"Biomedical Treatment - Parents' Group "

Dommom

Ultramom,

First, you should go to Asian countries where rice is the main stable food.  You have to tolerate the soy and gluten in the soya sause however, and just try to minimize the effects by having enzyme with every meal.

Otherwise, rent a service apartment type of hotel and cook for him!

kawai

Hi ultramom,

I suggest you not to order kid's meal to your son but regular meal instead while on the plane.  Kid's meal always includes cow milk, artificial color juice, cake, biscuit and pasta which are not suitable for our kids.  Regular meal usually has a choice for rice.  Of course, digestive enzyme is needed for every meal.  

Another tip is to maintain an MSG free meal.  You may tell the chef or waiter for special request on MSG free dishes when you are dinning out.  You may also try to provide your own gluten free pasta to the restaurant.  I think most of the decent hotels in Asia (except Japan) would like to help you in all aspects.                 

kawai

Hi chanmanhotwinkle,

It's nice to talk to you last Friday.  Sorry for the late reply since my son got a stomach flu after we had dinner in Disneyland on his birthday.  I believe that the food supplies in Disneyland was unhygenic.  I heard the news that some tourists were also got food poisioning after eating in Disneyland on the next day we've visited.  

Anyway, I'll send you the CD-R within this week and talk you again soon.   

chanchanboy

ultramom,

Cathay has gluten free meal but I don't know what it will be.  I believe my son will refuse to eat if the food looks strange to him.  So I also gave rice to my boy on the flight as others do.

We went to Pattaya during summer, 米粉 and rice were our first choice.  I think most difficult is the buffet breakfast.  一係一齊唔去食, 如果唔係成枱麵包蛋糕, 我個仔就受唔住誘惑, 自己攞碟去攞.  I will suggest to bring along some cereal to the restaurant.  

chanchanboy

ultramom,

我個仔yeast 係8月時都好勁, 食diflucan一星期, 好明顯d stim 少左, ABA 上堂時的傻笑由20-30次減到2-3次甚至0次, 效果非常明顯.

跟住9月1日起DMSA個幾日都同時食diflucan(1日5mg), 平日就會食nystatin, 9月6日開始食SB, 可能每兩星期都有3日diflucan, 所以yeast好似undercontrol.  以前我仔仔oral dmsa d yeast好勁, 宜家呢個方法ok, usman話食3日停11日diflucan, 佢d client長至6-9個月都無side effect.  無diflucan的日子, 仔仔情況穏定, 我估係SB ge功勞.

但食SB都好煩, Usman叫我一日食兩次, 我睇書又話最好空肚食, 又唔可以同probiotic食, 我覺得真係唔夠時間食, 唯有一早起身同臨睡食.  

ultramom

chanchanboy,
我聽聞sb可以同probiotic一齊食, 因為佢本身係yeast, 以yeast kill yeast, 我買嗰隻係kirkman 出品, 個description都寫:
"SB is a unique probiotic in that it is known to survive gastric acidity, it is not adversely affected or inhibited by antibiotics and does not alter or adversely affect the normal flora in the bowel.  For this reason good friendly probiotic organisms(including Lactobacillus and Bifidobacterium) can be taken at the same time as S.B. ....."
希望資料正確, 如果有錯, 請各位指點.  因為我都係新"試"呢隻sb.
ultramom

chanchanboy 寫道:
ultramom,

但食SB都好煩, Usman叫我一日食兩次, 我睇書又話最好空肚食, 又唔可以同probiotic食, 我覺得真係唔夠時間食, 唯有一早起身同臨睡食.  

ultramom

真係唔該哂各位的回應..
我其實係想先帶阿仔去d短程旅行先, 目標只係番禺嗰動物園 :  因為去年帶佢去布吉玩咗5日, 又冇自備食物(當時未開始gfcf), 去到任飲任食(又朱古力又薯片), 又日日游泳池水, 結果返嚟"dean"得好緊要, 倒退咗好多 :cry:
不過最近同另一個家長傾開, 佢個仔同我個仔差唔多大, 最近睇住佢進步好多, 佢都冇做biomedical treatment, 亦冇gfcf, 佢阿媽話多d帶佢出去接觸吓個"世界", 對佢幫助好大, 又話每次帶佢去旅行番嚟, 都有進步, "醒"咗, 所以都想試吓...
ultramom

ultramom

chanchanboy,
請問diflucan可以只食一星期咩? 我以為一定要食足14日? 食剩嗰d係咪可以雪係雪櫃留番下次用?
ultramom

chanchanboy 寫道:
ultramom,

我個仔yeast 係8月時都好勁, 食diflucan一星期, 好明顯d stim 少左, ABA 上堂時的傻笑由20-30次減到2-3次甚至0次, 效果非常明顯.
  

ultramom

hi justin2002,
請問AFP enzymes即係mud? 同唔同你上次俾我試的zyme prime 同no-fenol? 我個仔好仲意食呢兩隻chewable, 所以而家每日都有食.
請問你每餐俾幾多阿仔食? 我每餐俾每樣半粒, 會唔會太少? 請問知唔知如果食得太多enzyme, 有冇side-effect?
ultramom

Justin2002 寫道:
Hi ultramom,

I usually will bring extra GF/CF biscuits and snacks + juice if we go for a few days' holiday.  At the same time, extra AFP enzymes for each meal are necessary.

Justin2002

Justin2002

Dear ultramom,

AFP peptizyde is particularly for breaking down food proteins like casein, gluten and soy.   Similarly, zyme prime for carbongydrates and no-fenol for phenolic food and fruits.  AFP also has chewable form but not so tasty as the other two.

I do not give AFP, ZP or NF every meal.  I give ZP and NF to school and let the teacher give to my son one ZP before lunch and one NF before afternoon snack.  I give AFP only on Saturdays and Sundays when we go out for breakfast/dinner and he may have the chance of eating gluten food.

I copy below the product usage of these 3 types of enzymes from Houston website for your reference:

AFP Peptizyde - for enhanced breakdown of food proteins, including casein, gluten and soy.  Decreases exorphin peptides derived from foods. Useful as alternative to or supplement to the GFCF diet.  Dosage: 1 to 3 capsules with each meal.

Zyme Prime - for better digestion of carbonhydrates, starches, and fats.  May be used by those with lactose intolerance or other carbongydrate malabsorption syndromes.  Helps slightly with phenolic food intolerances. Some protein-digesting ability, but not as much as Peptizyde or AFP Peptizyde. Dosage: 1 to 3 capsules per meal.

No-Fenol - use to reduce symptoms of phenolic food intolerance. May be used with vegetarian diets to help digest plant fibres. Not useful for protein digestion. Dosage: 1/2 to 1 capsule with phenolic foods, including snack-sized portions. May not be needed with every meal. No-Fenol tends to soften stools and may support yeast control.

[All HNI products have a 2-year shelf life when kept dry.  DO NOT REFRIGERATE]

Maximum Dosing
No upper limit has been established for enzyme dosing, and animal studies found no toxicity at dosing as hight as 2000 milligrams per kg of body weight per day for 90 days.  Most find using 1 to 2 capsules per meal is adequate, and most likely no further benefits will occur with higher dosing, though as much as 4 capsules may be given for the infrequent and large food challenges. Maximum consistent dosing per day is recommended to be no more than 9 capsules per day.

Contraindications for Enzyme Supplementation
These enzymes should NOT be used udner the following circumstances: active stomach or duodenal ulcers, servere bowel inflammation (characterized by blood in stools), hemophilia and other bleeding disorders, or within a week of schedueld surgery. This product may not be appropriate for those with known allergies to Aspergillus enzyme proteins or papaya, though non-specific mold allergies do not necessarily preclude use of fungal enzymes.   Those with known anaphylactic allergic reactions to fungal proteins should NOT ingest fungal-derived enzymes.

Sorry for this long passage but hope it helps.

Justin2002

tszchunma

Dear all,

I have just noticed you are talking this topic in the Baby Kingdom and I really want to have more understanding on this treatment.  As I have a kid with Autistic features and he is 3.5 yrs old, I want to try this treatment on him.  Acturally, I have started the GFCF diet on him for a few days as I knew the diet from the US website.  Before that, I do not know the DAN doctor can help so I started the diet by myself.  After searching more info from the web and someone told me there a group of parents in this forum using the treatments for a long time, I would like to get some advice from any of you.

From your previous message, it seems most of you are seeing Dr Trodd and Dr Paul Lam.  Are both of them also DAN doctor?  But some parents are even using both.  Why?  Besides, I found another DAN doctor in HK from the US DAN doctor list.  She is Dr Lillian Ko.  Did anyone come across with her?  The clinic is located in TST.

Thanks for your help!

Justin2002

Hi tzschunma,

I think Dr. Trodd is the only DAN doctor in Hong Kong.  Both Dr. Ko and Lam are paediatric doctors, only that Dr. Ko specialises in treating autistic patients especially children and she has carried out some surveys and studies.  As for Dr. Lam, he is basically a follower of DAN practice but he has his own judgement and way of treatment.
Other moms please correct me if I were wrong.

Justin2002

tszchunma

Hi Justin2002,

Thanks for yr explaination.  Then, what should I do for my son?  Should I take him to Biotek for the allergy test first and then make appointment with one of the doctors (Trodd, Lam or Ko) for further consultation?

Thanks a lot.

Tszchunma

chanchanboy

ultramom,

我問過Little Giant Ruby, 佢都話SB唔好同kirkman ge probio gold一齊食, 但Usman就無特別提過唔得, 等我再揾下料先.

如果Dr. Trodd要食14天, 係2.5ml一日一次, 上次佢開比我係7天, 係5ml一日一次, 所以其實都係一樽完成一個療程.

開水個隻Duflican, 開水後只能保留14天, 但Dr. Usman叫我食3 日along with DMSA, 所以我去Dr. Trodd要左capsule, 一包有7粒x5mg = 開水份量一樣, 但就可以保留下個cycle的DMSA再食, 同埋capsule方便好多.

另外, 我都同意出多d去, 例如海洋公園, disney, 渡假村, 澳門再去遠d, 比小朋友睇多d係有幫助, 因為趁小朋友細仲容易d控制同容易得到人體諒, 我第一次帶仔仔遠行, 2歲半人仔, 剛剛知道佢有事, 自己當時mug都唔識, 知佢好固執, 連廁所板都帶埋去, 但一上飛機就賴左大, 非常混亂

動物園係一個好好ge idea, 我仔仔認動物係好差, 上次同佢去動物園, 番黎數動物都識多幾款, 好過成日紙上談兵, 等我拋下書包先: 讀萬卷書不如行萬里路架麻!

kawai

Hi tszchunma,

You're doing the right thing that to put your son on GFCF diet.  Since it's the cheapest or even costless treatment and you can simply start it on your own by searching information online.   

I think I can give you some tips on choosing the right doctor.  Hope it will help you to find the right one.   

I heard from a parent a few months ago that Dr. Ko charges $5,000 consultation fee for the first time visit excluding supplements and lab tests.  This is a huge amount as you've to pay more and more down the road.  What a Dr. Butcher!!!  Additionally, I don't like her practice as you've to wait at least 2 hours from arriving to leaving the clinic per visit.  The most important thing is she likes to hide the brands and types of supplements by removing the orginal packing and to use their own bottles instead.   

Dr. Lam is recommended if you really want to visit a local one.  He is using a kind of fusion bio-intervention with DAN approach and some other.  He has some successful cases of treating autistic kids because of his attempt to try new things.  

I've met all the doctors that we mentioned.  Although Dr. Trodd is not my ideal doctor,  I would recommend Trodd as your bio-treatment consultant as there is not many choices.  I was told that they do have interpreter for patients if needed.     

kawai

ultramom,

Short trip is not a bad idea for me since travelling  with our monkeys is the most difficult thing in my life.  However, you've to be aware that MSG is commonly used in most dishes in China.  According my past experience, eating MSG food is even worse than gulten and casein food.   

ultramom 寫道:
真係唔該哂各位的回應..
我其實係想先帶阿仔去d短程旅行先, 目標只係番禺嗰動物園 :  因為去年帶佢去布吉玩咗5日, 又冇自備食物(當時未開始gfcf), 去到任飲任食(又朱古力又薯片), 又日日游泳池水, 結果返嚟"dean"得好緊要, 倒退咗好多 :cry:
不過最近同另一個家長傾開, 佢個仔同我個仔差唔多大, 最近睇住佢進步好多, 佢都冇做biomedical treatment, 亦冇gfcf, 佢阿媽話多d帶佢出去接觸吓個"世界", 對佢幫助好大, 又話每次帶佢去旅行番嚟, 都有進步, "醒"咗, 所以都想試吓...
ultramom

MerMee

hi chanchanboy / ultramon,

我都剛買了SB, Ruby 話同其他probiotic一齊食冇壞, 不過會失左功效, 如果要食兩隻最好隔反兩個鍾頭wor.

只想share 我星期二早上第一次帶仔(3.8)見dr. trodd, 可能有足心理準備, 佢比我想像中冇咁cool.

他只開了三樣野給我,
dulfican 2.5ml/day
kirkman nu-thera 1/4 spoon/day
b12 隔日打 (未開始打)
即日start 埋gfcf.

阿仔第一次食dulfican, 只食了第二日, 爸爸和工人姐姐, 仲有eetc 的teacher 都讚他定左好多 (有冇可能咁快見效呀??) 但個人好似好tired 咁, 是yeast die off 的徵狀嗎, 因我不在hk, 不能自己判斷, 但我剛到步和他通電話他說, "媽咪呀, 你到左montreal 啦, 買左Bulgy 未呀"(Thomas 的其中一個friend, 我出trip 前答應過他買的). 我真的很意外他咁有文路.

很心急想反去見佢呢.  回去後會開始打反b12. 我攪不清這裡, 有mommy同我講dr. trodd 的b12是concentrate 的, 但我發覺同dr. lam 之前給我的都是一樣, the only difference 係dr.trodd 的巳一支支的抽出並frozen了. 解凍完先打. 但dr lam 冇叫我放入freezer wor. 攪到我都唔知好唔好用埋dr. lam 個d.

chanchanboy 寫道:
ultramom,

我問過Little Giant Ruby, 佢都話SB唔好同kirkman ge probio gold一齊食, 但Usman就無特別提過唔得, 等我再揾下料先......

Justin2002

kawai,

What a detailed but accurate explanation!

I like your saying on Dr. Lam, "... fusion bio-intervention with DAN approach" Frankly speaking, he is nice doctor whom we can "chat" but sometimes too aggressive only!

Also, I agree with you that MSG is very bad to our kids!

Justin2002

Justin2002

MerMee,

You son is very smart ah!

In fact, the pre-filled B12 syringes from Dr. Trodd is for the convenience sake of parents.  Since the B12 solution expires very fast, they recommend you to store in freezer.  I see no harm of following their instruction. Dr. Lam did tell me to put the B12 bottle into the fridge but not freezer.  I believe both are OK.

It's strange that Dr. Trodd gave you the Super Nu-Thera (big box of orange powder?) instead of ASD Plex which he recommends also.

Justin2002

tszchunma

Hi Kawai,

Thanks so much for your comments on choosing the doctors.  It is really helpful to me.

As my son just got a S-seat and is going to join in November, I would like to make sure what kind of food he is allergic to.  Therefore, I can talk to the school in advance as he will stay in the school full day.  Then, would Dr Lam also arrange the allergic test or I need to do it in Biotek first?  I would like to have a clear idea on it.  

Many thanks!