徐动症/不自主运动/Athetoid Cerebral Palsy

myboyjon

请问有没有这方面 资料或经验分享? My son has difficulty in holding cup and spoon.

ndw

does your son has high muscle tone or low muscle tone?

kongcyip

did u mean ataxia?
did your son could hold the cup but can't hold in steady, i.e. tremor in holding the cup?

kongcyip

sorry , u mean athetosis?

myboyjon

not sure about the formal term.  he has
has high muscle tone and cannot control his hands sometimes, like twitching.  he will move his hands and arms up and down very fast when he gets excited.  

He is now on OT and PT.  is there anything else we can do about this?

kongcyip

ask your OT and PT teach u some home program that u could do with your son.
you could learn some tone normalization and stretching technique from OT and PTs
also could learn some adaptive aids and skills for your son from OT

myboyjon

thanks a lot

原帖由 kongcyip 於 08-11-11 17:57 發表
ask your OT and PT teach u some home program that u could do with your son.
you could learn some tone normalization and stretching technique from OT and PTs
also could learn some adaptive aids and s ...

ndw

myboyjon
I think PT, OT have more experience and methods could apply on a high muscle tone children than low muscle tone children.
My daughtor has low muscle tone. I have not met any PT, OT has experience with low muscle tone like my daughtor has.  They told us they have seen and taught how to due with high muscle tone more than low one.

So you have a lot of hope. Keep trying your best.

ndw.

crystal媽咪

我對呢方面唔熟悉, 不過以下條link的主角就好清楚,
有問題可以試下問下佢.


http://www.skymyworlds.com/skymyworlds.com/sky/sky.htm



(在左邊的[自我介紹]度有講解徐動型)是什麼

[ 本帖最後由 crystal媽咪 於 08-11-16 20:17 編輯 ]

myboyjon

Thanks a lot crystal媽咪.  Will check it out.

[ 本帖最後由 myboyjon 於 08-11-17 13:50 編輯 ]

myboyjon

thanks, ndw.  you also add oil, dont give up.  we will never know what good can new technology do to our kids.