"Biomedical Treatment - Parents' Group "

MerMee

Hi Justin2002,

In fact i asked dr. trodd for Learner's Edge, but he just ignored me and gave me Super Nu-Thera.  I only took a glance but I don't think it's pink.  HOwever the pharmacist told me that it will turn pink and get hardened easily after open because of the vit c, that's why she gave me two small bottles to take out some each time, and keep the main bottle tightly closed.

Lucky that he didn't give me ASD Plex though, as i ordered once on-line and my son didn't like it.

Thank you for the advise on the B12.  i'll start again when i'm home this weekend.

我仔久不久會有d 精句,但好似買mark 6 咁, 好難中. 大多數都係自己講自己野. 今次算係好有意識的透過電話問我野.  i was surprised, bcos usually he just keep singing when i talk to him on the phone.  Anyway u know how 飄忽they are.

Dr Trodd 同樣insist dmsa, 到時又唔知會點啦...His last round of DMSA was taken w/o dulfican, oh it was a nitemare.

Justin2002 寫道:
MerMee,

You son is very smart ah!

In fact, the pre-filled B12 syringes from Dr. Trodd is for the convenience sake of parents.  Since the B12 solution expires very fast, they recommend you to store in freezer.  I see no harm of following their instruction. Dr. Lam did tell me to put the B12 bottle into the fridge but not freezer.  I believe both are OK.

It's strange that Dr. Trodd gave you the Super Nu-Thera (big box of orange powder?) instead of ASD Plex which he recommends also.

Justin2002

HayBMum

if you were told to keep it in freezer, I believe it is not the concentrated one.  The concentrated one is not required to be frozen but the validity is short

[quote]
MerMee 寫道:

有mommy同我講dr. trodd 的b12是concentrate 的, 但我發覺同dr. lam 之前給我的都是一樣, the only difference 係dr.trodd 的巳一支支的抽出並frozen了. 解凍完先打. 但dr lam 冇叫我放入freezer wor. 攪到我都唔知好唔好用埋dr. lam 個d.

/[quote]

kawai

tszchunma,

I would not suggest you to do the food allergic test at this stage.  Since GFCF diet is already a big challenge to your kid.  You may consult with the doctor if your son needs to do the test or not.  

Mermee,

I feel happy for you about the phone conversation.  I think your son will be fine as he's only 3 and 1/2 years old.

Did you tell Dr. Trodd your son is not a bio-treatment beginner?  Anyway, super nu thera is not bad if your son doesn't want ASD Plex.

Have a nice trip!   

MerMee

HayBMum
Thank you for the info.

Kawai,
Yes I told Dr. Trodd I hv been visiting Dr Lam before.  He said he's a very nice doctor... I showed him all the supplements that my son is taking now.  He asked me to stop most of them, including the SB that i just bought, but I still keep taking SB now.

Well as I said just like winning a few numbers on Mark 6. He's back to his "normal" state today.  OK OK I know i should be more patience.

不過佢琴晚同今晚食飯都有作嘔的情況, 你有冇idea 關唔關dulfican 事? 不過佢好唔鍾意食菜, 有時我監佢食佢都會作嘔.

Siu_Ming

Hi All,

Haven't logged in for a while.  Just some notes of my experience with ASDplex and Diflucan etc...

Dr. Trodd prescribed ASDplex for my son at the very beginning.  After a few weeks of consumption we just noticed that he was becoming more distractible in class.  Dr. Trodd said ASDplex has too much minerals and some other supplements such as glutathione etc. in it and prescribed Super Nu-Thera instead.   It seems to work better on my son.
Re storage of the powder.  Hong Kong is such a humid place.  Sharon of OT& (Trodd's pharmacist) suggested to put the big tub of power in a well sealed ziplock bag and store it in a dry place.  Just take out say an amount enough for use of a week or so and put in the small bottles she provided.  These bottles should be put in a sealed ziplock as well when not in use.  That may help to slow down the process of moisturization.  But unfortunately you will find the powder is still moisturized...can't help...that's Hong Kong climate.

Re Dilfucan, there was not observable side effects on my son.  At the end of the course, he seemed to be more attentive.

Recently, we introduced DMG+B12+folinic acid liquid as well.  It seems to work well on him too.  No extra hyperactivity is noted so far.  I know that the liquid may cause more hyper and yeast problem with some.

We also shifted from Dr. Lam to Dr. Trodd about a year ago, mainly for two reasons: prefilled B12 shorts and waiting time for consultation (Dr. Lam has a rather long waiting time even if you have made appointment beforehand).  Dr. Trodd just let my son finished Dr. Lam prescription.  But there weren't much from Lam at that time: ALA, B6, Glutathione cream etc.

Kawai,
I share your comments on the doctors.  But Dr. Trodd is not always cool.  He will talk a lot sometimes and would have interesting chat with my son sometimes.

Siu_Ming

tszchunma

Kawai,

Thank very so much!

Tszchunma

kawai 寫道:
tszchunma,

I would not suggest you to do the food allergic test at this stage.  Since GFCF diet is already a big challenge to your kid.  You may consult with the doctor if your son needs to do the test or not.  

Mermee,

I feel happy for you about the phone conversation.  I think your son will be fine as he's only 3 and 1/2 years old.

Did you tell Dr. Trodd your son is not a bio-treatment beginner?  Anyway, super nu thera is not bad if your son doesn't want ASD Plex.

Have a nice trip!   

barneywong

ultramom,

知道你有幫你的小朋友做腳底按摩, 請問可否提供在那個地方有得學.    

我係睇開Dr.Lam的, 差不多3個月, bb反應都幾好. 同埋佢都開好多種藥比我bb, 計埋搽的藥膏共有8種. 我定時會睇下你地D post 有冇新料, 好似返工打咭咁, 但你地實在太pro, 所以都唔敢搭ロ, 讀完你地D post, 已經學多左好多.  

ultramom

barneywong,
我係幾個月前跟一班家長去一位中醫師度聽講座時學的.  不過講出嚟驚各位見笑, 我記得嗰位醫師話好難係一個講座內記得哂d穴位, 不過係腳板底到處都按吓, 對小朋友成長發展都會有幫助, 而我d小朋友又鍾意, 所以咪同佢哋係腳板底周圍按吓囉.
如有興趣揾嗰位中醫師, 我可以pm佢資料俾你.
ultramom

chanchanboy

Dear all,

上次Dr. XX開左兩包Diflucan比我, 今日去做blood test, 再問佢, 佢又改變主意唔肯再開比我, 因為佢話DMSA同Diflucan一齊食危險, 問我邊個叫你咁樣食呀, 跟住佢記起我睇過Dr. Usman ... 即時駛出我地中國國技 ... 變臉

問佢要Glutathione cream = 唔recommend唔比.
想做OAT test = 唔recommend唔比做.

Chelation呢條路真係好難行 ...

一係就繼續食DMSA, 唔食Diflucan, 到D yeast好勁, 就再去問Dr. XX要Diflucan, 但咁就要經歷亞仔大起大落的表現同行為, 係學校根本唔掂.  

但長期食Diflucan其實我都擔心, 就係好似條條路都唔係好行得通.

諗諗下, 可能會就咁淨食supplements, 做D最natural ge detox, 可能唔駛咁煩, 但亞仔就未必有突破.

DMSA我諗收埋blood test同urine test d results, 會決定是否放棄 ...

但其實做左一年biomedical treatment, 真係見到好大進步.

煩惱人chanchanboy

chanchanboy 寫道:
開水個隻Duflican, 開水後只能保留14天, 但Dr. Usman叫我食3 日along with DMSA, 所以我去Dr. Trodd要左capsule, 一包有7粒x5mg = 開水份量一樣, 但就可以保留下個cycle的DMSA再食, 同埋capsule方便好多.

wewangwang

chanchanboy,

唔好意思,biomedical 我識唔多, 想問下

<<<問佢要Glutathione cream = 唔recommend唔比.
想做OAT test = 唔recommend唔比做.>>>

What is the reason behind?

<<,但長期食Diflucan其實我都擔心>>

擔心乜野?

chanchanboy

<<問佢要Glutathione cream = 唔recommend唔比.
想做OAT test = 唔recommend唔比做.  What is the reason behind?>>

醫生覺得無需要卦?

<<但長期食Diflucan其實我都擔心>>

Diflucan本身係抗生素一種, 多食無益, 另外對肝臟有傷害 (如果食得多的話)

chanchanboy

See Andrew Hall Cutler explaining his protocol (every 4 hours or more often for DMSA, every 3 hours or more often for ALA with occasional 4 hour use) vs. DAN! protocol (every 8-12 hours for ALA, every 8 for DMSA).

"Chelating agents serve 2 functions.  They mobilize toxic metals.  They also bind toxic metals.  They do NOT "hold on tight" and do NOT bind irreversibly.  They pick up and drop the metals often.  Thus, you need to maintain a rough balance between mobilization and binding so that the chelators grab most of the free toxic metals rather than letting grab back on to the body.

In order to do this, you need to keep the blood level of chelating agents reasonably constant.  This is done by giving them roughly a half life apart, so that blood levels don't fluctuate by more than a factor of 2.  The half life of DMSA (directly measured in human children) is 2.5 to 3.5 hours.  The kinetics of ALA are much more complicated but are adequately described as a half life of 1.5 to 2.5 hours.  The peaks get smeared out over a 2 hour period due to it taking about 2 hours for the stuff to slowly be absorbed when it is given by month …

… Good diagnosis is needed.  Any doctor who chelates ALL of the children who come in the door isn't doing it right.  The first step is make some attempt to figure out WHAT is wrong, and direct treatment at that … As to dosing differences between the "Andy" and DAN! protocols, the important factor is that increasing the dose increases side effects rapidly, but does not increase metal removal much.  Doubling the amount of DMSA or ALA in a dose more that doubles side effects.  However, it speeds up metal removal by less than 33% … You can double your dose and go from noticeable side effects to a horrendous, intolerable experience … as the side effects increase, your ability to chelate frequently will decrease.  So sticking to a lower dose and doing it routinely every weekend or every other weekend will in practice get your kid cleared of metal faster than using a very high dose and spending weeks or months putting your kid back together after each cycle.  This is clearest in the discussions regarding all the yeast problems kids have with chelation …

Let me work the arithmetic on this one and you will quicly see what I mean about dosing.  The relevant formulae are in the appendix to my book Amalgam Illness: Diagnosis and Treatment (described at www.noamalgam.com)

3 500mg doses daily remove 7.69 units of metal.
7 50mg doses daily remove 7.00 units of metal.

Similarly for lipoic acid, the arithmetic is:

3 100mg doses remove 5.29 units of metal, which 7 25mg doses remove 7.00 units of metal.”

ultramom

chanchanboy,
我上次去見dr trodd, 佢d態度都好怪啦.
我同佢講阿仔用td-glutathione, 好似效果幾好...佢即刻話"所有transdermal的都冇用, 只係"waste of money"..
佢記得你睇過dr u, 當然會係咁啦..
佢上次俾咗樽diflucan俾我, 我都未開, 仲想去問佢換d "粒裝"試吓, 而家睇嚟都唔駛慌佢肯啦..
我個仔啱啱開始咗edta supp.一次, 個人好似grumpy咗, eye contact又差咗, 十五十六, 唔知好唔好又俾佢食diflucan.   請問各位, 每次俾diflucan, 係唔係都食足14日? 又有冇俾milk thisle? 唔該先...
ultramom

barneywong

ultramom 寫道:
barneywong,
我係幾個月前跟一班家長去一位中醫師度聽講座時學的.  不過講出嚟驚各位見笑, 我記得嗰位醫師話好難係一個講座內記得哂d穴位, 不過係腳板底到處都按吓, 對小朋友成長發展都會有幫助, 而我d小朋友又鍾意, 所以咪同佢哋係腳板底周圍按吓囉.
如有興趣揾嗰位中醫師, 我可以pm佢資料俾你.


ultramom

ultramom,

請pm嗰位中醫師D資料俾我. Thanks!

chanchanboy

ultramom,

我剛剛係yahoo個邊問d外地家長, 有以下回覆-

"Diflucan is an antifungal.  It does not need to be taken for 10 days like an antibiotic.  Usually it is dosed once for treatment in women.  However, for chronic candida it is given daily for a few weeks.  So it is not unusual to only take two or three doses of this.  It will not cause antibiotic resistance as it only kills funguses.  Namely candida.

... Milk thistle is fine and should always be given during chelation.  We use it all the time.  We dose a 1/4 capsule four times a day.

For chronic severe yeast, the diflucan may be needed in between rounds too.  We use grapefruit seed extract every day and increase the amount on a round because my son's yeast never seems to go away.

You may have to play it by ear and see if he gets too yeasty in between rounds.  If so the doctor can give more diflucan."

BTW, I searched the web yesterday and found diflucan can be bought online without prescription.

Dr. XX previously ordered the CBC and liver function tests for my son after a few rounds of chelation.  These two times, he also ordered the RBC which costs $2,600 each time.  The test is very expensive but last time I received the report without any explanation.  I don't know why I have to spend so much without knowing what was going on.  I only understood the report until Dr. U briefly explained it to me.  The RBC also not the regular safety labs tests recommended by Dr. U.  

I'll give my son another round of DMSA on 28 October 2006 and has the toxin urine test since I already paid $1,700 for it.  After getting the result, I may stop DMSA chelation after all.  

I learn that overseas parents order lab tests themselves through Direct Lab Services.  I'll check with them for details (of course only urine tests can be done ourselves and I know the cost may be even higher).

kawai

chanchanboy,

I've ordered the urine toxin test from directlab once last year.  The cost for urine toxin test  is US$93 plus fedex service.  Check it out from their official web site:

Direct Lab

Call me for more information if you would like to order the lab test yourself.  

Justin2002

Hi all,

I am going to receive the Autism Premier Panel Report sometime next week from Dr. Td.  May anyone give me some advice on what points should I take note or do you have any experience if Dr. Td will explain (in detail)?  I suspect that he may suggest to start on some chelation but I still have hesitation.... many thanks!

Justin2002

chanchanboy

Justin2002,

The Report is around 26 pages.  Dr. Td. just discussed the last page, i.e. summary results, with me.  

For my son report.  Abnormalities were detected-

NK cell activity <- Selenium will be prescribed.  

However, the dosage is 4 times higher than the dosage recommended by the book, Effective Biomedical Treatment.  My son already has Micro-solution which contains selenium.  So I cut the dosage myself and Dr. Td. blamed me about this last time.

IgA Gliadin = Wheat Allergy
Casein IgG, IgM, IgA = Milk Allergy
IgM, IgA Fibrillarin, Metallothionein Medium, Metallothionein+Mercury, Stimulated/Unstimulated = Mercury, i.e. chelation is recommended.

The content in red is all Dr. Td. said.  So don't expect too much for detailed explanation.   When I asked my son was GFCF for almost a year, why still allergy to wheat and milk.  He said there are other sources of wheat and milk but no further explanation.

kawai

Hi Justin2002,

Dr. Trodd only suggests oral/TD DMSA and DMPS supp as chelators.  You can simply reject his suggestion on using the medication for detoxfication.  

The autism premier panel will show you  an indication if your son has viral issues like herpes and measles.  I believe that your son will be fine since he has been taking olive leaf extract which is a natural viral killer.   

Justin2002 寫道:
Hi all,

I am going to receive the Autism Premier Panel Report sometime next week from Dr. Td.  May anyone give me some advice on what points should I take note or do you have any experience if Dr. Td will explain (in detail)?  I suspect that he may suggest to start on some chelation but I still have hesitation.... many thanks!

Justin2002

Justin2002

Dear chanchanboy,

Many thanks for your explanation.  I appreciate your input very much indeed!

Isn't it a bit expensive if the test can only tell you a couple of allergic sources (which can be done by simple food allergy test) and virus existence?

Anyway, I am going to reject any chelation unless the situation is very worse.

I shall share with you all after I got the report.

Thanks again.
Justin2002