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教育王國 討論區 特殊教育 "Biomedical Treatment - Parents' Group "
樓主: kawai
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"Biomedical Treatment - Parents' Group " [複製鏈接]

Rank: 4


544
901#
發表於 05-11-28 23:59 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

kawai,

Yes.  My son is taking DMSA 3 times, 3 days on & 11 days off -> The typical DAN protocol -> high dosage and less frequent.  For the coming 2nd round, I'll cut half the dosage and have the blood test to check liver function.  The liver is my main worry.  Since chelation is a long process, I need to think carefully.  

How's your son PCA-Rx chelation?  Any test report coming up?  

kawai 寫道:
Is your son taking DMSA 3 times x 3 days then 11 days off as a round?  Anyway, hope your son has a smooth and successful chelation journey.  
Carson's birthday in January 2000.

Rank: 4


725
902#
發表於 05-11-29 00:14 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear Dommom,

I was wondering why Dr. Trodd prescriped TF advanced plus to my son as the additional supplements included in the TF+ are too strong for a kid.  He probably wanted to clear up his overstock.  He charged me $600 per bottle for the "plus" type.  I shifted my son to "classic" type after I learnt the side effects of the "plus".  

I'm taking the plus and found it worked to help my irregular menstrual cycle dramatically.  

Rank: 4


725
903#
發表於 05-11-29 00:28 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Ivanmommy,

Nystatin is safer than Diflucan and it can be used as a long term treatment for yeast control.  I've never heard ALA will cause hyperactivity.  Most kids can tolerate it well without side effects.  You may try it again with a low dosage to reobserve the side effect.  

What's your son's weight?  1250mg seems too much to me.   

Chanchanboy,

I'll give my son both hair and urine tests by end of December.  Hope the PCA may help with the detoxification.  

Rank: 4


949
904#
發表於 05-11-29 07:27 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear Ivanmommy,
My son had got Nystatin for one year.  Although the progress is slow, it is safe.  

Dear all,
I visited Dr. Trodd yesterday and requested high dosage B-12 from him.  His immediate reply was 'high dosage B-12 must be taken in his clinic for safety sake'.  As it is inconvenient to take B-12 injection in his clinic twice a week, I therefore take the low dosage one.  According to some B-12 articles, low dosage B-12 may not bring out significant effect.  Although my son has shown improvement since taking B-12 for two months, I am not satisfied with the progress.  To me, the quicker the progress, the better.
我們怕孩子的人生路途滿佈荊棘,與其為孩子在路上舖一層地毯,不如在孩子的腳上穿上一雙鞋。

Rank: 4


646
905#
發表於 05-11-29 09:18 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

kawai,
1250mg is ok for a ~17kg boy according to the recommended dosage of 75mg / kg.  But I forgot the concentration of the B12 that Dr Trodd is currently giving to our kids.  If you get the reply from him, please also share with us.  

For OLE, I already got it from Green Concept.  My maid is trying it because she cough recently.  Still wait to see the effect.

ivanmommy,
don't be scared by my posting.  According to chanchanboy, the Diflucan in liquid form is still safe unless very high dosage is consumed.

Mrs Cheung,
What do you mean by high dosage of B12? How high is it?

Rank: 3Rank: 3


365
906#
發表於 05-11-29 09:59 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi Dommon,

Sorry for the misunderstanding.

Yes, I myself also start with the Advanced Plus since last week.  So far so good but it's still too early to comment.  Will share with you after finishing one bottle (probably 2 months).

Justin2002


1022
907#
發表於 05-11-29 10:44 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

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簽名被屏蔽

Rank: 5Rank: 5


1308
908#
發表於 05-11-29 11:45 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

stellacl

我下次睇啱d咩會話你知架啦  

stellacl 寫道:
各位,

我已經訂了上次很多媽咪在這裡介紹的濾水器, 但我同sales傾到可以用展銷價買 (原價$2180, 而家 $1680 ), 任何人如果用我作為推薦人買 (quote我的 a/c no. 就可以了), 都可以用我呢個價買 (但購買人和推薦人的回贈積分只有$100, 不是用原價買的有回贈 $300, 回贈積分是給下年買濾芯折扣用的)  

買左既媽咪唔好鬧我...   
每個小孩都是上帝用來提醒我們,這世間還有希望。——泰戈爾

Rank: 4


949
909#
發表於 05-11-29 12:07 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

With reference to Dr. Neubrander’s protocol (the innovator of B-12 injection), 25 mg/ml methyl-B12 can demonstrate the best improvement.  My child is taking the low dosage one which is less than 25 mg/ml.

Dr. Trodd insists on giving me the mild take-home dosage as he mentions that 25mg/ml may be a bit dangerous to take at home.

HayBMum 寫道:
Mrs Cheung,
What do you mean by high dosage of B12? How high is it?
我們怕孩子的人生路途滿佈荊棘,與其為孩子在路上舖一層地毯,不如在孩子的腳上穿上一雙鞋。

Rank: 4


544
910#
發表於 05-11-29 13:23 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

stellacl,
唔得, 都要鬧
Carson's birthday in January 2000.

Rank: 3Rank: 3


365
911#
發表於 05-11-29 15:00 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

stellacl,

I just finished installing one at my new house ah!

Yes, as kmwun said, we better ask you to bargain price of any order next time!!!

Many thanks for letting us know anyway.

Justin2002


1022
912#
發表於 05-11-29 15:20 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

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Rank: 4


725
913#
發表於 05-11-29 16:50 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear Stella and all,

You've fought a good deal with the saleslady.  I even paid the original price without extra discount when I purchased it long time ago.  Actually, there're a few points that I need to clarify here to other moms who ordered the water filter and did quote my a/c number as referral.

Firstly, I've no intention to take advantage from you guys.  I remembered the rebate for the referral is $100 coupon only and can be used for future filter refill.  I've received one coupon only in the past few years for purchasing one for my mom's house. Anyway, I'll return the exact coupon to all of you after I receive them no matter how much $coupon it is.  

Rank: 4


949
914#
發表於 05-11-29 17:21 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear stellacl,
For my child's situation, 1ml 只有 25mg 的 b12, 打一支 0.25ml 的 B-12 只有6.25 mg/ml.   This dosage is far from the standard level.

Dr. Trodd does not explain to me clearly.  I guess it should be quite difficult for laymen to inject 25 mg at home due to longer time.   

If Dr. Lam really prescribes the high dosage B-12, I will visit him next time.
我們怕孩子的人生路途滿佈荊棘,與其為孩子在路上舖一層地毯,不如在孩子的腳上穿上一雙鞋。

Rank: 4


544
915#
發表於 05-11-29 21:53 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

kawai,

No need to worry about this.  We of course know you have no intention to take any advantage.  I quote your account only because 唔好浪費, 益左間公司.  Moreover, you always do so many research for us.  BTW, according to the saleslady, the rebate for referral is 300 points (not $$) which is equal to HK$100 only.

kawai 寫道:
Firstly, I've no intention to take advantage from you guys.  I remembered the rebate for the referral is $100 coupon only and can be used for future filter refill.
Carson's birthday in January 2000.

Rank: 4


646
916#
發表於 05-11-29 21:54 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Mrsphcheung,

I think Dr Trodd give you the wrong information.  Let me check with the pharmacist what is our current dosage when I go to collect the medication tomorrow.

Rank: 2


46
917#
發表於 05-11-29 22:27 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Dear all,

Sorry about the wrong information I posted last night. The B-12 concentration I got from Dr. Trodd is 10mg/2ml,so 0.25ml which I gave to my son twice a week should be 1250mcg(1.25mg) which is in accordance to Dr. Neubrander's recommendation 75mcg/kg and my son's body weight is 17kg.

I have not heard of the high dose protocol by Dr. Trodd   DId any doctor recommend to anyone of you?
Thanks  

Rank: 3Rank: 3


247
918#
發表於 05-11-29 22:54 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

Hi Kawai,
我當然都唔會覺得你係想"take advantage"啦...
講真, 作為一個家長, 我好明白時間係幾寶貴... 你成日公開你揾到新料俾我哋知, 真係唔知幾感激你   
不過老公結果揀咗另外一隻牌子濾水器,所以冇用到你個member#做referral. 唔好意思, 問咗又冇用到.

Rank: 4


725
919#
發表於 05-11-29 22:58 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

chanchanboy,
我今日有打比個sales問佢為何明明有兩個referral scheme,一個$2,180正價,回贈$300coupon,另一個$1,680特價,回贈$100coupon. 點解冇offer特價比我介紹的媽咪.而Stella剛落order為何她介紹的亦可有同樣特價.我鬧佢我一心介紹生意比佢,明知我們各位媽咪係相識,卻如此大細超.你叫我怎樣同已購正價的媽咪交代.後來比我鬧到聲都唔敢聲,連忘道歉.你地已購正價貨的可打電話比佢問佢討回贈品.佢同我講話有位媽咪已討回$500贈品了.

Stella,
唔好意思!發咁大勞蘇.我份人從不要求人家比我最平,祗要求公道,合理.我買的己數年前,沒有拆我不怪她.但其他媽咪購入時間相約,為何得不到如此優惠.坦白講,我對此人卿的銷售策略評價甚低,年尾博數就係人都明白,但如此開罪客仔,恐怕得不賞失.

Rank: 4


544
920#
發表於 05-11-29 23:40 |只看該作者

Re: "Biomedical Treatment - Parents' Group "

kawai,
真係唔該哂你呀!! 為左我地做咁多野!!
我係用$2180, 得張$100惠康coupon送比我, 呢個sales真係非常唔老實, 不過唔緊要, 我相信佢會失左好多客, 因為原本我屋企人要買, 都唔會再揾佢.  
Carson's birthday in January 2000.
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