呢度有無亞氏保家症兒童家長??

rachaelmum

Dear Siu Ming & Sjmama,

絕對同意!     

知道您們的兒子在學校適應得很好, 衷心為您們感到高興!
我自己的女兒都是一個相當"惡攪"的Asperger小朋友, 但和您們家有2 個special talented kids相比, 個中的辛苦也不是甚麼一回事了。

希望日後會聽到您們更多的好消息, 大家努力呀!

IJJK

Thank you very much for all of your sharing! Asperger is a new term for me, so your sharing is very valuable to me.

I pray to God giving my husband and I patience, love, strength and wisdom to bring up my son. This is a unique assignment from God!

I 記  

IJJK

Dear parents,

I have one more question: where do you bring your kid to do the test? Is it a long queue to wait for a place at Gov't clinic?

Thanks in advance!

I 記

Siu_Ming

Dear rachaelmum and IJJK,

There are so much so to learn!

I like the term "special talented kids".  Everyone of us is talented and gifted.  And everyone of us deserves a good, happy and meaningful life.  It's a matter of attitude.

Stay hopeful and find ourselves in love!  For whenever there is great love, there will be great miracles!

God bless you too!

Siu_Ming

pamam

IJJK,

please see pm. I think you can also do it at Heep Hong. But I don't know the exact costs and arrangement.

Pamam

IJJK 寫道:
Dear parents,

I have one more question: where do you bring your kid to do the test? Is it a long queue to wait for a place at Gov't clinic?

Thanks in advance!

I 記

kmwun

IJJK

我仔仔係在政府智能測驗中心做評估的，首先會填問卷見姑娘，有需要會再排期見醫生做詳細評估。我見完姑娘等大約一個月見醫生。等的時間長短要視乎當時等候人數，同小朋友的情況。但如果需要政府提供服務，都係經政府智能測驗中心做評估較直接。做完政府智能測驗中心之後，再排期見個別治療師做評估。因為排服務要等一段長時間，同時亦因為當時完全不懂仔仔要那種治療，於是再帶仔仔去協康青蔥計劃做評估，但印象係政府智能測驗中心比較仔細，可能協康做評估係按時收費，唔好意思慢慢做。等到政府服務之前就在協康俾錢做言語同職業治療。

IJJK 寫道:
Dear parents,

I have one more question: where do you bring your kid to do the test? Is it a long queue to wait for a place at Gov't clinic?

Thanks in advance!

I 記

hinhei

我之前同個仔係政府做後,再到最近到私人的做了韋氏.
跟住我問返個仔政府做的同私人做的有甚麼分別,佢話一樣.......................(佢得六歲).但以我記得所用時間不同,私人用係小朋友的時間比較長啲囉!
但份報告就一定係私人詳盡,私人個份可以知埋個仔有乜長處短處,有埋分數!咁樣可以知道點樣幫個仔多啲!
不過都係係返學方面,情緒方面好似無乜點提點樣去做.
可能我個仔問題唔係咁大吧!(我自己覺得)

hinhei

我想問吓你哋若有返教會,小朋友有無問題??

IJJK

Dear Hinhei and kmwun:

Thanks for your info. I will check with Heep Hong and queue up at the gov't clinic

It's a headache to bring him to Sunday school. He has attended 2-3 times,then he rejected to enter the room afterwards. Actually, he did not have any bad experience there. I am still trying hard to persuade him to have a try again.

ckf

TO ALL :  for your reference

http://www.hiddenrecovery.com/index.html

http://www.danasview.net/parentin.htm#understand

hinhei

你哋小朋友幾大?

kiukiu

各位:
我個仔而家4歲，尋日見完兒童體能智力測驗中心，個醫生話我個仔有輕微自閉症。其實上年巳經見過一次，因為當時發現佢唔同小朋友玩，成日跟住大人，而當時醫生話佢唔似有自閉症，可以觀察多一年，係呢一年間，佢都有轉變，肯同小朋友玩，但係情緒好波動，好易發脾氣，同埋成日打人，又成日跟人講嘢。而尋日個醫生話佢應該係屬於亞氏保加症，因為佢講嘢好叻，佢喺１歲左右開始學講嘢，之後就識講好多嘢，但係佢喺社交同專注力好差，佢唔識同人溝通，好多時都唔望人，除非佢自己有問題想問你，或者你同佢講到啲佢有興趣嘅話題，如果唔係，佢唔多啋你。但係醫生話都要等埋安排見語言冶療師和物理冶療師，先至可以俾個報告我。跟住佢即刻安排我見醫務社工，咁社工建議我排期報EETC，但係要等成年，另外又安排我申請小朋友出年讀I位（只不過係未雨籌謀，因為驚小朋友喺呢一年又有咩變化，適應唔到而家讀緊嘅糼稚園），仲有佢refer我去聯合醫院兒童精神科嘅兒童及青少年日間服務，裏面有個Training係改善小朋友社交障礙，為期８個月。
我想問有冇人有類似經驗，同埋喺呢段期間，我可以做ｄ咩，定還是等見埋冶療師，攞埋Final Report先再決定。希望你哋俾ｄ意見我。

hinhei

我個仔做完評估,見咗臨床心理學家話佢亞氏保家.佢就叫我去排兒童精神科,同去協康,小童群益會睇吓有冇啱我小朋友.但我結果全部都無做.因為我仔表姐剛好工作係有關呢方面(小朋友),佢話唔需要去睇精神科,所以我結果乜都無做囉!!

我個仔................
佢四個月前係一定唔會同你有目光接觸.你去邊邊望佢,佢就張個頭擰去另一邊.BB成日笑,佢就,,,,,,,,,,,,,想佢笑係件難事!
我個仔就成兩歲先開始講嘢!不過一講就大件事,無停!
歲幾巳覺得佢唔識同人玩,初覺得每個小朋友唔同,但越大越見特別,佢好大動作!!
兩歲入咗幼兒園,因無時停,幼兒園叫咗我去評估.因當時亞氏保家唔係咁多人了解,所以學校係以為佢過度活躍.結果評估結果係無事.
但表姐巳同我講我大仔可能係亞氏保家..............
到五六歲,學校聽了有關亞氏保家講座,覺得我仔似,再叫我返去評估.結果如之前所說.

可能我個仔有佢表姐幫,所以情況唔係太差.現在升小學,剛好班主任又教過一個利害過佢的亞氏保家.所以好體諒.跟住學校都做好多嘢幫佢,呢點係我估唔到,因我覺得小學係比較冷淡,仲要係一所Brand one小學.
好感恩!!

佢現在的情況,人少少無乜嘢,一人多就............有點失控囉!
不過佢都識到朋友仔,係佢間中有啲古怪行為要提佢!!打人.........佢以前幼兒期即一至兩歲都有,不過返咗學就無啦!

kiukiu

hinhei:
好多謝你嘅回覆!你可唔可講吓點解佢表姐話唔需要見兒童精神科？係唔係有咩壞處？另外我想問你個仔之前係唔係喺智力測驗中心做評估？咁你知唔知照我個情況，醫生話佢係輕微自閉症，咁係唔係確定啦，定還是要等埋見冶療師先至知。

hinhei

因為表姐話去精神科都係浪費金錢和時間,佢話佢哋將會講啲方法去點樣幫個小朋友,而個啲醫生所講的,都係好.......死板的一堆說話.表姐都識,不如佢有時間親自來同我仔跟進!表姐比個啲醫生更了解我個仔!

我同你一樣,都係臨床心理學家評估佢係.所以佢咁講得,應該係!若你唔方心可以見埋冶療師先!我個仔就出咗張紙,寫明係評為"亞氏保家".當時我都好似你咁諗,我就問表姐,佢都話係架啦!後尾最近又去咗做IQ test,主要唔係想知佢智商(表姐見意),係要睇吓佢有乜強,有乜弱!跟住我問表姐個位幫我仔做test的人有無話我個仔係唔係,佢都答yes!

rose,sara

i am afraid my daughter has 亞氏保家症,i had gone tuen mun hospital 做評估 and see臨床心理學家,but the results hasn't come out yet.i know there are less courses and materials to support this.i really wotty about it,i don't know what i can do in order to prepare for her.

sjmama

Hi,
You may check with Project Aspire of HKIEd. They provide services solely for Asperger (亞氏保家症) kids.
http://www.ied.edu.hk/aspire/

rose,sara

however,i live in tuen mun....is that only for tai po residents?
i haven't any轉介信rightnow,can i contact them for help by myself?

sjmama

Yes, you can contact them by yourself.

ckf

rose,sara :

Check out all these links :-

http://www.aspergers.com/
http://www.aspergerssyndrome.org/
http://www.childdevelopmentinfo.com/disorders/asperger.shtml

http://www.php.com/

http://www.campmakebelievekids.com/AspergerSyndrome.htm
http://www.autismpnhk.org/main/
http://www.autism-pdd.net/autism-treatments.html