"Biomedical Treatment - Parents' Group "

Siu_Ming

Hi everyone,

Haven't shown up in this thread for quite some time.  Anyway...I took my son to see Dr. Trodd this morning and was prescribed oral/ liquid form essential glutathione.  It smells bad and the instructions said it could be mixed with juice and taken promptly.  Anyone got experience with it and what medium (OJ, strawberry juice etc) do you think is best for masking the smell?  Thanks.

I think so far B12 and ABA (behavioural intervention) work best for my son.  Trodd said if B12 works well, it suggests that Mercury may be an issue.  He raised DMSA challenge again.  But my son is not good at taking pills.  And I also have concern about safety (as kawai does).  We will ask the ABA trainer to teach him to take pills.  Afterall, it is a skill that benefits for life.

The PAP results have released as well.  My son is wheat and milk allergic.  Milk has never been a major part in his diet since 2 years so that's not a problem.  We will just substitute pasta with rice noodles etc.      

He was also prescribed DMG (+B12 and folinic acid).

Siu Ming

kawai

Hi Siu Ming,

Good to hear that your son is doing well with bio-treatment as well as ABA training.  My opinion is that oral glutathione can't be absorbed better than TD-form glutathione.  You may observe if it works well on your son.  We'll be trying the gluthathione nasal spray soon as suggested by Dommom.  

For the DMSA challenge test, you may do it during term break.  I believe that it won't bother your son's rountine too much but hyperactivity is the most common side effect for a few days after the test.  You can simply open the capsule of DMSA and mix its content with some juice.  I found that cranberry juice is one of the best juices for mixing supplements.  We're now using mangosteen juice instead of cransberry juice as the mangosteen is the super natural antioxidant which helps body to flush out the heavy metals while on chelation therapy.  

  

jasper888

I am using Glutathione cream for my son. The oral glutathione smells and tastes too badly that even I can't stand it, so I decided not to use on my son.  

ultramom

Hi Siu Ming,
我個仔最初睇dr trodd, 都係食oral form的glutathione.  我當時係加係果汁度, 我都覺得陣味好難頂, 不過我記得dosage好少, 所以加咗果汁又唔係好覺, 不過我個仔食咗冇幾耐就停咗, 因為yeast problem.
我都覺得如果小朋友學識吞丸仔就好, 如果你位aba therapist有辦法教, 可否講講應該點教呢? 我個仔食親嘢都一定要"0趙"一輪才吞, 所以都唔知點教   
ultramom

Siu_Ming 寫道:
Hi everyone,

Haven't shown up in this thread for quite some time.  Anyway...I took my son to see Dr. Trodd this morning and was prescribed oral/ liquid form essential glutathione.  It smells bad and the instructions said it could be mixed with juice and taken promptly.  Anyone got experience with it and what medium (OJ, strawberry juice etc) do you think is best for masking the smell?  Thanks.

I think so far B12 and ABA (behavioural intervention) work best for my son.  Trodd said if B12 works well, it suggests that Mercury may be an issue.  He raised DMSA challenge again.  But my son is not good at taking pills.  And I also have concern about safety (as kawai does).  We will ask the ABA trainer to teach him to take pills.  Afterall, it is a skill that benefits for life.

The PAP results have released as well.  My son is wheat and milk allergic.  Milk has never been a major part in his diet since 2 years so that's not a problem.  We will just substitute pasta with rice noodles etc.      

He was also prescribed DMG (+B12 and folinic acid).

Siu Ming

ultramom

hi kawai,
我剛收到glutathione nasal spray, 昨晚第一次噴, 我會試吓用nasal spray 代替td gluathione cream, 因為阿仔要搽幾隻cream, 個人又細, 真係冇咁多位搽. :
過一排再滙報有冇唔同..
阿仔最近又開始用NDF-PLUS, 請問有冇家長試過呢?
ultramom

kawai 寫道:
Hi Siu Ming,

Good to hear that your son is doing well with bio-treatment as well as ABA training.  My opinion is that oral glutathione can't be absorbed better than TD-form glutathione.  You may observe if it works well on your son.  We'll be trying the gluthathione nasal spray soon as suggested by Dommom.  

For the DMSA challenge test, you may do it during term break.  I believe that it won't bother your son's rountine too much but hyperactivity is the most common side effect for a few days after the test.  You can simply open the capsule of DMSA and mix its content with some juice.  I found that cranberry juice is one of the best juices for mixing supplements.  We're now using mangosteen juice instead of cransberry juice as the mangosteen is the super natural antioxidant which helps body to flush out the heavy metals while on chelation therapy.  

  

HayBMum

Hi all,

阿仔已經食了3 round DMSA.  Yeast的問題好似一次比一次嚴重，最近一次連ABA therapist都覺，結果要用翻手帶去control 行為。最慘就係前幾日上早期訓練做言語評估，阿仔狀態奇差，連好basic 的都答錯，答完仲要傻笑，結果個assessment result 好差。下次都係要食yeast control 或者GSE 睇下會唔會幫到佢。

wewangwang

Hi, kawai,

Can you introduce more on mangosteen juice ? Where you buy?

Dommom

Ladies, just want to share with you we tried the "Miracle" brand stainless inner bowl rice cooker we ordered from Amazon.com today.  It costed us USD 115.- including domestic US freight charges, and an additional HKD 300 for the 220V to 110V transformer.

As expected, it was made in China.

My hubby did some searches and found that stainless steel inner bowl rice cookers are available in China if you can order 18 pieces a time.  Here is the site.  It costs only HKD 140-183 each.

http://hallsmart.cn.alibaba.com/athena/offerdetail/sale/hallsmart-0-51540792.html

Then the whole family can intake less aluminium and telfon.

kawai

Hi wewangwang,

Mangosteen juice is recommended by Dr. Usman.  My son has been using her protocol of chelation therapy since last month.  You may find more information about its benefits to health and online ordering from the following site:

http://www.mangosteenonline.com/

Hi HayBmum,

According to your description,  your son seems to be suffering from yeast infection.  You may consider  to use a low dose of Difulcan while taking next round of DMSA.  Carmen has been using this method for minimizing the yeast problem to his son and has found less side effect of DMSA.        

Ultramom,

The hand-held massage tool is $80.  Let me know if you want to buy one.  

  

wewangwang

kawai,

Thanks so much

HayBMum

hi Kawai,

Thanks for your advice, I think I will use Diflucan or GSE in parallel with DMSA in next round.  My son did the OT&T assessment today and he is still not doing well but at least not too much stimming.

ivanmommy

Hi HayBmum,

I suggest using Nystatin ( high dose, such as 5ml three times a day) or using Saccharomyces Boulardii ( two to three times a day which is available in little giant) to control the yeast problem during the DMSA taking days, and using the Diflucan during the DMSA off period because both Diflucan and DMSA can cause Liver toxicity.

chanchanboy

HayBmum,

I was recommended to let my son taking 5ml Diflucan and 100mg milk thistle (strengthen the gut) once during the DMSA days.  During the DMSA off days, my son has Nystatin (5ml x 2 times a day) and Saccharomyces Boulardii (250mg x 2 times a day).  Also may be due to the low dose DMSA, so far so good for the yeast problem.  

My son has attended the primary special school.  I don't know it's the method of the school or the supplements are working.  My son behaves good when doing his homework.  Before the primary school, my son threw tantrum / cried / refused to cooperate / very very slow when doing chinese writing.  Just two weeks in primary school, he knows how to write his name in chinese (his name is very complicated) and do the chinese writing (slightly more complicated than the previous ones)himself !

chanchanboy

Dommom,

Thanks for the information.

Dommom 寫道:
Ladies, just want to share with you we tried the "Miracle" brand stainless inner bowl rice cooker we ordered from Amazon.com today.  It costed us USD 115.- including domestic US freight charges, and an additional HKD 300 for the 220V to 110V transformer.

...

Then the whole family can intake less aluminium and telfon.

kawai

chanchanboy,

I'm happy to know that your son has such a good progress in thye last 2 weeks.  I think Dr. Usman's protocol is one of the reasons that made the improvement of your son.   

HayBMum

Dear ivanmommy & Chanchanboy,

thank you very much for your advices.

Chanchanboy,
Glad to know your son is getting along well with the primary school.   You have made a right choice for him.  

ultramom

chanchanboy,

so glad to hear that your son is doing good!!!   

ultramom

ultramom

hi Kawai,
yes, I would like to buy one.  Do you think 吳醫生can mail it to me? I will pay for the postage.
Thanks
ultramom

kawai 寫道:Ultramom,

The hand-held massage tool is $80.  Let me know if you want to buy one.  

  

Justin2002

chanchanboy,

My boy is also unwilling to do Chinese writing especially when he now has homework everyday (even though only a few lines of very simple words).  I do feel happy for you that your son can write his name and does his homework by himself.  I believe this is a mixed result of biomedical treatment and school efforts together with your love and patience!  Do cheer your son up on our behalf!

Justin2002

chanchanboy

justin2002, ultramom, haybmom, kawai,

Thank you for your messages.  I feel so warm.