HELP: 2歲自閉傾向BB讀I位定"伴我童樂"好?

cakev

我個女有自閉傾向. 而家2歲多D.
唔識講野, 叫佢個名好少應.
對自己屋企人有眼神接觸.
暫時無乜重覆性行為.

原本報左協康既"伴我童樂", (收左不過未開學)
而家突然收到通知可以入讀
將軍澳竹園區神召會I位. (未知呢間好唔好?)

而家我地唔知點揀.
因為之前諗住I位有排等, 所以俾佢讀"伴我童樂",
先密集式訓練下.

而家突然派到I位...又驚個女會唔會一路都適應唔到.
(言語同其他方面都遲過其他小朋友)

有無人可以俾下意見呀?

Thanks!

singren

i 位係政府，伴我同樂係c人7千幾蚊，通常c人s位係用黎 過度/等 派去政府既service。

如果評估左你小朋友而suggest佢讀 i 位，相信佢自閉程度不是嚴重。我覺得唔好浪費左個 i 位，因為i 位都有特殊導師同埋有個別訓練for你小朋友。你如果覺得小朋友訓練唔夠，你可以自費出去加訓練。

而如果 i 位老師覺得小朋友情況不適合讀 i 位，佢地都會建議小朋友轉讀s位，而輪候日期係由你一開始排 i 位既日子計。但係如果你而家決定唔讀而退出服務，日後你再想入番去你又要由頭再排過。

而如果你真係好想好想而又有充足資金想比小朋友讀私人s位，你睇下可唔可以比佢上午番 i 位，下午番私人s位，因為 i 位訓練多在上午，你問清楚學校先。不過小朋友就會辛苦d囉。

cakev

唔該晒.

咁我諗我地要撻左"伴我童樂"果邊既訂金了.

希望囡囡接觸多D正常既小朋友會好D.

cecilylsm

Dear cakev,

Yr daugther can get the "I" seat at just 2-yr old ? May I ask when the CAC assessed yr case ? Normally, at least 1 yr is required for waiting any E/I/S service.

If u're the one who will start 伴我童樂 in coming Sept09, then my son & yr daugther will become classmate. My son is just 2 yr old but the assessment was just done in the early of July. So, we just start queuing the service.

Are u living in TKO ? We can chat more via PM.

原帖由 cakev 於 09-7-23 16:21 發表
唔該晒.

咁我諗我地要撻左"伴我童樂"果邊既訂金了.

希望囡囡接觸多D正常既小朋友會好D.

someoneelse

我反而覺得你要 "伴"比較好....

因為一來囡囡仲細，會有好多變數....二來我贊成先落重藥，否則如稍有差池既話，後果可以好嚴重....

我囝試過樂天 & 伴我童樂....個人覺得"樂"好，但"伴"更好...需知道"伴"也不是話入就有位呢....如要作全面各方位訓練，"伴"一定好過 "I"...因為"伴"每星期也有齊3T個別堂，訓練足夠，而且按孩子不同程度作調適....

囡囡才二歲，如金錢許可的話，我覺得應先試"伴"...如進展理想，可於囡囡3歲時用"新身份"，以正常人姿態進入心儀的K1學校....當中只需由"I"轉"E"，囡囡便可以讀K1之餘，課後也有"E" 訓練補給不足之處...

我囝也是行這條路....讀"樂" 4個月後轉讀"伴"4 個月....當時他基本除語言外，一切已達標，之後插班主流K1 +"E"訓練...

原帖由 cakev 於 09-7-23 16:21 發表
唔該晒.

咁我諗我地要撻左"伴我童樂"果邊既訂金了.

希望囡囡接觸多D正常既小朋友會好D.

cakev

Dear Cecilylsm,

因為我個女不是經政府評估而係去step做,評估左就立刻排隊所以話你都唔信我只係排左2個星期就話有位啦,心情又起又落呀!

你係咪都係住TKO如果係就好啦,唔知你介唔介意交換联絡电話or其它方法,可以share吓or玩吓.

cakev

我哋兩公婆最後都係選擇咗I位,真係唔知係啱定錯,昨天和伴我童樂的林姑娘&I位学校嘅主任傾過,佢地都話難得派左I位唔好咁輕易放過加上我親身到学校過,各方面都ok,希望我冇選擇錯啦!

仲有社署個姑娘話if我今次放棄左個I位唔知可唔可以立刻俾我再排過隊or要等一排先可以再申請所以都係要左个位先lor.

但其實我頁係好似someoneelse講咁俾佢打好基礎先入學,因為我個女成日坐唔定專注力係零,返學啲老師唔知攪唔攪得佢掂呢?

一萬萬個擔心.....這兩天心情好忐忑

celery_wwk

[quote]原帖由 cakev 於 09-7-25 23:37 發表
我哋兩公婆最後都係選擇咗I位,真係唔知係啱定錯,昨天和伴我童樂的林姑娘&I位学校嘅主任傾過,佢地都話難得派左I位唔好咁輕易放過加上我親身到学校過,各方面都ok,希望我冇選擇錯啦!

仲有社署個姑娘話if我今次放棄左 ... [/quote

坦白講...I位的資料及環境實在不及S位或E位咁充足...特別係I位...小朋友同至少廿多個的同學仔一齊讀書...本身的班住任對有特殊需要的小朋友認知不足...往往未能即時及適當處理小朋友的問題...因為I位的老師只是於指定時間跟小朋友上堂...及入班做協助...

由於自閉症的小朋友有不同範疇的問題...如言語...社交就最明顯...但有部份家長不會太為意的就是...進食...即小朋友的口肌...偏食問題...身體的感覺...即SI問題...有部份更有大肌肉的問題...由於佢地的自我身體概念很弱...往往一些同年已能做到的動作佢地都未必可以做到

所以如果評估中心建議你去I位...我建議你FIGHT番去E位...再搵間幼稚園...E位入面有幼兒導師...同言語...物理及職業治療師...會更加全面咁訓練小朋友....仲有一點要提...就係有好多家長都以為放小朋友落多D大班度...期望會有正面的影響...但大多忽略了小朋友本身的能力...有時更會弄巧反拙

希望可以幫到你

cecilylsm

Dear celery_wwk,

I totally agree on "言語...社交就最明顯", we should pay attention on 進食...即小朋友的口肌...偏食問題...身體的感覺...即SI問題...有部份更有大肌肉的問題...由於佢地的自我身體概念很弱...往往一些同年已能做到的動作佢地都未必可以做到". All these issues are encountered by me now. Also, my son has also a bit 自我剌激行為. May I know if u were facing these kinds of problems before, can u share some experiences to me ? If possible, can we p.m. between each other ?

Also, I'm so so pleased to hear yr son is improved a lot after taking 4-mth's 伴我童樂 & then accepted by normal Kindergarten. I do think u also pay a lot of effort / patience & love. Great mother, add oil !!

Also, may I know if u're living in TKO ? As I would like to know which kindergarten(s) are more 包容 for our kids if end-up CAC doctor agrees to approve us "E" seat ? The service frequency offered to yr kid is fine now ?

Sry for so many questions & bothering u a lot !

Really tks !

原帖由 celery_wwk 於 09-7-26 12:21 發表
[quote]原帖由 cakev 於 09-7-25 23:37 發表
我哋兩公婆最後都係選擇咗I位,真係唔知係啱定錯,昨天和伴我童樂的林姑娘&I位学校嘅主任傾過,佢地都話難得派左I位 ...

JigJig

definitely 伴我童樂.  I agree with someonelse. it is better to lay the foundations first and then move to I seat when you see your daughter has improved.

I have a 4 years old autistic son.  We have done all sorts of different training in the past 2 years.  

Based on what you describe about your daughter - I think 伴我童樂 is a safer route to go.  "I" seat is, in my view, for children that are more high functioning.  As your daughter is so young, don't waste time.  Go for 伴我童樂.  If you see she shows good improvement, then try to move her back to "I" seat or even better, mainstream school.  Don't base your decision on whether it is a waste to give up the "I" seat - choose what is best for your child.  Don't listen to what the social worker said about if you give up I seat, you will have to wait again.  That's rubbish!!  It's not her daughter - it is your daugher in issue.  Let us say if you put your daughter in   伴我童樂 and she improves very quickly, so much so that the teacher says she can move on to "I" seat.  Then you wait for your "I" seat and in the meantime you stay in 伴我童樂.  The more training, the better with these kids.  

I am speaking as someone with an autistic kid, I have also gone the long way.  If I were you, I would definitely put your daughter in 伴我童樂.

cecilylsm

Dear someoneelse,

May I p.m. message to u for sharing yr experience on 伴's course. My son will start in coming Sept.,09.

I fully trust that u were paying a lot of effort during past year & so so nice to hear that yr son is improved a lot a lot & reached certain standard. So So great !!!! Add oil !!!


Refer to yr message, yr son is studying standard K1's kindergarten + E, does the “E” seat’s service frequency is enough ? Are u living in TKO ? As I would like to know which kindergarten (s) in TKO will包容 for our kids more ? At least, the principal & teachers are much 愛心 or the best is to have more experienced.

Tks in advance for yr kind help.

原帖由 someoneelse 於 09-7-25 19:17 發表
我反而覺得你要 "伴"比較好....

因為一來囡囡仲細，會有好多變數....二來我贊成先落重藥，否則如稍有差池既話，後果可以好嚴重....

我囝試過樂天 & 伴我童樂....個人覺得"樂"好，但"伴"更好...需知道"伴"也不是話入就有位 ...

cecilylsm

Dear celery_wwk,

It seems that I confuse some info. for 伴 course on u & yr kid probably is not the one studying in K1 + E seat, Sry.

But I still interest to discuss w/u abt SI problem, may I pm to u ?

Sry & tks !

原帖由 cecilylsm 於 09-7-26 17:29 發表
Dear celery_wwk,

I totally agree on "言語...社交就最明顯", we should pay attention on 進食...即小朋友的口肌...偏食問題...身體的感覺...即SI問題...有部份更有大肌肉的問題...由於佢地的自我身體概念很弱... ...

someoneelse

pls check pm.

原帖由 cecilylsm 於 09-7-26 18:00 發表
Dear someoneelse,
  
May I p.m. message to u for sharing yr experience on 伴's course. My son will start in coming Sept.,09.
  
I fully trust that u were paying a lot of effort during past year & so s ...

celery_wwk

[quote]原帖由 cecilylsm 於 09-7-26 17:29 發表
Dear celery_wwk,

I totally agree on "言語...社交就最明顯", we should pay attention on 進食...即小朋友的口肌...偏食問題...身體的感覺...即SI問題...有部份更有大肌肉的問題...由於佢地的自我身體概念很弱... ... [/quote

* 如果小朋友有自我刺激的行為...我地可以做的就係轉移小朋友的專注...即俾其他野小朋友做...如叫佢幫你掉垃圾...請佢同你一齊砌積木等...作為家長要有心理準備...因為自我刺激的行為係一期期的...呢期玩呢樣...當家長處理完一樣...小朋友又會出現另一樣野...所以真係長期作戰...

celery_wwk

原帖由 cecilylsm 於 09-7-26 18:05 發表
Dear celery_wwk,

It seems that I confuse some info. for 伴 course on u & yr kid probably is not the one studying in K1 + E seat, Sry.

But I still interest to discuss w/u abt SI problem, may I pm to  ...

當然可以啦...

bobolam

可否舉例甚麼是自我刺激的行為?

原帖由 celery_wwk 於 09-7-26 18:17 發表
[quote]原帖由 cecilylsm 於 09-7-26 17:29 發表
Dear celery_wwk,

I totally agree on "言語...社交就最明顯", we should pay attention on 進食...即小朋友 ...

celery_wwk

自我刺激的行為有好多種...不能盡錄...但以我的經驗就有以下情況...

>小朋友會用手摸牆身
>自己自轉...睇風扇轉
>搣手指...咬手...
>側眼望野...望一D常人唔會望的野.如一枝棒...我地只會望佢的整體...但小朋友可能會望枝棒的接合位個條線...
>插眼角...
>有D更會唔俾屋企開窗...開風扇...
>試過有個CASE一行街就要買同一隻牌子的洗頭水...結果屋企就有六七十枝...同一款的洗頭水
>有個CASE就好喜歡拎超市的廣告貼晒係屋企的牆上...

其實自我刺激的行為真係好因人而已...每個CASE都有不同...而每個階段都會有唔同的情況出現...問題係家長點樣去處理...

singren

以我所認識既a仔中，有部份都係入左i位，而出面會加好多c人既訓練，因你入左i位，佢地會比你知佢幾時有特殊老師同你小朋友做訓練，你當然唔好錯過d訓練，而訓練大多於上午，你可以睇下d時間。

而你係可以同學校請假，你同佢地講你要幾時出去上訓練，佢地係唔會反對既。你可以每日比小朋友响i位番上午，下午番c人s位(我覺得最好)。或者你出去報各種唔同機構既個別or小組訓練。

c人s位真係可以幫助好大好大，我小朋友都讀緊，不過我比較貪心，樣樣政府資源都想要，因出面要比錢的私人機構真係好貴，有平當然去，要比錢都要去。

而家c人s位有大部份同學仔都係番兩度，上午番c人s位，下午番幼稚園，我覺得好好。不過我囝囝係排s位，冇得要i位，我都其實幫小朋友報左一間有i位既幼稚園收左佢，即係新學年番c人s位+幼稚園(當然自己報i位幼稚園係冇訓練比你啦，不過叫做有特殊老師睇睇咁囉)。不過我小朋友剛派到s位了，兩間都唔再需要。

你可以參考一下。聽多d唔同意見睇下自己想比咩小朋友。

加油！加油！每作一個決定真係要好大勇氣，好驚比唔夠小朋友，唔好太擔心，你做既每一個決定都會幫到佢。

cakev

我們已決定讀I位加外面c＋training law,明天就開学了,都有点擔心,因囡囡脾氣唔係人咁品,喊起上嚟連我都有時頂佢唔順!!

返左學再向大家報告她的情況.....

bobolam

想問側眼望野係唔係即係玩眼?

原帖由 celery_wwk 於 09-7-28 07:45 發表
自我刺激的行為有好多種...不能盡錄...但以我的經驗就有以下情況...

>小朋友會用手摸牆身
>自己自轉...睇風扇轉
>搣手指...咬手...
>側眼望野...望一D常人唔會望的野.如一枝棒...我地只會望佢的整體...但小朋友可能 ...