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標題: A parent's sharing on autism treatments [打印本頁]

作者: VILL    時間: 13-8-9 09:43     標題: A parent's sharing on autism treatments

Some people often make use of the psychological condition of the parents wth autistic kids to make money for their own.  The parents with autistic kids are very desperate and hope their kids would be recovered from autism one day. I am also a parent like that.

My kid 11 years old is autistic and tried many therapy treatments like biomedical, acurpuncture, natural therapy, music therapy, ...taking many supplements...for many years. The effect is not significant or no effect. I've realized that some scientific-like therapies are in fact not scientific. The so-called experts are really over-priced the treatment fee for making huge money from this group of parents. To a certain extent, it is not very moral.

The parents' time with the kids is the most important factor for improving the autistic condition. Since 5 years ago, my kid stopped trying the alternative treatments like biomedical, acurpuncture and natural therapies, etc.  The training methods like Louis Program, floor-time and sensory integration exercises etc are found effective and useful to my kid. Once the parents leart these methods, the parents themselves can train their kids at home / playground.


作者: a328    時間: 13-8-9 10:29

i can't agree more, I did met a psychiatrist who is unethical as well just 2 months ago, more worse is he is my husband friend ( not really a familiar one ). He had conducted 2 tests with our son and give us the the strict mark to make us feel our son really have problem and very severe, and keep emphasizing the test he perform is very accurate and he is not very strict already bla bla bla.... He never describe how will the test will be conducted like the time need, need parent involve or not, unless we make a strong request

When conducting the test, he is very clumsy which make you feel he is not familiar to conduct the test and not experiece to handle kid ( my son is just below 3 ), i almsot make a lot of help to conduct the test beause my son dun like him at all, he is not such person which kid will find him approachable ( neither adult will feel he is approachable )

he turn on keep saying government service and assessment is suck ( he dun want us to  ask governemnt to do the assessment ) and the program like floortime, sensory integration is useless and he can tailor made sth for our son. He claim he study neuroscience as well and only 2x people have the same high level of qualification as him in Australia

However he never disclose what kind of treatment, he seems just expect us to pass the son to him and he will close the door to do the treatment, and he just concern the money, more worse is each time he use the 'miscalculation excuse' to charge us more.

when explaining the report, this is the worse part, I totally dun understand what is he talking about, end up I need to find my friend who have done the test or her child to explain the report to me. that is totally not professional!!  He keep emphasizing and exxagerate my son bad part and the good sign he just left it, the report  is just a very short one and when we request slightly detail, he need to charge us , and he never mention at the begining what will include or exclude in the money charge.

End up I went to other private centre to seek for 2nd opinion, i also went to the government to do the assessment ( not the same assessment ) turn out the private centre and the government make the same conclusion - my son is not as worse as the report describe, he did have some asperger character but he core one does not exist and he is not serious one.


Right now I am consulting my 2 friends who are psychiatrist in USA for consultation, one of them working state child hospital and have done the research on autism for several years,  one of them are working for government, they provide many valuable information about parenting at home, they never ask me for money and just concern my son development and progress. I am not asking for free service, I just want to emphasize U can feel the good one and bad one.

My experience is if you have meet a psychiatrist who has threat you about how serious ur child is and keep say some bad word for other service outside and he is jsut the one can help ur son, please seek for 2nd or even 3rd opinion.  Also if u met someone who rarely teach you parenting skill and just expect you to pay him money for treatment, run away please.
作者: a328    時間: 13-8-9 10:33

1 more thing, I just follow my friend suggestion to do more social interaction activity at home and to improve his eye contact, my son have a great improvement already just for a month. (I did join the course outside but at this stage just lining up, therefore just DIY at home recently )
作者: sochi81    時間: 13-8-14 23:49

謝謝分享。籍這些機會揾錢係好唔道德。好與壞真係有比較就知。
作者: Ononma    時間: 13-8-19 20:23

Hi a328,

請求可否分享吓在家父母可以做什麼去train-up 小孩,特別係 eye contact 和 相向溝通嘅 social skill?  
作者: a328    時間: 13-8-20 12:10

if he request sth, he must ask me and look into my eyes, if he is not looking at me, i will hold his hand to my chin, then he will look at me.

when u pass him sth, do not let go ur hand at once, let ur kid use some force, then they will look at you.

when i read storybook, i will ask him the content inside like asking him what animal si that, is the girl crying etc.

If he like to play lego, try to buy a set with bldg, let say my son like ambulance, i but a set with hospital, then play the lego house with him with him, pretend someone injured, need to lie on bed etc

if bldg block, try to build up one by one with u, ur turn, then his turn, build it as 'group project'

each day ask him what he ave done for today, if he is not able to answer, try to give him an answer or him and ask it is yes or no etc.

give him some little reward if he is doing good to encourage him, for me his reward is 20 minutes Thomas and Friend TV progranmme, or some snack or go to the park or swim etc.

play bubbles at park, point to the bubbles or ask ur kid to point.
作者: keep-calm    時間: 13-8-20 17:20     標題: 回覆:A parent's sharing on autism treatments

Thanks for your useful tips! I'm still very frustrated on what training I can arrange for my kid. Can you please share what formal training your son is having now? Any experience with ABA?




作者: a328    時間: 13-8-20 17:41

i am lining up, not yet start
作者: Ononma    時間: 13-8-20 20:46

A328,  

好多謝你嘅分享!有D points 我已經做緊,係幾有效的,其它 points 我會開始試,真係吾該晒!

作者: a328    時間: 13-8-21 17:36

buy some small figure for role play.

cooking set / tea set is very good for interaction.
作者: Ononma    時間: 13-8-24 10:58

a328, 你招 "hold his hands to my chin" 好有效,我試左幾日,萬試萬靈,有效過我用雙手碰起亞仔個頭向住我,
作者: Ononma    時間: 13-8-24 10:58

a328, 你招 "hold his hands to my chin" 好有效,我試左幾日,萬試萬靈,有效過我用雙手碰起亞仔個頭向住我,
作者: Ononma    時間: 13-8-24 10:59

a328, 你招 "hold his hands to my chin" 好有效,我試左幾日,萬試萬靈,有效過我用雙手碰起亞仔個頭向住我,
作者: a328    時間: 13-8-25 01:08

glad that it work, i was taught by the nurse as well :)
作者: a328    時間: 13-8-25 01:23

Point 3 修正一下:
如你俾一包餅,pass 俾佢時唔好放手,鬥下力,佢一望你先放手。個point 係俾佢知唔望唔俾,一望即俾。
作者: Ononma    時間: 13-8-26 22:36

A323, 你真係好有心,我又試左你個方法,比玩具佢之時 我用雙手hold 住,佢一慣作風吾望我,就想直接取玩具,我就同佢講,要望住我同埋講 thank you,

試左幾次又得啦,好開心,我要教埋屋企人同姐姐先得
作者: Ononma    時間: 13-8-26 22:57

同埋又感謝樓主出呢個post, 分享自己嘅經歷,仲令我有意外收穫。

其實我一路覺得自己個小朋友有D問題,雖然拖拖吓,好彩自己注意又間吾中有人(包括老師)share吓小小方法, 睇住佢一路有進步。

之前同家庭醫生傾過,佢話社會進步左,資源多左,有好多以前無人去留意嘅問題現在都有人去留意,並且可以做訓練,只要我地肯 pay。

佢話睇住我個仔不斷成長又有進步,或者某方面比同齡小朋友弱,但不至於係去到要好擔心。最後佢 suggest 話如果擔心,可以先搵私人評估(我 feel 到佢話CAC 多數會覺得問題吾嚴重)

再睇埋呢個post D分享,我又再繼續全家人一齊努力,多D比時間同個仔溝通,觀察佢嘅發展,再作打算。


作者: a328    時間: 13-8-26 23:43

其實去cac不防,keep 住做training 便可,大口環話我個仔is neither autism nor asperger, but 有少少特質,keep 住training is fine, 我地自己train 1-2 months, already see the progress, suggest u to visit autism speak website,好有用!另政府會offer some seminar for parent. 政府要排,早好過遲,唔好逃避。另政府even 資源不足,但如做正式assessment, 你係就係,唔係就唔係,they won't tell lies, yes they will admit need to wait for the service, but they won't give u a wrong diagnosis. So you can trust them.
作者: a328    時間: 13-8-26 23:59

另外我先生join 咗個online training, about floortime , 以便自己train, 我個仔較特別,唔留心較難發現佢有問題,我同朋友話我個仔有少少特質,,they all very surprise. 因為最typical and core 嘅症狀冇係佢身上出現,佢只係有的週邊嘢,大口環個醫生都話要好留心先注意到佢有症狀。although he is not autism or asperger, 大口環鼓勵我地做training, 丨keep progress, 唔好退步。

Luckily Step 終於有位,開始做training, 另外樹苗軒報感統及社交speech.
Anyway, 加油!
作者: Ononma    時間: 13-8-27 00:10

A323,  我想問吓去CAC 評估要排幾耐?

同埋可吾可以介紹我join 個online training?

Thanks!
作者: a328    時間: 13-8-27 00:56

我大口環排咗2 months only.

個online training 我先生just start the course, I dunno it is sth u want or not, we also not sure it fit u or not, may be u have a look first.

Floortime is diff from ABA, but I think it fit parent more.


Www.stanleygreenspan.com/portal/
作者: a328    時間: 13-8-27 00:59

另你可先去以下website 先了解下:

Www.icdl.com
Www.autismspeaks.com
作者: a328    時間: 13-8-27 01:08

協康都有,你打去問下
作者: Ononma    時間: 13-8-27 07:29

A328, 非常多謝你咁有心,仲有分享咁多有用資料
作者: HungMa2    時間: 13-9-3 01:48

提示: 作者被禁止或刪除 內容自動屏蔽
作者: keep-calm    時間: 13-9-3 09:48     標題: 引用:Quote:VILL+發表於+13-8-9+09:43+The+train

原帖由 HungMa2 於 13-09-03 發表
Ithink most of us experienced the same situation as you have if their childrenare over 8. But few p ...
I'm struggling shall I quit my job to teach my son by myself.... We are working parents and my son is currently taken care by domestic helper +/- grandma. I teach my son every evening for 2-3 hours and whole day for all weekends. I read books and forums to brush up my skill to play with my son.... Yet, I don't see much improvement over the past 5-6 months. Am I suitable to train my son? Even I quit my job, would it really makes a big difference? Is he really salvageable? .....And about the "Louise programme" , I ve read mrs wong's books but I find the skills difficult to implement. Perhaps It's a must to attend the course? Anyone can share your view about the course?




作者: a328    時間: 13-9-3 15:17

keep calm, why dun you attend the course outside as well train at home at the same time? of course if u can afford to be full time mom that will be great .

I am a working mom as well, my son will attend normal K school in the morning and during the afternoon, i let him attend some social course and SI course etc, then i will keep calling those centre to update his progress, sometimes will take day off and go to the centre with him and talk with the trainer too.  you can also get more knowledge and skill from them.

I suggest look for some centre with close to you to attend some class first, it is defintiely better than just facing domestic helper and granny at home.

Even u quit your job, you must take him to the park or playhouse more often, let him interact with other kids more and encourage him, some social skill cannot solely be done / trained at home. let him expose to the public. there must be some good centre outside, just keep looking.

Add oil, you are not alone.
作者: HungMa2    時間: 13-9-4 00:42

提示: 作者被禁止或刪除 內容自動屏蔽
作者: a328    時間: 13-10-22 18:22

let me update my son progress:

He is attending in normal K school now, so far Ok, at least never receive any complaint from teacher, and he enjoy going school.

After the intensive training for 2 months:
- his eye contact improve alot
- more interact with people and more sustain
- less temper
- learn how to control
- like to make friend with others and play close to friends, lot of interaction when playing.

Thank God he show the improvement and most of my friend say did feel any feature on him now.

By the way, I have use coconut oil for his meal now, heard that it is better, no harm to try.

Add oil all parents!!
作者: keep-calm    時間: 13-10-25 09:59     標題: 回覆:A parent's sharing on autism treatments

A328, glad to see your kid's favorable progress! May I know how you deal with your kid's temperament ? My son lost temper easily. He dislikes training and refuses to follow our instructions. It's difficult to make him seated. He keeps crying and hurt himself at times. It's so difficult to teach.  On one hand, I don't want to give him positive feedback for such undesirable behavior, yet, if i am strict , I'm afraid it will break our bonding... I 've talked to his PST, she said the prime thing to deal with my son is his poor emotion control, yet , not much useful tips was given.....




作者: a328    時間: 13-10-25 16:21

how old is your kid?

I think he is now less temper is he is able to express how he feel and what he want his verbal skill is not such mature, they he will lose temper easily because he dun know how to express.

Furthermore, I will try out wny he lost his temper, and expalin to him how to seal with it if have same situation happen again. I encourage him to express and ask, and I will explain to him: i understand your feeling, becuase you feel ........, but actually you cna handle it better next time by...'

actually my son still have some temper, and i am also looking for related course outside and hopefully he can improve more.  

About the training, actually you can try to deelop through his interest this si sth call  DIR floortime, that mean you train ur kid base on his interest, he lead the game actually, to boost his confidence and it can enable more interaction and development. it is good for parent to trian at home as Parent is the only person who know his kid interest.

I just tell you my personal experience, I hope it help.

'
作者: a328    時間: 14-7-18 17:02

almost 9 month since my last post, below is my son progress:

K1 performace:
- can follow instruction, willing to follow the peer
- like to sing and have good reading skill
- like to share his feeling, like to ask out feeling
- good in eye contact
- less temper
- good in sport

each time when i see his progress, my tear will come out.

But now we have some problem facing:
his hand mobile skill is weak, but not serious, weak in writing of course, need to  keep checking as i am afraid he might be dyslexic in handwriting, but i will not give up, cause it does not mean he is less worthy person.

add oil other parent
作者: Destination121    時間: 14-7-18 22:32     標題: 回覆:a328 的帖子

You mentioned that the assessment said he is not autism right?  Why would he still to undergo the training?  Thanks.




作者: 王王爸爸    時間: 14-7-19 00:32     標題: 回覆:Destination121 的帖子

感謝a328sharing




作者: Chujai    時間: 14-7-19 09:31     標題: 回覆:a328 的帖子

I think you did great! I did more or less the same thing with my son. I still believe doing more intensive training at home is a lot better than just attending courses.




作者: 王王爸爸    時間: 14-7-19 11:07     標題: 回覆:VILL 的帖子

'many therapy treatments like biomedical, acurpuncture, natural therapy, music therapy, ...taking many supplements...for many years. The effect is not significant or no effect. I've realized that some scientific-like therapies are in fact not scientific. The so-called experts are really over-priced the treatment fee for making huge money from this group of parents. To a certain extent, it is not very moral.''

Agree, Agree, Agree!!!
孩子真正有效治療師就係我們家長!

大家努力!




作者: a328    時間: 14-7-29 12:13

回覆 Destination121 的帖子

doctor suggest we keep the training to avoid his station getting worse
作者: honok2010    時間: 14-7-30 08:22     標題: 回覆:A parent's sharing on autism treatments

我囝囝現在22個月,脾氣超大,無eye contact, 經常和4歲哥哥爭玩具,用車扔向哥哥頭!
钟意車輪,喜歡在家跑,喜歡哼唱,上playgroup老師說懷疑他有自閉!
昨日帶了他去蓝田CAC見姑娘,要等約一年時間才能見兒科一doctor.
我想找私人做評估和上training, 因為我的情緒也控制不到自己了!
謝謝各位意見,那个私人机搆好和快呢?




作者: ct926    時間: 14-7-31 00:16     標題: 回覆:honok2010 的帖子

協康會,其他post也有提及不同的機構,你上網找找。22個月還少,盡快去評估,如需接受治療,2至3歲是治療黃金期,會有很大的幫助!媽媽自己也要樂觀積極面對,才能幫到孩子啊。!




作者: a328    時間: 14-8-4 15:01

step or kidsmind is also a good option to consider. just take the training asap is fine. no matter at home or attend the course outside.
作者: taidou    時間: 14-8-6 03:01

a328 發表於 14-8-4 15:01
step or kidsmind is also a good option to consider. just take the training asap is fine. no matter a ...
Hi a328,  I noticed your son is not an autism kid nor any autistic features.  Can u share the comments of the assessment from the psychologist?
Thanks.

作者: a328    時間: 14-8-7 15:07

which one?the private one? if bas eon the private one, my son is a typical Autistic, and medium one, he say he ignore others, not friendly etc, anyway, that private one is  a crab one and we did not contact him anymore.

if government one, they mention that he is not a typical one, just when have temper will show some syndrome. if he is cheerful and happy, he can at like normal kid, u can see any feature unless he throw temper. also if he feel you are not friendly type , he can be very cool.
作者: taidou    時間: 14-8-8 00:28

a328 發表於 14-8-7 15:07
which one?the private one? if bas eon the private one, my son is a typical Autistic, and medium one, ...
Thanks for sharing.  My girl's case is mild austistic features, this is a comment from a private phycologist.  She says she wouldn't put an autism label on my girl becoz' of she has some mild features but not the typical ones.  On the other hand, she thinks my girl has speech delay which that's the part she concerns more.
My girl is 2.5 years old now, she is very cheerful, friendly and a fast learner but she doesn't want to say anything which is more than 2 words.  She has a mild to moderate sensory integration disorder and very stubborn personaility.   I suspect whether she is an autism kid, that's why take her to see the phycologist.  

I will take the report and queue up for the speech theraphy under government service, meanwhile, attending weekend course at step and sensory integration training at another centre as well.  

作者: a328    時間: 14-8-8 11:09

taidou 發表於 14-8-8 00:28
Thanks for sharing.  My girl's case is mild austistic features, this is a comment from a private phy ...
you can try to line up in Kidsmind (in wan chai), my son is having training there and it is good and professional,
my son is attending speech, SI and social class in this summer.

Friend of mine told me that the therapist in USA will not label this as speech delay, they label this as 'lack of technic'
cos same as you, my son is good in vocal, but he never have long sentence before or unwilling  to say long sentence, but it does not mean he do not know how to talk, just lack of technic in forming long sentences.

He improve a lot, after attending the course for 1 year, actually you can see the progress already after 2-3 months. they will have a short meeting with you every time after the class to tell you about their progress.

Anyway you can look for the similar course in Kidsmind or other centre which is close to you,

作者: armoimama    時間: 14-9-5 13:09

本帖最後由 armoimama 於 14-9-5 13:13 編輯
a328 發表於 13-10-22 18:22
let me update my son progress:

He is attending in normal K school now, so far Ok, at least never re ...

Hi a328,好多謝你既分享!我仔仔剛滿3歲, 係私人機構做左評估話佢自閉症marginal case, 8分係cut off 位, 佢就9分。我已經立即同佢報左協康言語治療, 優質職業治療, 邁步社交小組, 仲有小童群益會既言語訓練, 每個訓練都係一星期一堂, 但我想問係咪都唔及好似你仔仔上密集咁好呢?請問你仔仔係邊度上密集課程? 我仔仔又係上午返k1, 擔心佢日日下午都要返密集既話會唔會頂唔順, 麻煩你可唔可以分享你時間如何安排?十分謝謝!
另外kidsmind果D訓練係咪小組既呢? 我地都住灣仔, 如果係小組訓練可能等佢過左今年既訓練就暑假同佢報呢D classes. 多謝你既分享!為我地呢D徬徨既家長指引方向!




作者: a328    時間: 14-9-6 12:35

回覆 armoimama 的帖子

Hi Armolmama,
I never attend 密集.


my schedule during K1 is as follow:


Mon-Fri- morning, normal K school
Sat morning, STEP in central for 3 hours


MON- Friday afternoon:
Monday: 2 course in Kidsmind ( each 45 mins ) 1 speech and 1 SI, each class 4-5 student only, i guess max is 6-8
Tuesday: skating ( 1 hr, he like sport, try to join sty he like, A-kid also can enjoy their life and interest
Wednesday: none
Thursday: 3 hour eng course, cos my son love the teacher a lot, and they familiar with my son, and they know how to handle A -kid
Friday: art and craft course - as my son love this course. ( 1 hr only)


So you can see, except saturday and monday, i did not apply any further special course for him, the rest is something he truly like and enjoy and will feel happy. i truly think his si important for them as long as they enjoy and like it, they will improve a lot.


HOLIDAY: mainly outdoor activity: swim, hiking, countryside activity etc etc. or let him be mini chef at home as he enjoy cookery.


Hope the info above help, add oil!





作者: armoimama    時間: 14-9-7 00:21

Thanks a lot!  It really helps! 咁我都放心同佢報下d興趣班,希望阿仔好似你仔仔咁大進步!大家一齊努力!
作者: kukoclam    時間: 14-10-17 22:48     標題: 引用:Quote:taidou+發表於+14-8-8+00:28+Thanks+

原帖由 a328 於 14-08-08 發表
you can try to line up in Kidsmind (in wan chai), my son is having training there and it is good and ...
請問你小朋友喺step星期六上3小時係咩訓練呢?另外,喺kidsmind 上的speech 同SI 訓練,需評估後才可上嗎?




作者: a328    時間: 14-10-20 13:00

回覆 kukoclam 的帖子

hihi,
it is a social group, for the course in kidsmind, as we have assessment in government already,so we can directly can directly apply the course

作者: armoimama    時間: 15-4-25 19:46

回覆 a328 的帖子

Thanks a lot!
作者: armoimama    時間: 15-4-25 19:50

回覆 armoimama 的帖子

我地住灣仔,上左幾個月邁步社交小組,而家星期六係本身讀緊幼稚園上興趣班,黎緊領思職業治療姑娘話可以由個人轉小組治療,因為阿仔進步左好多!真係多謝過來人無私既分享,等我地都可以跟住行
作者: Jjchow2015    時間: 15-4-27 16:33     標題: 回覆:a328 的帖子

Hi a328
Your sharing is very details and good.
My son is three and a half now and was not Autism fm cac but marginal case fm step when he was two and a half

After attending a year of social class, his social skills improved a lot

But he also has weak motoring and 大肌肉too and weak in writing too
We have attending 感统class in hh but not much improvement. Also attending some 體操class and hope can help a bit
What will u do to improve the fine motoring skills

My son also self talk a lot at home and we always need to stop him or draw his attention back
He can talk and think a lot even we ask him to wear shoes and turn out it takes 5mins to wear the shoes
Any suggestion about this?? Thanks for your sharing




作者: a328    時間: 15-5-20 14:38

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Hi, sorry i just read ur message now.
for hand mobile skill we have attend some short course provided by government hospital for 3-4 months, and we did but some marker pen for him to draw more at home on board, and join some art and craft class ( just normal class). i join one in kornhill is quite good, call attempt, i like the way they inspire the kid rather than just copy.

Also i have join some writing course during summer, i join the one in kidsmind, but u can look for other as well.

ur kids have sibling? actually after i give birth to the younger son, i saw most of the time they can play together, and try to make some fix playmate gathering to him at home, better a kid live close to you and willing to play and good in social skill, sometimes it more work than just join the class, hope it help




作者: Destination121    時間: 15-5-20 15:59     標題: 引用:回覆+armoimama+的帖子 Hi+Armolmama,I+ne

原帖由 a328 於 14-09-06 發表
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Hi Armolmama,
Hi, May I ask if your son can manage to speak 2 languages of Cantonese and English?




作者: evalove    時間: 15-5-20 17:04

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作者: a328    時間: 15-5-27 03:06

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Yes, my son can speak both cantonese and English and little bit of mandarin as well.
作者: Destination121    時間: 15-5-27 08:07     標題: 引用:回覆+Destination121+的帖子 Yes,+my+son+

原帖由 a328 於 15-05-27 發表
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Yes, my son can speak both cantonese and English and little bit of manda ...
Thanks. My son is marginal case and I started talking in English to him first. I am thinking if he can manage to introduce one more language as Cantonese. Do you have any tips about this from your son?




作者: a328    時間: 15-5-27 13:00

本帖最後由 a328 於 15-5-27 18:19 編輯

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It really depend on your son language ability, for me my son is strong in vocab  but a bit weak in long sentences. So his course is more related to how to structure the long sentences.
作者: Destination121    時間: 15-5-27 13:09     標題: 引用:回覆+Destination121+的帖子 It+really+de

原帖由 a328 於 15-05-27 發表
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It really depend on your son language ability, for me my son is strong i ...
Thanks. Where do u attend this kind of course to structure long sentence?




作者: a328    時間: 15-5-27 18:22

in wanchai kidsmind, by the way we just receive the call form government that watchdog will have class available for us, we have wait for 2 years almost, they seems have language course as well, will take a look.

but i live in Hk side so i choose all the centre are in Hk side, if you are in kowloon side, try to look for other centre close to you, yes attending course is good but long traffic is exhausting and not good for kids as well
作者: daibolam    時間: 15-5-28 01:00     標題: 引用:Some+people+often+make+use+of+the+psycho

原帖由 VILL 於 13-08-09 發表
Some people often make use of the psychological condition of the parents wth autistic kids to make m ...
有好多公司唔知點選擇。 我同老公都好想做多一點。 但不知從何入手。 同你當年一樣,想試alternative methods。 。




作者: Jjchow2015    時間: 15-5-28 22:02     標題: 回覆:a328 的帖子

My son is similarly to son! He can remember many English words but poor in long sentence even in Chinese
We are looking for ST for him and attend the HKU centre but it is really too far for us  especially for my son given we live in kln East and it will be exhausted to him if he need to attend speech therapy once a week and then go to school

I have enrolled an art class for him and seems do help him a lot given his school teacher is not patient enough

Does ur son have any daydreaming or concentration problem?? How to help him despite we have already attended OT for a year!!




作者: chingchingma89    時間: 15-5-28 23:45     標題: 回覆:A parent's sharing on autism treatments

My son who is suspected ASD interacts well with individuals and is quite concentrated in his ST and OT training classes.  But when he is in a classroom with 30-odd classmates, he seems like 遊魂 and just like an outsider.  Don't know how to deal with this or improve his concentration in a large group.




作者: Destination121    時間: 15-5-29 00:24     標題: 引用:in+wanchai+kidsmind,+by+the+way+we+just+

原帖由 a328 於 15-05-27 發表
in wanchai kidsmind, by the way we just receive the call form government that watchdog will have cla ...
Thanks. From having a bad eye contact to a good eye contact, do u think the most effective way is home training?  Or you think it should be related to ST or OT?




作者: a328    時間: 15-5-29 01:56

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Will you consider to choose those school have smaller group?
作者: a328    時間: 15-5-29 02:07

回覆 Jjchow2015 的帖子

Eye contact training shall not limited in class only, you should do it more often at home. Your kids have any hobbie or interested?  U need to focus on his interest to draw his attention first.
My son had attend some social class , those class do help on concentration as their traing is to learn how to listen to instruction, he is a bit weak I this area but have improve a lot, at least he have the intention on it.

Will TKS a bit far away from you? Via the art class my son is currently attending is in kornhill ( the building have many interest class) , the teacher is good and have review about ur kid situation after class. It will not just concentratr on drawing, have art and craft, cookery, playing with different material etc etc, the group is small, it is not a formal SI course but it content is very good and close to SI, you can take a look, this class also request interactive ad might have group project sometimes, which can help to develop the social skill.

Is he attending K school in HK side?

作者: Destination121    時間: 15-5-29 09:21     標題: 引用:回覆+Jjchow2015+的帖子 Eye+contact+trai

原帖由 a328 於 15-05-29 發表
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Eye contact training shall not limited in class only, you should do it more  ...
Thanks. Can you pls pm me the art class company name in TKS?  I live in Kowloon but not too far away to go to TAIKOO. Thanks again.




作者: chingchingma89    時間: 15-5-29 09:22     標題: 回覆:a328 的帖子

Yes.  May go to another school with experience in handling the autistic students.  At least the school can more accept those students and has more techniques in teaching them.




作者: a328    時間: 15-5-29 10:49

本帖最後由 a328 於 15-5-29 11:06 編輯

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pm you already, hope it help

作者: Jjchow2015    時間: 15-5-29 14:30     標題: 回覆:a328 的帖子

I live in kln side
What is SI? Can I have the name of the art centre?I want to look its summer schedule

My son has also attending social class
Maybe the class content is targeted for these kids or the teacher is professional, he can have good concentration in social class
But not the same case in other interest class and even going the tidy up things in school

My son is 3.5 yrs old now and the teacher in social class always said he is still young and cannot expect him too much! But he do have weak concentration at home and always self talk!




作者: a328    時間: 15-5-29 14:36

回覆 Jjchow2015 的帖子

Si is
sensory
integration
, some A kid need more training in this area and it will help in other training,
作者: Jjchow2015    時間: 15-5-29 15:50     標題: 回覆:a328 的帖子

Icic! It reminds me that the OT class seems did not provided those areas in ur art class!!
In fact, I am looking for summer course in int'l school for my son which have more these sort of games to play




作者: a328    時間: 15-6-1 14:21

let him play more playdoh at home, can improve his hand mobile skill
作者: a328    時間: 15-8-2 01:40     標題: 回覆:A parent's sharing on autism treatments

唔覺唔覺過了兩年時間,終於排到政府offer 既training, 亦再做咗一啲assessment 及同現在training centre 導師總結,結果如下:
- social skill is good,有interactive, 有禮貌,但好怕輸,好怕比較同比賽,輸咗有時便話唔玩,但情況好咗。但都suggest 試下幫佢報比賽面對下
- 大肌肉絶對advance.
- 小肌肉落後一年,所以會針對呢樣做training.
- 聽複雜instruction 較困難,例如功課或表演,呢方面會有一對一,因後年升小一,要好好預備
- speech 方面,針對phrasing, 話佢有講嘢同表逹意欲,但句子結構要下苦功了。
- 會繼續有小組及加多一個music therapy.
- 每半年review 一次。

呢兩年見到佢進步好感恩,雖然間中有失控但已好少及開始學識控制。連老師都話feel 唔到佢係A仔。

不過遲啲升小一又一個挑戰,要好好準備防止悪化。








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