好擔心...醫生話BB發展遲緩~~

ClaudeeMa

Little_Pig,

Sorry I'm not too experienced about your case.  But I think it is not necessary for you to wait until your kid is 3 to take the test in 健康院.  In fact, anytime when you're in doubt, you may always take your baby to visit the nurse of 健康院.  She will answer you questions and refer your baby to see the 健康院 doctor if necessary.  If the doctor thinks that your baby really has problem, he/she will do appropriate referrals to you.  So don't worry.

ClaudeeMa

Hei媽

Glad to know that 熙熙 is accepted by a nursery.  So you mean 熙熙 will just attend the normal seat of this nursery but not 兼收位, right?  Would you PM me the name of the nursery that your baby will go?  Thank you.

hinhinmummy

Little_pig

好同意claudeema的講法, 無謂自己去估, 不如帶佢返去健康院見姑娘再作決定.

hei媽

恭喜晒你, 軒軒都係讀保良局, 我未垣白向學校講軒軒的事, 但如果你甘講, 保良局呢個機構不會對我們呢d問題小朋友有歧視, 不比佢讀書, 我都安心小小, 因為我真係好擔心佢地會不比佢返學.

claudeema

我以前同你一樣, 只關心/照顧大女, 平日同佢溫功課, 星期六, 日要帶佢去跳舞, 游水等, 出街食飯又不帶軒軒, 因為佢坐不定, 依家好後悔, 不過學mamee話齋, 不好再諗以前, 向前望啦.

我用緊果個st係cwb, 係mamee介紹的, 佢之前係協康都做, 依家自己出黎開左個center, 不過話係centre, 但得佢一個st加一個receptionist, 但就好nice, 佢會顧慮到軒軒未返學(初初上堂時), 坐不定, 所以會用d好活的方法教佢.  

但我不鼓勵你甘快帶你個仔上st, 不如等做完評估先啦, 但你要電話我都可以比你, 一陣pm比你, 佢650元1個鐘, 同協康一樣甘貴. 但就好詳細甘同你傾你小朋友的情況(如果佢下節無堂的話).

hinhinmummy

昨日帶軒軒去大口環見心理學家, 比係3個月前, 做評估+做st評估, 我覺得佢進步左好多, 好多玩具佢都做得好好.

個心理學家同我解釋, 係自閉症的特徵中, 軒軒中左前部份, 後部份就好好, 甘我問佢, 前部份即係mug野, 佢話係社交能力 & 溝通能力.

即係熟人, 佢會有eye contact, 否則佢只係望住件死物, 不會望人對眼, 而溝通, 佢自會用自己的表情+喊去表達不開心, 不會講(甘佢未識講野bor).

佢還話, 自閉症係一個好大的範圍, 入邊包含好多不同種類的症狀/名稱, 而軒軒只不過係中左其中一樣的某d特徵, 佢地會叫佢做綜合發展有問題.

甘我係度諗, 綜合發展有問題, 係不係即係發展遲緩? 發展遲緩又等不等如有自閉症特徵/傾向?

當初第一次做評估, 醫生比一張床, 枕頭, 公仔, 被, 軒軒, 軒係做不到, 將個枕頭放係張床上邊, 跟住公仔, 跟住被, 但今次佢做到.

思佳媽咪講的野, 我有一點不係好同意, 佢話依家好少醫生判斷個小朋友係自閉症, 除非佢真係好嚴重果隻, 但軒軒一開始, 就比大口環的醫生判斷佢係自閉症, 還要無同我解釋佢係嚴重果隻定係輕微, 但得出黎, 依家好多專家(st, 心理學家, 私家醫生)都話軒軒係好輕微.

但我好同意一句, 不好黎佢係不係真係自閉症, 我相信, 我們有恆心, 終會改變到佢地d 固執行為(好彩軒軒無呢d固執行為).

晏d再打埋page3 + page4

gigi2

If only fit for one or few of features of autism, then determine to diagnose the children as autistic which are irresponsible assessments by some professions.  If the children can have proper interpersonal communication skills or eyes contact to family members or familiar faces, but act cool or ignorance to strangers and they are not autistic!  Autistic children only live in their own planet and will ignore other people even you are their parents!

Though we understood whatever the name it is and we should provide the appropriate training to help our children, those so-called professionals who never empathsize and concern about what the feelings will be to the parents by their labeling which is easy given out on the children!

:-x  :-x

ClaudeeMa

hinhinmummy, received your PM la, thanks!

You're right, I should wait for the assessment result first and decide how to help my son then.  Hope we don't need to wait for too long.

Yesterday my son's nursery teacher phoned me again.  She said another teacher from my son's extra activitiy class (english & music), who has rich experience in teaching kids, also said that my son has problem.  As no matter how she called my son (in chinese name / english name), my son showed no response at all.  He seems doesn't understand any instructions also.  But he has no other strange behavior in class, very well-behaved (I think that means very quiet la).  I replied that I took my son to the doctor already and we are now waiting for a further assessment.  The teacher told me that their nursery also has other kids that need special training, but those kids will still be slow in speech and relatively quiet and slow when they grow older to N4.  You know I just can't stop worring, especially last night I tried very hard to play with him with the method you posted here.  But could not see any progress at all.  :cry:

hinhinmummy

gigi2

記得你以前都曾經同我講過呢番說話, 我亦不想d人label佢話佢係自閉症, 所以我會同人講話佢係global late development, 不係我不接受佢係自閉症, 而係呢個社會上, 真係好多人對自閉症好有誤解.

你講得岩, 我看過套'與光同行', 入邊講到自閉症係對人完全無eye contact, even 係父母.

我亦不想深究佢係不係真係自閉症, 只要我比到training佢, 改變佢的社交能力, 我已經好滿足.

正如早排我同你提過, 2個月前, 大口環的st話佢, 看佢無可能做到, 同我對坐玩推車仔, 但我只係同佢做左個幾星期, 佢就可以.

尋日, 佢可以指住櫃入邊的hello kitty 水壺, 講'呢一個', 我開心到不可以用字黎形容.

但佢有d濫用'呢一個'名詞, 因為佢想我拖住佢, 陪佢玩的時侯, 都對住我講'呢一個', 而不係叫我做媽媽.  不過我會好耐心再等侯佢叫我做媽媽(大約一個月前叫過一次).

claudeema

不好灰心, 試多幾次, 初時我同軒軒做的時侯, 真係不得架, 試下搵多一個大人/家姐幫手.  有問題, 你call 我, 我pm個電話number 比你.

gigi2

I am glad to hear that your son got continuous improvement and trust that he will be everything alright in future.  Our children need much with our patience and encouragement to them at the moment and in future as well.  I was also very excited yesterday with my girl.  When she was taking her dinner and she suddenly said in Cantonese, ‘ngor chi kei sik fan fan!’ = I feed myself the rice!  The whole family including my maid clapped our hands and interacted with her by thumbs up touching immediately!

She now gradually acquires full sentence with 3-element language.  More and more full sentences she can speak but still weak in comprehension of language.  Let us work harder for our children!  Later she will be assessed again by the Heep Hong which is from the Government quota.  Please wish me good luck!

hinhinmummy

gigi2

恭喜你! 幾時會再去協康做評估?

gigi2

hinhinmummy,

Please check PM.

mamee

Little_pig

你仔仔的情況, 真係好難俾意見.
我仔仔班中有位男孩子都很怕羞, 差不多返左成年學先自願玩滑梯+追追逐逐. 之先老師一同佢除衫, 佢就喊(話說只有他媽媽幫他除衫先唔喊). 但係平日他爸爸接放學時, 他又表現出好開心樣子. 話他有問題又不像, 但就極度怕羞/內外.
點都好, 問一問健康院也好.

Hei媽
恭喜晒, 仔仔就黎又進入另一個新階段.
找到一間能夠體諒小朋友的學校, 真好! 正如找到BK呢道, 可以同其他媽咪傾計, 實在太好!!

ClaudeeMa
我會提議~同仔仔玩的時候, 唔好定得個要求/希望太高.
你大可以由最簡單開始:
1. 近距離叫他名字, 他一回頭望你, 你用小食獎勵他.
2. 玩吹泡泡(通常小朋友都喜歡玩)~叫他名字, 等佢留神先吹泡泡
3. 疊積木~你先做示範. 由兩/三粒開始, 最後放粒小食係上面. 佢肯到就有得食.

開始的時候, 玩到5分鐘, 已經成功. 初初就獎勵多些, 以後可以玩耐些, 就可以慢慢減少獎勵.
唔好氣餒, 更無可能同囡囡細時相較, 努力啊!

hinhinmummy
你好掂, 繼續努力就得架喇

mamee

mickeyma

gigi2, Hinhinmummy,

Great to hear that both of your kids made such big progress!

Thank you for typing all those useful information to us! They are very helpful. I have read one book from one U.S.A. mother who had two Autistic kids and struggled to recovered them both to normal. (Sorry if I used recovery as that is what mother and many professionals said in the book) I think no matter our son or daughter are A or A feature or Global delay only, we need to keep hoping that they can make progress and lead a normal life in the future.
Back to that book LET ME HEAR YOUR VOICE. The mother had shared some experience of how she trained her two babies, which the first part is very similar to what you posted to us.

My son is very similar to your son, when he had assessment at the end of July, he knew nothing and not cooperated at all. After teaching him and accompanying him more these two months, he could play many imaginative games by himself and likes that very much. And he started to talk and to wave byebye again. (he hated to do that before).

sometimes, I think I am not patient enough, I saw his progress, but I was dreaming to squeez more from him... and which made myself very tired and unhappy recently.  

gigi2, would you be so kind to share your experience at this period?  

Mickeyma

陸美爸

hinhinmummy,
跟據我手頭上嘅資料, 你軒軒讀個間保良局係有兼收位架, 名額有6個, 你係咪排緊呢間呀？
我想問"與光同行"可以係邊度買到呢？

kakab105,
你排咗協康幾耐有得做評估呢？我仲未有聲氣呀...

ClaudeeMa,
我囝囝讀緊個間都有兼收位的, 而佢就返一般嘅嬰兒班, 因佢得歲半, 而兼收位係兩歲起的, 所以暫時無佢份住, 不過我都未有同學校講過囝囝嘅情況, 但返咗學一段時間, 情況都幾好
另外, 你都唔好太擔心, 見你都做咗好多功課, 相信你都已做好心理準備, 就算評估結果如何(希望有情況不太差), 你都可以知道點樣可以幫到仔仔, 諗返我果陣, 評估完社工講咩"早期訓練"、"兼收位"、"協康青蔥計劃"等等...我完全一頭霧水, 而佢嘅講解我又聽到一知半解, 好多資料都係響呢度睇番嚟、問返嚟咋......
不過我都覺得你等評估結果出咗, 知道仔仔需要咩訓練先會好啲!

Hei媽,
希望你仔仔可以好快適應學校生活, 咁你有無請假陪仔仔開學呢？

Little_Pig,
其實我都無咩經驗可以教你, 只不過大家傾吓.....
我睇你所寫嘅, 你不如先盡快打電話話到健康院同姑娘講仔仔嘅情況(或者可以跨張少少), 務求令佢俾你提早返健康院做測試, 然後再作安排....

mamee,
多謝你嘅轉貼

陸美媽

hinhinmummy

第三及第四貢
____________________________

3)        模仿聲音練習
        讓孩子留意和聽四週的聲音, 家長可模仿一些有趣、突出、常聽的聲詢來跟孩子玩耍。注意 : 玩發聲遊戲時, 要儘量減低環境的噪音, 如收音機聲、電視機聲。

        模仿 : -

1.        動作聲 :         狗吠        “woo woo”
                        貓叫        “miao miao”
                        雞叫        “咯咯”
                        青蛙叫        “哇哇”

2.        車聲 :                汽車        “砵砵”
                        消防車        “bee boo bee boo”
                        單車/電車        “叮叮”
                       
3.        日常東西:         門鐘                “叮叮”
                        電話                “鈴鈴…..鈴鈴”
                        東西掉下        “彭”

4.        一些簡單有趣的兒歌

(題外話: stepping stone 有d 積木, 兩舊的, 不同種類的動物/車, 兩舊積木併埋一齊的時侯,會發出該動物/車的聲音, 軒軒依家併到牛, 就會’wu”,  貓就會”miao”)

手眼協調

A.        增強抓捱或放下物件、手指力的運用及靈活使用手指
        1)        a.        指起或放下不同大小, 重量及質地的物件
                b.        砌疊、積木
        2)        使用個別手指技巧
如 : a)        用前二指拎起小物件 b) 用食指指著物件並算出物件的數目 c) 用食指按膠泥等
        3)        使用力度
                如 : a) 用手指打開衣夾 b) 持著小膠刀切東西

B.        增強手指抓握的能力, 轉動及運用手腕的技巧 :
        1.        擰開瓶蓋
        2.        鬆開及上緊玩具螺栓及螺絲帽
        3.        擰開門鎖
        4.        轉動拼塊使宅們拼狂板闊上

C.        增強雙手協調運用的技巧
        1.        雙手串珠
        2.        撕紙條
        3.        摺紙
        4.        一手固定物件; 另一手操物件
                如 : a: 一手穩回拿著紙張, 一手操作剪刀
                        b: 一手穩定紙張, 另一手持顏色筆塗畫

(I)        非語言表達

        1.        目光接觸
                孩子應用眼晴回望與他說話的人

        2.        點頭或搖頭
                當發問時, 要求孩子作出回答
                例 : 點頭表不 「是/要/對」
                        搖頭表示 「不/錯/沒有」

        3.        用手摯表示 「我」/「俾」
                若孩子要求某些東西, 請他用手摯表示 :
                「我」 - 即我想要 (用搿放於胸前)
                「俾」- 即請俾我(把手伸出, 手掌平放()

(II)        語言表示
        1.        鼓勵孩子用聲來表示自己所需
        2.        模仿聲音
                如孩子推動小汽車, 鼓勵仔重覆「砵砵」聲音
                其他可模仿的聲音
                「ZZZZZ」嬰兒睡覺
                「嘩」玩捉迷藏時被發現
                「V-WOO-V-WOO」消防車
        3.        說出日常生字
                「飽」「餅」「奶」「水杯」「車」「爸」「媽」「哥」「姐」「拜拜」

hinhinmummy

陸美媽

我排緊s位, 所以第時要轉校, 但我好希望到時軒軒的情況會有好轉, 可以讀正常的幼稚園, 或者係保良局再讀n2, 不過我都知我發緊夢

與光同行, 我係商務買的, 但買不到第一集同第四集, 諗住問我果個st借, 因為見到佢個centre有.

協康- 350/50mins, 應該係幼兒訓練
言語治療應該係550/50mins.

caludeema

我當初做完評估的時侯, 好似盲頭烏蠅甘, 係甘上網search關於自閉症的資料, 好彩遇著好心的bk媽咪, 引左我入黎, 比左好多資料我.

多d上黎啦, 識多好多野, 點樣教你個仔.

真係要開工啦.

kakab105

thx hhinhinmummy

陸尾媽
我排左一個月左右！

真係覺得太時間可以同佢地玩， 日日番到home仔仔都差不多訓，哎!!

陸美爸

hinhinmummy,

OooH, IC......我所講嘅真係幼兒訓練服務, 嘩~原來另外言語治療仲貴啲, 佢地未有俾呢方面資料我喎...

我同你嘅心願一樣, 都發緊同一個夢, 相信其他mama都會, 我覺得有夢想係好架, 可以更加有推動力俾自己......希望大家可以夢想成真啦

另外, 真係要再多謝你抽時間打啲練習俾我地, 真係好有用喔~
many many thx~

陸美媽

kakab105

陸美爸

十月頭開始我會係尖沙咀一間中心同仔仔做單對單的訓練，他們收費hk$350/小時， 我試左好再通知你好嘛？

我估佢地必有協康咁專業，但佢地好關心小朋友！

陸美爸

kakab105,

一個月我諗都算快喎~我都等咗個半月喇...仲未有聲氣

唔該晒先, 期待你上嚟報告喔

陸美媽