易入口, 因為有d似奶粉(我覺得幾香添), 放入rice milk入面, 一d都唔覺. 希望阿仔受呢隻嘢啦...

kawai

ultramom,

可否話我知個無良醫生叫mud名呀?我仔仔都係去油麻地見精神科,不過那位是陳博士,同mickeyma個仔一樣.我覺得你應該再去兒童發展評估中心找醫生,睇下那邊可否轉介SI/OT.

ultramom 寫道:
各位,
sorry, 不過真係想係度"呻"一下...
上個星期又去咗油麻地見精神科x醫生, 好彩(?!)阿仔瞓咗, 所以等個大半個鐘都相安無事...
卒之見到醫生啦, 佢見阿仔瞓咗, 就話"千祈唔好叫醒佢, 你知啦, 佢"呢d"小朋友, 嘈醒佢哋好麻煩"
好啦, 之後又係一咪問佢近況, 做緊d mud...好似同佢匯報咁, 我話我同阿仔揾咗st, ot, si 訓練, 因為我覺得佢需要, (呢個醫生就係話我個仔唔需要st, ot, 因為幫佢唔到, 所以政府唔會提供呢d服務....), 佢竟然同我講, "你要明白, 好似種花咁, 你一日淋10次水, 都唔代表佢會10倍咁生長....."(以下刪去500字...) 嘩, 聽到我真係血壓上升     
大佬, 我都冇用政府資源, 自費去做training, 仲駛唔駛咁講嘢呀?
之後又約我幾個月後再去見佢.  
跟住又話社工要見我, 同社工傾咗一陣, 我話每幾個月見醫生一次, 又要帶住個仔, 但醫生又唔係睇佢, 我話我有3個小朋友, 呢個下午, 如果我唔嚟呢度, 去接阿女放學, 佢哋都會開心到死 : (佢哋成日話我唔駛返工, 點解凈係接送細佬, 又唔接佢哋, 我個心都好難過....)
社工可能見我都幾可憐, 想幫吓我, 佢俾份"殘疾人士登記證"俾我, 叫我可以考慮吓申請. 我問佢有mud用, 佢話出境過海關可以排特別通道?! 請問各位知唔知有冇其他用途?

社工跟住同我講, 我亦可以考慮唔約覆診, "有需要"時先再約見醫生....我其實都想下次唔覆診, 如果佢有d有用建議俾我, 我都唔介意佢講說話講得咁"直", 但係佢又冇, 仲吓吓係度"潑冷水"....   

ultramom

kawai,
請看pm.

ultramom

kawai,
多謝提點.
我個仔有食cod liver oil, 係dr trodd俾(kirkman), 不過就嚟食完. 之前另一家長介紹我買咗隻nordic - berry keen, 等佢食完kirkman - cod liver oil之後, 我會俾佢試呢隻nordic-berry keen.
有冇其他好介紹?

HayBMum

我都唔鍾意去見精神科醫生，覺得冇用，次次都係求其問下小朋友呢排點，叫你匯報，但又幫唔到你，等一個鐘見十五分鐘就叫你下次再黎，如果唔係驚比佢close file, 萬一讀小學時有特別支援的需要，真係唔會再去見 :tongue:

ultramom 寫道:
各位,
sorry, 不過真係想係度"呻"一下...
  

678

Stella & kawai
先斬後奏之後都有排"哦" , 種感覺就係好似~~我係孫悟空, 佢係唐三藏, 佢d 金剛經真係頭都痛埋. 仲煩過我老爸架........不過我會努力, 比d時間搵多d 理據去support 買, 去拎番張公仔紙比佢睇先, 至平時就去買.

kawai
哈哈 ~ 你放心, 我知道左你地個價,  我就緊係唔會咁老襯! 最多咪唔買!   

chanchanboy

Let me briefly report my son's last visit to Dr. Trodd on Saturday.

After the DMSA, my son was terrible ... hyper, sleepless, silly talk, silly laugh and tantrum etc.  So again this is the yeast problem.  Dr. Trodd said yeast problem is unavoidble e.g. the whether in HK is humid, hot etc.  My son has 2 rounds of Duflican in September.  So now he has the 3rd round.  Dr. Trodd said it was safe and the dosage is only half of recommended.  He said for Nystatin, the effect is slow.  

There is a funny scene when visiting Dr. Trodd.  My son was playing toy in the waiting area.  Then we entered the office, Trodd said "Wa he is looking good."  I replied "Not really."  Then my son suddenly 圍住張圓椅快跑左十幾個圈.

After 3 days of Duflican, my son resumes .  After the regression, I can compare and see how much improvement he actually get after 3 months of biomedical treatment.

After 12 days of Duflican, my son will have the 2nd pulse of DMSA, then the blood test.  This time I will try to avoid starch food during the 3 days of DMSA.

kawai

chanchanboy,

因你仔仔有明顯yeast overgrowth症狀,才可以對症下藥.Dr.Trodd有冇話食DMSA幾多個round才再驗重金屬.
另外,你仔仔唔食飯得唔得呀?聽你講佢午飯時在學校祗食白飯,如果連飯都唔食,咪要捱餓.

kawai

各位,

之前曾同其他家長提及除了DAN protocol外,有另外一套療法現已在美國普遍採用,很多用DAN protocol數年而沒有多大成效的嚴重自閉症個案,採用Dr.Yasko's protocol數月內有明顯改進,也有很多痊癒個案. Dr. Garry Gordon & Dr. Amy Yasko 係現時醫自閉症最top既權威,不過佢地那套理論好深奧及複雜,以下資料比大家參考及研究.

RNA Based Therapies

Dr. Amy Yasko's protocol

http://www.autismanswer.com - parent group

ultramom

Hi chanchanboy,
請問為何要"avoid starch" food呢? 咁咪連米粉都唔食得? 我個仔未開始做dmsa, 本來dr trodd都叫我開始做2個round dmsa, 再驗血, 不過因為俾dr trodd話我好停咗super nu-therma, 冇俾阿仔食, 而家要食番另一隻asd-plex, 食一個月後先可以做dmsa.
我個仔又成日都有yeast overgrowth問題, 亦已經食過3次diflucan.  佢唔係好肯食肉, 米粉/薯仔係佢主要食糧, 如果要avoid starch, 請問可以食什麼?

mickeyma

Dear All,

We visited Dr. Lam last Thursday, and he gave us new version of B12 for injection. It is one bottle marked 10mg/2ml. I was told that each time I need to make injection for 0.2ml only. Means : 1000mcg/0.2ml. And I studied the post by Haybmum again before, I think this dosage is even a little bit less than the requested one: 1168mcg?  I tried to make the injection last night, it was much easier and quicker than the old 1ml injection.
Stella, you might ask Mr. Lam to give you the same version next time with higher concentration, but less ml.

Other supplements are nearlly the same as before.

Yu has big improvement in the language. His hyper activities seem to be back to normal again. But still with poor eye contact and social skill with other people except close person such as me... Any suggestion on this points?

Kawai,
I have heard your son had made great improvement and would not be recognized as special child while going out... Any sharing on the healing way which is the most effective?

I have enrolled the piano lesson, Music theraphy, English playgroup and social group in Heephong. He will be very busy next months... so as me la...
And I have enrolled the Parents training course of SI in Heephong as well...
Time is flying so quick, now he is nearlly 3 years and nine month, I really need to try more things to improve his potential and social skill...

kawai

mickeyma,

你唔好攪錯,我仔仔距離痊癒還很遙遠,祗不過出街或去公共場合,如果唔發皮四或唔亂講野,一般唔多覺佢係A仔因佢去飲茶會自己叫野食,食飽又叫埋單等,不過人地未食完佢就叫伙記埋單,又爭比錢,但個袋又祗得一個$10蚊銀,扮晒大人咁.上星期媽咪大壽,發覺佢social skills有進步,好遠見到表姐就主動揮手叫表姐,食飯時坐定定2個鐘都冇攪野,又叫伙記比可樂,飲晒又叫伙記比多少少佢.後來添在兩次,伙記問佢還要唔要可樂,佢就話唔要喇,要清水喎.我家姐仲贊佢乖喎.老實講我同老公都好怕佢特然黎料,攪寸個party失禮人.因為我冇話比家人知仔仔係自閉症,祗有住美國家姐才知.

kawai

Dear all,

Spit Test
Simple Home Candida Test:
Try this simple test to see if you have a candida yeast infection. First thing in the morning, before you put ANYTHING in your mouth, get a clear glass. Fill with water and work up a bit of saliva, then spit it into the glass of water. Check the water every 15 minutes or so for up to one hour. If you have a yeast infection, you will see strings (like legs) traveling down into the water from the saliva floating on the top, or "cloudy" saliva will sink to the bottom of the glass, or cloudy specks will seem to be suspended in the water.

If there are no stings and the saliva is still floating after at least one hour, you are probably yeast infection free. ThreeLac could then be used to maintain good bowel flora and proper pH, and prevent a yeast infection from coming back as we are always exposed to things that may cause it to come back.

Most people fail the test. I have heard that over 80% of the population has candida yeast infections. While using ThreeLac, you can continue to test yourself. You will start to see fewer and fewer strings hanging down.

Click to see more details of Threelac as follows:

Click here

mickeyma

Dear Kawai,
Only this point is very difficult already! It is not possible for Yu ah..
How about your son's performance before while going out to have dinner?

Mickeyma

食飯時坐定定2個鐘都冇攪野

kmwun

kawai

你仔仔好叻噃   我仔仔坐巴士經過隧道，都會好肯定咁話，除咗司機坐右手面的乘客都要俾隧道費。但如果佢坐右手面，我問佢點解又唔使俾錢，佢又唔答淨係繼續講。有時真係俾佢激C！

kawai 寫道:
mickeyma,

你唔好攪錯,我仔仔距離痊癒還很遙遠,祗不過出街或去公共場合,如果唔發皮四或唔亂講野,一般唔多覺佢係A仔因佢去飲茶會自己叫野食,食飽又叫埋單等,不過人地未食完佢就叫伙記埋單,又爭比錢,但個袋又祗得一個$10蚊銀,扮晒大人咁.上星期媽咪大壽,發覺佢social skills有進步,好遠見到表姐就主動揮手叫表姐,食飯時坐定定2個鐘都冇攪野,又叫伙記比可樂,飲晒又叫伙記比多少少佢.後來添在兩次,伙記問佢還要唔要可樂,佢就話唔要喇,要清水喎.我家姐仲贊佢乖喎.老實講我同老公都好怕佢特然黎料,攪寸個party失禮人.因為我冇話比家人知仔仔係自閉症,祗有住美國家姐才知.

mrsphcheung

Dear chanchanboy,
My son will have heavy metal test in this coming January (after finishing five DMSA courses).   

Dear ultramom,
While the child is taking DMSA, he should not eat any starch-related food to avoid yeast overgrowth.  My child has taken CFGF and starch free diet since March 2004.  His diet is fresh meat, vegetable and fruit.  So far so good.  He even gains weight and eats more varieties of food.  

kawai

kmwun,

我好怕仔仔自言自語,講得興奮起來就容易露出馬腳.

mickeyma,

我仔仔以前出街食飯都係坐唔定,一食飽就sir低又或者借尿鈍.可能大個仔左同埋而家好為食,有好野食多數由頭食到尾,所以坐得定左.

HayBMum

mrsphcheung,

真係好難想像唔比飯阿仔食會點，佢係個飯桶，連生病時都要食飯。

kawai,
嘩，你又報左新料比我地，係時候要咪下的料先得。同埋唔該晒，今日已經收到vit C了。