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Re: BB聽力測試
MarchK,
In term of 栗子's condition, I have a lot of information to share with u as that is my area of interest when I was working in HK. However, I am myself quite busy recently  and I don't think it's a good idea to bomb u with too much info.... so one step at a time! :wink: Pls allow several days btw my responses!
Firstly, if further tests still indicate similar results (ie. no ABR responses, but normal cochlear functions). The Eng term for it is "Auditory Neuropathy (AN)". It's a rather new diagnosis that can be made due to improved technology. I doubt if there is any Chinese term yet, as I would say just a few professionals in HK heard of it ten years ago.
Secondly, chance of neuro-maturation is still there, although with your additional info "黃疸過高", that chance decreases.
"他一隻完全聽唔到,另一隻只聽得好少. "
It's one of the characteristic of AN that no ABR can be recorded, but it doesn't necessarily mean that baby "cannot" hear. Rather it's like what the doctor said " ....時間唔一致,所以即使他聽到聲音,都可能分辨唔到音"
Hearing has several dimensions: loud/ soft, hi-pitch/ lo-pitch, and timing of which the sound is received. The last item results in "distorted" sound (like a radio tuned wrongly), but baby may still hear it. And since ABR result was affected by the timing component, we actually have no idea how loud/ soft 栗子 can detect sound, until he/ she is big enough to do other behaviour tests.
With this in mind,
(1) talk and sing to baby as usual. Although the songs 栗子 "hears" may not be in the same way as ours, he/ she still feel your love within.
(2) face-to-face interaction is especially important in this case. Consider adding any visual cue that helps him/ her understands.
(3) as mentioned in last message, if hearing aid is fitted for trial, very close monitoring is needed. If 栗子 shows sign of discomfort/ frighten by amplified sound, that means he/ she can detect sound softer than we expect. Report to the audiologist and ask for opinion of re-tuning the h/a.
(4) sign language is not a bad idea, but talk to him/ her even u try sign language. In US, even hearing babies learn sign, because research with them shows that they can develop both just like learning 2 languages.
(5) "話耳蝸植入手術唔適合他,唔駛諗" I have conservation at this point. Successful cases have been reported in foreign countries. And I had a case in HK (an AN teen) has it done too.
(6) answering your previous question: if CI surgery is considered, HK govt will usually fund for one rather than two even though two ears are impaired.
---- All in all, hope is still everywhere and keep on the love and care u dedicated to your baby!  If u don't mind reading a lot of Eng to understand the situation more, I will give u some websites next time.
---- All the best to u and your baby! BTW, is baby 栗子 a boy/ girl?  |
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發表於 05-7-30 00:24
吓吓搵私家，真係好唔得掂 
, 前面仍有出路.