Asperger's Syndrome

gracewu

Any parents  have  teenagers with Asperger's Syndrome please give your experience.    Most of the topics are talking about kids around 2 to 10.  How about teenagers? What are the emotional changes and their  school life?  Kindly give comments.

hkaman

mm.......... 都好多呀

但我覺得好重要的一點係,上到高小/中學面對的事宜，特別是社交上的會比之前複雜多，他們經常成為別人玩弄的對象...故情緒亦較多起伏~~~加上他們遇事不曉變通... 令他們感到混亂~~~好似所有事一次過從腦海湧出似的，一時間好難面對

可以試下在他們心情平伏時與他傾談，要是他情緒不好時可以如何協助他，有時佢地都會講到俾你聽架...

有一個朋輩抒發情感的空間，認識&接納自己都係好重要的!

gracewu

Thanks for your comments.  Sometime it is difficult for them to find a friend to talk to.  It takes time, maybe.

hkaman

你講得非常岩呀~~~要佢地同人傾計，佢未必能搭上之外，人地又未必搭得上佢地d topic,所以最好搵返d差不多能力的少年一齊，初時就一定傾唔到d咩共同事情的了，但就可以俾佢地有一個抒發的空間，也可以營造群體的感覺俾佢地，等佢地開始習慣群體先再加多一d特定題目同佢地傾/玩，咁佢地會開心d架!

社會上成日講融合，融合的過程中佢地遇到的壓力有時唔係我地所想咁簡單呀，我見過一位青年，成日都唔講野，好靜的，有次我同佢傾到計，了解之下先知原本佢都好想開口同人講野，但知自己表達得唔好，會hurt親其他人...佢地有時就係咁善良....所以要是佢有一班可分享的朋輩，不論有冇特殊需要，都係好架 (分享要輕鬆舒服的呀，我地都係啦~~~話不投機半句多~~~)

總之大家一齊努力啦!

gracewu

Thanks for your encouragement.  

ckf

Glad to see this topic here.  At least I can learn some experience from you guys as your kids are older.  

My daughter is 6 this year and she is waiting for an evaluation here in US to confirm that she has Asperger Syndrome or not.  Her school's speech therapyst suspect her has it. My daughter is very bright except her social behavior and communication skill is very poor.    At the beginning I thought it may be my parenting skill is not good but now I am relieved.  I am stressed everytime when I bring my daughter out shopping or visiting people or playing at the playground.  Her odd behavior made me feel shame sometimes.  Anyway, knowing that she has this kind of disorder relieved me.  Her school is waiting for her accessment so that they can tailor made an individual education program for her.  

Hope you guys keep posting....

Thinker

Hello ckf,

Would you mind sharing some examples of "odd behaviours"?  That will help us to spot anything off the track more easily.

Many Thanks

hinhei

我個仔都係六歲,係評估中心定為亞氏保家...
我同我個仔出街............暫時都無乜特別問題......係佢比較鐘意原地跳,係坐坐吓都會無端端企起身跳幾吓,跟住又坐返!!
但出街都好正常,係好動一啲囉!不過佢同細佬相處........就真係好麻煩!!
我都好擔心佢第日大個啲,會比其他同學覺得佢古怪!!因佢就係常做一啲好自我的行為(若我在場,會立即解釋制止!).佢見到人哋某啲動作,就不會去睇環境,就跟住去做,人哋可能會覺得佢.............唉`~

ckf

Thinker :
you may find  more info here :
http://www.udel.edu/bkirby/asperger/

My daughter's "strange" behavior like :  touch (and hug sometimes) every kids she met include "strangers".  The school and I both taught her about the "stranger" concept e.g. don't talk to strangers, but she'll say hi to everybody we met while on the way we walk to school and also the strangers in the bus and store.  She won't respond to people talk to her, e.g.  when the cashier of the store ask her questions while we are checking out, she just act like she's a deaf, she won't answer the question until I ask her the same question and remind her to answer back to the cashier.  My daughter is very smart in language and very good in vocabulary, she is in grade one but has at least grade 3 level language skill.  Other problem like touch everything that she can reach, talk to and play with her imagination friends in public(people see her action will thought she is funny or silly)e.g. hold the toy cell phone talking while we are taking a walk or doing the "hit ball" movement  but there is  no ball on hand and nobody play with her at the playground.  Besides, use high pitch voice to talk very often especially when she is upset or excited.

kmwun

Dear all

我仔仔快六歲半，亦是有亞氏保加症，當然亦有社交問題及固執行為。

社交問題方面，他們比較難從一般生活上學習到一些社交的技巧，我現在利用一些社交書，簡單的文字及圖畫，說明一些日常生活碰到的事情該怎樣反應/處理，例如如何跟人打招呼。唯有利用他們記憶力好的長處，讓他們死記硬背一般人接受的規則，希望能拉近與其他人的生活習慣。仔仔亦好幸運今年能參加蕊展計劃，他們針對訓練升小一/二的亞氏保加症小朋友社交的問題。

另外固執行為，仔仔的治療師都認為如果是無傷大雅的行為亦不怡必須要小朋友戒掉有關的行為。我亦試過成功地幫仔仔戒掉某些行為。手法不外乎"日哦夜哦"，慢慢減少固執行為。例如之前仔仔紅過地鐵站的路線圖或街道圖必定要停下來看，於是我不停跟他說路線圖或街道圖不會改變，每次都一模一樣，然後嘗試縮短看的時間，慢慢由經過地圖會掙脫我手走到地圖前看，現在只會一面走過一面看。當然戒掉老的新的又會出現，唯有見招拆招。

ckf

My daughter also love to read bus schedule and map for a while( about 3 months), now this behavior is almost disappear.  Recently, she love to play bounce ball, she play it when she finishes  her breakfast before she goes to school, all the recess times at school, when she back home after school , after lunch and dinner etc.... she has to have the ball on hand almost every minute except she is doing homework, watching video, reading books, taking bath, eating. This behavior appear about 2 months now.

I also buy lots of manner/behavior books (e.g. how to make friends, cooperation, sportmanship, etc) and read to her but she seems not understand the concept very well, I have to remind her the manners very often.

ordinaryparent

Dear all,

It is a relieve to know that there is a place to ask for help.

Would you advise me some books that is good for treat social skill of AS child.

sjmama

我的社交故事書 (by Spastics Association)



http://www.spastic.org.hk/

ckf

ordinaryparent :

you may find some info here...

http://www.teacch.com/teacch_e.htm

pamam

Hi everyone,

I've just been to the parent's consultation meeting with my son's teacher(My son is 6, Asperger, at mainstream Int'l School), I am overjoyed!!!

His teacher said he is going great and has improved in nearly all aspects.  This teacher has had teaching  experiences in special education in UK and is really really doing a great job with my son! I was very touched when I knew that she would go around shopping for the right tools to assist my son's learning and constantly thinking of how to improve my son's social skills.

She knows my son is good at Maths, so she asked my son to be her Maths assistant and help teaching in the class. This, not only raised my son's esteem, it also let his classmates(normal kids) to know that my son is smart so that he can gain some respects from his classmates, so they don't just see him as the weird one.

A good teacher can make a lot of difference to our kids, Some would do more work to integrate our special child to normal kids, but most would rather do less work and isolate our child.

This is the first time I went to a parent-teacher meeting without feeling sad and pressures. Normally after each of this sections, I would be upset for a few weeks, I am sure some of you have experienced this feelings. I just hope your kids would meet a good teacher too!! I feel so blessed!

Pamam      

sjmama

Dear pamam,
Congratulations!

sjmama

pamam

Dear sjmama,

thanks, I just hope I can continue posting good news here. From you(siu ming too) and other moms, I have learned to stop comparing my son with other kids. It made my life a lot happier and lessen the pressure on my son too!

Pamam




  

rachaelmum

pamam,

Glad to know your son is making a steady progress.
Congratulation!

pamam 寫道:
Dear sjmama,

thanks, I just hope I can continue posting good news here. From you(siu ming too) and other moms, I have learned to stop comparing my son with other kids. It made my life a lot happier and lessen the pressure on my son too!


I have the same feeling too!




  

wewangwang

dear pamam,

Congratulations! Remember not long  ago, you said your son had no progress and you felt so upsad.

Life is like that , full of hope and unexpected events.

I envy you. I  hope I can post good news like you in the future.   

pamam

Dear wewangwang,

yep, you've got that right. My son had a bumby start in September, with hind sight, maybe it was because he needed time to settle with a new teacher, new classmates and new routines.

Being mom of a special kid, it is not easy to stay optimistic all the time, life is full of ups and downs. It is good that we have a platform here so that we can get encouragement from others when we are down and we can encourage others when we are up!


Pamam