Down Syndrome - Not disable, differently abled..... (Part 2)

hanhanmama

regina,

thanks.  hanhan has music therapy individual session every saturday at school.  

原文章由 reginang 於 07-11-11 00:54 硐表
chelsea ma, hanhan ma
我們在灣仔匯藝坊, 參加了音樂治療小組, sun 10-11am, $1600/8 lessons, 唐氏會安排的, 你會有冇興趣, 另外我也想報敲擊樂班, $50一堂, 好似幾好 ...

hanhanmama

chelsea ma,

not yet.  was told assessment will be done before the end of Jan, 08.  

原文章由 chelsea.mama 於 07-11-10 12:03 硐表
hanhanma :  hanhan 做左評估未呀 ?  選了小學嗎 ?

hanhanmama

catca,

have you visited the website of heep hong society?  sometimes certain classes (similar to playgroups) are held for babies by their experienced therapists/teachers.  also can have a look at their Ching Chung Project (provide private training).  also worthwhile to join their parents- resources centre(s) - could borrow books/toys there; those centres organise a lot of activites.

hanhanmama

candy,

longing to read your blog:

原文章由 lovematthew 於 07-11-8 13:11 硐表
Yes, so busy day & night, Flora have a school exam this week, so......almost going to die...
If I have spare time will go through all yours blog first.
Maybe only can update my blog when long vacation ...

hanhanmama

regina,

read it.  good and meaningful interview.

原文章由 reginang 於 07-11-8 00:46 硐表
ｃｈｅｌｓｅａ　ｍａ，ｃａｎｄｙ
你地上我ｂｌｏｇ睇，我已ｕｐｌｏａｄ左　

ｃａｎｄｙ
那次是小甜甜聚會，在灣仔匯藝坊舉行的．

hanhanmama

candy,

the names are related - Flora and Matthew.  when matthew starts to talk, you can call them FM radio

原文章由 lovematthew 於 07-11-7 13:53 硐表
matthew的表哥有個 "麒"字, 所以為matthew取中文名時選了 "麟"字。"麒麟"兩字, 有relate的意思, 希望兩表兄弟relationship好d & close d.

中間的是 "瑋"字, 我本想用 "葦"字(蘆葦的意思, 我覺得蘆葦雖然不美, 但是 ...

reginang

希望澄澄會喜歡上那個班, 早些同澄澄做下思想整頓, 就算未上堂都帶佢去望下八下, 等佢熟習下環境, 好似初返學咁.

我本來都吾想星期六/日上堂, 不過平日又太趕, 現在揀sun 早上, 又發覺都幾好, 因為街上還未有咩人出動, 好relax.

原文章由 chelsea.mama 於 07-11-11 10:53 硐表
regina :

我暫時唔想找sat / sun 上堂 ,  其實最近我都幫澄澄找一些課外活動 , 因為澄澄的社交比較弱 ,  尤其是大夥兒小朋友在一起 ,  她只會站在一边看著 ,  不會說一聲話

課程還未能找到 ,  不是時間不合,  (  ...

reginang

daddy 決定停左sat個別既音樂治療, 一是astha 對個別與小組確有很大分別, 前者要浪費時間(=$$$)去熱身,後者有其他小朋友一齊上, 對她好似比較湊效.二是因為金錢問題啦, $400/30mins, 現在擔子大......

原文章由 hanhanmama 於 07-11-11 16:55 硐表
regina,

thanks.  hanhan has music therapy individual session every saturday at school.  

catca

thnx, just called them today. they provide excellent resources for parents for sure.

longing to read your blog too.

原文章由 hanhanmama 於 07-11-11 17:05 硐表
catca,

have you visited the website of heep hong society?  sometimes certain classes (similar to playgroups) are held for babies by their experienced therapists/teachers.  also can have a look at the ...

chelsea.mama

借來訴一訴苦
經過昨日的第一堂 ,  想<融合>的心動搖 ,  就算是3歲-6歲的課程 ,  對澄澄來講仍是難 ,  而且覺得那位老師好像不太理睬澄澄 , 記得閑閑媽說過有個朋友女兒 ,  雖然小朋友學習不明白,  仍讓小朋友進融合學校 .  
好像有點洩氣.

hanhanmama

catca,

少少心得:

-要投其所好, keep on observing what she likes and dislikes. use the things she likes as motivators e.g. she likes to see 發光object, so can use 閃燈玩具or 投射玩具. she likes human face, so can use a mirror or you sing to her so that she watches you.  try eye fixing first then eye tracking.

-多感齊用, e.g. vision + 觸感. make her lie down, hold her hand up so that she can see it, let her touch or hold something (try different texture), guide her head to see what she is holding or touching. vision + hearing - 閃燈musical toy.

- when hanhan is bb, I tried to massage her feet as well.  you can borrow books about foot massage from the library.  also spine has a lot of connecting nerves.  can use a small ball (try different texture) to roll along the spine but always watch Janet's respone: stop if it's too stimulating.

- be creative always.

hanhanmama

chelsea ma,

you have done a good job already - finding opportunities for chelsea.  don't give up.  it takes time.

原文章由 chelsea.mama 於 07-11-17 19:11 硐表
借來訴一訴苦
經過昨日的第一堂 ,  想的心動搖 ,  就算是3歲-6歲的課程 ,  對澄澄來講仍是難 ,  而且覺得那位老師好像不太理睬澄澄 , 記得閑閑媽說過有個朋友女兒 ,  雖然小朋友學習不明白,  仍讓小朋友進融合學校  ...

hanhanmama

regina,

your maid arrived already?

reginang

經hanhan ma 提醒左, spine 的按摩.......
astha 2歲前我除了給一般的身體按摩, 再會用一種叫"castor oil" 來按spine 那個部位.

原文章由 hanhanmama 於 07-11-18 18:21 硐表
catca,

少少心得:

-要投其所好, keep on observing what she likes and dislikes. use the things she likes as motivators e.g. she likes to see 發光object, so can use 閃燈玩具or 投射玩具. she likes human  ...

reginang

我想我真的有產後抑鬱.......
工人星期五到... 捱多幾天

原文章由 hanhanmama 於 07-11-18 20:40 硐表
regina,

your maid arrived already?

PAKYINGMA

各位媽媽你地好呀, 我個女-柏楹而家啱啱1個月多D, 佢亦係唐氏BB, 我想請問下我而家應該要同佢做D咩呢, 例如有咩活動對佢日後好D呢? 柏楹而家食飽就訓, 我唔知幾時開始要同佢做D運動黎幫助佢日後發展, 我而家只係開D音樂比佢聽, 沖完涼就同佢安摸, 但我好迷茫, 唔知點樣揍柏楹, 希望你地指教一下, THANKS:loveliness:

kitlok

hi,PAKYING
我既唐寶寶希希現在7個月大,
初初我都係以一般bb湊法,冇乜特別!
到希希返早期訓練時(四個月大)我就開始每天同希希做練習!

原文章由 PAKYINGMA 於 07-11-21 12:08 硐表
各位媽媽你地好呀, 我個女-柏楹而家啱啱1個月多D, 佢亦係唐氏BB, 我想請問下我而家應該要同佢做D咩呢, 例如有咩活動對佢日後好D呢? 柏楹而家食飽就訓, 我唔知幾時開始要同佢做D運動黎幫助佢日後發展, 我而家只係開D ...

reginang

你好呀
我個女4yrs old 叫做astha.
關於初生bb 的訓練
你可以跟catca 和kitlok 互相交流
佢地既資料最新
亦可以自己跟唐氏會的社工聯絡
找多些資料
協康會也是一間很好的機構
有很多支援
有需要打電話問我地丫
check pm for my mobile no.

原文章由 PAKYINGMA 於 07-11-21 12:08 硐表
各位媽媽你地好呀, 我個女-柏楹而家啱啱1個月多D, 佢亦係唐氏BB, 我想請問下我而家應該要同佢做D咩呢, 例如有咩活動對佢日後好D呢? 柏楹而家食飽就訓, 我唔知幾時開始要同佢做D運動黎幫助佢日後發展, 我而家只係開D ...

PAKYINGMA

多謝希希媽媽,
我上星期已經見左社工, 佢而家幫我申請同輪候入早期訓練學校, 佢話要最少一年先可以有位, 但我呢一年我要同柏楹做d咩好呢?
Sorry, 我問得太多了, 但我真係好需要你地幫忙: 同埋我好驚錯失左教時間去教柏楹而影響以後既發展, Thanks again.

原文章由 kitlok 於 07-11-21 13:11 硐表
hi,PAKYING
我既唐寶寶希希現在7個月大,
初初我都係以一般bb湊法,冇乜特別!
到希希返早期訓練時(四個月大)我就開始每天同希希做練習!

PAKYINGMA

Hello Regina,
多謝你既回覆呀, 我收到你既mobile no., 真係好多謝你:loveliness: 我下星期一返工喇, 但我都好想參加你地既gathering, 不過我唸我到時都會好忙, 因為我仲有個大女, 而家讀緊P1, 要睇佢d功課同考試, 我希望可以同你地多d聯絡, 希望你地唔好覺得我煩喇  
我已經同唐氏協會既姑娘見過面, 佢地比左好正面既鼓勵我, 我好開心, 但姑娘都係要我同社工聯繫安排日後既一切, 社工話4個月後先有消息, 叫我等, 希望社工真係幫到我喇, Cheers

原文章由 reginang 於 07-11-21 13:18 硐表
你好呀
我個女4yrs old 叫做astha.
關於初生bb 的訓練
你可以跟catca 和kitlok 互相交流
佢地既資料最新
亦可以自己跟唐氏會的社工聯絡
找多些資料
協康會也是一間很好的機構
有很多支援
有需要打電話問我地 ...