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教育王國 › 討論區 › 自閉寶寶 › 大家要keep住聯絡呀!一齊努力一齊進步!
樓主: brenda0505
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大家要keep住聯絡呀!一齊努力一齊進步! [複製鏈接]

yymm2007

Rank: 3Rank: 3

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316
601#
發表於 07-10-21 00:23 |只看該作者
原文章由 podi 於 07-10-21 00:07 硐表
Please calculate how much for the extra 外賣?  I will deposit the $$ when it's ready!


係呀 ! 要計番呀 ! 邊位出錢架 ?　要入番錢比你地!

MAY

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CCnam

Rank: 3Rank: 3


143
602#
發表於 07-10-21 15:11 |只看該作者
BRENDA & AMON:
多謝你們送給楠楠的禮物 !
IRENE:
多謝你親手做的birthday cake !

:loveliness:

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CCnam

Rank: 3Rank: 3


143
603#
發表於 07-10-21 16:21 |只看該作者
專業到訪家居訓練諮詢及指導(半年配套服務)
http://www.salvation.org.hk/ssd_web/fsspa/lessonintro.html

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samanthat38

Rank: 5Rank: 5


1019
604#
發表於 07-10-21 18:35 |只看該作者
Hi everybody,

  Thanks for Brenda and Irene arrangment.  And Yau Yau and me both feel very happy.

   We are glad to meet you all.  Hope next time,we can join it again.

Samantha

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samanthat38

Rank: 5Rank: 5


1019
605#
發表於 07-10-21 18:58 |只看該作者
Hi May,

I have find back the message and the link of the autisum boy who grow up and loss the feature of "At" as the followiing.
Believe you read itand you will be more clear.
( I copy it in BK another topic.)

Dr.Chan的分享＜消失的身分証＞/自閉青年在途上第１８~19篇


http://www.hkedcity.net/article/specialed_feature_people1st/070820-003/

http://www.hkedcity.net/article/specialed_feature_people1st/070827-001/

Dont so care and worry about  Amy has been Labled " Autisum" before.  But now if she is already overcome.  That is good and important. And it is the best present and rewards for the past year of your hardworking.  It is better than everything!!!

Samantha


Samantha

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yymm2007

Rank: 3Rank: 3

醒目開學勳章


316
606#
發表於 07-10-21 20:46 |只看該作者
原文章由 samanthat38 於 07-10-21 18:58 硐表
Hi May,

I have find back the message and the link of the autisum boy who grow up and loss the feature of "At" as the followiing.
Believe you read itand you will be more clear.
( I copy it in BK ano ...


Samantha:

吾該晒 ! 等我有時間果陣慢慢細味內容 ! 從別人的故事中, 希望得到更多啟發 & 得著!

另, 今午同朋友(識左近二十年)傾過AMY既事 ! 呢個朋友一向都係我生命中的"明燈", 經佢分析後, 我如釋重負 ! 我已睇到前面條路點行 ! 一點也不迷失 ! 我自我調節力都OK架 ! 你真的不用為我擔心 !    ANYWAY, 謝謝你的關心 & 意見 ! :)  

我仍然不變既係→ 為左個女做到幾多就幾多 ! 盡左力..我無慚於心 ! 過往的努力, 今日總算有回報, 這樣已好滿足 ! :loveliness: 如AMY需要的...我作為佢媽咪, 就一定會為佢爭取 ! 呢個係我責任 ! 至於佢已吾需要的→吾要都無所謂LU ! 相信有更多小朋友比AMY更需要呢D資源 !

MAY

[ 本文章最後由 yymm2007 於 07-10-21 21:51 編輯 ]

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yymm2007

Rank: 3Rank: 3

醒目開學勳章


316
607#
發表於 07-10-21 21:47 |只看該作者
原文章由 CCnam 於 07-10-21 16:21 硐表
專業到訪家居訓練諮詢及指導(半年配套服務)
http://www.salvation.org.hk/ssd_web/fsspa/lessonintro.html


IVY :

謝謝提供資料 , 計落真係幾平喎 ! 我最近識左個媽咪 , 係家長會識既 , 佢個仔好需要呢種服務 , 我介紹佢試下先 ! 吾該晒 !

MAY

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CCnam

Rank: 3Rank: 3


143
608#
發表於 07-10-22 00:49 |只看該作者
不知幾時又有聚合?
每次都覺得好快就完,
真係快樂不知時日過呢!:

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brenda0505

Rank: 3Rank: 3


316
609#
發表於 07-10-22 00:52 |只看該作者
這次已經係我們第四次聚會, 每次未必可以同每個媽咪詳談, 但當見面時都有種好舒服同熟落感覺. 因平時當在家裡, 學校或外出時當迪有吵鬧行為時我都會克制他, 但在這兒便可令自已或孩子盡情放開懷抱傾談或玩耍, 讓雙方都有放鬆的一刻. 我自己希望下次聚會可以計劃戶外活動, 如:  bbq, 或幫我們的孩子舉行生日會等等. 不過到時要需要更多媽咪幫手...

may, 不要過份為女女失去服務問題而唔開心, 雖然amy可能還需要有訓練的項目, 但其實反過來看她距離正常孩子的路牌又邁進一大步了. 而這也是我們一眾媽咪夢寐以求想聽的一句說話.

ivy&楠爸, 多謝你們的意見, 我會盡量考慮及嘗試接納.

samanthat & podi, 好開心認識你們, 希望下次聚會再見面.

其它媽咪如: amon, irene, veron, connie, cathy, rebecca, joyce & jacqualine, 大家未必平時會常有電話聯絡, 希望多點上來分享和分憂ops:" />


uote]原文章由 yymm2007 於 07-10-21 21:47 硐表


IVY :

謝謝提供資料 , 計落真係幾平喎 ! 我最近識左個媽咪 , 係家長會識既 , 佢個仔好需要呢種服務 , 我介紹佢試下先 ! 吾該晒 !

MAY [/quote]

[ 本文章最後由 brenda0505 於 07-10-22 00:54 編輯 ]

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yymm2007

Rank: 3Rank: 3

醒目開學勳章


316
610#
發表於 07-10-22 06:38 |只看該作者
原文章由 brenda0505 於 07-10-22 00:52 硐表
may, 不要過份為女女失去服務問題而唔開心, 雖然amy可能還需要有訓練的項目, 但其實反過來看她距離正常孩子的路牌又邁進一大步了. 而這也是我們一眾媽咪夢寐以求想聽的一句說話.


BRENDA :

謝謝你啊 ! 要大家為我擔心...真不好意思 !
點講好呢 ?! 其實現在我內心真的很平安  & 昨日經朋友提點後 , 打從AMY評估到依家, 我真從没如此輕鬆過 ! 以AMY現在既表現 , 我真的好滿足 ! :loveliness: 我現在没再為"失去服務一事"而有所顧慮了! (反正AMY吾會係果度學到D詳野!) 講真...一直以黎,我個女都無到任何"機構"做訓練, 全部都係我自己做的 , 過往最惡劣既時候..無外援, 我都應付到 ! 咁將來繼續靠自己, 我相信"我都做得到" !

MAY

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yymm2007

Rank: 3Rank: 3

醒目開學勳章


316
611#
發表於 07-10-22 06:52 |只看該作者
BRENDA :

上次聚會我無黎 , 所以成2個月無見"廸" ! 今次見到佢 , 發覺佢進步左好多 ! 佢係地鐵站時肯"等待" ! 食飯又可以"坐定定"自己食 ! 另, 佢語言方面, 真係進步左 ! 真係要奬個"叻叻"比佢 !

MAY

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管家

Rank: 1


14
612#
發表於 07-10-22 14:48 |只看該作者
hi, samantha

上星期三已去 cac 見姑娘,
仔仔見到個姑娘, 不知幾高興,
經常撩姑娘玩,
姑娘叫佢做咩都好合作去做,
仲會自己拍手讚自己
所以姑娘話 仔仔應該冇自閉傾向,
但話佢大小肌肉 & 語言方面較慢,
所以需要作進一步評估...

雖然姑娘咁講, 但仔仔真係好多時唔睬人, 有 d 似你仔仔, 唔高興就唔睬人, 仲會用尖叫拒絕人.
佢開心時, 會fing 手, 又fing得勁,
仲有佢見人跑步好開心 (佢會注意別人的腳 ),
自己又唔跑...

所以我仲係有擔心

原文章由 samanthat38 於 07-10-18 00:34 硐表


Hi 管家,

    My son's situation is smiliar as yours but he hvnt "fing" hands.  But my son's report is understanding and speech as only 2 yrs old which behind 1 yrs ( 2 month ago report.)  And he is weak for pay attention learning.

    Furthermore, the teacher told me that he dont like to answer  the question even if he know the answer.  He always keep slience if he feel no mood.  Noone know if he is dont understand or cant speak his mind.  This is the bigger problem than others due to it cant let others to ready himself.

     If he feel happy, he will talk all the days (some is space word.)  And he will let you know he is understanding.

     Anyway, keep contact and when you will have see he doctor?  If you have your schedule and report.  Please share it.

    ** Sorry for I dont know how to type chines and hope you can understand my "Limitation Eng".
我是仔仔的管家

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DMJ103

Rank: 3Rank: 3


340
613#
發表於 07-10-22 15:19 |只看該作者
Dear Brenda and everyone,

Hi! I am new in this topic. I have been following your stories since July. But I am quite "passive" and "shy", I never left any message nor tried to join your gathering.

Yet I discovered that I have no one to talk to about my son's situation, except my husband. So I really want to join your group (if you don't mind) and gatherings. I find myself worry more and more about my son. I hope that meeting strong moms like you give me more insights and hopes.  

So if it is ok, would you please count me in in the next gathering?
原文章由 brenda0505 於 07-10-22 00:52 硐表
這次已經係我們第四次聚會, 每次未必可以同每個媽咪詳談, 但當見面時都有種好舒服同熟落感覺. 因平時當在家裡, 學校或外出時當迪有吵鬧行為時我都會克制他, 但在這兒便可令自已或孩子盡情放開懷抱傾談或玩耍, 讓雙方 ...

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llcathy2004

Rank: 4


614
614#
發表於 07-10-23 00:14 |只看該作者
我諗我都需要呢個服務,真係唔知點先可以教好個仔!人地見佢咁曳,仲以為我地唔教唔理.好似今日婆婆公公帶佢搭巴士,幾個師奶見佢曳同嘈,鬧佢不特止仲話婆婆好唔教佢,婆婆已經話佢係有啲問題嘅,得黎嘅回應係:睇佢個樣邊度有問題呀,縱壞就真!:-|
原文章由 yymm2007 於 07-10-21 21:47 硐表


IVY :

謝謝提供資料 , 計落真係幾平喎 ! 我最近識左個媽咪 , 係家長會識既 , 佢個仔好需要呢種服務 , 我介紹佢試下先 ! 吾該晒 !

MAY

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bigheadgirl

Rank: 3Rank: 3


279
615#
發表於 07-10-23 02:18 |只看該作者
Podi,
果日無咩同你傾計,真唔好意思呀!我老公仲話:"你應該同每個mummy都傾吓嘛,点做主人家!(意思係我clubhouse攪gathering)"ops:" /> ops:" /> ops:" /> 下次真係要安排好D先得.
今次又計算錯誤,上次唔夠嘢食,今次太多嘢食,extra外賣&加多一個鈡房租,每個family要比多$20,Podi早走所以應該唔知道,唔好意思,麻煩你入我bank account,真係唔該哂!

May,
我忘記你是否已付$20,當日實在太混亂LA,如未付,又要麻煩你入我bank account,唔該晒!
另,你提及的talk--親親孩子天是什麼呢?我個社工完全無呢D資料,唉!做佢client真係 .
關於小Amy,講真,甚麼自閉傾向,亞氏保家,我覺得完全不適合用係佢身上,可能佢曾經有過一D"曳曳"行為,但我並唔覺得呢D行為就=自閉特徵,況且而家佢已經係一個乖巧有禮,人見人愛嘅小lady,所以May,繼續你而家嘅教育方式,小Amy必定是一個健康開心,有禮貌,可愛的可人兒.
原文章由 podi 於 07-10-21 00:07 硐表
Thanks for the arrangement which is done by Brenda and Irene.  I enjoy the dinner very much   Please calculate how much for the extra 外賣?  I will deposit the $$ when it's ready!

[ 本文章最後由 bigheadgirl 於 07-10-23 02:20 編輯 ]

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veronchan

Rank: 4


792
616#
發表於 07-10-23 10:10 |只看該作者
話咁快期待已久嘅第四次聚會又完咗, 雖然Irene已將聚會時間再加多一個鐘, 但始終好似唔係好夠咁, 不能同各身姊妹傾談。正如Brenda話頭雖然見面次數唔多, 但我哋之間已經好熟落, 响一齊真係好舒服, 可以暢所欲言, 舒發自己嘅情緒, 亦可提問任何問題, 呢啲係平時不能同其他人分享的, 因為佢哋係唔會明白我哋嘅心情。好似Adrian咁, 已經無咁怕生, 見到Brenda同Irene都肯攬同錫, 同埋肯响屋企以外嘅地方痾bu bu, 已經係一個進步, 我好開心。就連我老公都話我每次與妳哋見面後, 我都會比平日開心咗, 叫我真係要參與, 學吓放鬆自己tim

真係好期待下一次聚會, Brenda嘅提議好好, 趁秋高氣爽, 可能outing, 同埋可能定期為小朋友攪生日會咁。需要幫忙攪嘢, 可隨時找我  

Brenda & Irene,
又再一次謝謝妳們嘅安排, 當然唔少得Irene個可口美味cheese cake啦

May,
不用擔心, 我好肯定Amy絕對無問題。係一個正常活潑有禮嘅小朋友, 佢又聽話, 講嘢又流利, 面對人時又唔怕生, 又有eye contact, 重會有什麼事, 證明妳所付出嘅一啲都無白費, 係有回報嘅

Adrian大Amy兩個月, 講嘢重係一舊舊咁, 又唔識表達, 脾氣又唔好, 又唔肯等待, 無耐性, 我都唔知幾時, 同埋點教佢去到好似Amy咁




原文章由 brenda0505 於 07-10-22 00:52 硐表
這次已經係我們第四次聚會, 每次未必可以同每個媽咪詳談, 但當見面時都有種好舒服同熟落感覺. 因平時當在家裡, 學校或外出時當迪有吵鬧行為時我都會克制他, 但在這兒便可令自已或孩子盡情放開懷抱傾談或玩耍, 讓雙方 ...

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veronchan

Rank: 4


792
617#
發表於 07-10-23 10:21 |只看該作者
llcathy2004,

那日聚會好高興與妳分享我哋兩個仔嘅情況, 其實妳所面對嘅問題同樣地我都發生過, 所以好明白, 希望妳唔好灰心, 我哋繼續努力吧! 只要我哋唔放棄, 終會有一天好似阿May咁, 苦盡甘來的 雖然我自己都唔知要幾耐, 但始終有個信念, 條路會易行啲, 個心會好過啲:loveliness:共勉之啦   


原文章由 llcathy2004 於 07-10-23 00:14 硐表
我諗我都需要呢個服務,真係唔知點先可以教好個仔!人地見佢咁曳,仲以為我地唔教唔理.好似今日婆婆公公帶佢搭巴士,幾個師奶見佢曳同嘈,鬧佢不特止仲話婆婆好唔教佢,婆婆已經話佢係有啲問題嘅,得黎嘅回應係:睇佢個樣邊 ...

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samanthat38

Rank: 5Rank: 5


1019
618#
發表於 07-10-23 11:02 |只看該作者
Hi May,

  We are glad to hear that you can overcome your problem.  "加油!!!"

  And you must take care yourself especially take more time for rest such as you are so earily on line.  Otherwise,
you have not enough energy to take care "Amy".

  Are you get well already?  You know 感冒的克星 : SLEEPING.

  "小心身體!!"

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samanthat38

Rank: 5Rank: 5


1019
619#
發表於 07-10-23 11:19 |只看該作者
原文章由 管家 於 07-10-22 14:48 硐表
hi, samantha

上星期三已去 cac 見姑娘,
仔仔見到個姑娘, 不知幾高興,
經常撩姑娘玩,
姑娘叫佢做咩都好合作去做,
仲會自己拍手讚自己
所以姑娘話 仔仔應該冇自閉傾向,
但話佢大小肌肉 & 語言方面較慢,
所以 ...


管家,

    Anyway, it is a good news. At least 你的心情會好d. Dont care what is the name of the problem. 就算是自閉,你又會怎樣? Dont think so much due to it is no help. The mainly is how to help your son?  If nurse keep you any advice to follow up or now is waiting to see doctor again. (When is the schedule?) If nurse no advice, you can phone to them and pushing.  
    I remember that any eetc, i位排期 and formal result must base on the doctor's 診斷,才可以start. (And find out how delayed for your son if the nurse can tell you?  Otherwise, you must waiting the doctor.  Generally, nurse cant told you.)

   Now, dont thinking too much, ask for next step.  First to check the schedule of doctor.  2nd arrange some tainning for your son if you can afford such as heephong or step,etc.  due to now you have an idea for help your son which all the centre will ask you.  And remember that all the tainning service need to排隊.  You can 排隊先 and you can thinking more about it.

   Hope the above will help you.

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samanthat38

Rank: 5Rank: 5


1019
620#
發表於 07-10-23 12:00 |只看該作者
原文章由 samanthat38 於 07-10-23 11:19 硐表


管家,

    Anyway, it is a good news. At least 你的心情會好d. Dont care what is the name of the problem. 就算是自閉,你又會怎樣? Dont think so much due to it is no help. The mainly is how to help you ...



Sorry, maybe the wording is so hard. Havt care your emotion status. Believe your mind is still 15/16.  But it no help.  And積極面對 is better than thinking due to our 幻想/憂慮 will let us down and 消磨我們的信心和意志. Always 想像 is worse than the fact. 既然the nurse have the postive comments, that mean although your son is autisum, he is be 輕微和 at least 有時間給你消化和拉接受‧ Take action will be more 實際 and help your son. 不要想得大多,以致自己嚇自已.
Everyone can through the tainning and improve : It is the true.

Anyway, if you still feel unhappy, upset,etc,  you can share with us.

I

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