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教育王國 › 討論區 › 自閉寶寶 › 「對不起，騷擾到你， 我兒患了自閉症」 ...
樓主: kmwun
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「對不起，騷擾到你， 我兒患了自閉症」 [複製鏈接]

pamam

Rank: 3Rank: 3


388
61#
發表於 06-9-4 09:33 |只看該作者

Re: 「對不起，騷擾到你， 我兒患了自閉症」

奀豬mami~~,

Don't get upset, those people are just stupid and ignorant. You can predict what kind of persons their kids would grow up to be with that kind of teaching.

What goes around comes around! One day if they have Pakinson's disease, their own kids may laugh at them and say, "mom, you are shaking, ha ha ,it's so funny."

Pamam


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kmwun

Rank: 5Rank: 5


1308
62#
發表於 06-9-4 13:58 |只看該作者

Re: 「對不起，騷擾到你， 我兒患了自閉症」

奀豬mami~~

做「人」就係咁架啦，好似俾隻狗吠你都唔會踎低吠番佢，只係可憐佢d小朋友。
每個小孩都是上帝用來提醒我們，這世間還有希望。——泰戈爾

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barneywong

Rank: 3Rank: 3


114
63#
發表於 06-9-4 17:16 |只看該作者

Re: 「對不起，騷擾到你， 我兒患了自閉症」

My son made the test (池力供震) when he was 8 mons old in st.teresa hospital. this is useful in my case. his left hand and feet was development delay cause by the brain cell damaged. we brought this report to government hospital to apply therapy for him. otherwise I have no idea when we will find put the actually problem.

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奀豬mami~~

Rank: 3Rank: 3


202
64#
發表於 06-9-4 23:32 |只看該作者

Re: 「對不起，騷擾到你， 我兒患了自閉症」

睇落去好有教養,原來又係咁不知所謂     

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cwong140

Rank: 2


52
65#
發表於 06-9-5 09:04 |只看該作者

Re: 「對不起，騷擾到你， 我兒患了自閉症」

barneywong

how old of yr son now?  any service can Government provide to yr son re the 池力供震? or they usually did their assessment first and assign training for him.  Since you did 池力供震 in the St. Teresa Hospital, after that found out the problem of yr son what advice/service they can give?

Do you think it is worth to do the 池力供震 to truely confirm which part is damaged at the brian?

Sorry to asking you so many questions.

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HEIPAN

Rank: 3Rank: 3


120
66#
發表於 06-9-5 13:21 |只看該作者

Re: 「對不起，騷擾到你， 我兒患了自閉症」

各位父母,不要放棄,雖然他們常常都行三步退一、二步。共勉!   

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barneywong

Rank: 3Rank: 3


114
67#
發表於 06-9-5 15:58 |只看該作者

Re: 「對不起，騷擾到你， 我兒患了自閉症」

cwong,

He is 11 mons now.
I am sure this is the only way to find out the real problem in the brain.  I am so glad that I do this test for my son because no doctor can told me what is the real problem.
St.teresa will not do any follow up for you. but they will give you a report that shown the result and suggestion.
My case is follow by PWD hospital when he has born. At the beginning, the doctor will try to use ultra sound to scan the brain. but it was not clear enough and only wasting time. After this process, they will refer to do MRI test. As I knew the minimum time for queuing is 1 yr in government.
So I do it in private hospital. then I bring the MRI report back to PWD for referring traning. PWD gives me very quick reponse and provide the OT/PT training. Even they so called this is emergency case, but I still need to wait minimum 2 mons to start training.
As per my opinion, you need to discuss with yr doctor before you did it.
I hope this can help you for the above info..



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jj06mum

Rank: 2


45
68#
發表於 06-9-5 16:43 |只看該作者

Re: 「對不起，騷擾到你， 我兒患了自閉症」

I put my son in a summer school for a test run during the summer holiday. The first day off school i asked what he did at school. He said a bad boy teased him for being"funny". This happened consistently the following few days and its always the same boy...  i didnt quite expect that ridicule can actually come to him at so young an age.  what worries and saddens me more is that he can actually sense rejection and gets anxious about it already....  he is generally a happy boy. quite a pleasant company really. he has a very endearing naivety which i cherish dearly. I really hope he can just stay like that for as long as possible during his childhood.   sometimes i wonder if i am choosing the right path for him by stressing him thru various therapies in the hope of his becoming more "typical" but only ending up planting seeds for his unhappiness too early.  Isnt life about being happy after all?  but having that said, how many of us dare choose otherwise?

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pamam

Rank: 3Rank: 3


388
69#
發表於 06-9-5 19:27 |只看該作者

Re: 「對不起，騷擾到你， 我兒患了自閉症」

jj06mum,

my son's nature is quite similar to your son, he is happy, cute, naive and affectionate. Most adults enjoy his company. But as he grows older and taller, all these cuteness and sweetness are gradually faded, people (I mean ordinary people, not close friends or relatives) becomes less tolerant, his naivety becomes something people laugh about or may take advantage of.

I think you are right to engage him to do all these therapies, our sons need those skills to survive in the real world, we can't guarantee that we are able to protect them under our wings forever. We also can't rely on luck that our sons may not meet wicked people. That's life.

Pamam

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jj06mum

Rank: 2


45
70#
發表於 06-9-16 17:19 |只看該作者

Re: 「對不起，騷擾到你， 我兒患了自閉症」

pamam

thanks for sharing ur view and foresight. while hoping what i am doing now may help my boy cope better with life later on but i also hate to realize i might be spoiling his precious childhood with memories of going from therapy to therapy. i really hope he wont remember much of this.  

if only this world we r living in could be a bit more forgiving...

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daddy_K

Rank: 1


22
71#
發表於 06-9-28 18:05 |只看該作者

Re: 「對不起，騷擾到你， 我兒患了自閉症」

pamam and jj06mum,

my son is just like yours.  he is a cute and happy boy (of course when he is not getting mad).  he's only 2 yr and 9 mth old now and seem not much different from other children.  but i know the gap will keep widening when he grow up.......

i cannot say i am not sad at all, but i will try to help him and make him live happier.

to me, he is a lost angel down to the earth, to help us look into the meaning of life, train us to become a better man, train us to help other people in need......

all parents here please be stronger~~~~ i wish all your children live happily~
jasper's photo album

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jasper888

Rank: 3Rank: 3


231
72#
發表於 06-9-28 22:09 |只看該作者

Re: 「對不起，騷擾到你， 我兒患了自閉症」

Dear Daddy_k

Your son is so handsome and cute!  One can see the wit in his eyes!

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ABBmom

Rank: 2


65
73#
發表於 06-9-29 00:56 |只看該作者

Re: 「對不起，騷擾到你， 我兒患了自閉症」

My son had done the MRI(磁力共震) in St. Teresa half an year ago due to head injury. There were 9 films in total and with 12 small scalps images in each film. The report was only "No significant  intracranial injury is evident".

Do you think that I can use these films to ask those specialist for report about brain cells damaged?

I don't know....maybe this is a very silly question.

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daddy_K

Rank: 1


22
74#
發表於 06-9-29 10:26 |只看該作者

Re: 「對不起，騷擾到你， 我兒患了自閉症」

jasper888 寫道:
Dear Daddy_k

Your son is so handsome and cute!  One can see the wit in his eyes!


hi~~ my son also name jasper~~~
but we always call me "toto"~~~
jasper's photo album

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jindui

Rank: 5Rank: 5


1468
75#
發表於 06-10-27 14:45 |只看該作者

Re: 「對不起，騷擾到你， 我兒患了自閉症」

new website

http://www.autism-parents.com/

hope this helps.  

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