A parent's sharing on autism treatments

a328

我大口環排咗2 months only.

個online training 我先生just start the course, I dunno it is sth u want or not, we also not sure it fit u or not, may be u have a look first.

Floortime is diff from ABA, but I think it fit parent more.


Www.stanleygreenspan.com/portal/

a328

另你可先去以下website 先了解下：

Www.icdl.com
Www.autismspeaks.com

a328

協康都有，你打去問下

Ononma

A328, 非常多謝你咁有心，仲有分享咁多有用資料

keep-calm

原帖由 HungMa2 於 13-09-03 發表
Ithink most of us experienced the same situation as you have if their childrenare over 8. But few p ...

I'm struggling shall I quit my job to teach my son by myself.... We are working parents and my son is currently taken care by domestic helper +/- grandma. I teach my son every evening for 2-3 hours and whole day for all weekends. I read books and forums to brush up my skill to play with my son.... Yet, I don't see much improvement over the past 5-6 months. Am I suitable to train my son? Even I quit my job, would it really makes a big difference? Is he really salvageable? .....And about the "Louise programme" , I ve read mrs wong's books but I find the skills difficult to implement. Perhaps It's a must to attend the course? Anyone can share your view about the course?

a328

keep calm, why dun you attend the course outside as well train at home at the same time? of course if u can afford to be full time mom that will be great .

I am a working mom as well, my son will attend normal K school in the morning and during the afternoon, i let him attend some social course and SI course etc, then i will keep calling those centre to update his progress, sometimes will take day off and go to the centre with him and talk with the trainer too.  you can also get more knowledge and skill from them.

I suggest look for some centre with close to you to attend some class first, it is defintiely better than just facing domestic helper and granny at home.

Even u quit your job, you must take him to the park or playhouse more often, let him interact with other kids more and encourage him, some social skill cannot solely be done / trained at home. let him expose to the public. there must be some good centre outside, just keep looking.

Add oil, you are not alone.

a328

let me update my son progress:

He is attending in normal K school now, so far Ok, at least never receive any complaint from teacher, and he enjoy going school.

After the intensive training for 2 months:
- his eye contact improve alot
- more interact with people and more sustain
- less temper
- learn how to control
- like to make friend with others and play close to friends, lot of interaction when playing.

Thank God he show the improvement and most of my friend say did feel any feature on him now.

By the way, I have use coconut oil for his meal now, heard that it is better, no harm to try.

Add oil all parents!!

keep-calm

A328, glad to see your kid's favorable progress! May I know how you deal with your kid's temperament ? My son lost temper easily. He dislikes training and refuses to follow our instructions. It's difficult to make him seated. He keeps crying and hurt himself at times. It's so difficult to teach.  On one hand, I don't want to give him positive feedback for such undesirable behavior, yet, if i am strict , I'm afraid it will break our bonding... I 've talked to his PST, she said the prime thing to deal with my son is his poor emotion control, yet , not much useful tips was given.....

a328

how old is your kid?

I think he is now less temper is he is able to express how he feel and what he want his verbal skill is not such mature, they he will lose temper easily because he dun know how to express.

Furthermore, I will try out wny he lost his temper, and expalin to him how to seal with it if have same situation happen again. I encourage him to express and ask, and I will explain to him: i understand your feeling, becuase you feel ........, but actually you cna handle it better next time by...'

actually my son still have some temper, and i am also looking for related course outside and hopefully he can improve more.  

About the training, actually you can try to deelop through his interest this si sth call  DIR floortime, that mean you train ur kid base on his interest, he lead the game actually, to boost his confidence and it can enable more interaction and development. it is good for parent to trian at home as Parent is the only person who know his kid interest.

I just tell you my personal experience, I hope it help.

'

a328

almost 9 month since my last post, below is my son progress:

K1 performace:
- can follow instruction, willing to follow the peer
- like to sing and have good reading skill
- like to share his feeling, like to ask out feeling
- good in eye contact
- less temper
- good in sport

each time when i see his progress, my tear will come out.

But now we have some problem facing:
his hand mobile skill is weak, but not serious, weak in writing of course, need to  keep checking as i am afraid he might be dyslexic in handwriting, but i will not give up, cause it does not mean he is less worthy person.

add oil other parent

Destination121

You mentioned that the assessment said he is not autism right?  Why would he still to undergo the training?  Thanks.

王王爸爸

感謝a328sharing

Chujai

I think you did great! I did more or less the same thing with my son. I still believe doing more intensive training at home is a lot better than just attending courses.

王王爸爸

'many therapy treatments like biomedical, acurpuncture, natural therapy, music therapy, ...taking many supplements...for many years. The effect is not significant or no effect. I've realized that some scientific-like therapies are in fact not scientific. The so-called experts are really over-priced the treatment fee for making huge money from this group of parents. To a certain extent, it is not very moral.''

Agree, Agree, Agree!!!
孩子真正有效治療師就係我們家長！

大家努力！

a328

回覆 Destination121 的帖子

doctor suggest we keep the training to avoid his station getting worse

honok2010

我囝囝現在22個月，脾氣超大，無eye contact, 經常和4歲哥哥爭玩具，用車扔向哥哥頭！
钟意車輪，喜歡在家跑，喜歡哼唱，上playgroup老師說懷疑他有自閉！
昨日帶了他去蓝田CAC見姑娘，要等約一年時間才能見兒科一doctor.
我想找私人做評估和上training, 因為我的情緒也控制不到自己了！
謝謝各位意見，那个私人机搆好和快呢？

ct926

協康會，其他post也有提及不同的機構，你上網找找。22個月還少，盡快去評估，如需接受治療，2至3歲是治療黃金期，會有很大的幫助！媽媽自己也要樂觀積極面對，才能幫到孩子啊。！

a328

step or kidsmind is also a good option to consider. just take the training asap is fine. no matter at home or attend the course outside.