"Biomedical Treatment - Parents' Group "

Justin2002

Dear kawai,

Thanks for your advice.  Yes, Dr. Td did mention DMPS supp during my last visit but I said we shall wait and see.

My son has taken OLE for a few months but stopped recently because I find no severe symptons of yeast problems.  If the report shows that he has viral issues like herpes and measles, what medication should be taken then?  

Justin2002

ultramom

chanchanboy,
唔該哂先.
請問你做咗幾多個round chelation之後, dr xx 先叫你做cbc and liver funciton test? 我個仔早幾個月做咗3 個round TD-DMSA, 佢都冇提過要做D TEST?!
我覺得做D TEST都係穏陣d, 不過做完又唔解釋就?!?!   
我啱啱係網上揾到d有關cbc test的資料:
http://www.labtestsonline.org/understanding/analytes/cbc/test.html
如果你有份報告, 可以對吓, 佢都解釋得幾詳盡. 不過rbc係唔係red blood cell count? 應該已包括在cbc test內.

chanchanboy 寫道:
ultramom,
Dr. XX previously ordered the CBC and liver function tests for my son after a few rounds of chelation.  These two times, he also ordered the RBC which costs $2,600 each time.  The test is very expensive but last time I received the report without any explanation.  I don't know why I have to spend so much without knowing what was going on.  I only understood the report until Dr. U briefly explained it to me.  The RBC also not the regular safety labs tests recommended by Dr. U.  

I'll give my son another round of DMSA on 28 October 2006 and has the toxin urine test since I already paid $1,700 for it.  After getting the result, I may stop DMSA chelation after all.  

I learn that overseas parents order lab tests themselves through Direct Lab Services.  I'll check with them for details (of course only urine tests can be done ourselves and I know the cost may be even higher).

chanchanboy

ultramom,

第一次係做左2個round, 做左cbc, ferritin serum, liver function tests.  係dr. td.叫做ge.

今次我自己同仔仔做左4個round, 因為用左新protocol, 所以我自己要求做, 想睇睇對仔仔身體有無損害, dr. u. 就話要2-3個月做一次, 都會係cbc, ferritin serum, liver function tests, 無提過要做rbc.

rbc會睇到血入面的essentials minerals同toxin metals, 即身體最current ge情況.  

kawai

Justin2002,

Dr. Trodd will prescribe VALTREX only for treating herpes if needed.  Since your son has been taking OLE for a few months, this herbal supplement probably has helped to clear up the virus including herpes in his body.  Dr. Usman suggests 2 alternatives for treating herpes that are OLE and VALTREX.

Justin2002 寫道:
Dear kawai,

Thanks for your advice.  Yes, Dr. Td did mention DMPS supp during my last visit but I said we shall wait and see.

My son has taken OLE for a few months but stopped recently because I find no severe symptons of yeast problems.  If the report shows that he has viral issues like herpes and measles, what medication should be taken then?  

Justin2002

kawai

chanchanboy,

I remembered Dr. Trodd will not give any explanation on lab test result if it's fine.  Besides, he has his style and has been showing his narrow-mindness since he knew that we've consulted other doctor.  I think we should find a doctor who would like to help us to do the blood draw in the future.  Using Directlab service is not a bad idea for us down the road.

Justin2002

Many thanks kawai.  

Justin2002

ultramom

barneywong,
中醫師之資料, 已pm俾你,唔好意思, 咁遲先覆.
ultramom

barneywong 寫道:

ultramom,

請pm嗰位中醫師D資料俾我. Thanks!

ultramom

kawai,
我都係咁想法, 不過想起要阿仔抽血, 就真係怕怕... :cry:
dr td 抽血又好似細心d, 又會先搽d麻醉cream, 第二度唔知有冇咁ge服務呢?
ultramom

[quote]
chanchanboy,

I remembered Dr. Trodd will not give any explanation on lab test result if it's fine. Besides, he has his style and has been showing his narrow-mindness since he knew that we've consulted other doctor. I think we should find a doctor who would like to help us to do the blood draw in the future. Using Directlab service is not a bad idea for us down the road
[quote]

chanchanboy

ultramom,

今次我就帶定遊戲機比仔仔, 所以都好快攪掂, 但未入去dr. td. office前, 仔仔擦左cream, 我問佢知唔知黎做mug, 佢即刻想喊, 扁哂咀.  

另一個我咁抗拒每次都要做RBC ge理由, 就係又要抽30cc血!!! 救命!!!

麻醉cream, 我諗可以order到, 因為係yahoo forum, d parents會先擦cream先打mb12.  因為一般家長都可以order都ge test, 我諗例如dr. lam如果肯都可以做同類ge blood test掛?

ultramom 寫道:
kawai,
我都係咁想法, 不過想起要阿仔抽血, 就真係怕怕... :cry:
dr td 抽血又好似細心d, 又會先搽d麻醉cream, 第二度唔知有冇咁ge服務呢?
ultramom

ultramom

chanchanboy,
嘩, 成30cc!!!!     咪好大支?!?!
請問有冇人試過hkbiotek的食物敏感測試, 話只需2滴血, 唔知可唔可靠呢?
ultramom

chanchanboy 寫道:
ultramom,

今次我就帶定遊戲機比仔仔, 所以都好快攪掂, 但未入去dr. td. office前, 仔仔擦左cream, 我問佢知唔知黎做mug, 佢即刻想喊, 扁哂咀.  

另一個我咁抗拒每次都要做RBC ge理由, 就係又要抽30cc血!!! 救命!!!

麻醉cream, 我諗可以order到, 因為係yahoo forum, d parents會先擦cream先打mb12.  因為一般家長都可以order都ge test, 我諗例如dr. lam如果肯都可以做同類ge blood test掛?

[quote]
ultramom 寫道:
kawai,
我都係咁想法, 不過想起要阿仔抽血, 就真係怕怕... :cry:
dr td 抽血又好似細心d, 又會先搽d麻醉cream, 第二度唔知有冇咁ge服務呢?
ultramom

[/quote]

ultramom

各位,
我阿仔上周五開始第一次edta supp., 冇mud "dean"到, 不過就發覺佢開始怕"聲音". 佢一向幾嘈都冇有怕, 但呢幾日就聽到電鑽/電鋸聲就怕到"運"路行, 上堂老師同我話, 佢聽到同學仔大叫/尖叫, 佢就即雞咁腳走開. (以前佢就會話之你, 你有你嘈, 佢有佢自己玩...)
今日遇到一位家長, 佢對chelation都好有心得, 佢話"怕聲音"應該係因為chelation, 所以唔夠magnesium. 應該要俾多d magnesium.
我平日都有俾kirkman 隻 cal-mag, 一日俾2 tsp.
返屋企又即刻睇書, 話magnesium最好同vit b6一齊食.
請問各位有冇magnesium 同b6 supplement 的好介紹?
又有冇遇到"忽然怕聲音"ge 情況? 應該點解救?
唔該哂先..

不過我琴日帶阿仔去見佢個private OT, 佢成4個月冇見過阿仔, 因為當時佢話阿仔都根本學唔到嘢...(你話幾心傷 ), 所以不如停咗先, 等阿仔休息吓, 過幾個月再睇吓點).
今次佢話阿仔好唔同, awareness好咗, eye contact多咗, 最"嚇"親佢就係阿仔主動"開口"同佢話"i want fish"(因為個OT 攞住一大盒動物玩具). 佢話可以加番D 訓練俾阿仔, 例如言語治療. 阿仔現在雖然只係得一句"I WANT XXXX", 不過對我哋嚟講, 已經好大突破...
ultramom

chanchanboy

ultramom,

無錯, 係30cc, 所以我好心痛!! 上次6月做完AUTISM PREMIER PANEL, 抽30cc, 7月去睇無同我講做RBC(係第一次做RBC, 點都要同我講聲掛?), 失驚無神又抽左30cc, 呢d就令我好不滿.   

BIOTEK, 呢度好多媽咪都有做過, 我覺得結果都可靠, 因為個測驗話我仔仔對蛋敏感, 幫佢介左半年再食番都係敏感, 同埋個REPORT比學校非常有用, 可以無需解釋GFCF係MUG野, 學校都會配合.

但上次港台有個節目講食物敏感, 都有提過有人做呢個test(無講明, 但係又話係用兩滴血check到幾乎100種食物), 結果有好多食物都敏感, 然後全部介哂, 攪到營養不良.

另一樣好似係gracebb話佢小朋友抽血個陣抽得唔係咁好, 影響個結果.

仲有好似會建議比小朋友食番佢diet緊個d食物, 然後再做test?? 呢個唔係咁記得, 等其他parent澄清.

ultramom 寫道:
chanchanboy,
嘩, 成30cc!!!!     咪好大支?!?!
請問有冇人試過hkbiotek的食物敏感測試, 話只需2滴血, 唔知可唔可靠呢?
ultramom

chanchanboy

ultramom,

Dr. U 有叫我仔仔每晚臨瞓食Cal-Mag 400/400mg.

係我要求下, Dr. Td. 開左Cardiovasular Research Ltd. 的Cal-Mag Acid Neutralizing Formula.  每日 3 tsp. 有240mg cal, 180mg mag.  佢話dr. u 太high dosage喎.

食左我覺得我仔仔瞓覺定左, 佢都好怕聲呀, 於是我買左隻有學校雜聲ge cd比佢聽, 另外係little giant買左個game 叫soundtrack, 類似台灣ge耳聰目明, 兩個月後即係宜家佢雖然仍然會怕聲, 但同時又成日研究聲音叫我地扮呢樣扮個樣.  如果小朋友驚, 教佢掩耳, 或自己數1-10來蓋過噪音.  講下講下Cal-mag都係食左兩個月, 可能真係cal-mag work喎.

kawai

My son is quite sensitive of sounds and noises.  He covers ears if he cannot tolerate it.  Since my son has been taking EDTA supp for a few weeks,  Dr. Usman suggested magnesium malate 250mg x 2 times and magnesium calm 200 mg before bed per day.  I don't see any change after we started him on magnesium.

BTW, the food allergy test by biotek requries 2 drops of blood only.  Don't be scared, 30cc blood drawing must be done by physician or nurse.      

kawai

chanchanboy,

We're going to visit Dr. Trodd next week for the safety lab test as suggested by Dr. Usman.  Is RBC one of the safety lab tests?  If not, I'll reject to do it.  

As planned, I will use Direct Lab Service for urine toxin follow-up test.

      

HayBMum

Surprisingly, Dr Trodd treated me very well yesterday!  He listened to me patiently and shared my concern on DMSA.  He even offered me alternative chelation agents of DMPS and EDTA without my requests, although he preferred DMPS as he felt my son is still a bit high in mercury.  He was nice and 有商有量.  He also agreed with me to do the test on ratio of blood serum copper to plasma zinc at my request (this was actually recommended by Dr U but of course I did not mention that).   I felt I won the mark 6 yesterday!

Kawai, from the book of Starving Brains, it recommended the following tests during chelation:
1. Urine toxic elements after 1st or 2nd two-week cycle, then every 3rd or 4th two-week cycle

Safety testing:
2. Complete Blood Count test every 2-3 months
3. RBC essential elements test every 2-6 months to help monitor mineral status

   

HayBMum

chanchanboy,
抽了的30cc 會唔會做埋CBC?  究竟兩者是否可以一齊做?

kawai

Hi HayBMum,

Thanks for your information on lab tests.  Our appointment with Dr. Trodd is coming Thursday, I'll see if he can maintain open-minded to our concerns and suggestions.  He may be finally done his homework on latest chelation therapy.  EDTA has been widely used as chelator worldwide and it's one of the best chelation agents compared with DMPS and DMSA.  I remember we've asked for EDTA supp 2 months ago but he said he won't use it on his practice.

My husband and I decided to start EDTA supp as soon as we come back from the trip in Mid of Nov.  I'll keep you guys updated about how we feel on this chelator.  

Here's the official web site of Detoxamin for your reference.
     http://www.detoxamin.com/chelationtherapy.html

jasper888

I don't have much information about EDTA.  I tried to search for FDA (Food and Drug Administration of USA) and it seems that it was not an approved drug by FDA.  I don't have the details.  Please check out its indications and safety with your doctor before usage.


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HayBMum

Oh, Dr Trodd did not mention the form of EDTA whether it is orally taken or supp.  But the DMPS that he recommended is the supp form.  He told me that EDTA is not effective in terms of pulling out mercury.  This seems different from the view of Dr U as she told me that after the Lead, the mercury would come out  

kawai 寫道:
EDTA has been widely used as chelator worldwide and it's one of the best chelation agents compared with DMPS and DMSA.  I remember we've asked for EDTA supp 2 months ago but he said he won't use it on his practice.