今天女兒剛測出有中度弱聽

Zephy

今天女兒剛測出有中度弱聽，心情頓然忐忑不安，可否有同樣遭遇的父母分享吓，特別是做父母可以做甚麼去幫佢？多向佢講話、多正面回應？這刻我真的希望有多些支持，謝謝！

  

jasper888

If your child is of young age, check with the ENT to see if hearing aid / cochlea implant helps.

wmbaba

to:Zephy

我的女兒是嚴重弱聽，知道的時候我沒有太大反應，
因為她出世當天就因心臟病引至呼吸困難。第二天
轉到心臟專科醫院深切治療部，當時我只能說:只要
妳活著。到現在我已經知道弱聽不會奪去女兒的生命，
這個就不是大問題了，她仍然能享受生命。
這個孩子或許能陪伴我兩父妻終老，也算是福氣。

送你一個偉大父親的短片-->按此

Zephy

那天教統局的專家測試完之後告知中耳冇問題，所以問題係內耳耳蝸，九成肯定，一切檢查我都會做足；
這刻希望掌握多些自己可以做的，好叫自己心情安靜些…
多謝您們的回應和分享。 :-|

culver

Zephy,

<女兒剛測出有中度弱聽>
---> If the degree of loss is confirmed to be moderate (中度), there's a very good chance that she will communiate like normal kids after proper intervention (eg. gets hearing aids, gets training etc). Cochlear implant involves surgery and is suitable for severe hearing loss (嚴重弱聽) or up.

<那天教統局的專家測試完之後告知中耳冇問題，所以問題係內耳耳蝸>
---> That means no medical intervention (eg. drugs, surgery) is available for the time being.

Don't worry, and work together with your kid. Even for kids with severe hearing loss, they can be very successful, like the one I posted earlier on under the title "聽不到，打得好 - 弱聽神童汗淚交織乒乓夢"

Zephy

Thanks so much for your advice.
I have read your message on "聽不到，打得好 - 弱聽神童汗淚交織乒乓夢". Thanks again for your kindness.

Zephy

To wmbaba

You and your daughter are in my prayers.

May God bless you, your daughter and your family.

何處有仁，何處有愛，
何處有仁，天主必常在。

wmbaba 寫道:
to:Zephy

我的女兒是嚴重弱聽，知道的時候我沒有太大反應，
因為她出世當天就因心臟病引至呼吸困難。第二天
轉到心臟專科醫院深切治療部，當時我只能說:只要
妳活著。到現在我已經知道弱聽不會奪去女兒的生命，
這個就不是大問題了，她仍然能享受生命。
這個孩子或許能陪伴我兩父妻終老，也算是福氣。

送你一個偉大父親的短片-->按此

luckyma

Don't worry, Zephy, my son who is 6.5 yrs old and confirm to be 中度弱聽 when he was 1.5! but now he can speak like a normal boy and study P1 in a famous traditional school with excellent academic result.  You can make it if you never give up. try your best to look for anything good for your girl! only you can lead her the way forward.

Zephy

Thanks luckyma! You have given me hopes and strength to go on!

luckyma 寫道:
Don't worry, Zephy, my son who is 6.5 yrs old and confirm to be 中度弱聽 when he was 1.5! but now he can speak like a normal boy and study P1 in a famous traditional school with excellent academic result.  You can make it if you never give up. try your best to look for anything good for your girl! only you can lead her the way forward.

PandaI

我的女兒今年7歲，她出生時左耳細小，右耳在4歲左右驗出中度至嚴重弱聽。在5歲時才正式帶耳機，現在在一直資小學就讀二年班。說話口齒伶俐，對答一流。不用太擔心，你的女兒那麼早發現到，只需留意多些有關資料，有關資料可在：特殊教育中心，聾人協會等找得到。記著你正面的態度對你的女兒是很重要的。正如我對我的女兒說，她是天父送給媽媽的天使，亦因為這個女兒令我發現，只要你願意說出心中的困惑，就會有很多人伸出援手，人間有情。

luckyma

Agreed. Wearing a good fit hearing aids is a very useful way to improve hearing ability.  My son has been wearing an ITE since he was 4 and everything goes well....... he is 中度至嚴重弱聽 for both ears!

PandaI 寫道:
我的女兒今年7歲，她出生時左耳細小，右耳在4歲左右驗出。在5歲時才正式帶耳機，現在在一直資小學就讀二年班。說話口齒伶俐，對答一流。不用太擔心，你的女兒那麼早發現到，只需留意多些有關資料，有關資料可在：特殊教育中心，聾人協會等找得到。記著你正面的態度對你的女兒是很重要的。正如我對我的女兒說，她是天父送給媽媽的天使，亦因為這個女兒令我發現，只要你願意說出心中的困惑，就會有很多人伸出援手，人間有情。

  

灝霖媽媽

Zephy
唔好擔心，中度弱聽唔係好嚴重，只要你肯努力，亞女可以同普通小朋友一樣，說得好架！
我仔仔現在2歲10個月，佢有嚴重弱聽，1歲先開始戴耳機，而家講野都幾好，我就因為佢而無做野，而家全職照顧佢，我覺得佢既發展好好！如果你有咩想知，我願意解答。或者，我可以同你見面....唔好擔心，唔係你唸得咁差.....

luckyma

灝霖媽媽說得好

Zephy

To 灝霖媽媽,

Thank you so much for your kindness. I really have good support here!
Miracles happened, my daughter had her first time passed a ear test assessment (turning head to sound source) in United Christian Hosp.(UCH) in midst of March. Then, we attended a private ENT doctor in central, who found that her middle ear had effusion(水腫) and is subsiding (that means it could be recovered!) and advised to follow checking 3 months later. Further ear test will be on April 15 at UCH again.


[size=x-small]I would like to share that I am a catholic. Miracles happened after I have put some water taken from Lourdes (露德) in France, where Maria has shown herself to us, on my daughter's ears with prayers. 露德 is a place full of miracles, e.g.,  People that arrive with wheelchairs and could  walk away by themselves...

衷心感謝您的真誠！！若有需要我真會再求助啊！

joshuaalice

中耳積水應該一般是可以自行排水的,但如果不能便要做手術.
我兒也曾經試過.是一個小手術.我兒也因此後有中度弱聽.
不用太擔心.

只要戴上助聽器及加上言語治療很怏便ok

alice

原文章由 Zephy 於 07-3-24 16:03 硐表
To 灝霖媽媽,

Thank you so much for your kindness. I really have good support here!
Miracles happened, my daughter had her first time passed a ear test assessment (turning head to sound source) in Uni ...

dundun

Hi,
我是新來的,大家好
我不是媽媽,但我是弱聽的,今年都巳是步入中年了
我是天生中度弱聽,但隨着年紀增長現在已是屬於嚴重弱聽了
但就算是正常人,身体也會隨年紀退化吧,
其實弱聽並不是很大件事,現在醫學倡明嗎
最重要係令小朋友接受及懂得放下,
用正面及樂觀態度,一樣有美好人生
不過游泳,發燒及感冒的時候,
一定要小心點,儘快處理好病情

Wongpuinok

我的大女兒喺三個幾月嘅時候驗到雙耳中度弱聽, 要雙耳戴耳機 (現在差不多五歲,讀 K3)，心情係好低落 ! 經體能智力中心社工轉介下,她七個月嘅時候，去左美孚宣美聽力治療中心( 電話: 2743 7377) 上堂,由一星期兩堂加一日周會,去到一星期三堂加一日周會, 越見她進步. 其實, 中度弱聽已經好輕微,最緊要多同她講正確發音,給多心機和時間交流及盡快尋找機構幫佢. 亦可以帶她多出外, 讓她一邊看見真實物,一邊聽你哋正確嘅講解,深化概念及認知.  小心注意女女嘅健康,有病 (尢其係傷風感冒), 就要即刻帶她睇醫生 (因為噤樣可能會影晌耳仔-耳鼻喉連埋一齊).  自己亦要有堅定嘅決心及樂觀嘅心態面對,令女女見到你哋都會被你哋感染她. 的而且確, 起初有氣餒嘅時後,但大家要加油 !

mini_cc

其實都唔使咁緊張...有時候已成事實都無法改變,不如放開去接受喇!!! 我自己o係6歲時先被醫生發現右耳中度失聽, 當然以前媽咪無咩學識,根本都唔明點解我要成兩歲幾先識講野,講野又唔清楚,唔知其實我聽覺有問題.....仲比人以為我智商有問題先慘~~不過其實我都覺得無咩野呀,只要自己集中d就聽得清楚,慢慢地自己都會慣o左要留心,仲好過好多健聽的人,時常無心裝在,正常都無用喇!!!我自己都無用任何助聽用品呀,結果都可以好似平常人咁大學畢業同人有講有笑喇~~~我bb 10月就出世添, 希望佢可以健康快樂喇!!