Down Syndrome - Not disable, differently abled..... - 特殊教育

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教育王國 › 討論區 › 特殊教育 › Down Syndrome - Not disable, differently abled.....

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樓主: reginang	go [唐氏] Down Syndrome - Not disable, differently abled..... [複製鏈接]

reginang

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發表於 05-9-16 10:59 |只看該作者

Re: Down Syndrome - Not disable, differently abled.....

good morning
多謝你的讚美

我成日都阿Q,我選擇開心過生活,所以多數祗見到astha叻個一方面,有時見佢笑到見牙唔見眼已經令我好開心,actually she is very cheeky

佢既ng ng ..... 係呀,朝朝都攪得掂,真係少左好多麻煩架

如果astha想食野,佢可以一連串講ba ba ba 十幾次

而且仲好有耐性咁不斷對住你講tim

我覺得佢呢方面係好堅持,又識睇人面口,如果比我閙,佢會別轉面唔望我

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reginang

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發表於 05-9-16 11:03 |只看該作者

Re: Down Syndrome - Not disable, differently abled.....

200% agreed

hanhanmama 寫道:
..... really not easy to be the mother of a special child.

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reginang

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發表於 05-9-16 11:04 |只看該作者

Re: Down Syndrome - Not disable, differently abled.....

hanhanmama
你地有有入唐氏會

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reginang

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發表於 05-9-16 11:07 |只看該作者

Re: Down Syndrome - Not disable, differently abled.....

big-head
thank you very much

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hanhanmama

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發表於 05-9-16 13:42 |只看該作者

Re: Down Syndrome - Not disable, differently abled.....

  regina,

yes.  when han han was a baby, i, sometimes with my husband, occasionally attended some talks held by DSA.  after han han's 3 years birthday, we decided to let her join some activities so that she could have greater exposure and more chances to mix with children of her age (she would cry easily when children laugh, cry or shout).  she joined Do Re Me (i think you know what it is) twice and is going the third time.

i hope i can be like you - so positive and

. i think one reason why han han cries so easily because her mama also cries easily

but i'm improving

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reginang

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發表於 05-9-17 00:15 |只看該作者

Re: Down Syndrome - Not disable, differently abled.....

hanhanmama
do re me - 我知呀,本來我都想astha參加,不過我最後因為懶而放棄左,我家在北角呀,推住車仔坐巴士去好麻煩

以家星期六比astha近近地係天后返playgroup,仲有另一位唐氏弟弟toby一齊上堂,睇下佢地兩個會否擦出火花

咁呢個do re me音樂治療好嗎,han han上完之後有什麼得著,可否分享一下

goonite

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reginang

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發表於 05-9-17 00:20 |只看該作者

Re: Down Syndrome - Not disable, differently abled.....

hanhanmama
sure you hope you can be like me

i'm positive but also a fat fat mother ar

you better think it again

i belive time can cure our pain, so take it easy right

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hanhanmama

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發表於 05-9-17 21:13 |只看該作者

Re: Down Syndrome - Not disable, differently abled.....

regina,

not much impact on han han yet because we have joined the activity for a short time only. the therapist said normally one can see the impact when the child has music therapy for six months. but doesn't matter la as my purpose is to let han han have more different life experiences. also after joining i have a picture of what music therapy is and can learn some technique to help han han, e.g. through singing can teach han han body parts, clap hands, nod head etc.

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hanhanmama

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發表於 05-9-17 22:02 |只看該作者

Re: Down Syndrome - Not disable, differently abled.....

i'm fat too. actually i was fat before han han's birth. then after she was born, i became thinner. then since last october i have become fat again. maybe this is a sign that time is curing me.

reginang 寫道:
hanhanmama
sure you hope you can be like me
i'm positive but also a fat fat mother ar   you better think it again
i belive time can cure our pain, so take it easy right

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reginang

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發表於 05-9-17 23:58 |只看該作者

Re: Down Syndrome - Not disable, differently abled.....

hanhanmama
希望下次有機會參加do re me會同你地一齊呀

我都抱著比astha去參與多些群體生活而做出發點,學到幾多我地都控制唔到,加上現在屋企祗有佢自己一個,每有機會我地都參加好多聚會,現在astha已有好多朋友仔啦,佢地一齊玩得好開心架

我同老公都有心再要多一個小朋友(最好係女啦!!!)

咁你地有冇什麼計劃呀

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reginang

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發表於 05-9-17 23:59 |只看該作者

Re: Down Syndrome - Not disable, differently abled.....

delete

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chelsea.mama

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發表於 05-9-18 08:36 |只看該作者

Re: Down Syndrome - Not disable, differently abled.....

hanhanmama 寫道:
chelsea.mama,

when han han 'ng ng' in her potty the first time, i took a photo of it

我吾記得照相!!!!我淨係好開心咁周圍拎俾屋企人睇!

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發表於 05-9-18 08:38 |只看該作者

Re: Down Syndrome - Not disable, differently abled.....

regina, hanhanmama:
放幾日假, 你地去边度玩呀? 不過天氣吾好!

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發表於 05-9-18 13:21 |只看該作者

Re: Down Syndrome - Not disable, differently abled.....

chelsea ma
我地同家人星期五做左節,其餘3日假期都冇特別安排節目呀,加上呢輪自己好似d坐骨神經痛,坐又唔係企又唔係,總之周身唔自然 :cry: ,執下間屋之後可能都會帶astha去公園玩下囉

唔通呢d就是我真係年紀大機械壞既徵兆

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hanhanmama

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發表於 05-9-18 14:53 |只看該作者

Re: Down Syndrome - Not disable, differently abled.....

regina,

aiyah! i have too many worries - what if the second child also has some problems; even if he/she is o.k., would it be too burdensome to him/her to have a sister like han han; i also doubt whether i have the energy and time to look after one more child

oh, why better girl?

you like girls more?

reginang 寫道:

我同老公都有心再要多一個小朋友(最好係女啦!!!) 咁你地有冇什麼計劃呀

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hanhanmama

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發表於 05-9-18 15:03 |只看該作者

Re: Down Syndrome - Not disable, differently abled.....

chelsea.mama,

we went to botanical garden (garden road) yesterday morning. when we were there, most of the animals were sleeping, but not the mosquitoes

. today we didn't go out. tomorrow: it all depends on the weather. if it rains, we may go to some shopping mall (we usually go to ifc in central). if the weather is fine, we may go to some park. my mother + brother & family are coming tomorrow evening for dinner.

how about you?