bb出世第3日有抽筋, 但係咩原因都搵唔到, 有無人有相同經驗?

Purdey

bb而家5個月大, 出世第3日發覺佢0係入睡中0既時候手腳有抽筋, 即日入QE NICU, 一住就2個多月! 0係果段期間, 佢做0左不同0既檢驗,Ultrasound,EEG, MRI, CT Brain Scan...etc.都話無問題, 搵唔到原因! 佢起初食緊2隻抗抽筋藥, 而家減0左食緊1隻! 雖然已經無再抽筋好耐, 不過已經証實佢有發展緩慢! 而家佢頸未有100%力支撐自己, 小肌肉同大肌肉0的張力又差0的, 已經開始做職業同物理治療!

有無其他小朋友都有類似情況?? 好擔心, 因為唔知智力有無問題, 其實覺得自己已經好勇敢好面對, 不斷搵不同資料, 好彩有不同0既醫生朋友幫自己! 不過有時真係好難過.....

rayjj88

我個囝囝同妳差不多，他而家已經13個月，但他在40日大左右開始抽 筋。
妳可以放心，最緊要是找到隻藥啱他，控制到他的抽 筋，就可以慢慢追回發展遲緩。
  我囝囝都成6個月頸仔先有力，10個月先識坐，到而家13個月條腰有力左，但自己坐時都未好定，有時都向前、後、左、右跌。
  至於講嘢是0，唔識爬同扒(手仔唔夠力)，加上他有對馬蹄腳，只肯被我們扶住企幾下。
  妳可以得閒同我傾下，唔使甘担心!記住有好多好多情況俾我們懷的大有人在，我們個b控制到已經是好好彩啦!
  大家努力!加油!

[ 本帖最後由 rayjj88 於 10-4-4 02:04 編輯 ]

aasee

hi my sister is diganosed to have Infanitile spasms 嬰兒點頭式痙攣(Infantile spasms) , the boy is now 1and half year old and he has 10-20 seizure each day, now taking two medicine each day. hope to share some experience with you all . my email address is [email protected]. or in facebook . I let you know my phone number. thanks,

Purdey

原帖由 rayjj88 於 10-4-4 02:03 發表
我個囝囝同妳差不多，他而家已經13個月，但他在40日大左右開始抽 筋。
妳可以放心，最緊要是找到隻藥啱他，控制到他的抽 筋，就可以慢慢追回發展遲緩。
  我囝囝都成6個月頸仔先有力，10個月先識坐，到而家13個月條腰有力左，但自己 ...

I sent u a PM, please check

ndw

This is what I learned so far about baby seizure.
I learned it because my daughter have seizure since....we don't know when. May be even before she was born.
It is all brain related.
The neurologist study about this the most compare with all other health specialist.

Don't worry about it.  I think it is not the cause of all development delay. It is just the symptoms of the brain being different.

Worrying would not add a bit different of the fact.  The fact is we need to deal with it with our children for the rest of their life. Isn't it?

Purdey

原帖由 ndw 於 10-4-17 05:35 發表
This is what I learned so far about baby seizure.
I learned it because my daughter have seizure since....we don't know when. May be even before she was born.
It is all brain related.
The neurologist  ...

Thanks for sharing! I agree we need to deal with it to help them as much as we could! I did many research and studying a book call "What to do with your brain-injured Child" Did you read it before or heard it before? I got much knowledge from this book and most of the developmental dealyed are related to brain-injured, not because arms,legs,eyes...etc itself gets problems.

Best wishes to all our children!