好擔心...醫生話BB發展遲緩~~

陸美爸

hinhinmummy, kakab105 & mamee~

我仔仔初初識叫baba, mama時，因發音差不多, 我地成日都分唔清佢想叫邊個, 咁我為有平時都叫老公做baba, 老公叫我mama, 叫叫吓仔仔就越講越好, 但由於多數我叫baba多啲, 所以初時佢都係識叫baba先, 我嗰陣都好唔開心架...但當佢有麻煩/要抱時都係叫baba時, 我就覺得仔仔鍚住我喇(hehee~咁諗會開心啲)......依家就成日叫住我呢

但講起嚟都已經幾個月前嘅事, 之後一直都未有新嘅字講過lu
話說佢近來好鍾意打人, 成日一巴巴咁打我地, 同學仔就俾佢兜頭拍落去, 但mamee講得啱, 佢真係唔打學校嬸嬸/老師喎, 我親眼見過佢用手輕輕摸嬸嬸塊面, 我當時覺得好像"神蹟"一樣呢

呢兩日, 亞仔識得一邊打一邊講埋"打", 唔知值唔值得開心呢......

kakab105你報咗學校未呀？


12312~

俾bb去bb club玩, 真係會有意想不到嘅效果架...我個仔未評估前(未知佢發展遲緩前), 我都有同佢返過playgroup, 有啲動作我教極佢都唔做, 但返playgroup後, 每次都有驚喜俾我地, 雖然只係啲bye bye/拍手之類嘅小動作, 但都足以令我同老公開心好耐喇 :

bb唔舒服係唔打得針架喎~我個仔流鼻水剛好返, 都俾佢過多排至打流感針喎~

陸美媽

kakab105

陸美媽

報左一間近近地既半日班(即唔洗轉車)，睇下佢番成點先，不過呢間冇兼收位，主任話盡量幫下仔仔喎!

你就好啦 起碼都有得mama , 我仲係叫做 「呀」 咋! :

12312

hinhinmummy, 陸美爸:
我問過醫生說 沒有發燒就可以打, bb前2日的嘔好返啦.
昨天, bb 婆婆話: bb不肯去bb club 玩, 要留在家幢玩"保齡球, 讀書,听童謠",    

mrsphcheung

Dear all,
Just want to tell you not to let your young children inject 流感針 as the vaccine has some chemical ingredients which may cause child autism.  In fact, most of the paediatricians in USA and Canada do not recommend infants to take the vaccine.  Some doctors advise all the family members to take the vaccine rather than the child.

hinhinmummy

mrsphcheung

我無聽過話流感針會導致小朋友有a-features, 不過我始終覺得, 要比d細菌佢地'享受'過先會大, 無需特別去打流感針, 所以我對仔女, 不好話流感針, 連水豆針我都無打.

但一定要打果d, 我梗係打晒啦.

mrsphcheung

Dear all,
Although genetics appear to play an important role in causing some cases of autism.  Recent research studies find that environmental factors may also lead to autism.

The following is an extract from an American Autism Research Institute:

POSSIBLE ENVIRONMENTAL CAUSES OF AUTISM
Although genetics play an important role in autism, environmental factors are also involved.  There is no general consensus on what those environmental factors are at this point in time.  Since the word “autism” is only a label for people who have a certain set of symptoms, there are likely to be a number of factors that could cause those symptoms.  Some of the suspected environmental causes for which there is some scientific evidence include:

1. Childhood vaccinations:  The increasing number of vaccines given to young children might compromise their immune system.  Many parents report their child was normal until vaccinations.

2. MMR Vaccine:  Evidence of measles virus have been detected in the gut, spinal fluid and blood.  Also, the incidence of autism began rising significantly when the MMR was introduced in the US (1978) and in the United Kingdom (1988).

3. Thimerosal (a mercury-based preservative) in childhood vaccines.  The number of vaccines given to children has risen over the last two decades, and most of those vaccines contained thimerosal, which is 50% mercury.  The symptoms of mercury poisoning in children are very similar to the symptoms of autism.

4. Excessive use of oral antibiotics:  can cause gut problems, such as yeast/bacterial overgrowth, and prevents mercury excretion

5. Maternal exposure to mercury (e.g., consumption of seafood high in mercury, mercury dental fillings, thimerosal in RhoGam shots)

6. Lack of essential minerals:  zinc, magnesium, iodine, lithium, and potassium may be especially important

7. Pesticides and other environmental toxins

8. Other unknown environmental factors

Source:  http://www.autism.com/ari/

ClaudeeMa

Let me post some updates of my son.  After 6 weeks of waiting, today my son finally did the assessment at the child assessment centre.  The result is that he has overall delay of about 8 months and with some a-features.   

The doctor only suggested me to apply for early training and ICCC place for him.  SCC place is not needed.  But it takes about 1/2 yr to wait for the training and probably need to wait until Sept 2005 for the ICCC place.  Currently I am taking him to a private ST every 1 or 2 weeks, and am still waiting for the training service from Heep Hong (the $350/hr one).  I hope by attending such services, my son can catch up a bit more before he is assigned the ICCC seat later.

Got to go now.  Share with you next time!

All of us, let's add oil!  :evil:

hinhinmummy

ClaudeeMa

比心機d, 不好灰心, 我越看越覺得點解依家d醫生, 係不係都話個小朋友有a-features? 係不係見佢發展遲緩, 不講野, 就話佢有a-features?

anyway, 點都好, 我相信只要有適當的training比佢地, 佢地會好快pick up, 好似軒軒甘, 佢只係上左3個月st, 同埋6堂度幼兒訓練(協康), 可能再加上返左學(普通位), 佢呢幾個月真係進步左好多.

軒軒今日病了, 好慘, 中耳炎+鼻竇炎, 再加氣管炎, 燒到103度, 學校老師打電話叫我湊佢返屋企看醫生, 不知點解一黎就3種炎?  不通d菌真係甘勁? 好似返左學之後, 都一直係甘看醫生.  好慘

kimbear

678,

雖然8月/9月才開學,但派位是大約一/二月(可聯絡社工confirm),所以加choice要before 派位前.

我都係暫時選了一間,是我囝囝現在返緊的(普通位),我之前只選一間的原因是怕囝囝難適應,佢情緒不好,很容易發炆憎,一吳鍾意會咬人,最初開學都要工人陪了個半月,e家才好d,另一個原因是因為如果派到比你,你吳要的話,好似會當棄權,所以吳敢亂咁揀,又吳知邊間好,呢排我就係煩緊e個問題,好無選多兩間,不過我聽日諗住去其他有混合位的學校visit吓,見下d老師,校長,睇下佢地有無愛心,對有special need 的小朋友的包容情度如何?

12312

hinhinmummy:
今日我媽媽bb去一個新的兒科醫生看傷風,感冒, 個醫生我個b : 26個月重講緊bb話 & 不看他, 說bb懷疑有 "自閉証"
現在 有2個醫生都說bb 有自閉証, 現在 "協康"未check, 我好驚真是 "自閉証" , 因我先生都是 2.5y 先識講野, 而bb喜歡自己玩, 不喜歡和其它小朋友, 甚至bb club 都不喜歡.  
但另一醫生了下我bb, 我bb又想同人地玩, .....

ClaudeeMa

hinhinmummy,

Poor hinhin!  How's he now?  Hope he can get well very soon.  Let him rest at home for some days until he fully recovers before letting him go to school again!  Yes ah, d菌真係好勁 ga!  But it is also unavoidable that kids will be sick easily once they start going to school.  My son also got sick very often at the first 2 months of his nursery.  But now is a lot better la, touch wood!

Frankly, although before the assessment I was quite well prepared psychologically (by getting much information from BK mommies' sharing here), it is still hard to believe that my son also has a-features (I just thought that he has speech delay!).  But i know I must accept the fact, and do my best to help him from now on.  

I actually have submitted some k1 application forms to some normal kinders.  My plan was to let him go to normal kinder to study k1 next year, and let him take training on Sat.  But now I think my plan is not workable la.  The doctor advised us that it is better to let him go to ICCC first.  And hopefully he can catch up with the other normal kids before he goes to P1.  now no use la, d application forms....  

陸美爸

hinhinmummy~
希望軒軒快啲好番啦~
我仔仔都係呀, 自從10月頭勁痾勁嘔後, 就一直未停過見醫生, 到今日仲食緊葯呢~始終俾佢返學都預咗喇, 小朋友之間交义感染, 一樣病未好番, 又"野"第二樣......不過都好心痛喲......

由其是下星期天氣轉涼, 各位mama都要注意喔~~

kakab105~
有時間入嚟講吓仔仔返學點喎~

12312~
你bb平時係咪比較少接觸其它人呀？

ClaudeeMa~
你仔仔依家有無返學架？如果無不如考慮俾佢返學都好有幫助架~正如hinhinmummy所講, 我都覺得香港所定嘅標準都幾高, 好似好難至達到標準呢...

陸美媽

ClaudeeMa

陸美媽,

有呀! 仔仔依家有返學架!  He started nursery in June this year.  It's his class teacher reminded me that he was a bit different in class after he started nursery for 2 months, and suggested me to take him to do assessment ga.  Otherwise, I'm still 'mong sing sing' now.....  

hinhinmummy

ClaudeeMa

軒軒岩岩3歲. 尋晚半夜不知係不係幸苦得濟, 點幾起左身, 不肯訓番.  你同我差不多, 軒軒未評估的時侯, 已經有普通的k1收左佢架啦, 點知醫生話佢要讀scc, 所以無讀lor.

12312

不好太介意自閉症呢個'醫學名詞', 自閉症的範圍好廣, 有d發展遲媛, 叫佢個名不望人都話佢有a-features, 但係呢d小朋友加上適當的訓練, 佢地會有好轉的.

軒軒初初都係叫極都不望人, 有人返屋企, 理都不理. 依家好好多啦, 叫佢會望你, 有人襟鐘, 會走出黎看下邊個, 如果是我, 好似打劫甘, 摷晒我d袋, 看下有無野買比佢tim.

kakab105

陸美媽

我會架喇！不過要等一月中呀! 佢家陣都係去暫托同埋playgroup咋! 我仲等梗政府比我仔仔驗眼同耳仔!!

hinhinmummy

我有比仔仔打流感針，舊年有今年都有！水痘都有打。 佢上次出玫瑰疹我都好驚喇!!

ClaudeeMa

hinhinmummy,

May I know the Heep Hong training that hinhin is taking, is it 自閉症兒童訓練服務 or just the 幼兒訓練服務?  I have been queuing for the 幼兒訓練服務 only.  Should I apply for the 自閉症兒童訓練服務 as well?  What should I do?

Also, does the kid who has a-features entitled some government allowance?  If so, how should I apply?  The social worker didn't mention anything about the allowance at all.  I really wish to apply for the allowance as taking my son to private ST as well as 幼兒訓練服務 every week really cost a lot of money ah!  :cry:

12312

hinhinmummy:
"自閉証" 對我黎說, 都幾hurt, 不過我懷疑我都有自閉証. 因在我細個的時候, 我都是自己一個人玩, 其實我就最怕bb吾識同人相處, 怕面對其它人.
今日去 "根德園"面試, 吾知點解, 一入校園, 都未排隊就已經喊啦, 全場都是 ee呀呀, 極之不喜歡間學校, 我都吾知bb點解咁抗拒學校. 哎.... :cry:    

hinhinmummy

ClaudeeMa

軒軒係協康係幼兒訓練, 我從無聽過有自閉症兒童訓練服務.  我都排左幾耐, 都幾個月.

我果時做完評估, 見完社工, 都無提過有特殊津貼, 係我見到bk的媽咪話有, 我主動問醫生架, 甘醫生話ok, 話叫個社工搵佢, 甘我咪叫個社工搵醫生law. 雖然個名不好聽, 但係每個月多千零蚊, 好過無, 依家軒軒的訓練+學費, 真係好貴.

12312

不好再比你個仔去讀名校, 真心的, 因為名校多數好專重成績, 如果你個仔有d跟不上, 佢地不會有耐性/人手去跟仔仔的.  其實我覺得幼稚園讀邊間都無所謂, 名不名校都影響不到讀小學既.  好似我個女甘, 依家都讀到一間有d名的小學.

我諗呢度每一個家長, 對'自閉症'呢個醫學名詞都係佢地心中的一條刺, 但無論點都好, 呢個只不過係一個醫學名詞, 正如輕微小小的哮喘, 有個好聽小小的醫學名詞"氣管敏感", 接受到同接受不到呢個名, 我們都係要做同一樣野, 比training個小朋友, 多d關心佢地, 改變佢地固執或者不好的一邊.  如其係度不開心/喊, 不如更加積極去面對, 係未?

我講到好似好叻甘, 其實果時我未又係喊到眼到腫晒

加油啦!

hinhinmummy

軒軒好慘, 不知係不係喉躘痛, 連佢最心愛的奶都不肯飲, 想飲水, 拿住隻杯發牛豆, 飲一啖就喊, 跟住就lu返出黎, 比麵包佢食, 就一路食一路喊.

餵佢食藥還慘過同佢打仗, 死都不吞, 連佢鼻都不得, 開埋冷氣都成身汗(我同老公).

佢由2點訓到依家(5點), 想叫佢起身與不叫之間, 不叫, 又驚佢今晚不知幾點訓, 叫佢, 又驚佢食左藥好累, 想比佢休息多d.

同埋佢訓左覺, 先知, 原來真係無mug野做, 軒軒就是我的一切?

kakab105

all

請問你地d 小朋友 驗耳仔係訓左驗定點呢？