Down Syndrome - Not disable, differently abled.....

cfw

各位媽媽你地好

我一路都有睇你地既留言..好開心可以同你地分享
最近我收到評估中心社工既電話..話小朋友要半年先有
早期訓練既位，其實你地認為而家應該出去搵私家做訓練
定係等早期訓練中心呢？
我又不太清楚早期訓練中心係會點樣做訓練?
可唔可以俾D意見我呀？

bonbon媽咪

reginang

bonbon媽咪
你好    
你小朋友幾大,他/她也是唐氏bb嗎 ???
我囡排左成年先有早期訓練,未有之前係醫院做物理及職業治療,到早期有位先取消醫阮既訓練.
我未試過找私人做,第一價錢實在貴,第二我囡既情況又不算太差,自己在家鍛鍊多些.
如果你可以負擔到都可以試下,到時兩邊做睇到效果會係怎樣.

hanhanmama

Hi,

This is my first message.  Have been reading yours for some time.  I also have a daughter who has downs syndrome.  She is 3 and a half.  She is called Han Han.

reginang

hanhanmama
welcome to join us  
astha will be 2 yrs old by end of this month, she's attending eetc at chaiwan wan chiu centre. how are about han han, which school is she attending now ??
would like to share with you more  

reginang

今日我地一家去元朗探朋友的初生bb,astha望住bb時感覺像是很有趣,當小b喊時她馬上去看個究竟,不明地望著bb,然後又看看我
回程坐巴士時讓她自己坐,她還很認真地坐著欣賞窗外風景,我也靜靜的看著她,經過今日,她好像是知道自己已經大個女,老積得不得了   
不過阿媽我很開心 ~~~  

hanhanmama

regina,

Glad to know you.  Han Han has been attending Heep Hong Society Catherine Lo Centre (Sandy Bay) since May last year.  Which school have you applied for astha?

DaisyWong

Hi reginang,

Come here & say hi to u & astha.

We have moved to Chai Wan (from North Point).  Since Astha studied at Chai Wan too, maybe we can meet some day ah.

Daisy

reginang

hanhanmama
she applied heep hong wanchai centre. since we are living in north point and both hubby & me office is in central, i think wanchai centre is better for us.

reginang

hi daisy
long time no chat with you la  
how is your little one, is she behave good  

i was busy at work these days and no time could take astha to go to the training  :cry:  :cry: however we might meet each other on the street anytime and anywhere, just like your hubby met us last time in wanchai, but make sure you will come to me and say hello    

chelsea.mama

ＨＩ！regina. hanhanma, cfw：
好耐無上嚟！忽然間熱閙左！　regina你最近點呀？
澄澄返學差不多１個月，　依家習慣了！　仲好開心。　與老師天天通電話，　了解上學情況，　老師都吾嫌煩，　依家學緊去厠所，　astha係咪已經可以自己去厠所？　星期五仲有birthday party & 中秋節會。　

北角和富道有一間舖頭晚飯好好食，　上星期四我第一次帶澄澄返銀行探同事，　順便食晚，　d　菜好特別　eg:是是但但（steamed egg) 鬼馬（油炸鬼釀shrimp) 鮑魚飯。。。。。。真係好好味，　你試過未呀？

astha係咪排左學校？每年３月派位，　希望出年有位啦！
不過wanchai多人排嗎？　

hanhanmama

regina,

do you mind if someone in the street stares at astha and even asks her friend to look at her?  i had this experience on sunday and felt uneasy.  i asked my husband the same question and he said he didn't mind so much as this had been expected.  he further said he would ask han han to wave back hello.  

chelsea.mama

hanhanmama:
你的心情，　我地好明白。　以前我會閙：〔　望夠未？　望mud野？〕　因為真係好難受，　吾係嫌hei自己個女，　而係個好心痛，　但我照樣成日帶佢出街，　日日去公園or附近商場玩，　可能習慣左，　依家都吾理人點睇！　

chelsea.mama

hi bonbon媽咪：
我都係無搵私家做訓練，　一路都係早期訓練中心，　物理治療，職業治療，＆　綜合訓練，　每科每week返１小時，因為每次我都陪同囡囡上堂，　每個訓練細節都清楚，返屋企識得跟住教佢，　進步幾好！　我覺得無上過堂，　真係吾知怎樣教佢，　所以如果經濟許可（　因為都幾貴）　，呢半年時間搵私家都好，　吾駛浪費時間。　

reginang

chelsea
你終於有時間上嚟la  
有時驚你忙住湊女又要做家務,都唔敢打電話比你呢,幾時可以約埋其他家長聚下會呀  
澄澄返學咁開心,你終於可以安心上班去  

協康灣仔我諗都幾多人排,不過冇緊要啦,係呢間最方便我地帶astha返學,所以一心一意等

我都唔知astha算唔算係自己去廁所   家陣每朝食完奶就比佢坐廁板,咁佢就會攪掂ngng,一日一次冇nut拖,夜晚上床之前又會去左尿尿先,跟住成晚都不會再痾,片片都唔會濕,但係未識自己叫話要去  

你講果間飯店我唔識,係和富中心對面嗎,可能以前有經過,不過自己推住架車仔又怕阻住人可能會調頭走,咁你話我知舖名等我地去試下    

kmwun

Dear all

聽到收音機節目預告，9月18日星期日早上十時至十一時，商業一台節目「同途有心人」主題是有關唐氏。

rabbitpiggy

reginang

唔好意思, 我路過架咋, 我見到你囡囡張坐厠板的相, 想問問你張厠板係邊度買同埋幾錢, 我覺得張板好好, 前面有個位比bb hold 住.

reginang

hanhanmama
i do feel uneasy when people stare at astha on the street. i think i had the same feeling as you, chelsea mama & other parents who had down syndrome's kid.
i really don't know how to deal with these kind of emotions in my deep deep heart but let go. it's extremely hard for me but i want to face it more and more.

this morning a woman sat beside astha & me in the mini bus. both astha & the woman looked at each other so i asked astha to wave her hand (say hello) to that woman & finally astha gave her a big smile. we didn't have any conversation but she said bye bye to us when she got off. i felt happy with astha.

reginang

dear kmwun
好多謝你的熱心提供資料      
thank you  

reginang

rabbitpiggy
中環"bumps to babes",畢打行5樓 (上海灘樓上)
價錢大約$50.00

rabbitpiggy 寫道:
reginang

唔好意思, 我路過架咋, 我見到你囡囡張坐厠板的相, 想問問你張厠板係邊度買同埋幾錢, 我覺得張板好好, 前面有個位比bb hold 住.

kmwun

reginang

唔好客氣啦！

reginang 寫道:
dear kmwun
好多謝你的熱心提供資料      
thank you