Noonan Syndrome

taiman0303

本人的女兒快6歲了, 但不能自行走動, 而且身形矮小, 像2歲的小孩.
請問有沒有Noonan Syndrome小朋友的家長, 可以分享經驗?
  

mrsliu1991

Hi, taiman0303,

我個女都有Noonan,一樣就6歲，都比其他同齡小朋友矮小，因有其他疾病，所以由幾家醫院跟進，或者你可以email比我，[email protected]

HongHei

My son also got Noonan Syndrome.  He is  6 years old.  He looks like 3 years old boy.  He can run slowly and walk, but still cannot jump.  When he walk up and down the stair,  he need to hold the handle for balancing.  However, I have sent him to do a lot of exercise since 3 years old.  I found that if we only focus on physiotherapy, this is not enough for physical development.  Therefore, I push him to join little gym, swimming class, etc.  Actually, they are quite easy to feel tired after exercise.  So we must encourage and push them to do it.  Now, my son's eating and walking are better than before.  

If your daughter cannot walk well, how to go to school?

mrsliu1991

家長需經常幫小朋友拉筋，以防筋太緊，同時要避免他們趷腳，經常要提醒小朋友努力，各媽媽都要加油！